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Posts Tagged ‘While I Still Can’

Dementia: Keeping Safe In Todays World – Project Life Saver

Keeping Safe In Todays World –

Project Life Saver

092314_ASR_project_lifesaver

For World Alzheimer’s Month Alzheimer’s Speaks Radio has done several additional programs, but todays show will be a full two hour show dedicated to “Keeping Safe in Todays World.  We will be highlighting Project Life Saver and how it can be utilized to live safely.

project lifesaver logoOur Guests Today Include:

project lifesafer gene suanders photoChief Executive Officer and Founder of Project Lifesaver International,

Gene Saunders

Mara Botonis Head ShotAuthor Mara Botonis of “When Caring Takes Courage”

Mara botonis High Res Version of Front Cover (2)

rick phelps with samRick Phelps, diagnosed with dementia and founder of “Memory People”

& Author of “While I still Can”

MP final logoharry_urban Harry Urban, diagnosed with dementia and founder of “Forget Me Not” on Facebook

forget_me_not_logo_finall_030613Michael Ellenbogen, diagnosed with dementia and national advocate & Author of “From The Corner Office To Alzheimer’s”

michael_ellenbogen_videoEveryone is welcome to join the conversation on this very important topic. You can use the chat box or call in live to communicate with us.

We would also appreciate your efforts to share this episode with family, friends and colleagues on FaceBook, Google Circles, LinkedIn, Twitter and more.

For additional information on dementia and caregiving check out

Alzheimer’s Speaks below

alzsnap_serv_072413

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Rick Phelps & Leeann Chames on

Alzheimer’s Speaks Radio-

Just click on the triangle in the circle above to listen tot he show.

 Alzheimer’s Speaks Radio Tuesday July 17

Rick Phelps Founder of Memory People and his Executive Director Leeanne Chames join Lori La Bey on Alzheimer’s Speaks Radio.

 

 

 

 

 

We discussed Rick’s Interactive Videos Conferences for  Support Groups as well as Professionals wanting to learn more about dementia from a person who has it.

We talked about Rick’s new book “While I Still Can.”

 

 

 

 

We got an update on “Sam” Rick’s Dementia Service Dog that is being trained to assist him.  Sam will be joining the Phelps family in September. I am looking forward to the transition and hearing step by step how things go for Rick and Sam.   If I remember right Rick mentioned 60minutes is interested in following this meetup!  We also discussed Oprah’s interest in covering caregiving angles such as the one they contacted me on – Transitional living – when a parent moves in with a child or visa versa to accommodate care.

 

We also chatted on our new FREE webinar series  “Dementia Chats – While We Still Can.”   This is a platform where I interview people living with dementia like Rick Phelps and Harry Urban.  Harry is picture here.  The goal is to raise awareness and remove the stigma of dementia by openly talking about the disease in a non script mode engaging our audience to participate in asking questions and making comments.  Everyone is welcome.  I will keep you posted on the next session and where you can get the record sessions to listen at your leisure.

So many exciting things going on to assist those dealing with dementia!

I just love my job.  Do you like yours?  Have you found what you are passionate about?  If not,  I encourage you to do so.  Work doesn’t feel at all like work when you love what you do.

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We Will Discuss Genetics & Alzheimer’s Disease

Plus Get An Update From Rick Phelps, Founder of Memory People

One known Alzheimer’s risk factor is family history, and research has shown that those who have a family member with Alzheimer’s are more likely to develop the disease.  Our understanding of genetics is rapidly evolving and research is now working to identify ways that genetics may be used in the diagnosis of Alzheimer’s.

The Alzheimer’s Association, New York City Chapter is hosting an event featuring a panel of experts who will engage in an interactive discussion on the role of genetics in Alzheimer’s disease, including how genetics is influencing diagnosis and research today on Wednesday, March 14.  The Role of Genetics in Alzheimer’s Disease: An Evolving Landscape

Our guests today will share with us what panel discussed at the conference.

Dr. Richard Mayeux, Chairman, Department of Neurology and Co-Director, Taub Institute for Research on Alzheimer’s Disease and the Aging Brain, Columbia University

Jennifer Williamsonworks closely with Dr. Mayeux at Columbia University as a genetic counselor at the Taub Institute for Research on Alzheimer’s Disease and the Aging Brain at Columbia University

http://www.cumc.columbia.edu/dept/taub/

The 2nd half of the show will feature Rick Phelps, Founder of Memory People and Gary Joseph LeBlanc, Author.  Both will be sharing some exciting ventures.

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Today I interviewed Marc Wortmann of Alzheimer’s Disease International and we wrapped up with Rick Phelps Founder of Memory People on Facebook updating us on some of his ventures to raise awareness for dementia.

Marc Wortmann is the Executive Director of Alzheimer’s Disease International, known as ADI.

Today Marc will share ADI’s vision and mission with us.  We will learn about the similarities as well as the differences between his organization and other organizations, but most importantly we will hear how we can work together as a global force to shift our dementia care culture.

ADI’s Next Conference will be:
27th International Conference of Alzheimer’s Disease International,

March 7th-10th, 2012, London, UK.

The theme is: Science, Fact, Fiction

Conference website: http://www.adi2012.org

Early registration deadline: 13 January 2012.

Rick Phelps Founder of Memory People will also share his updates with us as well towards the end of the show.

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