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Posts Tagged ‘Vascular Dementia’

Life with Dementia. What is it Really Like?

 Life with Dementia.  What is it Really Like?

on Alzheimer’s Speaks Radio

Today we are lucky to have Brian Van Buren is a 66 year old black gay man living in Charlotte NC., who was diagnosed with vascular dementia and later Early Onset Alzheimer’s in 2015. Come listen and learn from his journey with dementia.

Contact Information For Brian Van Buren:

Email:  brpvb@aol.com

Learn how you can host a screening and talk back of “His Neighbor Phil.”

What a great success Move for Minds was on June 4th!

Thank you Maria Shriver for you passion to improve dementia awareness, education and research.

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Living with Dementia – What is it Really Like?

Living with Dementia –

What is it Really Like?

on Alzheimer’s Speaks Radio

050417 ASR Graphic Brian Van Buren

Today we are lucky to have Brian Van Buren is a 66 year old black gay man living in Charlotte NC., who was diagnosed with vascular dementia and later Early Onset Alzheimer’s in 2015. Come listen and learn from his journey with dementia.

Contact Information For Brian Van Buren:

Email:  brpvb@aol.com

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Support This Amazing Event By Maria Shriver

Sponsor Me – Making a Donation

Or Come visit Me In Orange County, CA

Or Become a Participant Yourself!

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Talk With Lori La Bey of Alzheimer’s Speaks on

How You Can Host This 90 Minute film and Talk Back

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The Purple Angel Project & NAPA

The Purple Angel Project & NAPA

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The New Global Symbol for Dementia

Finally a symbol for dementia that can be recognized around the world, with no language barriers!

We need as many people as possible to send a letter of support to NAPA (National Alzheimer’s Project Act) asking them to get behind and support the Purple Angel symbol which is the new global symbol for dementia.  No longer is it acceptable for countries, organizations or individuals to be divided on this issue.  The disease touches far too many people, both those diagnosed as well as their family, friends and co-workers.  It is in the worlds best interest to join forces and use one symbol to describe and help raise awareness for the various types of dementia:  Alzheimer’s disease, Lewy Body Dementia, Frontotemporal Dementia, Vascular Dementia and all the others.

SEND NAPA AN EMAIL SUPPORTING THE PURPLE ANGEL

napa@hhs.gov

Note in the subject line “PLEASE SUPPORT THE PURPLE ANGEL PROJECT”

If you are not familiar with the Global Purple Angel her is a bit of information about why it was designed and who started this movement. The goal of the symbol is very simple:

  • To raise awareness and education of all types of dementias.
  • To show support for those dealing with all types of dementias; both those diagnosed as well as those that care for them.
  • To remove the fear, isolation and stigmas associated with the disease.
  • To become a global symbol for dementia that has no language barriers.
  • To have the “Global Purple Angel” become as well known and accepted as the “Pink Ribbon” for breast cancer, allowing people to live with dignity.
  • To provide an economical way to work in collaboration.

This purple angel symbol can be used by anyone who is raising awareness of dementia anywhere in the world. The symbol has been developed by people with dementia and carers, and is not connected to any established organization.

The purple angel symbolizes a guardian over those living with dementia, as well as their families and friends, but also as a helper to all those working so hard to raise awareness of dementia around the world.

Jane Moore, a carer from Camelford, and Norrms McNamara, who has dementia and was a driving force behind the creation of the first dementia friendly community in the UK, produced the original design. Lynette Richards and Jeff Talbot produced the global version. They own the designs, but have given permission for the symbol to be used freely by anyone who is raising awareness of dementia, as long as they get feedback about how it is used.

For More Information On The Purple Angel Project And How You Can Get Involved, Please Visit Our Website Below For More Details.

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Sandy Halperin, has Dementia.  He is a strong advocate for the disease as is his daughter Karen Halperin Cyphers, who has her Ph. D.  Karen wrote a great article called “From a daughter’s perspective,” which was published by the Florida Medical Association.  In this article Karen’s lists a guide for physicians working with those with Early Stage Alzheimer’s Disease.  I think it is good information for all of us to know and pass along.

Click on the graphic below to bring you to the full article

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I would love to hear your thoughts on the article? 

Are the other things you think the medical profession needs to do differently or consistently?

Personally, I think this article is worth cutting out and giving to every physician. 

They need much more training and information on dementia then they are getting.

 

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