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Posts Tagged ‘Vanessa Campagna’

Here is the Dementia Chats Recording for December 23rd, 2014

Here is the Dementia Chats Recording

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December 23rd, 2014

Today we had a great spontaneous discussion with our experts living dementia. Harry Urban and Robert Bowles below where on video. Dena Dotson participated with wonderful comments and questions via the chat box today.

Our Primary Conversations Covered:

Family dynamics and dementia

The importance of social interaction and connection

What happens when the disease changes

We had fun listening to the “Little Drummer Boy” by Vanessa Campagna at the end of the webinar from the Memories – The Songs and Spirit of Christmas by Alzheimer’s Music Connect.

Harry_with_santa_hatHarry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

Robert Bowles Pharma PicRoberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dena Dotson picDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

Check Out The Fantastic Music From

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Need Information on Dementia & Caregiving?

Click Below

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Dear Santa… A Child’s Wish For Christmas At Grandma’s House

santa reading letters

Dear Santa,

Last year I asked you if you could help us have Christmas at Grandma’s house. We had it at what mommy calls ‘the home” instead. It just isn’t the same Santa. Mommy says that’s just the way it is. We are going there again this year because Grandma is still sick. I know she has doctors, why can’t they fix her so we can have her at home? A little while ago, I don’t think she knew who I was and I was her favorite she always whispered to me.

Maybe you can fix her Santa. I miss her smile. My mommy cries and says “that’s just the way it is” I miss Christmas at Grandma’s. The home just isn’t the same. There are some people there that scare me. There are some who just sit there and never move. Mommy says Christmas is about Jesus being born and not about you. She talks a lot to Jesus lately. She talks to him about Grandma, but still cries. We all want to know why Grandma got sick, mommy asks Jesus all the time. I don’t know why daddy left us two years ago. Mommy says he didn’t like how much time and money she was spending on Grandma. Santa why can’t we just have a Christmas at Grandma’s house as a family like we used to?
Anonymous Loving child

Use Music to Engage those with Dementia

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Alzheimer’s Music Connect has some beautiful music to ease the pain of dementia and help you create some wonderful moments, which will last a life time.   I only which my mother was still alive,so I could share with her the new Christmas CD they just released – Memories – The Songs and Spirit of Christmas.  I know she would have loved listening to it, even though the last four years she could no longer sing the words.  Holiday music always put a smile on her has and she would release small giggles of joy as she listened to the music and tapped her fingers and toes to the rhythm.

Click here to listen to some samples of the CD or MP3.

Alz music Connenct MemofChristCover2Click Here to buy the MP3

Altus Oscillation Enhanced Music. Electroencephalography (EEG) testing, which measures electrical impulses occurring in the brain, of this patent pending process conducted with Alzheimer’s and Dementia sufferers, included some or all of the following results:

  • Amplified brain activity in the frontal or parietal lobe;
  • Greater alertness to the present moment;
  • Demonstrated calmness and contentment;
  • Became animated by singing or humming along with the music; and
  • Showed increased brain activity.

Altus Oscillation™—enhanced music will have the same effect on non-Alzheimer’s/Dementia listeners.

Here is a collection you can listen to year round.

Alz Music connect variety pack coverHere is what you will find with this collection.

CD 1: Big Band Medleys (New York City Studio Orchestra) of Al Jolson, Roseland, Boogie Woogie, Dixieland, Palladium Days, Perez Prado – Tito Puente Latin,  Be Bop For Dancing, Stan Kenton (Includes 42 hit songs such as Boogie Woogie Bugle Boy, Woodchoppers Ball, S’Wonderful and The Saints Go Marching In. [Playing time: 43:34]

CD 2: The Vocal Standards Collection (The Glenn London Quintet) has 15 hits including Blue Moon, Night and Day,  I’m Looking Over a Four Leaf Clover and Sentimental Journey. [Playing time: 46:44]

CD 3: Instrumental Medleys (The Cherry Valley Trio) features 30 all-time favorites such as An Affair To Remember, The Days Of Wine And Roses, Summertime, I Got It Bad, September Song, When You Wish Upon A Star, Ebb Tide and Georgia On My Mind. [Playing time: 52:04]

CD 4: Light Classical Favorites (Molly Stier, piano) include piano works of Bach, Beethoven, Brahms, Chopin, Haydn, Mozart, Schubert, Schumann and other masters. [Playing time: 61:27]

CD 5: Meditation for the Caregiver (Michelle Elan) has 12 soothing and restful tracks — Angel Air, Heaven Tonight, Featherbed,  Gentle Breath, The Dreamer and more. [Playing time: 53:48]

“Accepting the Challenge — Providing the BEST CARE for PEOPLE with DEMENTIA” (Teepa Snow) [Viewing time: 2:39:09]

This multi-disciplinary training program is used throughout the world to help both professional and family Caregivers provide the best dementia care possible.Its content, divided into 4 modules, provides interactive classroom lectures and demonstrations including interactions with people with dementia.

Divided into four separate modules for progressive learning, Accepting the Challenge provides training on multiple levels for all learning styles. Interactive classroom lecture and demonstration, for example, is followed by on-site interactions with actual assisted living residents to show both the use and effectiveness of the techniques.

Each training module is 45 minutes and covers these important topics:
Module 1: What is Dementia? / Symptoms of Alzheimer’s
Module 2: Physical Approach / Communication Skills
Module 3: Offering Assistance / Evaluating Cognitive Levels
Module 4: Meaningful Days (Activities) / Problem Behavior

The DVD also features review capabilities for specific segments within each module and a testing section that allows learners to demonstrate proficiency and receive continuing education credits for dementia-specific training. This valuable training DVD was produced by Alzheimer’s North Carolina, Inc.

For Additional Resources on Dementia and Caregiving

Click Below

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Remember I Can’t Remember Authors, Plus The Remember Together Program by AFA

Join The Conversation On

ALZHEIMER’S SPEAKS RADIO

112514 ASR REmember I can't Remember and AFAClick Above To Go to The Show

Live at 11am EST, 10am CST, 9am MST, 8am PST

and 4pm London Time!

Alzheimer’s Speaks is an advocacy group promoting awareness and education to all around the world. We believe all voices need to be heard if we are to make a shift in our care culture.

eric heather anderson picOur first guests will be Eric and Heather Anderson, Authors of “Remember I Can’t Remember.”  Through their life journeys, caregiving has been one of most amazing and fulfilling one they have ever experienced. Learn how and why this happened.

eirc heather book coverWe hope you will join the conversation!

Contact Eric and Heather           Website

 

 

 

 

 

 

 

OLYMPUS DIGITAL CAMERAWe are lucky to have as our second guest Charles Fuschillo, president and CEO of the Alzheimer’s Foundation of America.  We will discuss their highly successful Memory Screening and their “Remember Together” Programs; along with other efforts shifting our dementia care culture.

 

Contact the Alzheimer’s Foundation of America

AFAlogo HIRes

Website      Phone: 866-232-8484      Facebook

Great In The Christmas Spirit

Click Below

combineid AlzMusCon logo and CDFor CD Click Above

For an MP3 Click Here

For additional information and resources

Click Below

Become A Purple Angel

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A Note From Norrms on The Purple Angel

happy 1st birthdayTo All Purple Angel Ambassadors across the globe:

 A VERY HAPPY 1st BIRTHDAY!    

 

 

A HUGE THANK YOU TO EACH AND EVERY ONE OF YOU FOR ALL THE HARD WORK YOU HAVE PUT IN THIS YEAR AND TO THOSE WHO HAVE WORK PLANNED FOR NEXT YEAR!

NORRM, ELAINE AND I ARE SO PROUD!

SPECIAL THANK YOU TO LAWRENCE KELLY, CEO OF OSTRICH CARE TOGETHER WITH JULIE AND ELAINE FOR CREATING THIS BIRTHDAY WITH A CELEBRATION OF THE FIRST 50 PURPLE ANGEL AMBASSADORS HELD ON 16TH NOVEMBER, 2013!

 

THIS HAS BEEN A FANTASTIC YEAR!

Check out this link to see the progress being made.

For more information on the Purple Angel Project

US Click here

UK Click here

For More Information on Dementia & Caregiving

Click Below

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Looking for Great Holiday Music?

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Glen Campbell’s Film “I’ll Be Me” Is Out And Worth Seeing!

Glen Campbell’s Film

“I’ll Be Me”

You Will Laugh and Cry,

But Most Of All

You Will Be Touched

By This Powerful Film

Call a theater close to you to find out if the movie is playing.

If Not, Let Them Know It Should Be!

Normally, I’m not a big fan of celebrity advocacy for dementia.  I know many will say big names equal a big following, but when it comes to dementia we need more then people showing up one time for a performance to be entertained.

We need people that are going to be emotionally touched by a celebrity performance or advocacy. Touched in a way that lasts long beyond walking out of a theater or event.  One which shifts their perceptions and educates them at the same time.  One that makes people think.  One having a strong impact getting people wanting to discuss what they have just experienced.  One that ignites a passion to join a cause effecting so many.  One that develops compassion and creativity to make a difference.

Glen Campbell’s Documentary, “I’ll Be Me,” Does Just That! 

Kudos to Glen, his wife Kim, his children, friends and peers in the music industry.  Each of you played a powerful role in raising awareness for Dementia.  You showed the true impact this disease has on everyday relationships. How it changes lives no matter who you are. How popular you’ve been or are, how much money made or currently have, where you live, how old you are… and the list goes on….

Nothing Can Protect You From This Disease. 

My hope is that one day soon one of the many big names in this film will take the bull by the horns and pull together a fund raising single, like a “We Are The World,” the benefit single for victims of famine in Africa. It raised over $60 Million, which was distributed to Ethiopia, Sudan, and other impoverished countries.  Or better yet maybe a “Live Aid Concert for Dementia!”  With so much talent, being just as vulnerable to this disease as the rest of us, they could truly make a huge impact on finding a cure and providing support services for those living with the disease.

Just a few of the stars featured in this film who know and love Glen Campbell are:  Bruce Springsteen, Bill Clinton, The Edge, Paul McCartney, Jay Leno, Vince Gill, Jimmy Webb, Blake Shelton, Sheryl Crow, Keith Urban, Brad Paisley, Steve Martin, Chad Smith and Taylor Swift.  If you know any of these influential people or others in power positions, please reach out to them and have a conversation about pulling a star studded group together to raise funds to improve lives of people around he world. It is done all the time for major disasters.

 This Is A Major Disaster. 

It just doesn’t happen to be weather or war related.  This is an international health crisis which will touch everyone in their lifetime on some level. A person every 4 seconds somewhere in the world is diagnosed with dementia. The numbers are frightening and our budgets to dealing with both research dollars and social support are embarrassingly low!  It is time to come together as world.  To join forces to improve lives and really make a difference.

There Is No Escaping It!

Here is where the show is playing in my area in Minnesota

Marcus Theater – Oakdale, MN

AMC Southdale – Edina , MN

Regal Brooklyn Center Stadium 20 – Brooklyn Center, MN

lori_with_radioFor all of those involved or who wished they would have been involved in this film, or for those like me who just saw the the film; I would love to have you on Alzheimer’s Speaks Radio to discuss why you felt this was an important film and how it had an impact on your life, what you are willing to commit to, to help raise awareness and educate others or to help support those dealing with the disease.  What you would like to see in the future regarding dementia. What ideas do you have to make a difference to help shift our care culture?

Contact Lori La Bey, founder of Alzheimer’s Speaks to be part of a radio show.  I would actually love to set a special 2 hour show to allow people time to reflect and share their thoughts across the globe.  For those of you that know me, you know I feel strongly about having open and honest conversations which allow us to shift our care culture for Dementia from Crisis to Comfort.

Kudos to the Glen Campbell family and those involved in making this incredibly honest film.  What a beautiful gift to the world this was.

I’m sure the family has taken some heat for exposing this disease and what some might say as “using” Glen in the process.  I know what that feels like. It’s awful.  My own mother had the disease for 30 years.  We had plenty of time to discuss how to leverage an awful disease, an awful situation and make it beneficial to others. There is power in having purpose.  Glen shinned through in this film even as the disease nibbled away at him.  Glen had purpose.  He was able to link to what he loved and could do it way longer then the doctors ever imagined possible. Sharing true loving stories of real life is never a bad things, once we step outside our egos and understand it’s for the greater good.

Again, I say “Kudos Campbell family for having the strength and courage to make Glen’s life full as well as his family, friends and fans doing what he loved for as long as he could.”

Dementia Knows No Boundaries.

We Shouldn’t Either.

So Join the Global Cause

To Shift Our Dementia Care From Crisis to Comfort

SocialMedia081114_purpleangel_carousel TMClick Above To Learn More About The Purple Angel Project

A Big THANK YOU To National Tour Sponsors

Of  “I’ll Be Me”

PointClickCare, Pathway Health, CliftonLarsonAllen, Covenant Health Network, HJ Sims, Essential Decisions, Inc., Attitude Edge Companies, Messerli & Kramer P.A., Disney Family Fund, Easter Seals, Leading Age and to our Minnesota Sponsors where I saw the film: UCare, Volunteers of America, Mayo Clinic, Open Heart Foundation and Aging Services of Minnesota

For More Information On Dementia and Caregiving

Click Below and Check Out Alzheimer’s Speaks

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Click Below For a Special Holiday CD

Designed With New Technology

For Those With Dementia

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Long Distance Caregiving and the Power of Music with Alzheimer’s Music Connect

Alzheimer’s Speaks Radio

with Author and Long Distance Caregiver Lisa Hirsch and

Alzheimer’s Music Connect Ron Gregory, CEO and

Singer Songwriter Vanessa Campagna

Live Tuesday October 28th

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

102814 ASR lisa hirsch alz music connectClick above to go to the show

Alzheimer’s Speaks gives voice to all dealing with a variety of types of dementia and caregiving.  Today we have two power guests with great insights and resources to make life with dementia easier.

Long Distance Caregivers Are Encouraged To Call In With Your Questions

lisa hirsch Mom-nursing homeOur first guest is long distance caregiver and author of Alzheimer’s My Mom My Hero, Lisa Hirsch who has been living the role of long distance caregiver for her own Mother and helping thousands of caregivers around the world. Lisa’s book and blog is God sent for many struggling in their role as care partners.

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Purchase MY MOM MY HERO – A mother & daughters new found love
Lisa’s Blog     Lisa on Facebook

ALz Mus Con Vanessa picThe second half of the show we will be talking with Ron Gregory CEO of Alzheimer’s Music Connect and singer songwriter Vanessa Campagna who is featured on the new holiday CD, “Memories – The Songs and Spirit of Christmas.”  The CD is amazing and has technology behind it to help those diagnosed and dealing with dementia. Vanessa’s website.

 

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For additional information on Dementia and Caregiving

Click Below

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