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Posts Tagged ‘USAgainstAlzheimer’s’

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

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Trish Vradenburg

May Trish’s  family and friends feel the love and support the world is sending them

Trish’s Deep-Rooted and Unflinching Passion to Fight Alzheimer’s Creates Admirable and Aspirational Legacy

UsAgainstAlzheimer’s Co-Founder and Vice-Chair Trish Vradenburg’s unflinching spirit – her creativity and imagination, quick-witted humor, empathy, generosity and her exceptional tenacity to stop the suffering of others – was captured in her every action. It is with immense sadness that UsAgainstAlzheimer’s announces her passing, and it is with the utmost gratitude that the organization cherishes her legacy and forges ahead in her memory.

Trish’s life was an inspiring portrait of creativity and versatility, employing her gifts of writing and storytelling throughout a successful professional career. She began her career as a speechwriter in the U.S. Senate. She wrote for various television shows, including Designing Women, Family Ties and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages.

As a journalist, she wrote extensively for The New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play about a sitcom writer and her mom battling Alzheimer’s disease together, was produced at The Kennedy Center in Washington, D.C., and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Brazil.

Founded with her husband George Vradenburg, UsAgainstAlzheimer’s was born out of their passion to fight back against Alzheimer’s disease, which Trish’s mother, Bea Lerner, the wife of her father Joseph H. Lerner, succumbed to in 1992. Trish’s unique whimsical style, the perfect complement to George’s more serious side, was instrumental in leading the organization on a path to make meaningful progress against a disease that caused their family so much pain.

Trish was a gifted and relentless advocate. She helped achieve increased funding for Alzheimer’s research and build a growing public-private consensus that a cure for the disease must be reached by the year 2025. Recently, she spearheaded the launch of the Alzheimer’s Party, imploring members of Congress to join a bipartisan movement to end Alzheimer’s disease.

Trish also served on the Council of Theater J and on the boards of DC Vote and the Vradenburg Foundation.

This Power House Couple Will Be Missed

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Trish and George Vradenburg

She is survived by her adoring husband George; daughter Alissa Vradenburg and son-in-law Michael Sheresky of Los Angeles, CA; son Tyler Vradenburg and daughter-in-law Jeannine Cacioppe Vradenburg of Chicago IL; grandchildren Harrison Sheresky, Skyler Sheresky, May Vradenburg and Gavin Vradenburg; and her brother Rabbi Michael Lerner and sister-in-law Cat Zavis of Berkeley, CA. She was preceded in death by her father, Judge Joseph H. Lerner, and mother, Bea Lerner.

Private family funeral services will take place later this week in Los Angeles, followed by a public memorial service in Washington, D.C., on May 9 at a venue to be determined. Family and friends will be honoring Trish’s legacy; details will be shared as they become available.

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UsAgainstAlzheimer’s is an innovative, patient-centered non-profit demanding – and delivering – a solution to Alzheimer’s. Driven by the suffering of millions of families, UsAgainstAlzheimer’s presses for greater urgency from government, industry and the scientific community in the quest for an Alzheimer’s cure – accomplishing this through its own patient-centered effective leadership, collaborative advocacy and strategic investments.

Founded in 2010, UsAgainstAlzheimer’s has worked across sectors to: (1) secure the national goal of preventing and effectively treating Alzheimer’s by 2025; (2) help secure nearly $1 billion in additional public funding for Alzheimer’s research over the past few years; (3) drive global efforts that resulted in the leaders of the world’s most powerful nations, the G7 group, to embrace a similar 2025 goal and to call for greater levels of research investment and collaboration; (4) transform the system of Alzheimer’s clinical trials for greater speed, efficiency and quality; and (5) forge a global process of industry, regulators and payers to bring greater clarity to the approval and payment of innovative medicines for Alzheimer’s.

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Fighting Alzheimer’s – Join The Cause

Fighting Alzheimer’s

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The Fighting Alzheimer’s Campaign 

Alzheimer’s Speaks recently participated in Mediaplanet’s Fighting Alzheimer’s campaign where we united with likeminded industry leaders to raise awareness about the need for increased funding for research, how to better the lives of those living with Alzheimer’s and how to assist their families and caregivers. The campaign was distributed through USA TODAY on November 28th 2016 and is now published online. For the full campaign, visit: futureofpersonalhealth.com.

Featured in this special section along side of Alzheimer’s Speaks you will hear from some of the great leaders fighting dementia such as:

Maria Shriver with The Women’s Alzheimer’s Movement,

George & Trish Vradenburg from USAgainstAlzheimers, 

Dr. Eliezer Masliah, M.D, and Director of the National Institute on Aging Division of Neuroscience and Paula Hunter a caregiver for both parents who had Alzheimer’s and she is committed to being involved with clinical trials,

The Alzheimer’s Steadfast Study,

ClinicalTrails.Gov,

Namzaric,

The Alzheimer’s Foundation of America,

Lou-Ellen Barkan President and CEO of CaringKind,

The Alzheimer’s Association and

The Triad Research Study.

Below is the article which features

Lori La Bey of Alzheimer’s Speaks.

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  Additional Resources Provided by Alzheimer’s Speaks

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Voices of Those Diagnosed with Dementia

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia.

Watch The New Dementia Chats Video

Today we discussed Dementia & Caring For Pets . Is It A Good Fit?  We discussed the reality of being around pets… the good, the bad and the ugly.

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U.S. Department of Defense studies TBI and Alzheimer’s

U.S. Department of Defense Studies

TBI and Alzheimer’s

This is a great video from Mara Botonis, who works with UsAgainstAlzheimer’s. Above you will hear Mara talk about the DoD Peer Reviewed Alzheimer’s Research Program (PRARP). What a great initiative!

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Check Out Below For Additional Resources 

On Dementia and Caregiving

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Wicker Introduces Bill to Help Combat Alzheimer’s Disease

Wicker Introduces Bill to Help Combat Alzheimer’s Disease

Legislation Would Award Prizes for Breakthroughs in Research, Detection, and Cures

WASHINGTON – U.S. Senator Roger Wicker, R-Miss., today unveiled his legislation to create prize-based incentives to encourage more public-private collaboration in the fight against Alzheimer’s disease and other causes of dementia. The “Ensuring Useful Research Expenditures is Key for Alzheimer’s (EUREKA) Act” would not replace other funding and research initiatives for Alzheimer’s but add another route for breakthroughs. The bipartisan bill is cosponsored by Sens. Shelley Moore Capito, R-W.Va., Angus King, I-Maine, and Brian Schatz, D-Hawaii.

“America has always been the home of groundbreaking innovation,” Wicker said. “We compete to create, build, and make a difference in people’s lives. The ‘EUREKA Act’ seeks to channel this pioneering spirit through competition to help us better understand, detect, and ultimately cure Alzheimer’s disease. Given today’s budget constraints, it is important to find a way to supplement existing funds to further this critical research.”

The National Institute of Health (NIH) has set a goal of curing Alzheimer’s by 2025. Today, Alzheimer’s is the most expensive disease in America and has a 100 percent fatality rate. According to a report released earlier this year, caring for people with Alzheimer’s disease and other dementias is estimated to cost the United States $226 billion in 2015, with one in five Medicare dollars spent on an Alzheimer’s victim. Unless a cure is found, treatment costs are expected to grow to an estimated $1.1 trillion by 2050.  In Mississippi, 12 percent of senior citizens have Alzheimer’s. The number of victims is expected to rise 27.5 percent by 2025, increasing from 51,000 to 65,000.

The EUREKA Act is an important step in the right direction. It will spark smart public-private partnerships and leverage America’s best minds toward ending this cruel disease once and for all.

We can make sure it passes and make real progress toward a cure – but only if you speak out today.

Click here to add your name and tell the Senate to pass the EUREKA Act and help us find a cure faster!

Wicker’s legislation is supported by the XPRIZE Foundation, Alzheimer’s Foundation of America, UsAgainstAlzheimer’s, Alzheimer’s Association, Eli Lilly and Company, BrightFocus Foundation, and the MIND Center at the University of Mississippi Medical Center.

“This legislation, which will reward researchers who meet certain milestones in Alzheimer’s disease drug development with cash prizes, will help spur innovation and accelerate discovery of a cure or disease modifying treatment,” said Charles J. Fuschillo, Jr., President and CEO of the Alzheimer’s Foundation of America. “We, as a nation, still must work to make Alzheimer’s disease research a national priority and make it’s funding on par with other major disease states.”

“We applaud Senator Wicker for advancing an innovative approach to preventing and treating Alzheimer’s disease by 2025,” said George Vradenburg, Founder and Chairman of UsAgainstAlzheimer’s. “The EUREKA Act would spark smart public-private partnerships to leverage America’s best minds with the great work at NIH in a fiscally responsible manner. We look forward to working with Senator Wicker to advance the EUREKA Act into law.”

“An advance in Alzheimer’s research has the potential both to save millions of lives and billions of dollars for the nation’s public health programs,” said Robert Egge, Executive Vice President of Alzheimer’s Association. “With the cooperation of the medical and research communities, we are at a tipping point. We have the ideas, the technology and the will, but we need a focused commitment from the federal government, including robust support for Alzheimer’s research at the National Institutes of Health.”

“This is a time of great and deserved hope in dementia as Congress and the National Institutes of Health have begun to address chronic underfunding of research,” said Ian Kremer, Executive Director of Leaders Engaged on Alzheimer’s Disease. “The Act’s focus on pay for success highlights that we need not only more research but better research, research that changes the lives of people living with dementia today and that reduces or eliminates the risk of people having to live with dementia in the future.”

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“Senator Wicker has been a champion for Alzheimer’s research and related public health policy,” said Patty Dunn, Executive Director of the Alzheimer’s Association Mississippi Chapter. “We applaud his commitment to support a robust National Alzheimer’s Plan by cosponsoring the successful Alzheimer’s Accountability Act and encouraging increased research funding for the National Institutes of Health. Our advocates work closely with his office and appreciate Senator Wicker’s introduction of the innovative EUREKA Act and its goal of advancing research breakthroughs for Alzheimer’s disease.”

The EUREKA Act would authorize the Director of the NIH to work with other federal agencies to establish prize challenges informed by the research milestones contained in the National Plan to Address Alzheimer’s Disease. Challenges could focus in a number of areas including:

Identification and validation of Alzheimer’s biomarkers;
Development of non-invasive and cost-effective early detection and diagnostic tools;
Repurposing of existing drugs to address Alzheimer’s disease; and
Development of new tools and approaches to care for persons with Alzheimer’s disease.

An advisory council that would include experts in organizing and managing such challenges as well as patient advocates and industry representatives will be constituted to determine the competitions, while a separate judging panel will evaluate submissions and make recommendations for awards to the Director of NIH.

Prize challenges enable government sponsors to pay only when a prize team achieves specified goals or milestones. Although funds will be authorized and reserved for awards, prizes will only be granted when teams achieve clearly defined objectives, making the EUREKA Act a cost-effective tool to support the pursuit of the 2025 goal. Additionally, EUREKA would permit the receipt of donations from the private sector and from individuals to fund the competition and build the award fund.

We can make sure it passes and make real progress toward a cure – but only if you speak out today.

Click here to add your name and tell the Senate to pass the EUREKA Act and help us find a cure faster!

For More Information on Dementia and Caregiving

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UsAgainstAlzhiemers -Alzheimer’s Talks Conversation May 16

USAgainstAlzheimers_LogoResearchers have discovered a first-of-its-kind blood test for Alzheimer’s disease that can predict – with 90 percent accuracy – if a healthy person will develop this cruel disease within three years.
Dr. Howard Federoff, the Executive Vice President for Health Sciences and Executive Dean of Georgetown University School of Medicine, led the team and will brief us in our next Alzheimer’s Talks conversation on May 16 on why his biomarker study is a potential game-changer.
The possibility of catching the disease before a patient ever shows symptoms brings us even closer to finding effective means of prevention. A blood test will enable us to identify people who will get Alzheimer’s disease and give them a drug to prevent symptoms. That’s why Dr. Federoff’s work is so essential to moving toward our 2020 goal.
I hope you can join me to be briefed by Dr. Federoff about his preliminary – but potentially consequential – findings and what they could mean to our mission to stop this disease. Click the button below to register for our call on Friday, May 16, from 1 p.m. – 2 p.m. ET.

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This call is made possible by the generous support of the Zickler Family Foundation. I hope to talk with you soon, and thanks for being a part of our mission to end Alzheimer’s by 2020.

P.S. Please note that everyone who registers will be called on Friday, May 16 around 1:00 p.m. ET and will be connected automatically to the free teleconference.

For Additional Resources Check Out Alzheimer’s Speaks Below

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Great Article

by Trish Vradenburg of UsAgainstAlzheimer’s

Trish'sBlog_logo_us_against_alzIt was also published on the Huffington Post

The one constant about life is that it is always changing. This dynamic is particularly acute around the holidays. USAgainstAlzheimer’s recently asked some of our supporters, who are on the front lines and live this disease every day, for advice on how to tackle this challenging time and create new memories. Here’s what they told us:

1. “Keep your expectations reasonable. Prepare for the worst and hope for the best. Holidays won’t ever be the way they used to be and every year will be different. But that doesn’t mean they have to be bad. Enjoy the great moments you can still have.”

2. “It’s great if your loved ones are able to communicate their needs to you. But make sure you create a comfortable and nurturing environment for them to be able to share those needs. Ask them direct questions so they have an opportunity to tell you what is best for them.”

READ MORE and get the other 14 tips!

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FOR MORE RESOURCES CHECK OUT OUR WEBSITE BELOW

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Click Above to Access the Show Live or Later

Tuesday Sept. 10th, 2013

11am ET 10am CT 8am PT 4pm London

trish V usagainst alz head shot (2)We are honored to have Trish Vradenburg the co-founder of USAgainstAlzheimer’s, a national advocacy campaign and network.  She is also a playwright.  Her play “Surviving Grace,” is a comedic/dramatic homage to her mother, who succumbed to Alzheimer’s.

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Play     Website     Facebook

james_crease_2_playing_croquet2nd Guest, James Creasey is the founder of JimnyWikcket, a new adaptive croquet game which engages people, leverages intergenerational participation and raises awareness.

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3rd Guest, Kirti Khalsa is the Chief Operating Officer of Alzheimer’s Research and Prevention Foundation, which promotes holistic and integrative medical programs.

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For more resources check out:

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