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Posts Tagged ‘Rick Phelps’

Dementia Chats Educational Webinar Recorded Session – March 10th 2015

Dementia Chats Educational Webinar

Recorded Session – March 10th, 2015

031015_DC_snap_dena_robert_Paulan_robert_eilon click_above_watch_recorded_webinarToday we discussed our healthcare system with our experts living with the diagnosis of dementia.  How do we get doctors and medical professionals to get educated and knowledgeable not only about dementia specific to their specialty, but to  find out and provide supportive services to assist those dealing with the disease.  Many great examples were given and strategies were discussed in this hour long session.

For more information on the Dementia Chats Educational Webinar Series, CLICK HERE

For & Information on Dementia & Caregiving

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Dementia: Keeping Safe In Todays World – Project Life Saver

Keeping Safe In Todays World –

Project Life Saver

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For World Alzheimer’s Month Alzheimer’s Speaks Radio has done several additional programs, but todays show will be a full two hour show dedicated to “Keeping Safe in Todays World.  We will be highlighting Project Life Saver and how it can be utilized to live safely.

project lifesaver logoOur Guests Today Include:

project lifesafer gene suanders photoChief Executive Officer and Founder of Project Lifesaver International,

Gene Saunders

Mara Botonis Head ShotAuthor Mara Botonis of “When Caring Takes Courage”

Mara botonis High Res Version of Front Cover (2)

rick phelps with samRick Phelps, diagnosed with dementia and founder of “Memory People”

& Author of “While I still Can”

MP final logoharry_urban Harry Urban, diagnosed with dementia and founder of “Forget Me Not” on Facebook

forget_me_not_logo_finall_030613Michael Ellenbogen, diagnosed with dementia and national advocate & Author of “From The Corner Office To Alzheimer’s”

michael_ellenbogen_videoEveryone is welcome to join the conversation on this very important topic. You can use the chat box or call in live to communicate with us.

We would also appreciate your efforts to share this episode with family, friends and colleagues on FaceBook, Google Circles, LinkedIn, Twitter and more.

For additional information on dementia and caregiving check out

Alzheimer’s Speaks below

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Alzheimer’s Speaks Radio Live Tuesday with Jytte Lokvig & Rick Phelps

Alzheimer’s Speaks Radio Live Tuesday

with Jytte Lokvig, Rick Phelps & Leeanne Chames

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Click above to go directly to the radio show

Live Tuesdays at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time!

All shows are archived to so you can listen anytime.

Call in  (714) 364-4757 or

Use the the Chat Box

 

Jytte Lokvig picHaving Fun & Getting Creative with Dementia

Our first guest will be Jytte Lokvig, Ph.D. an Alzheimer’s Specialist and Author of “Alzheimer’s A to Z, Secrets to Successful Caregiving,” “Alzheimer’s A to Z, A Quick Reference Guide” and “The Alzheimer’s Creativity Project.”  As always we will have a fun and lively conversation that will inspire you.

Jytte_lokvig_creativity_book                              Website        Phone    505-466-8195

MP Rick Bio pic MP Leeanne Bio PicFaces of Dementia Quilt

Rick Phelps, founder of Memory People and Leeanne Chames the Executive Director of Memory People, an Alzheimer’s and dementia support and awareness group on Facebook, will join us for the second half of the show. We will be talking about a new project of theirs called “Faces of Dementia Quilt.” To see the quilt, search Memory People “Faces of Dementia Quilt,” on Facebook or send an Email to them at facesofdementia@gmail.com

A Sampling of Some Quilt Patches.

quilt patch 2quilt patch 1quilt patch moms 3

Check out Alzheimer’s Speaks more resources and information –

Blog, Free Webinars, Tools, Resource Directory and more.

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Click Here to go to the Radio Show

The show starts at:

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time.

Please note all shows are archived for  your convenience too!

Today our experts living with dementia will be Harry Urban, Dena Dotson and Rick Phelps.  This is a special time of year and it is always so wonderful to learn new tricks and tips from one another on what we should consider when planning an event.  From traveling, to in your own home, to size of gathering, what to offer for food and beverage, to where to sit what to buy for a gift and how to have a great conversation.

Join the conversation by

calling in(714) 364-4757

push 1 to let me know you want to talk with us.

or

Use the Chat Box

harry UrbanHarry Urban an Advocate Living with Dementia and

Founder of Forget Me Notdena_dotsonDena Dotson

an Advocate Living with Dementia

Rick_phelps_no_captionRick Phelps an Advocate Living with Dementia and

Founder of Memory People on Facebook

For additional resources and information check out Alzheimer’s Speaks Website.

Just click on the logo below

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I’m tired

By Rick Phelps, Founder of Memory People

I’m tired. I say that alot anymore. I tell Phyllis June all the time. Leeanne, anyone who listens.

But sometimes its not a tired as you would expect. I like to think I am in the early stages of this disease. Somedays I know better, but I still like to think that I am.

But I am tired. I imagine other patients like me are also. What I am tired of is not being able to remember.

I can’t remember a day when I could remember things. It puts such a mental and physical strain on a person. I think my brain is working way to much.

Having to try to remember everything. And not being able to. It’s constant. I know it will get worse.

My greatest fear is and always will be for the ones who cannot communicate this. The ones this disease has robbed them of being able to even say they have no idea what is going on.

I wake up in the middle of the night in a panic. Not knowing where I am, or what is going on. I have these horrible nightmares. As many patients do.

In the mornings as soon as my eyes open this disease is there. Course it would be. It’s ones brain. Everything that goes on is controlled by your brain.

Just not being able to remember is only a small part of it. But the day in and day out of not remembering is getting the best of me. Mentally.

Go figure. The one thing this disease does, robs you of your memories and thoughts, is the very thing that I and others are struggling with daily.

Then knowing that today is or very well could be the best it is ever going to be. I am posting this not for any sort of sympathy, I just want to explain what I go through, and what I am sure your loved one is, even if they can no longer communicate it.

I’m tired. I suppose its no wonder. This disease drains you mentally and physically. I often think I cannot put one foot in front of the other. But know I must.

Remember this, your loved one is effected in many ways other than memory loss. The brain controls everything we do, not just our memory.

I would love just once to say “hey, I remember that.” or to be able to understand half the things people tell me.

And to be able to go from room to room in your own house and know why your in the bedroom, or in the laundry room. It’s the things we take for granted that this disease takes.

I cannot imagine how a caregiver/family member sits and watches their loved one fade away. This has to be the worst feeling, the most horrible thing to watch, and not able to do one thing about.

You, the caregiver have to be tired as well…

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Join Dementia Chats on Tuesday

3pm EST, 2pm CST, 12pm PST

Lori La Bey Founder of Alzheimer’s Speaks interviews two men with Early Onset Alzheimer’s Disease; Rick Phelps Founder of Memory People on Facebook and Harry Urban.  Lori and Leeanne Chames of Memory People facilitate the conversation.  Please join the conversation on this free webinar.  WE welcome all people.  those diagnosed with dementia, families and friends caring for a loved one, professional caregivers as well as advocates and those who just want to learn more.

If you can’t make the session, comment here on what you would like to know and I will as your question.

All sessions are recorded so you can always watch the episode later.

  To Enter the Webinar Click Here

For More Information on Dementia Chats Click Here

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Real People Talk Openly About Dementia

Listen At Your Leisure

To Our Recorded Sessions…

It’s FREE, Friendly, and Educational

Click Here To Access the Webinar

September is Dementia & Alzheimer’s Month

September 15th, is Dementia Awareness Day

September 21st, is World Alzheimer’s Disease

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