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Posts Tagged ‘Respite’

Memory Lane Home Living – Butterfly Model & Respite Care

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Live Tuesday – Dec 3rd, 2019 1:30pm EST, 12:30Pm CST, 11:30am MST, 10:30am PST & 6:30pm London and on the 27th at 5:30am in Australia

Today Lori La Bey, host of Alzheimer’s Speaks Radio will talk with Mona Lancaster about the Memory Lane Home Living in Canada which uses the Butterfly Model of care.  Mona truly understands the caregiver journey as she cared for her mother on the dementia journey.  Memory Lane also filled a need for respite care in their community.  She will share what these terms mean and the services they offer.  Call in and join the conversation or use the chat box to communicate with us.

Contact Mona Lancaster:

Website:  www.memorylanehomeliving.ca         

Facebook: @memorylanehomeliving  

Twitter:     @MemoryLaneHL                                

Phone:  (905) 237-1419 

Thank you for joining Alzheimer’s Speaks Radio.  We hope you subscribe and share this episode with your family, friends, clients and colleagues.

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See what Others have to say about Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Are you looking for a great gift idea this holiday season? 

If so, check out this book which is of critical importance in helping families deal with a dementia diagnosis. 

You can get a holiday discount too!

The book is called Parental Dementia:   A Guide through all the Difficult Questions by Keith Galas has spent more than 20 years helping families work through all of the questions that keep popping up through the dementia journey. The book even has some great worksheets to help keep your thoughts and needs organized.

Discount Code is: Lori (Save $5.99)

You can purchase the book by going to

www.ParentalDementia.com

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

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Conscious Caring Resources with Alzheimer’s Music Fest

Conscious Caring Resources

with Vince Zangaro, founder of

Alzheimer’s Music Fest

ConCarRes_part_logoWelcome to Conscious Caring Resources, which is another platform to help you care for others and yourself provided by Alzheimer’s Speaks.

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Here, like with all Alzheimer’s Speaks platforms – Radio – Blog- Webinar- Resource Directory – Keynotes- Training and Consulting; We believe in giving voice and enriching lives around the world when it comes to our dementia are culture.

We were lucky to have Vince Zangaro Alzheimer’s  founder of Alzheimer’s Music Fest with us.  His journey started over 10 years ago with his father. His dad was 62 when diagnosed, and Vince was only 29 when his world completely changed. It was a difficult time for both of them to say the least.

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As his dad’s disease progressed, Vince shares how he has evolved into a better man. Vince like many had friends suggesting he put his Dad in a home, but he made a promise to his mother before she died at age 55 that he would take care of him.

Vince talks openly about his difficult decision to Give up or Grow up!  Thank God for all of us he Decided to Grow UP and make a difference, not only for his father but for other families who are struggling on their own journey with dementia.
Vince founded Alzheimer’s Music Fest to help others be able to care for their loved ones at home.
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The Alzheimer’s Music Fest will be held on August 6, 2016 at Red Clay Music Foundry in Duluth, Georgia.

Additional Resources:

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Top 10 Things Learned On The Journey With My Mother

Top 10 Things Learned

On The Journey With My Mother

In Honor of Bessie Eveyln Morgan Baldwin – Little Mama

5/1/1921 – 12/4/2013

#1. LEGAL STUFF:  be prepared. It is hard, but being prepared and having a plan is required to provide best decisions for their care and protection.  The day will come when you know you must think of final arrangements and honoring your loved ones wishes. Be prepared.

#2. GUILT:  Care Warriors, ban this word from your life. If you are on the front lines of this war whether your loved one is home cared or in a care facility, you are a care warrior. Decisions made from a heart full of love are good decisions. Only you know what is best for your loved one, your family and for YOU! Guilt has absolutely no place in a care warrior’s journey.

#3. UTI’s:  Almost a certainty.  Pedialyte:  little mama had one minor UTI in 6 years; we gave it to her 1/2 to 1/2 juice 3x a day.  It balances electrolytes and helps with overall hydration.

#4. PLACEMENT:  Trust your instincts: care warriors know when it is time – sometimes we know it is time and because of #2 we hesitate. Do not hesitate.

#5. FIBLETS: I outright lied to Little Mama. I even wrote fake prescriptions to make her accept care sitters and to take showers. I made up a fake form from her favorite doctor and it said – To the children of: ________________ Bessie must not be left alone at any time. She must also take a shower at least 3x a week. If you are unable to make these things happen, I will have to step in and find a care facility that can take better care of her.” That worked during the feisty stages.

#6. LOUD:  when seeking BEST care for a loved one, be as loud as it takes for as long as it takes. Too often there you will find a scary lack of knowledge among medical professionals about dementia diseases.

#7. KIND:  be especially kind to YOU! We already know how kind you are to loved ones.

#8. HELP/RESPITE:  if it is available, ASK!! If it is not available, do not take any guff off of anyone not actively engaged in the war (this is part of being kind to yourself). #2 is important here, too.

#9. HOSPICE:  Do not wait – trust your instincts.  If your loved ones are eligible for Medicare, please ask primary care physician to order a hospice review/or call them yourself. Earth angels. If accepted, no more ER trips – medical staff comes to you and Medicare pays! And they provide personal hygiene 3x a week!!!

#10. LOVE: I admire you all so much. There is nothing easy about this journey and I know you all are here because of love. Love. It is the strongest word. Blessings on your heads.

A Big Thanks to Diane for sharing her life with all of us.

By – Diane Elinor Baldwin Hoover, ElderofFive

Care Warrior for Little Mama 2005 – 2013

Administrator, Memory People™, Inc

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Close to Home

By: Michelle Remold

It’s was fifteen years ago when my grandfather was first diagnosed with Alzheimer’s.  At the time he was diagnosed, it was both a frightening and challenging experience for our family.  My mom talks about the many sleepless nights wondering what was going to happen to my grandpa as the disease progressed and trying to find the resources to help our family cope with the disease and find the care he now needed.  There is also the memory of realizing that we could no longer care for my father at home.  I remember commenting to my parents that I was, as it seemed to me, the only student with only one grandparent at school for Grandparents Day when my grandpa could no longer attend and I didn’t understand why. However,  growing up I remember feeling like I was the only kid in school with a grandparent who had Alzheimer’s and looking back my mom stated that she remembers feeling like we were alone with having a loved one with the disease.

As the years went by, we all came to realize that we were not the only family coping with a loved one with Alzheimer’s.  In fact, as time went by we realized that Alzheimer’s was “closer to home” than you think.  Grandparents of my friends were diagnosed with Alzheimer’s.  My parent’s coworkers had family and friends that were affected by either Alzheimer’s or dementia. People that we saw every Sunday at church services were diagnosed with Alzheimer’s.  One of the most important resources that we discovered was a support network of other families with the disease.  It made it a lot easier to cope with what was going on with my grandpa when we were able to talk with others that were experiencing the same thing.  There was a support group at the local senior center that also helped us to learn more about Alzheimer’s and how it affects families. Through that organization, we discovered a wonderful group of volunteers that were willing to sit with my grandpa to give my grandma a break to get needed errands done.

It seems to me that one of the best things that came out of the diagnosis of Alzheimer’s is having other people to talk to about it. I still have people that have recently had a parent, relative, or friend diagnosed that will share their experiences with me and tell me how nice it is to talk to someone that understands. While everyone’s experience is different, it seems that discussing Alzheimer’s or dementia is much easier knowing that the person you are talking to has gone or is going through similar things. While a diagnosis of Alzheimer’s or dementia can feel lonely, it helps to remember there are others around to support you.

???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

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