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Posts Tagged ‘Research’

Traveling with Dementia – Airport Stories Survey

Times are Changing – Be Part of the Change!

I’m so proud to announce our Dementia-Friendly Airports Working Group is Launching a Survey to Research How to Make Airports More Dementia-Friendly!

We Need Your HelpDementia Travel Data is Lacking

Our Twin Cities Minnesota Dementia-Friendly Airports Working Group has launched an online survey, Traveling with Dementia – Airport Stories Survey, to gather information and stories about air travel experiences from persons with dementia and their care partners.

The Working Group is made up of researchers from the University of Minnesota School of Public Health and a group of area residents, professionals in aging and dementia services, Australian researchers responsible for the Brisbane Airport’s dementia-friendly designation, and others. The effort is organized and led by the Roseville Alzheimer’s and Dementia Community Action Team (Rsvl A/D).

Click Here to Take the Survey

The motivation for the Traveling with Dementia – Airport Stories Survey is the recognition that airports are often difficult places to be for people living with Alzheimer’s disease or other forms of dementia. Navigating security and dealing with the noise and crowds can lead to anxiety and confusion. While there are many anecdotes about air travel experiences of people living with dementia, there is almost no hard data. This survey is designed to address that gap, and will hopefully lead to improved services.

The survey covers travelers’ experiences, from booking flights to arriving at their destination, and encompasses travel within and outside the U.S. Respondents will remain anonymous.

The Survey is available at http://bit.ly/DementiaFriendlyAirports through Sept. 15, 2019.

The survey project began in 2018, when , a dementia-caregiver researcher at the University of Minnesota, was lecturing in Australia. He learned of Brisbane Airport’s dementia-friendly designation and met the Australian researchers responsible for this work. Gaugler contacted Rsvl A/D founder Sara Barsel and suggested that Rsvl A/D lead similar efforts locally. Barsel proposed a collaboration with the Brisbane Airport project’s lead researcher, Dr. Maria O’Reilly, and the Dementia-Friendly Airports Working Group was organized.

“There is tremendous excitement about this effort on the part of dementia service providers, travelers and their companions dealing with dementia,” said Barsel. “Navigating airports can be daunting for anyone, but especially for people with hidden disabilities like dementia.”

Please Share with Others with Dementia and their Care Partners

What Questions You Have For Those Living With Dementia?

Below Video compliments of Dementia Chats

Those with dementia talk needs and strategies to incorporate when building dementia friendly communities and businesses.

Find out 1) who do you need on your team and why. 2) Why are the little things so important. 3) What others are doing that is working well.

Additional Dementia Chats Interviews:

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Diana Pierce and Lori La Bey

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

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Dementia – Research – Advocacy & Families

Alzheimer’s Speaks Radio

Click Below to Listen to Radio Show

Host Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer’s Patient/Caregiver Powered Research Network (AD-PCPRN)  and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the convervsation on research and support.

Contact Information:

  A-LIST on UsAgainstAlzheimer’s       A-LIST Facebook          A-List YouTube   Join the A-List        

Joan M Griffin Email     

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonials https://youtu.be/oQILeOcQYN0

Video Interviews with Those Living with Dementia
Alzheimer's Speaks Radio with Dr Jessica Zwerling.

Click Below Download Tips

Find A Memory Café In Your Area

Programming starts Feb. 17th, 2019 – Preview Below

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First Pictured-Based Dementia Screening Tool

Join Alzheimer’s Speaks Radio 

Today on Alzheimer’s Speaks Radio, host Lori La Bey, will talk with Dr. Jessica Zwerling, who is the Director, Montefiore Hudson Valley Center of Excellence for Alzheimer’s Disease (CEAD).  She is an Associate Professor of Neurology, and a Program Director for the UCNS Geriatric Neurology Fellowship.  Dr Zwerling is also the Director of the Memory Disorders Center at Blondell and the Associate Director for the Center for the Aging Brain and last the Clinical Director for the Einstein Aging Study.

Contact Information for Dr. Jessica Zwerling

Phone:     (914) 375-4880

Website:  http://www.montefiore.org/alzheimers-center 

Website:  https://www.montefiore.org/aging-brain

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development – LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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BBC Radio Show With Great Dementia Insights

A Fascinating BBC Radio Show With

Great Dementia Insights

 

Below is a 60-minute BBC radio documentary designed to be more enjoyable for people with dementia.

They want to encourage the use of dementia-friendly techniques in the broadcasting industry, so they need to

do a statistical analysis, which requires feedback using a short structured questionnaire.

 

You Won’t Want To Miss This One!

Listen, Learn and Give Back!

 

Take the Survey

I listened to the whole show and I have to admit,

I learned a lot and it lofted my mood to boot!  

Lori La Bey, Founder of Alzheimer’s Speaks

 

Listen to the radio show below

https://www.alexiskirke.com/2000/03/03/radio-feedback-see-below/

 

Time Type Topic
00:00 Spoken Preview of topics and introduction
01:30 Spoken Ear worms and memory jingles
08:22 Music Humorous
13:04 Spoken Repeated introduction
13:28 Spoken Radio and Dementia: Cocktail Party Effect
17:38 Spoken Repeated introduction and re-cap
18:18 Spoken Music and Reminiscence (including some brief music clips)
27:42 Music Bridge over Troubled Water
32:12 Spoken Musical Memory
36:00 Music My First, My Last, My Everything
38:25 Spoken Time Checks; Music and Action (including music clips)
47:15 Music Toms Diner
49:40 Spoken Repeated introduction and summary
50:15 Spoken Programmes targeted at people with dementia
55:28 Music Toms Diner opening to fade out
55:44 End

Take a short multiple-choice questionnaire below 

https://www.surveymonkey.co.uk/r/CTRPLJP

 

Please pass this along to others. 

The more responses the better!

 

Thanks in advance for helping out!

Thank you Dr. Alexis Kirke, Senior Research Fellow at the University of Plymouth. 

I found the show fun and fascinating Plus I learned a lot!

—————————————————————————————-

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips



 

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The 6th Edition of The 36 Hour Day

20% Off the New 6th Edition of The 36 Hour Day,  Available April 2017

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Through five editions, and more than 3 million copies sold, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs.

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If you are interested in a bulk purchase of this book we would be happy to offer you a higher discount. For more information on bulk sales and special sales pricing, please contact specialsales@press.jhu.edu

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How to Communicate with a Person with Dementia DC_031917_How_to_communicate_with_a_person_with_dementia_SNAP

Our Experts have Dementia

Dementia Chats: Where voices of those diagnosed with dementia are heard.  

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners – family, friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.

You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Paulan Gordon
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard
Susan Suchan
Harry Urban

Here are the links to “20 Sign Language Words”

Laurie Scherrer’s Website
https://dementiadaze.com/about/videos/
https://www.dementiamentors.org/videos.html

For Additional Educational Videos Click Below

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AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

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  Click To Get More Information For

The Conference of Hope

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  Click For More Information on Leading Age

 Power of Purpose

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New Trial for Mild Alzheimer’s

New Trial for Mild Alzheimer’s

Spread the Word!

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DF communities     businesses logo

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Click To Get More Information For

The Conference of Hope

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Children with Dementia

Children with Dementia

Say It Can’t Be True!

03211 ASR Graphic Dementia Mom FINAL

Today we are lucky to have a Mother who is willing to share her story of love, frustration and a passion to expand education, awareness and funding for childhood dementia.  You will be amazed at the terrifying journey Lorena Demian is living and how she has learned to look at life differently through their dementia experience.

Contact Information For

Alzheimer’s Association 24 hour line: 1-800-272-3900

Lorena Demian butterflymusicalnotes.7@gmail.com

other_int_and_projct

DF_cofernece_cruise_top_032317

Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

st_therese_hnp_111616_1

DF communities     businesses logo

additional_resources

   Click To Get More Information For

The Conference of Hope

cac_logo_comibined_113016

   Click For More Information on Leading Age

 Power of Purpose

ARPF_for_Blog

Save

Read Full Post »

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