Join Lori La Bey, host of Alzheimer’s Speaks Radio for a very interesting conversation with three women on a mission to improve dementia care by supporting those that care for individuals living with a diagnosis. Through improv, care partners learn to reframe and refocus how to care. Listen in and learn and feel free to reach to them for more details on their clinical research and program.
Rev. Dr. Jade Angelica is the founder and director of Healing Moments for Alzheimer’s. She cared for her own mother who died from Alzheimer’s disease in 2011. She designs and leads workshops, services, and trainings for Healing Moments. Jade wrote the book Where Two Worlds Touch: A Spiritual Journey Through Alzheimer’s Disease.
Kelsey Spalding Wilson is a doctoral candidate in Clinical Psychology at the University of Iowa. She is now completing a clinical neuropsychology internship at the St. Louis VA, working with Veteran’s with neurological disorders.
Edmarie Guzman-Velez moved to the US to complete her doctoral degree in Clinical Psychology at the University of Iowa. She is now a postdoctoral fellow at the Massachusetts General Hospital and Harvard Medical School studying the preclinical stage of Alzheimer’s disease.
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge Washington
University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.
We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!
Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!
Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.
Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:
How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
How involved caregivers want to be their loved ones’ healthcare.
Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.
Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.