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Posts Tagged ‘poetry’

Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

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Poem – Floating Words

  Problems understanding spoken sentences (verbal comprehension):

Floating Words

© Truthful Kindness 2018 Dec 11

Words float around and past me.

sometimes they splash against my body.

i hear them spoken.
i understand each word.

I reach for them,
but mostly they just float around me without joining;
without coalescing into concepts that i can grab, hold, and understand.

Sometimes i am able to grab a passing thought and hold it;
finally understanding,
responding to the speaker and building relationship …
… but then it is gone again.

Words float around and past me.

Sometimes i feel alone
… and require visuals or TOUCH.


© Truthful Kindness 2018 Dec 11

Contact Truthful Loving Kindness at:

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 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

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Poem About Dementia –

I want to again thank Cheryl Kempner for sharing her beautiful poetry with our community here at Alzheimer’s Speaks.

Her Birthday

Copyright Cheryl Kempner 2018

Like a new born that does not know,

Or a toddler that does not grow.

Her birthday came,

Her birthday went,

But she did not know what wishes were sent.

The mind is fierce and out of sight,

It does not know or care of the heart’s plight.

That we may need to keep moving on,

Or maybe it knows that we must stay calm. 

For we would go mad if we really did know,

That our mind was shrinking and we could not grow.

To new levels of our early existence, 

Or is it aware of our soul’s forever persistence.

Do the flowers, the wishes, the visits or chocolate cake,

Mean anything inside or is it all just fake.

The talking, the laughs, the pictures and more,

Does it tell a story or is it just knocking on a closed door.

To make up for lost time in these last few years,

Few years that to some mean many more tears.

But to other it’s a time to make memories to last,

Moments to take, moments to grasp

The veil has been lifted,

The wall is no more.

The relationship is freed, 

The tension is old lore.

Could there be a message, in disguise,

Or is it just the unraveling of all the lies.

The mind is a vicious thing,

It can take away a human being.

But can it really, as we can feel,

We know what’s what, but how do we deal.

With such thoughts that her birthday came and went,

But does she know what wishes were sent?

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Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Poem Regarding Dementia: Time Lost

Time Lost

Another Beautiful Poem

Submitted By A Community Member

Time Lost

By Sandy Cannon

A crestfallen look beholds her face

The life of her mind now wrapped up in lace

Bright smiles once captured are now fleeting and few

Her indifference grows stronger, as her prayers fill the pew

Words once spoken fall silent from her lips

Her captor steals her thoughts and robs her of bliss

A world yet to travel with opportunities so vast

Is held hostage by her mind and are now dreams of the past

Loved ones are devoted and keep vigil for her care

Unable to arrest this disease that so dares

Dares to be bold, dares to be brash

And forces us to mourn our loss before the ash

We take solace in knowing that her fear will surrender

To a place deep inside, that she will no longer remember

Let’s find a cure….

My name is Sandy Cannon and I live in St. Louis, MO.  My mother passed away in December, 2017, from dementia.  I am a volunteer for AFTD (The Association for Frontotemporal Degeneration).  I also work with the Alzheimer’s Association in St. Louis.  

Thank you  Sandy for sharing you poem with all of us!

Lori La Bey, Founder of Alzheimer’s Speaks

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The King and The Pawn – A Poem a Families Dementia Journey

Another Beautiful Poem

Submitted By A Community Member

 

The King and The Pawn

  by Carol Brown

The King and The Pawn
The roles have now reversed as you
became the parent and I
became the child.

When you entered my space then
It became the games that people
play, or the games that
you and I played from
day to day.

My mindset became your mindset
for we were now one. My thoughts became your thoughts,
we thought like one.

My footsteps became your footsteps
as you followed me.

My world became your world
however difficult it might be.

When I roamed the house, you roamed
the house walking besides me,
watching my every footstep while protecting me.

When I crawled under the Baby Grand
Piano you followed me, removing me
from a dangerous place where I thought
we could play the game of hide and seek.

 

At night time, sleep was only a fallacy,

for this was the best time to roam the house
while you were asleep.

Climbing 13 stairs to get to
my “palace” on the second
floor, and locking myself
In the bedroom closet where I could
call for help through the closet door.

Returning down stairs, to a house
that was pitch black,
I would continue my mission to
steal popsicles from the refrigerator for my delight.

When I attempted to flee the house
against your advice, you changed the
locks on the doors and hid my
shoes to stop my flight.

When I was hospitalized and placed in
restraint, you advised medical staff
Of what I would do, but they
failed to listen and found me
down the hall, in a patient’s
room, hiding in the bathroom shower stall.

From 1994 until 2008 and
for fourteen years, with our brains
boggled and lives modified
to an arduous way of life,
My footsteps became
your footsteps as we roamed the
house together and played games my way .

Yes, I did it my way and you did
what I’d say.

” Doggone your time” is what I would say, for
having Alzhemier’s is a game,
a Chess Game that you,
(The Pawn)
and I
(The King)
played from day to day.

 

 Author Carol Brown,

Retired Probation Officer and Caretaker of my Father for 14 years

 

Thank you Carol for sharing your journey with us.

Lori La Bey, Founder of Alzheimer’s Speaks

 

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See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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I’m Sorry – A Poem That Will Touch Your Heart

Another Beautiful Poem

Submitted By A Community Member

 

I’m Sorry

by Ciaara Abke

 

I see you as my granny

You see me as a stranger

My eyes turn to you with love

Your eyes turn to me in confusion

I’ve known you all my life

And you’ve only known me for some

I say your name

But you can’t recall mine

My love for you is endless

But yours is imprisoned

I’m sorry

Thank you so much for sharing your poem with us Ciaara. 

I think everyone can feel your pain and your love through your words.

Lori La Bey, Founder of Alzheimer’s Speaks


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Some Hows and Whys To Keep Living & Loving Someone with Dementia

Alzheimer’s Speaks Radio 

Talks with Steve Bodansky

On Loving Someone with Alzheimer’s

Tuesday, August 7th, 2018 at 2pm EST, 1pm CST, 12pm MST, 11am PST

and 7pm London

Listen By Clicking Below 

Lori La Bey, host of Alzheimer’s Speaks Radio has an open discussion about love and dementia with author, Steve Bodansky. His latest book is titled, “Love and Alzheimer’s.” which is the story about Steve and his wife Vera who is diagnosed with Alzheimer’s.  Steve has a master’s degree in Molecular biology and a Doctorate in Sensuality. He has been a sensuality and relationship coach for the past thirty plus years.  If you enjoy poetry you will also find some of Steve’s poems he has written to Vera.

Steve discusses the very intimate topic about love, pleasure and how things change but can still be the same.  Although most people talk of the down sides of dementia, Steve also shares some of the benefits as well.

You can contact Steve Bodansky

Email:  stevebodansky@gmail.com


Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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