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Posts Tagged ‘poetry’

The Silent Killer – Poem by Gwen Barnes

I dreamt about my mum today

a cruel disease took her away

it crept up upon her from behind

and slowly crushed synapses in her mind

I watched it happen

I couldn’t fight

I was powerless, as she was

in it’s might

I sometimes hear the latest news

the scientists have made

the next breakthrough

but this killer is still at large

it’s appetite is on turbocharge

its killing millions in it’s wake

it must be stopped

for humanity’s sake

So all I can do is hope and pray

that it doesn’t get me one day

there’s evidence to suggest it will

by then there may well be a pill

to cure this dreaded predator of the brain

to let old age have it’s longest reign

to enjoy this life, to be fit and well

until it’s time to bid my last farewell.

By Gwen Barnes

(in loving memory of my mum who passed away with Alzheimer’s in 2016)

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Diana Pierce and Lori La Bey

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 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

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Leveraging Art to Document Your Caring Journey

Click Above To Listen Live Tuesday – Aug. 6th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 31st at 6am Australia. All Shows are Archived for Ease of Access.

Lori La Bey, host of Alzheimer’s Speaks Radio take with Dr. Mali Mann who is an adult/child psychiatrist, psychoanalyst and author.  She is on the faculty at Stanford School of Medicine, in the Department of Psychiatry and Behavioral Science. Her latest book, Whisper, Forget Me Not, is filled with poetry and paintings portraying the experiences she’s had watching her husband struggle with Alzheimer’s. It’s a beautiful story of how tapping into art helped her find balance, process her journey and leaves a legacy of their relationship while helping others going through the same thing.  

Contact Information for Dr. Mali Mann

Email – malimannmd@gmail.com

Take The Dementia Airport Travel Survey Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

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Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

See Other Poems Here

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Pat Sylvia, Director of Education & Member Development      LeadingAge WA

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Poem – Floating Words

  Problems understanding spoken sentences (verbal comprehension):

Floating Words

© Truthful Kindness 2018 Dec 11

Words float around and past me.

sometimes they splash against my body.

i hear them spoken.
i understand each word.

I reach for them,
but mostly they just float around me without joining;
without coalescing into concepts that i can grab, hold, and understand.

Sometimes i am able to grab a passing thought and hold it;
finally understanding,
responding to the speaker and building relationship …
… but then it is gone again.

Words float around and past me.

Sometimes i feel alone
… and require visuals or TOUCH.


© Truthful Kindness 2018 Dec 11

Contact Truthful Loving Kindness at:

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FaceBook

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Pat Sylvia, Director of Education & Member Development      LeadingAge WA

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Poem About Dementia –

I want to again thank Cheryl Kempner for sharing her beautiful poetry with our community here at Alzheimer’s Speaks.

Her Birthday

Copyright Cheryl Kempner 2018

Like a new born that does not know,

Or a toddler that does not grow.

Her birthday came,

Her birthday went,

But she did not know what wishes were sent.

The mind is fierce and out of sight,

It does not know or care of the heart’s plight.

That we may need to keep moving on,

Or maybe it knows that we must stay calm. 

For we would go mad if we really did know,

That our mind was shrinking and we could not grow.

To new levels of our early existence, 

Or is it aware of our soul’s forever persistence.

Do the flowers, the wishes, the visits or chocolate cake,

Mean anything inside or is it all just fake.

The talking, the laughs, the pictures and more,

Does it tell a story or is it just knocking on a closed door.

To make up for lost time in these last few years,

Few years that to some mean many more tears.

But to other it’s a time to make memories to last,

Moments to take, moments to grasp

The veil has been lifted,

The wall is no more.

The relationship is freed, 

The tension is old lore.

Could there be a message, in disguise,

Or is it just the unraveling of all the lies.

The mind is a vicious thing,

It can take away a human being.

But can it really, as we can feel,

We know what’s what, but how do we deal.

With such thoughts that her birthday came and went,

But does she know what wishes were sent?

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See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Poem Regarding Dementia: Time Lost

Time Lost

Another Beautiful Poem

Submitted By A Community Member

Time Lost

By Sandy Cannon

A crestfallen look beholds her face

The life of her mind now wrapped up in lace

Bright smiles once captured are now fleeting and few

Her indifference grows stronger, as her prayers fill the pew

Words once spoken fall silent from her lips

Her captor steals her thoughts and robs her of bliss

A world yet to travel with opportunities so vast

Is held hostage by her mind and are now dreams of the past

Loved ones are devoted and keep vigil for her care

Unable to arrest this disease that so dares

Dares to be bold, dares to be brash

And forces us to mourn our loss before the ash

We take solace in knowing that her fear will surrender

To a place deep inside, that she will no longer remember

Let’s find a cure….

My name is Sandy Cannon and I live in St. Louis, MO.  My mother passed away in December, 2017, from dementia.  I am a volunteer for AFTD (The Association for Frontotemporal Degeneration).  I also work with the Alzheimer’s Association in St. Louis.  

Thank you  Sandy for sharing you poem with all of us!

Lori La Bey, Founder of Alzheimer’s Speaks

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Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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The King and The Pawn – A Poem a Families Dementia Journey

Another Beautiful Poem

Submitted By A Community Member

 

The King and The Pawn

  by Carol Brown

The King and The Pawn
The roles have now reversed as you
became the parent and I
became the child.

When you entered my space then
It became the games that people
play, or the games that
you and I played from
day to day.

My mindset became your mindset
for we were now one. My thoughts became your thoughts,
we thought like one.

My footsteps became your footsteps
as you followed me.

My world became your world
however difficult it might be.

When I roamed the house, you roamed
the house walking besides me,
watching my every footstep while protecting me.

When I crawled under the Baby Grand
Piano you followed me, removing me
from a dangerous place where I thought
we could play the game of hide and seek.

 

At night time, sleep was only a fallacy,

for this was the best time to roam the house
while you were asleep.

Climbing 13 stairs to get to
my “palace” on the second
floor, and locking myself
In the bedroom closet where I could
call for help through the closet door.

Returning down stairs, to a house
that was pitch black,
I would continue my mission to
steal popsicles from the refrigerator for my delight.

When I attempted to flee the house
against your advice, you changed the
locks on the doors and hid my
shoes to stop my flight.

When I was hospitalized and placed in
restraint, you advised medical staff
Of what I would do, but they
failed to listen and found me
down the hall, in a patient’s
room, hiding in the bathroom shower stall.

From 1994 until 2008 and
for fourteen years, with our brains
boggled and lives modified
to an arduous way of life,
My footsteps became
your footsteps as we roamed the
house together and played games my way .

Yes, I did it my way and you did
what I’d say.

” Doggone your time” is what I would say, for
having Alzhemier’s is a game,
a Chess Game that you,
(The Pawn)
and I
(The King)
played from day to day.

 

 Author Carol Brown,

Retired Probation Officer and Caretaker of my Father for 14 years

 

Thank you Carol for sharing your journey with us.

Lori La Bey, Founder of Alzheimer’s Speaks

 

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See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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