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Posts Tagged ‘poetry’

Dementia – A Poem By Denise Gleason

Dementia

In my life, many scary things I faced

But, Dementia was the thing that put me in my place

When in Dementia’s presence

You must bow to the one in charge, like a peasant. 

Before you go into its lair put on your armor 

And realize you are only a glorified snake charmer  

Cloning its visions and mood so that you can negotiate your position 

Holding yourself, so that you don’t slip into abyss and forget your original mission. 

Just when you feel like he is about to swallow you up and you begin to taste the bile

You get a brief glympse of a wonderful memory or a positive current moment which makes you smile

The many faces of Eve 

can’t compete with Dementia’s ability to deceive 

When you leave it’s presence

You neither win or lose 

Just remember to wash off the slime and not allow it to cling to you.

Denise Gleason December 2019

Alzheimer’s Speaks Radio shifting dementia care from crisis to comfort around the world. We’ve been raising voices one episode at a time and delivering sounds news, not just sound bites since 2011.

All shows on Alzheimer’s Speaks Radio are accessible to listen to at anytime to once they go live – Enjoy.

Click Below to Download Your Memory Chip™ Tool

We would love to here your thoughts and comments on this tip.

Our topic is confusion when dealing with dementia. Our experts living with dementia give us wonderful real life examples of how and when confusion occurs in their lives and how they dealing with it. They talk about routines, anxiety, depression, executive function, cognitive crutches and so much more. Families, professionals along with others living with dementia will find this video very informative. Please feel free to share with others and subscribe to Alzheimer’s Speaks Youtube channel.

Dementia Chats – Those Living with Dementia Talk Openly

Upcoming Public Event Lori La Bey Will Be At

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Parental Dementia – A guide through all the difficult questions. Author Keith Galas, is an Executive Director with 20 years’ experience and has helped families with all their difficult questions. Every chapter in the book covers a question he gets most from families.

Parental Dementia – A guide through all the difficult questions is available through Amazon, Walmart and Barnes and Noble, but if you go to www.parentaldementia.com  all Alzheimer’s Speaks listeners can get a discount by using the code word, Lori.

Available in eBook now as well

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Click Above to Get a Discount

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Dementia, Grief & Haiku

Alzheimer’s Speaks Radio shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Thursday – Jan. 23rd, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 9th at 6am in Australia

Listen to the Radio Interview Below

Watch the Video Interview Below

On this episode our host Lori La Bey, talks with Mary Todd a wife whose husband Jim was diagnosed with dementia and who has found writing Haikus healing and Nancy Niero an ordained clergywoman specializing in the ancient practice of anointing in end-of-life care,  We will explore the emotions a care partner experiences as the disease progresses and how writing can help. 

All shows on Alzheimer’s Speaks Radio are accessible to listen to at anytime to once they go live – Enjoy.

Contact Mary Todd

Read Mary Todd’s PDF of Alzheimer’s Grief Haiku 

Email Mary: mtodd75@verizon.net

Mary Todd FaceBook: https://www.facebook.com/profile.php?id=100010144062136

Contact Nancy Niero:

Email:  nancy@anointjourney.com

Website:  https://www.anointjourney.com

Anoint Facebook Page   https://www.facebook.com/Anoint-1621888641462580/      

Phone:  (303) 601-6430

Here is our first tip on Tears, Fears and Joy. We would love to here your thoughts and comments on this tip.

Dementia Chats – Those Living with Dementia Talk Openly

Today Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation on Dementia Chats with the true experts on dementia, those living with a diagnosis. Our Topic is Holiday Stress Triggers for those Living with Dementia In this video you will hear those living with dementia speak articulately as they talk about holiday stress triggers, how they adapt to changing situations and environments as well as giving care partners ideas to make the holidays run smooth.

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

Read Full Post »

50+ Shades of Dementia with Norms Mc Namara on Alzheimer’s Speaks Radio

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Watch the Video Interview Below

The Radio Show Goes Live – Thursday – Nov, 21st 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on Nov. 22nd at 6am in Australia

Listen in. I know you will be glad you did! Click Above

Alzheimer’s Speaks Radio Host, Lori La Bey is excited to share her interview with Norrms Mc Namara, a long-time friend and man living with dementia.  Norrms  has done extraordinary work promoting dementia awareness and education around globally.  His collaborative efforts, creative mind set and willingness to share ideas and concepts with others has help bring the world together to fight the battle of dementia   Today he shares information about his new book, 50+ Shades of Dementia, which is a book of poems about living with dementia.

In Case I Forget by Norrms Mc Namara

In case I forget when glancing at you,
The one who makes me complete,
Dementia may have won with my mind,
But my heart it will never Defeat,

In case I forget the children we`ve raised,
Or the hundreds of stories I’ve told,
Shed not a tear “For blessed are we,
Who forget one day we are old,

In case I forget to tell you how much,
You’re cherished and treasured each day,
My best friend beside me to brighten the path,
And carry me all of the way,

I may greet you someday, with questioning eyes,
As a stranger with whom I’ve just met,
Still, I love you my darling, with all of my heart,
Please Remember…… In case I forget

Contact Norrms Mc Namara at:

Website:  www.purpleangel-global.com

Purchase 50+ Shades of Dementia:   https://www.amazon.co.uk/50-SHADES-DEMENTIA-Dementia-dementia/dp/1089449224

FaceBook:   Norm Mac

Have You Seen My Independence? by Norrms Mc Namara

Have you seen my Independence?
I can’t find it so?
I used to be right here with me,
But now I do not know?

One day there I was,
As confident as can be,
The next always surrounded,
And never only me

Oh, how I long,
To walk the meadows grass,
To sit down on a bench alone, 
And watch the seagulls pass

To get my morning paper,
To read along the way,
With nobody else, that’s right, just me!
Oh Lord, for just one day

I love my family dearly,
And they are always there,
But they must get fed up too,
Of sharing all this care,

I was so incredibly Independent
And you all will know,
Have YOU SEEN my independence?
Oh dear, where did it go ??

Thank you for joining Alzheimer’s Speaks Radio.  We hope you subscribe and share this episode with your family, friends, clients and colleagues.

Upcoming Public Events with Lori La Bey

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what Others have to say about Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

Read Full Post »

Exploring Lewy Body, Loved Ones and Poetry

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Listen in. I know you will be glad you did!

The Radio Show Goes Live – Thursday – Nov, 14th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on Nov. 15th at 6am in Australia

Lori La Bey host of Alzheimer’s Speaks Radio talks with poet Su Croll who shares her experience of caring for her Father with Lewy body dementia.  Her prose express the range of emotions when caring for someone with a chronic illness and insights as to the caring journey itself from many angles.  Listen in anytime once the show goes live as all episodes are archived for your convenience.

Hands and Face by Su Croll

It is true. I will remember the hands and face.

The whole frustrating trickery of the thing.

My mother tells how she dogged him

to get all numbers limned at their true points.

Noon and midnight made for due north.

Six headed south. The clock becoming

a demented compass, a supposed proof

fumbled for in that doctor’s office

right before my dad was officially diagnosed.

I don’t know where his attempted drawings

of clocks are today. I don’t know how

that suddenly uncertain face triggered

his ragged response. Three and nine left off

or the hands wayward and drawn in the blank

outside the clock. I don’t know why that wrong

clock condemned him, tripped him up, making

that day the day they told us with all certainty

it was dementia.

Contact Su Croll at:

Website:  https://sucroll.wordpress.com

Book:  https://www.turnstonepress.com/books/poetry/cold-metal-stairs.html

FaceBook:  https://www.facebook.com/su.croll.9 

Thank you for joining Alzheimer’s Speaks Radio.  We hope you subscribe and share this episode with your family, friends, clients and colleagues.

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

Read Full Post »

The Silent Killer – Poem by Gwen Barnes

I dreamt about my mum today

a cruel disease took her away

it crept up upon her from behind

and slowly crushed synapses in her mind

I watched it happen

I couldn’t fight

I was powerless, as she was

in it’s might

I sometimes hear the latest news

the scientists have made

the next breakthrough

but this killer is still at large

it’s appetite is on turbocharge

its killing millions in it’s wake

it must be stopped

for humanity’s sake

So all I can do is hope and pray

that it doesn’t get me one day

there’s evidence to suggest it will

by then there may well be a pill

to cure this dreaded predator of the brain

to let old age have it’s longest reign

to enjoy this life, to be fit and well

until it’s time to bid my last farewell.

By Gwen Barnes

(in loving memory of my mum who passed away with Alzheimer’s in 2016)

Take The Survey Through 9/15/19

Dementia Airport Travel Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

Read Full Post »

Leveraging Art to Document Your Caring Journey

Click Above To Listen Live Tuesday – Aug. 6th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 31st at 6am Australia. All Shows are Archived for Ease of Access.

Lori La Bey, host of Alzheimer’s Speaks Radio take with Dr. Mali Mann who is an adult/child psychiatrist, psychoanalyst and author.  She is on the faculty at Stanford School of Medicine, in the Department of Psychiatry and Behavioral Science. Her latest book, Whisper, Forget Me Not, is filled with poetry and paintings portraying the experiences she’s had watching her husband struggle with Alzheimer’s. It’s a beautiful story of how tapping into art helped her find balance, process her journey and leaves a legacy of their relationship while helping others going through the same thing.  

Contact Information for Dr. Mali Mann

Email – malimannmd@gmail.com

Take The Dementia Airport Travel Survey Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

Read Full Post »

Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

See Other Poems Here

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Poem – Floating Words

  Problems understanding spoken sentences (verbal comprehension):

Floating Words

© Truthful Kindness 2018 Dec 11

Words float around and past me.

sometimes they splash against my body.

i hear them spoken.
i understand each word.

I reach for them,
but mostly they just float around me without joining;
without coalescing into concepts that i can grab, hold, and understand.

Sometimes i am able to grab a passing thought and hold it;
finally understanding,
responding to the speaker and building relationship …
… but then it is gone again.

Words float around and past me.

Sometimes i feel alone
… and require visuals or TOUCH.


© Truthful Kindness 2018 Dec 11

Contact Truthful Loving Kindness at:

Blog

FaceBook

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Poem About Dementia –

I want to again thank Cheryl Kempner for sharing her beautiful poetry with our community here at Alzheimer’s Speaks.

Her Birthday

Copyright Cheryl Kempner 2018

Like a new born that does not know,

Or a toddler that does not grow.

Her birthday came,

Her birthday went,

But she did not know what wishes were sent.

The mind is fierce and out of sight,

It does not know or care of the heart’s plight.

That we may need to keep moving on,

Or maybe it knows that we must stay calm. 

For we would go mad if we really did know,

That our mind was shrinking and we could not grow.

To new levels of our early existence, 

Or is it aware of our soul’s forever persistence.

Do the flowers, the wishes, the visits or chocolate cake,

Mean anything inside or is it all just fake.

The talking, the laughs, the pictures and more,

Does it tell a story or is it just knocking on a closed door.

To make up for lost time in these last few years,

Few years that to some mean many more tears.

But to other it’s a time to make memories to last,

Moments to take, moments to grasp

The veil has been lifted,

The wall is no more.

The relationship is freed, 

The tension is old lore.

Could there be a message, in disguise,

Or is it just the unraveling of all the lies.

The mind is a vicious thing,

It can take away a human being.

But can it really, as we can feel,

We know what’s what, but how do we deal.

With such thoughts that her birthday came and went,

But does she know what wishes were sent?

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Poem Regarding Dementia: Time Lost

Time Lost

Another Beautiful Poem

Submitted By A Community Member

Time Lost

By Sandy Cannon

A crestfallen look beholds her face

The life of her mind now wrapped up in lace

Bright smiles once captured are now fleeting and few

Her indifference grows stronger, as her prayers fill the pew

Words once spoken fall silent from her lips

Her captor steals her thoughts and robs her of bliss

A world yet to travel with opportunities so vast

Is held hostage by her mind and are now dreams of the past

Loved ones are devoted and keep vigil for her care

Unable to arrest this disease that so dares

Dares to be bold, dares to be brash

And forces us to mourn our loss before the ash

We take solace in knowing that her fear will surrender

To a place deep inside, that she will no longer remember

Let’s find a cure….

My name is Sandy Cannon and I live in St. Louis, MO.  My mother passed away in December, 2017, from dementia.  I am a volunteer for AFTD (The Association for Frontotemporal Degeneration).  I also work with the Alzheimer’s Association in St. Louis.  

Thank you  Sandy for sharing you poem with all of us!

Lori La Bey, Founder of Alzheimer’s Speaks

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

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