Posts Tagged ‘Person Centered Care’

Improv Techniques with Cathy Braxton & Tami Neumann of Dementia Raw

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with  Cathy Braxton & Tami Neumann

Dementia Raw of

Silver Dawn Training Institute

Thursday July 12th, 2018

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Click Here to Listen

Caring for persons with dementia brings a unique set of challenges.  Silver Dawn Training Institute equips professionals and loved ones with a new way to communicate with these individuals: introspective improv. 

Their approach is unscripted, unconventional and unapologetic. They deal with real-life scenarios and consider your – and your patients’ – vantage points. Their training is based on the company founders’ experience in long-term care.

Cathy Braxton is the Chief Education Officer of Silver Dawn Training Institute.  Tami Neumann is the Chief Operations Officer and they co-created the Dementia RAW Method,  Collectively they have over 40 years of experience in the long-term care/aging industry.

Come learn and laugh with us as we discuss new ways to live graciously along side dementia.

Watch the Video Interview Below

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New M.S. in Dementia and Aging Studies – Texas State University

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with Dr. Chris Johnson of

Texas State University

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Thursday July 10th, 2018

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Today Lori La Bey, host of Alzheimer’s Speaks Radio will talk with Dr. Chris Johnson, Clinical Professor of Sociology at Texas State University who developed the new 33 hour M.S. in Dementia and Aging Studies, which is available online. They will discuss why this program is unique and so badly needed in the United States.  They will look at dementia as a disability with abilities, dementia citizenship and why Person-Centered Care is a myth in America.

Contact Dr. Chris Johnson:




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Your Next Conference!

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Push Research Forward – Join the A-List

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Virtual Dementia Tour & Second Wind Dreams

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The Original Virtual Dementia Tour & More!


This Thursday we are thrilled to have PK Beville the Founder of Second Wind Dreams®, back with us.  Second Wind Dreams is an international non-profit whose mission is to make dreams come true for our elders and provide innovative dementia education through the patented Virtual Dementia Tour®.  The VDT is a simulation of dementia and is used worldwide for dementia sensitivity and increasing person-centered care, having profound effects on those using it.  If you don’t know about PK’s work you need too.  It can be life changing!

Contact Information For

Phone:  678-624-0500                          Website:  www.secondwind.org

Resources for Dementia & Caregiving

 Copy of DC_HQ_062714_banneryellow2

ccr v sm 3



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Come Dance With Us For Dementia

Come Dance With Us!

Raise Funds To Improve Lives

Of Those Living With Dementia

Gianna homes event 1gianna homes event lori others

I Hope You Can Join Us

gianna homes 2 scheduleGianna_fundraiser_nov_7gianna homes about them

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Building Alliances For Person Centered Care

Lets talk radiolori_and_sherri_nov_radioClick above to  go to the radio show

The live show starts at 11am EST,10am CST, 9am MST, 8am PST and 4pm London time.

All shows are archived so you can listen to them later too!

You can call in with your comments and questions as well

(714) 364-4757

Building Alliances For

Person Centered Care

This will be a fantastic show with a wide variety of guests.  From formal national efforts to grassroots.  All giving voice and shifting our dementia care culture in their own way.  Come and listen and learn how you to can participate in providing person centered care and what it means to these individuals.

Our first guest will be Karen Love from CCAL – Advancing Person-Centered Living and the Dementia Action Alliance. She is a passionate person making huge strides to improve our dementia care culture.

Karen LoveKaren Love – CCAL –  Advancing Person-Centered Living

Our second half will have a variety of individual talking about the latest social support group for those dealing with dementia and their care partners – Memory Cafe’s, Alzheimer’s Cafe’s and Dementia Cafe’s. We will talk with facilitators and well as those that attend.  Come join the conversation with Carole Larkin, Jytte Lokvig, John and Virginia Sweeney and Ed and Judy Meehan.

carole_larkin_pic_jpegCarole Larkin – Third Age Services

Jytte Lokvig picJytte Lokvig – Alzheimer’s A to Z

john_and_virginia_sweeneyJohn and Virgina Sweeney – Arthur’s Memory Cafe Members

IM000609.JPGEd and Judy Meehan – Arthur’s Memory Cafe Members

Learn more about Cafe’s for those with dementia & Find a Cafe Mentor

Enter your Cafe int Alzheimer’s Speaks Resource Directory

Alz_Spks_Logo_Website_090413Check Out Alzheimer’s Speaks Resource Website

For More Information

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Mission-driven Organizations Align to

Make Person-Centered Dementia Care the Norm

Three organizations with person-centered care at the core of their missions (CCAL – Advancing Person-Centered Living, Eden Alternative, and Planetree) today announced they have joined together as a leadership team to form the Dementia Action Alliance. The Dementia Action Alliance will coalesce and connect the voices of people living with dementia, their care partners and other advocates to inform key policy, research, and service provider stakeholders about the importance and benefits of making person-centered care the standard for dementia care in our country.

The United States is facing unprecedented growth in the number of people living with dementia – currently estimated at 5.4 million Americans and growing at an alarming rate as the baby boom generation ages. A recent article in the New England Journal of Medicine found that dementia costs now exceed those for cancer and heart disease. Despite the high expenditures, the quality of dementia care in general across the country is not up to par. Person-centered care, which is recognized as the gold standard by the Institute of Medicine, would improve quality as well as reduce costs.

“The Dementia Action Alliance heralds a timely Call to Action to cross the quality care chasm into the gold standard of person-centered practices both improving quality of care and reducing overall care expenses – important benefits for everyone,” said Karen Love, Founder of CCAL.

The leadership team has begun to engage grass root groups across the country that include and represent people living with dementia and their advocates to learn what THEY feel is most needed and important for dementia care practices, public policies, and research agendas. A one-day thought leaders’ Summit will be held in Washington, DC in Spring 2014 to share these perspectives and priorities and to discuss how to begin implementing them.

Michael Lepore, PhD, Director of Quality, Research and Evaluation for Planetree, notes: “By aligning research, policy, and practice efforts, and advancing implementation of person-centered care to support individuals living with and affected by dementia, the Dementia Action Alliance is supporting our collective human desire to realize compassion in action.”

“Our three organizations are deeply committed to creating person-centered environments and experiences. By gaining the support and involvement of national, state, regional, and local entities in this alliance, we can reach the ‘tipping point’ that makes person-centered care the only acceptable norm for our country”, Chris Perna, CEO of Eden Alternative said.


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If you missed the Dementia Chats Session today, there is no need to worry.  All sessions are FREE and recorded for your convenience.  You can go to the Alzheimer’s Speaks website to find past recordings and handouts, along with upcoming sessions.  Here is the direct link to the page where you can find the links and handouts.  We all hope you find the discussion helpful.

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High Quality Dementia Care


By Diane Lightfoot, Director of Communications, United Response

Back in March 2012, the ‘Prime Minister’s Challenge on Dementia’ white paper was launched which included a list of 14 commitments, covering: Improvements in Health and Care; Creating Dementia Friendly Communities that Understand How to Help; and Better Research.

Commitment 4 in this white paper refers to “A Dementia Care and Support Compact signed by leading care home and home care providers”.It further goes on to explain in detail that ten top organisations have signed up to deliver high-quality relationship-based care and to provide support to people with dementia. Furthermore, they have also signed up to actively engage and to involve the wider community in this work.

The white paper illustrates the culmination of better insights into the scope and extent of the major effects of dementia in the UK. These figures which have been extracted from the Alzheimer’s Society website help to underline some of the key points:

  1. 800,000 people living in the UK have dementia. Within 10 years this will increase to 1 million and by 2051 the figure will be 1.7 million
  2. Presently only 41% of people with dementia receive a diagnosis
  3. The propensity to have dementia rises with age, from 1 in 1,400 (40-64years) to 1 in 6 (80+ years)
  4. Family carers subsidize 34.8% of the £23billion cost of dementia to the UK. This equates to a staggering £8billion.

Nevertheless, statistics only form part of the story. Indeed, the most important message that was taken from this year’s Dementia Awareness Week, which ran from 20-26 May, was to remember that there’s a lot more to a person than the dementia. The emphasis should be on the person, not the dementia.

This approach goes hand in hand with United Response’s person-centered approach to supporting people with dementia. Indeed, this approach is at the focal point of everything that we have done over the past 39 years.

The Prime Minister’s white paper highlights the need for a similar, personalised approach to dementia support. It explains in great detail about ‘relationship based care and support’. The most important question that needs to be addressed is; how will this work within the NHS?

Searching online under ‘Dementia Awareness Week’ revealed a web chat which was run by two clinical nurse specialists, who both work at a Midlands NHS Trust, with 50 years’ experience of dementia and caring for older people.

The web chat helped to illustrate the fact that their dementia training is split up into a mixture of both mandatory sessions for new members of staff and monthly voluntary sessions. Actually, the majority of NHS hospitals are beginning to understand that there are major benefits to be gained from giving person-centred dementia care training to their staff.

At this Midlands Trust they had been providing this form of training for over ten years. The techniques and tools taught in such training turned out to be both ingenuous and creative.

The Trust in question implemented a ‘Getting to Know Me’ form for dementia patients. This is a reworked version of a form initially put together by the Dementia Services Development Centre at Stirling University. The form is filled in by the patients family or carer and it incorporates both the patient’s previous life and experiences. By making use of this personal insight, staff can strive to meet the needs of the person they support.

The Trust also has activity coordinators in place whose main role is to help calm people prone to agitation. They encourage ‘purposeful activities’ for those who need to be stimulated whilst in a hospital environment.

Essentially, this particular Trust has also formed excellent working relationships with external organisations. For example, they have worked very closely with the Alzheimer’s Society on a number of projects such as Memory Lane and the Forget-Me-Not Lounge.

Most of the techniques, tools, projects and campaigns specified in the web chat revealed a common trend. It was all about staff choosing to adopt a patient (or person)-centred approach.

At United Response, we believe that a person-centred approach is essential in helping to provide effective dementia support. Furthermore, we have looked to develop expertise in this type of support for as long as we have existed as an organisation, as demonstrated by our Best Practice Guide. For more information about the dementia support available please visit: http://www.unitedresponse.org.uk/what-we-do/dementia/

We are extremely pleased to have put that approach into place which shows that we have full confidence in it. Our belief in the approach has been taken onboard by the Government, leading charities and the NHS, as they look to the future of dementia support.

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Fantastic Video On

Engaging Those With Dementia

It really doesn’t have to be that hard and this video shows that!

Like I always teach with “Your Memory Chip”

Are they:  Safe, Happy & Painfree

It really is just that simple sometimes


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