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Posts Tagged ‘NAPA’

NAPA – National Alzheimer’s Plan ACT Needs To Add Teleconferencing for Equal Access

Help The True Voice Of Dementia

Be Heard…Those Diagnosed

Hi Everyone,

I hope you can help us. We are trying hard to get the NAPA (National Alzheimer’s Plan Act) Advisory Council to allow teleconferencing which would enable more people around the country to have their perspectives heard. Especially those with dementia.  In this day and age it is totally ridiculous technology is not being leveraged to cut costs and increase engagement.

For me personally and many others, the time and cost of travel prohibits involvement.  For those with dementia having them travel alone can be a potential safety issue and can increase stress which can than trigger symptoms.  For a loved one to accompany a person with dementia we have now upped the ante on cost and time. Their care partner most likely would have to take time off of work to boot.

Please make some statement about that as I plan to.  Please speak up for those with dementia.  They need your help and so do those that care for them. Now is not the time to sit idle.  Know your voice matters.  Know the more voices asking for the same thing make a movement.  Become part of a critical movement to improve lives for those living with dementia.

If you think dementia is a disease of one, please watch this

October 26th, 2015, is the next NAPA meeting and we would love to see a large response to our request which can be presented to the committee.  I am asking our community to take the few minutes  to write and send an email to napa@hhs.gov  for their support to leverage basic technology and add teleconferencing to their meetings allowing all people with dementia the ability to participate.

NAPA – National Alzheimer’s Plan ACT

Needs To Add Teleconferencing for Equal Access

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Thank you in advance for your support!

 

For more information on Dementia and Caregiving Check Us Out

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Important Announcement – Dementia Chats Webinars Changes Time

Important Announcement 

Dementia Chats Webinars Changes Time

Copy of DC_HQ_062714_solidyellow1Click Above For General Information

The 2nd and 4th Tuesday of Each Month NOW AT:

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time.

Click Here To Directly Enter The Webinar

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For More Resources and Information on Dementia and Caregiving

Click Below 

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A Gift Given By One Of Our Heroes Living & Dying With Dementia – Dena Dotson

A Gift Given By One Of Our Heroes Living & Dying With Dementia 

Tuesday at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

040715 ASR Tribute To Dena Dotson Life

Alzheimer’s Speaks was sadden with the loss of one of it’s experts living with dementia.  On April 1st, 2015, Dena Dotson planned to leave this world in hopes of a better life.  Although everyone may not agree with her decision, it is important for us to honor her work and advocacy to improve the lives of others living with dementia. We will not judge her decision but accept the fact that none of us can really know what decision we would make if to walk in her shoes.

Today Dena no longer suffers from the symptoms of dementia which made her life unbearable. Today we  celebrate the gifts she gave us while here and grieve her loss together as a community.

Please note this is a replay so you won’t be able to call in today.

For more information on dementia and caregiving

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A Huge Step In The Right Direction – Festival Foods In Wisconsin Becomes Dementia Friendly

A Huge Step In The Right Direction –

Festival Foods In Wisconsin Becomes Dementia Friendly

DF_grocery_store_festival_foodsclick_aboveFor more information and Dementia and Caregiving

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Beautiful Song on Early Onset Dementia – You Are Here

A Beautiful Song on Early Onset Dementia –

“You Are Here”

Please Share with others.

For More Information on Dementia and Caregiving

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Your Vote Is Needed For The Film “Finding the Why” for Dementia – It’s up for a People’s Choice Telly Award!

Your Vote Is Needed

This brilliant short film, “Finding the Why” is up for a People’s Choice Telly Award and we need to get the most votes to win. Please CLICK HERE to vote.  Make sure to register and log in order for your vote to count.

Share the link with your networks!  finding_the_why_telly_awards

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Pass the link to this page on to your

friends, groups, circles, tribes and colleagues…

Thank you for your assistance. 

This is a beautiful short film having big impact around the world.

For more information on dementia and caregiving

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Dementia Chats Educational Webinar Recorded Session – March 10th 2015

Dementia Chats Educational Webinar

Recorded Session – March 10th, 2015

031015_DC_snap_dena_robert_Paulan_robert_eilon click_above_watch_recorded_webinarToday we discussed our healthcare system with our experts living with the diagnosis of dementia.  How do we get doctors and medical professionals to get educated and knowledgeable not only about dementia specific to their specialty, but to  find out and provide supportive services to assist those dealing with the disease.  Many great examples were given and strategies were discussed in this hour long session.

For more information on the Dementia Chats Educational Webinar Series, CLICK HERE

For & Information on Dementia & Caregiving

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