Feeds:
Posts
Comments

Posts Tagged ‘Michael Ellenbogen’

Join Dementia Chats Free Educational Webinar Tuesday March 24th 3pm EST

Join Dementia Chats Free Educational Webinar

Click_below__4_more_info_on_DCCopy of DC_HQ_062714_bannerpurpleTuesday March 24th

3pm EST, 2pm CST, 1pm MST 12pm PST

and 8pm London Time

Meet our Experts living with dementia

    Harry Urban                   Robert Bowles          Michael Ellenbogen

harry UrbanRobert Bowles Pharma PicMichael Ellenbogen newest pic 102813

     Steve Ponath               Paulan Gordon                  Dena Dotson

Driving Steve PonathDC paulan gordondena_dotson

Come with your questions, comments and insights to share.

DC_ENTER_WEBINAR_click_here_to_enter_webinarDC_HQ_062714_solidyellow2 color photos

Read Full Post »

Dementia Chats Educational Webinar Recorded Session – March 10th 2015

Dementia Chats Educational Webinar

Recorded Session – March 10th, 2015

031015_DC_snap_dena_robert_Paulan_robert_eilon click_above_watch_recorded_webinarToday we discussed our healthcare system with our experts living with the diagnosis of dementia.  How do we get doctors and medical professionals to get educated and knowledgeable not only about dementia specific to their specialty, but to  find out and provide supportive services to assist those dealing with the disease.  Many great examples were given and strategies were discussed in this hour long session.

For more information on the Dementia Chats Educational Webinar Series, CLICK HERE

For & Information on Dementia & Caregiving

Click_belowalzsnap_serv_072413

Read Full Post »

Mr. President and Congress… Are you Listening?

Dear Mr. President

and Congress…

Are you Listening?

Watch Below

Please share far and wide.

It’s time the US government hear from those diagnosed with Dementia.

thank you Michael Ellenbogen for taking the time to make this video.

For information on

Dementia and Caregiving

Click Below

alzsnap_serv_072413

For More Resources Check Out Our Collaborators Below

alz_spks_thank_you_to_sponosors012715

Read Full Post »

Monthly Speaker’s Forum from MemoryWorks – The Stigma of Dementia

Join Us Tonight!

We are live now

Let’s see who is up for some new use of technology. I hope you will join us. There won’t be anyone at Port Resources itself – so join the virtual forum.

Because we are all so tired of snow, you can now stay at home and take part in the monthly Speaker’s Forum from MemoryWorks and Port Resources on Thursday Evening at 6:30pm.

The virtual doors will open shortly after 6pm – either by Internet or by phone. You will be able to listen and take part in the discussion using GoTo Meeting.

Tonight’s guests are Michael Ellenbogen from Pennsylvania and Lori La Bey, founder/owner of http://www.alzheimersspeaks.com

Michael has lived with dementia for many years. He has been a vocal advocate for dementia and it’s many tentacles. https://www.facebook.com/MichaelEllenbogenMovement

Lori was recognized by Sharecare and Dr. Oz. as the #1 Influencer Online for Alzheimer’s.  As a professional speaker and daughter of a mother with dementia for over thirty years, Lori gets it!
We will have an open and honest discussion on the STIGMA that surrounds all forms of dementia. Your input is valuable and welcome. Those of us who have some form of dementia have all seen discrimination – from friends, family, employers, strangers, and providers.

1.  Please join the meeting online at https://global.gotomeeting.com/join/656813677

OR

2.  Join the conference call by phone:

Dial +1 (619) 550-0003

Access Code: 656-813-677

Audio PIN: Shown after joining the meeting

Meeting ID: 656-813-677

GoToMeeting®

Online Meetings Made Easy®

For more information please contact either:

Kenneth A. Capron
MemoryWorks
1375 Forest Avenue D-11
Portland, Maine 04103
207-797-7891
kcapron1@maine.rr.com
http://memoryworks.org

For more information on Dementia & Caregiving

Click Below:

alzsnap_serv_072413

Read Full Post »

Join Dementia Chats Webinar Today at 3pm EST It’s FREE!

Join Dementia Chats Webinar

Today at 3pm EST, 2pm CST, 1pm MST, 12pm PST

It’s Fun And Free

DC_HQ_062714_solidyellow2 color photos

Click Above For More Information

Tuesday Nov. 25th, 2014

1pm EST, 2pm CST, 1pm MST, 12pm PST

Here are our Experts

harry_urbanHarry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

Driving Steve PonathSteve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

dena_dotsonDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

mICHAEL_ELLENBOGEN_SPEAKINGMichael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Robert Bowles Pharma PicRoberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dementia Chats Hosts

lori_with_radioLori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving.   Her mother has struggled with dementia for over 30 years and she is now in her end stages of the disease.

Eilon Caspi picEilon Caspi, is a PhD, Gerontologist and Dementia Behavior Specialist. He runs The Center for Prevention of Resident-to-Resident Aggression in Dementia.   Eilon will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations. Eilon can also be reached via another website. Eilon can also be reached via another website.
Check Out This Great Holiday Music!

combineid AlzMusCon logo and CDFor Additional Dementia Resources

Click Below

 

Read Full Post »

Join Dementia Chats The FREE Webinar Where You Can Ask Your Questions To People Living With Dementia

Dementia Chats

A FREE Educational

Webinar

Where You Can Ask Your Questions

And Gain Insights From

People Living With Dementia.

DC_HQ_062714_solidyellow2 color photosClick Below to Watch the Oct 29th Webinar –

102814DC_Harry_Michael_RobertA Powerful Conversation on Advocacy, Politics & Policy for Dementia and more.

 Our Experts

harry_urbanHarry Urban , Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

 

 

 

Michael Ellenbogen newest pic 102813Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

 

dena_dotsonDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

 

 

Driving Steve PonathSteve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

 

 

Robert Bowles joined us today as one of our experts and added so much to the conversation.  Thank you Robert!

Our Host and Facilitators

Lori La Bey Founder of Alzheimer's Speaks

Lori La Bey founder of Alzheimer’s Speaks and Dementia Chats. Lori’s mother lived with dementia over 30 years. The journey changed Lori’s life forever. Her goal is to connect people to practical resources that add value in their lives.

Eilon Caspi pic

Co-facilatator Eilon Caspi is a behavioral specialist in the area of dementia and brings a wide range of knowledge to the webinar.

 

 

 

For Additional Resource Provided by Alzheimer’s Speaks

Check Out Our Website Below

alzsnap_serv_072413Thinking Of The Upcoming Holidays?

Check Out This New CD by Alzheimer’s Music Connect

Using Cutting Edge Technology To Engage those with Dementia

combineid AlzMusCon logo and CDClick Above to See A Variety Of Music Offered By

Alzheimer’s Music Connect

Read Full Post »

Dementia Research & NAPA Speeches on Alzheimer’s Speaks Radio 8/26

Dementia Research &

NAPA Speeches

Alzheimer’s Speaks Radio

Tuesday 8/26

082614_ASR_neurotrope_NAPA_MichaelClick To Listen to the Show

Alzheimer’s Speaks Radio goes live Tuesday Aug 26th at 11am EST,10am CST, 9am MST, 8am PST and 4pm London  time.  We love having an open conversation with everyone who is dealing with the disease.  Please call in live at (714) 364-4757to ask a question or share a thought or use the chat box to communicate with us.

Our first guests are Charles Ramat, Co-Chief Executive Officer and Dan Alkon, PhD., Neurotrope, Chief Scientific Officer and from Neurotrope. We will be discussing Alzheimer’s disease treatment challenges and Neurotrope’s development of bryostatin, their partnerships and minimally invasive, diagnostic biomarker analysis system.

Eric_Neurotrope_logoDuring our second hour we will listen to Michael & Shari Ellenbogen’s Speech at NAPA (National Alzheimer’s Project Act).  After we will discuss your thoughts and talk with Michael on how their speeches were received.  We would love for you to join the conversation.

michael_ellenbogen_video

For more information on dementia and caregiving check out:

 

Read Full Post »

The Gift Of Forgetfulness

Alzheimer’s Speaks Radio

Cancelled The Network is Down

Live Tuesday August 12th, 2014

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time

081214_ASR_oepn_mic_and_Nader_of_age_song_6

The 1st hour will be OPEN MIC where we will listen to a portion of the past NAPA (National Alzheimer’s Project Act) meeting where Michael & Shari Ellenbogen speak on dementia.  I am very interested in hearing your thoughts as to what Michael and Shari addressed with congress.  You can make comments by calling in live to the show at (714) 364-4757 or using the chat box.

The 2nd hour will are honored to have Nader Shabahangi who received his Doctorate from Stanford University.  He is a licensed psychotherapist, and is Co-founder of AgeSong. His multicultural background has fueled his passion for becoming an advocate for marginalized groups and for creating programs with the purpose of caring more comprehensively for elders. He has written several books.  Two I will mention are “Deeper into the Soul” and “Conversations with Ed.”

I hope you can join the conversation live with us!  Call in at (714) 364-4757 or use the chat box.

naderage_song nader_conversation_with_ED

nadeer_deeper_into_the_soul_2

For additional Resources on Dementia and Caregiving Check Out Alzheimer’s Speaks full website where you can get to our blog, YouTube channel, the Dementia Chats webinar series, resource directory and more.

alzsnap_serv_072413

Read Full Post »

Life With Dementia – Why It Is So Important For Us To Listen To Those Diagnosed

Life With Dementia –

Why It Is So Important For Us To Listen

To Those Diagnosed

This is one of the most interesting and thorough book reviews I’ve ever read.  Eilon Caspi, Ph.D. really has done a nice job breaking down Michael Ellenbogen’s book, From the Corner Office to Alzheimer’s for us,  He so simply shares critical insights for those diagnosed, families caring for loved ones as well as professionals.  Please read the excellent review below.

Michael ellenbogen book cover

I’ve been in the aging field for 20 years, the last 10 of which solely focusing on various issues related to improving the quality of care and life of persons with dementia. Nothing has taught me more about the lived experience, struggles, and hopes of persons with Younger-Onset Dementia than this book.

Many people think they understand dementia but they don’t really have a nuanced understanding of what it actually means to live with it. This book is precious because it helps bridge this major gap.

You often learn about discrete aspects of the lived experience of persons with dementia but rarely have an opportunity to get a holistic and ongoing picture of a person’s journey through the early stages of dementia.

The best educational materials usually come from persons living with dementia. The knowledge from inside out is unparalleled in value and could be an effective vehicle for change in our culture and approach towards persons living with dementia.

With this book, Michael gives us a rare opportunity to come closer to understanding the avalanche of losses and emotional pain caused by dementia. As importantly, it demonstrates how misinformed perceptions about persons living with dementia can have tremendous effects on the person’s psychological well-being.

Through his persistent commitment to detailed documentation of his daily experiences, Michael teaches us about the emotional roller coaster commonly experienced by persons with dementia on a daily basis.

Through his experiences we learn about serious gaps in services, programs, and policies that cause tremendous frustration and suffering to persons with dementia. These often under-recognized issues in our communities and society limit these individuals’ ability to reach their full potential and preserve their dignity. They also prevent family members from getting the support and respite they sorely need.

The insights and lessons shared in the book (such as the long and excruciating journey for getting a diagnosis) will prove critical for many others who currently experience early signs of dementia as well as for those who will develop dementia in the future. They will substantially reduce the suffering of these individuals and their family members, save precious years of life, and help minimize loss of income.
The book could also be used as an excellent teaching tool for various health professionals who are committed to truly understanding the lived experience of persons with Young-Onset Dementia and the wide spectrum of cognitive disabilities caused by this set of conditions. This, as Michael points out, while taking into account that every person is impacted by the disease differently and Michael’s experience may not be representative of all persons with similar conditions.

If used to inform educational materials and training programs, the heartbreaking examples in the book could help improve practices, skills, and sensitivities of diagnostic centers / memory clinics and ensure that clinicians will always listen to persons with dementia and take their concerns seriously.

The struggles experienced by Michael also include numerous frustrations at home in general and with loving, caring, and dedicated family members. The insights shared about these struggles will go a long way in educating family members in dealing with these issues (e.g., denial of dementia, misperceptions, helpful communication techniques, finding joy, and safety issues). They will increase sensitivity among family members to the person. The book also shows how the power of love can sustain persons with dementia in their constant efforts to maintain hope.

The devastating financial impact of the disease on Michael and his family is an underlying theme throughout the book. This knowledge could be used to inform initiatives that will transform federal and state agencies’ decision-making processes, practices, guidelines – and eventually laws that govern and oversee operations of these agencies – to ensure that lifelong hard work of citizens will not be forgotten during times of dementia-related disability and that their rights for financial security will be protected.

The book could be used to increase sensitivity among employers to employees who gave their heart and soul for many years to ensure the financial stability and success of their companies. No dedicated and honest employee should go through what Michael has gone through when he was fired from his 18-year job. We must find ways to ensure that employers will become dementia-friendly and treat their employees with dignity during times of disability.

An excellent chapter in the book is dedicated to important considerations and suggestions pertaining to the process of applying for disability benefits (written by an experienced attorney – John Tucker, Tucker & Ludin, Legal Solutions).

The book addresses other important issues such difficulties with short-term memory, reading and writing, reaching desired destinations, the impact of the physical environment (e.g., noise), driving; dementia work-up for doctors; and assisted suicide. It also provides a strong reminder that persons with dementia may experience other health conditions that tremendously impact their quality of life.

Using numerous examples, Michael teaches us about how he copes (often creatively) with the many functional, cognitive, and psychological losses and challenges along the way. The book contains dozens of concrete suggestions, tips, and helpful resources for dealing with the limitations imposed dementia and those caused by others’ misperceptions, lack of awareness, and insensitivities.

The book also highlights the urgent need of our society to develop dementia-friendly work and volunteer opportunities to ensure that the wealth of life experience, knowledge, professional skills, and wisdom of persons with dementia will be used wisely and creatively to benefit our local communities and give life-sustaining meaning and purpose to these individuals.

The book could inform efforts to reduce the harmful stigma commonly held about persons with dementia and in so doing increase the likelihood that these individuals will be approached with empathy and respect.

It is a powerful, honest, and inspiring testament of the strength and resiliency of the human spirit despite a cruel disease, its many devastating and heartbreaking impacts, and the lack of awareness and sensitivity in our society to this condition.

I highly recommend you to receive this precious (if not life saving) gift Michael has given us. It was an extremely frustrating process for Michael to write the book with his cognitive limitations and we should be grateful that he found the inner strength to complete the writing with the help and support from his wife and his family.

In the words of the late Prof. Tom Kitwood, author of the groundbreaking book Dementia Reconsidered: The Person Comes First,

“People with dementia may have something important to teach the rest of humankind. If we make the venture one of genuine and open engagement, we will learn a great deal about ourselves.”

Reading this book will bring us one solid step closer to the realization that at the end of the day we are all interdependent on each other and that only with this deep understanding we will be in a position to realize Michael’s vision for a truly dementia-friendly society.
Hope you’ll find the book useful as I did,

Yours sincerely,

Eilon Caspi, Ph.D.

Center for Prevention of Resident to Resident Aggression In Dementia

Eilon’s Website

michael_ellenbogen_video

Click the video above to see how Michael Advocates

for change to improve dementia care.

Click Here To See How You Can Make A Major Difference
Raising Awareness

 

For More Resources on Dementia and Caregiving

Click Below

combo_of_alz_spks_sevices

Read Full Post »

Join Dementia Chats FREE Webinar Tuesday, July 8th

Join Dementia Chats FREE Webinar

Tuesday, July 8th

Dementia_Chats_General_ad_for_websiteClick Above for more information

3pm EST, 2pm CST, 1pm MST, 12pm PST and 8pm London

Its FREE, FUN & EDUCATIONAL!

Click here to enter the webinar

steve_rfield_today_show_112312

Today Steve Orfield, of Orfield Laboratories, will join our experts living with dementia to discuss on the impact of noise on people diagnosed with dementia and the ways to address it.

Orfield Laboratories, Inc. is a multi-disciplinary laboratory serving North American and international clients. Providing services in Acoustics Vibration, Vision, Lighting, Architecture and Market Research. Orfield is unrivaled in the extensive use of objective and subjective methods, offering design, research and testing services and solutions for corporate and architectural clients since 1971.

We would love to hear your thoughts and questions. I hope you can join us!

Our Experts Actually Have Dementia

harry_urban

 

Harry Urban , Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

 

Driving Steve Ponath

Steve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

 

 

dena_dotson

 

Dena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

 

Michael Ellenbogen newest pic 102813

Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Dementia Chats Hosts

Lori La Bey founder of Alzheimer's Speaks

 

Lori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving. Her mother struggled with dementia for over 30 years.

 

 

Eilon Caspi pic

Elion Caspi, has a website called Aggression Between Residents with Dementia He will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations.

 

For more information on dementia

Click Below

Alz Speaks multi logo_091113

 

Read Full Post »

« Newer Posts - Older Posts »

%d bloggers like this: