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Posts Tagged ‘Meryl Comer’

Dementia – Research – Advocacy & Families

Alzheimer’s Speaks Radio

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Host Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer’s Patient/Caregiver Powered Research Network (AD-PCPRN)  and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the convervsation on research and support.

Contact Information:

  A-LIST on UsAgainstAlzheimer’s       A-LIST Facebook          A-List YouTube   Join the A-List        

Joan M Griffin Email     

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonials https://youtu.be/oQILeOcQYN0

Video Interviews with Those Living with Dementia
Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Find A Memory Café In Your Area

Programming starts Feb. 17th, 2019 – Preview Below

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Poem Inspired By Disease – Matter of Fact

Matter of Fact

By Ron Louie, MD

Her face was matter of fact when she heard the pronouncement. 

The neuropsychologist was her colleague; he remained professional, but slipped in some sympathy with the data, which I could not appreciate.

She didn’t display a mask of depression, or Parkinson disease.

Her face remained pliable, not pleased, but neither terribly pained, no exhibition of perplexity, or petulance, or surprise, a pensive look, retaining its complex grace, a quiet reserve, a solemn alertness, the beauty of humane consciousness, with no further expectations.

In her own practice, she had encountered early Alzheimer disease first hand:

that wonderful younger woman, whose baby she had delivered, working in accounting until the numbers became exotic, then alien; she had told me about that patient, with shock, sadness, and resignation.

But I didn’t understand this. I wouldn’t. It was the guy, his tests, the setting.

At home, I made her try to draw a clock, count backward, recite words, and copy intersecting rectangles.  She tried, this good doctor who had always bested me in calculus, organic chemistry and marriage.  She wasn’t angry.

So how could I be mad? She was setting the example, as she had done her whole life, her whole career, without pessimism or regret, or fanfare, just ready to go on, even though her words and steps might mutate, unpredictably, ever aware of the possible endpoints, with each of us now grappling this present moment, trying to recognize its identity.

Dedicated to IRJ, MD; suggested by Meryl Comer

Neurology® 2018;90:139. doi:10.1212/WNL.0000000000004841

Listen above to Dr. Louie read this poem. 

 

 

 Looking for a Speaker?

See what LeadingAge has to say about Lori La Bey.

 “Feedback from the conference planning committee and our leadership team was extremely positive. 

Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Meet Lori La Bey in March

Click Below to Download the Tips

Push Research Forward – Join the A-List

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Learn About The A-List & How Dementia Research Will Improve Lives

Learn About The A-List

& How Dementia Research

Will Improve Lives

 A missing piece in Alzheimer’s research is hearing from those who are closest to the disease.  Don’t miss the opportunity to be heard. Join us Tuesday, May 30th and learn how you can let Researchers know What Matters Most to you and your loved ones.

Listen and learn from our panel of experts each a powerhouse as an advocate and activist for dementia. Meryl Comer, Ginny Biggar, Terry Frangiosa and Greg O’Brien.

  • You will hear how this journey is tough, even for those with resources and those who work in the area.
  • Learn how we can all learn and grow through our dementia journeys. 
  • Find out how crucial you voice is in the fight against Alzheimer’s.

http://www.alist4research.org/

Depression, Sadness, Grief & Dementia

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Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

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 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

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Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

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Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

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4 Pillars of Prevention

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Dementia Call To Action

Dementia Call To Action

Here is a note from one of my colleagues, Meryl comer who is out fighting the battle of dementia.

Lori,

I have cared at home for my husband, Harvey, who was diagnosed with early onset Alzheimer’s at age 58, for almost 20 years, and now I care for my mother at home too. Unfortunately, nothing has changed in these last 20 years – there are still no disease-modifying treatments or better care options. So I wrote Slow Dancing with a Stranger to urge caregivers to tell the hard truth about this cruel disease and flip their pain by becoming more vocal advocates. After all, we are already on the frontline of care – in doctors’ offices, hospitals, and doing battle with insurers. So I hope all caregivers will come out of the shadows with me.

meryl_comer_book_coverClick to review or purchase

It’s been shown that caregiving can have harmful mental and physical health consequences – like depression, fatigue, stress, and chronic illness. What upsets me is the latest research that shows caregiving can take as much as 10 years off a family caregiver’s life. How unfair is that!!

That’s why I’m asking you to take 20 minutes of your time to participate in our new online study – “from the lab to your laptop” – to help researchers focus on the cognitive toll of caregiving. Why? Because what happens to our loved ones if something happens to us? It’s time to show the research community that we can be valuable research partners, and to do this we’re creating the largest virtual cohort of caregivers to join together on the front lines of research – without leaving home.

That’s why yesterday we launched the 21CBT/Health e-Brain Study that invites caregivers to complete a quick lifestyle survey and take a Lumosity brain performance test. That’s it! We promise to share what we learn to help protect your health.

Click here to learn more and participate in the 21CBT/Health e-Brain Study. Your participation will contribute to critical Alzheimer’s prevention studies.

I think most people are worried about their own risk if they have seen Alzheimer’s in their family. I worry all the time. But we don’t need to be powerless. We deserve more than lip service for our unpaid contribution to long-term care in this country. Join this study to show that caregivers count. Our metric for success is to help caregivers stay well and we are using our brains to do it.

Sign up now for the 30-minute study and help researchers help us better understand the early cognitive warning signs to take better care of ourselves.

Fighting Alzheimer’s on the outside when I know it will win at home, makes me fearless. This is not about me. My fight is to make certain no other family ends up like mine. Together we need to show the world what’s really on our mind!

Thank you,

Meryl Comer

P.S. If you’re not a caregiver but know someone who is, please forward this message to help us reach as many caregivers as possible.

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More than 400 leading Alzheimer’s researchers agree that we can prevent and effectively treat Alzheimer’s by 2025 – and it could even be sooner if critical investments and reforms are made. We must SUBSTANTIALLY INCREASE funding for Alzheimer’s research in the next 5 years and we must DRAMATICALLY SHRINK the time it takes to get new, safe therapies to market.

USAgainstAlzheimer’s is a community of enraged and engaged individuals who have been touched by Alzheimer’s disease and are committed to achieving the bold and attainable goal of ending Alzheimer’s.

For Additional Information on Dementia and Caregiving

Click Below

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