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Posts Tagged ‘Memories – The songs and Spirit of Christmas’

Your Vote Is Needed For The Film “Finding the Why” for Dementia – It’s up for a People’s Choice Telly Award!

Your Vote Is Needed

This brilliant short film, “Finding the Why” is up for a People’s Choice Telly Award and we need to get the most votes to win. Please CLICK HERE to vote.  Make sure to register and log in order for your vote to count.

Share the link with your networks!  finding_the_why_telly_awards

click_aboveRemember you need to log in and register for your vote to count!

Pass the link to this page on to your

friends, groups, circles, tribes and colleagues…

Thank you for your assistance. 

This is a beautiful short film having big impact around the world.

For more information on dementia and caregiving

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Here is the Dementia Chats Recording for December 23rd, 2014

Here is the Dementia Chats Recording

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December 23rd, 2014

Today we had a great spontaneous discussion with our experts living dementia. Harry Urban and Robert Bowles below where on video. Dena Dotson participated with wonderful comments and questions via the chat box today.

Our Primary Conversations Covered:

Family dynamics and dementia

The importance of social interaction and connection

What happens when the disease changes

We had fun listening to the “Little Drummer Boy” by Vanessa Campagna at the end of the webinar from the Memories – The Songs and Spirit of Christmas by Alzheimer’s Music Connect.

Harry_with_santa_hatHarry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

Robert Bowles Pharma PicRoberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dena Dotson picDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

Check Out The Fantastic Music From

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Alz Music connect variety pack coverAlz music Connenct MemofChristCover2

 

 

 

 

 

 

 

Need Information on Dementia & Caregiving?

Click Below

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Mark Your Calendars For Alzheimer’s Speaks Radio Show On Tuesday

Mark Your Calendars For

Alzheimer’s Speaks Radio Show On Tuesday

121614 ASR lisa baron dr ben mast 2nd forgettingClick Above For More Information

We go live at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London

Alzheimer’s Speaks Radio – Giving Voice to All

Call in (714) 364-4757 or Use the Chat Box to

Join the Conversation Tuesday Dec. 16th

Lisa Baron 2014 Close UpFounder and Executive Director Lisa Baron, J.D., who established Memory Care Home Solutions will be our first today.  Lisa will explain her unique service she provides families at home caring for loved ones with memory loss, dementia or Alzheimer’s disease. Learn how her company can help you and those your know dealing with dementia.

Website                 Phone 314-645-6247

Lisa Baroncomp logo

Ben Mast2Our second guest will be Dr. Ben Mast, author of Second Forgetting who will discuss his book and the importance of his views on dementia.

Purchase the book

Website                  Twitter  @benjaminmast1

 

ben mast Second Forgetting book cover

Please join us and use the chat box or call in live to join the conversation.

Need ideas for holiday gifts for those with dementia? If so, click here.

combineid AlzMusCon logo and CDAlz Music connect variety pack coverMore ideas

For more information on dementia and caregiving

Go to Alzheimer’s Speaks Website

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Join Dementia Chats Webinar Today at 3pm EST It’s FREE!

Join Dementia Chats Webinar

Today at 3pm EST, 2pm CST, 1pm MST, 12pm PST

It’s Fun And Free

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Click Above For More Information

Tuesday Nov. 25th, 2014

1pm EST, 2pm CST, 1pm MST, 12pm PST

Here are our Experts

harry_urbanHarry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

Driving Steve PonathSteve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

dena_dotsonDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

mICHAEL_ELLENBOGEN_SPEAKINGMichael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Robert Bowles Pharma PicRoberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dementia Chats Hosts

lori_with_radioLori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving.   Her mother has struggled with dementia for over 30 years and she is now in her end stages of the disease.

Eilon Caspi picEilon Caspi, is a PhD, Gerontologist and Dementia Behavior Specialist. He runs The Center for Prevention of Resident-to-Resident Aggression in Dementia.   Eilon will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations. Eilon can also be reached via another website. Eilon can also be reached via another website.
Check Out This Great Holiday Music!

combineid AlzMusCon logo and CDFor Additional Dementia Resources

Click Below

 

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Remember I Can’t Remember Authors, Plus The Remember Together Program by AFA

Join The Conversation On

ALZHEIMER’S SPEAKS RADIO

112514 ASR REmember I can't Remember and AFAClick Above To Go to The Show

Live at 11am EST, 10am CST, 9am MST, 8am PST

and 4pm London Time!

Alzheimer’s Speaks is an advocacy group promoting awareness and education to all around the world. We believe all voices need to be heard if we are to make a shift in our care culture.

eric heather anderson picOur first guests will be Eric and Heather Anderson, Authors of “Remember I Can’t Remember.”  Through their life journeys, caregiving has been one of most amazing and fulfilling one they have ever experienced. Learn how and why this happened.

eirc heather book coverWe hope you will join the conversation!

Contact Eric and Heather           Website

 

 

 

 

 

 

 

OLYMPUS DIGITAL CAMERAWe are lucky to have as our second guest Charles Fuschillo, president and CEO of the Alzheimer’s Foundation of America.  We will discuss their highly successful Memory Screening and their “Remember Together” Programs; along with other efforts shifting our dementia care culture.

 

Contact the Alzheimer’s Foundation of America

AFAlogo HIRes

Website      Phone: 866-232-8484      Facebook

Great In The Christmas Spirit

Click Below

combineid AlzMusCon logo and CDFor CD Click Above

For an MP3 Click Here

For additional information and resources

Click Below

Become A Purple Angel

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National Memory Screening Day November 18th, Roseville, MN

Healthstar_logoNational Memory Screening Day – November 18

HealthStar Home Health to Hold FREE Memory Screenings at J. Arthur’s Coffee in Roseville, Minnesota.

After screening 2,200 participants at the MN State Fair, it’s clear, people are concerned about memory loss. Face-to-face memory screenings average five minutes and consist of questions and tasks to assess memory. Individuals can take advantage of free, confidential memory screenings provided by HealthStar Home Health, as part of raising community awareness and providing public education on Alzheimer’s and dementia.

HealthStar & the Alzheimer’s Foundation of America encourages screenings for adults with memory concerns, a family history of Alzheimer’s disease or those who want to check their memory now and have the results for future comparison. Warning signs of dementia include forgetting people’s names/events, asking repetitive questions, and confusion over daily routines.

FREE Screenings to be held Tuesday, November 18

10:00 AM to 3:00 PM

J. Arthur’s Coffee Shop,

2441 Rice Street, Roseville, MN 55113.

As many as 70% of families affected by dementia are choosing to keep their loved ones at home for as long as possible, while managing the different stages. Family and caregiver burnout rises dramatically when faced with this disease. HealthStar’s Alzheimer’s & Dementia program provides both in and out of home support to families and caregivers dealing with challenging behaviors associated with the disease. Changes in healthcare, due to high prevalence, allow our nursing experts to provide training, education and non-pharmacologic behavior assistance in the home, which is 100% covered by traditional Medicare and most insurance plans. Memory loss screenings are the first step toward detection and treatment.

Learn More About HealthStar Home Health by Clicking Below

For Additional Locations for Memory Screenings check Out

The Alzheimer’s Foundation of America

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For more information on Dementia and Caregiving

Click Below

Get In The Mood For The Holidays!

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ALZHEIMER’S FOUNDATION OF AMERICA INTRODUCES REMEMBER TOGETHER

ALZHEIMER’S FOUNDATION OF AMERICA INTRODUCES

“REMEMBER TOGETHER”

National Public Awareness Campaign

Invites People to Recreate Photos of Cherished Memories, 

Encourages Early Detection of Memory Issues

at Free Screenings Nationwide

The Alzheimer’s Foundation of America (AFA), a nonprofit dedicated to providing optimal care and services to individuals confronting dementia, and to their caregivers and families, today launched Remember Together, a public awareness campaign that asks people to remember together the importance of keeping their cherished memories alive. The public is invited to recreate old photos of favorite memories and share them via social media using #RememberTogether. Photo recreations can be viewed at www.RememberTogetherAFA.org.

Remember Together supports AFA’s rollout of free, confidential year-round memory screenings at community sites nationwide. The rollout builds on the success of AFA’s National Memory Screening Day, which falls this year on November 18, during National Alzheimer’s Awareness Month, and which has provided memory screenings to hundreds of thousands of people since 2003. For a complete list of sites, visit www.RememberTogetherAFA.org.

Remember Together is a friendly and impassioned call-to-action to the public to celebrate their memories, create new ones with family and friends, and help protect their memories and those of their loved ones by getting screened for memory issues,” said Charles J. Fuschillo, Jr., president and CEO of the Alzheimer’s Foundation of America. “There is a persistent stigma associated with Alzheimer’s disease that prevents people from talking about it and taking action that could ultimately help improve quality of life. We aim to reduce the stigma and encourage people to seek early detection and proper treatment.”

The Remember Together campaign includes a photo contest that awards monthly prizes. People can submit photos through Twitter, Instagram or www.RememberTogetherAFA.org. Two winners will be announced every month, one chosen randomly and one by popular vote. Each winner will receive a digital photo frame perfect for displaying favorite memories. People can vote for their favorites on the RememberTogether site.

AFA carries out memory screenings in collaboration with organizations and healthcare professionals across the U.S. Participating sites include Alzheimer’s agencies, doctors’ offices, senior centers, long-term care residences, in-home care agencies, hospitals, houses of worship, libraries, pharmacies, and other community organizations. AFA provides all the necessary tools—at no cost—so that healthcare professionals can seamlessly and effectively carry out the memory screenings.

Memory screenings are a significant first step toward early diagnosis. Screenings consist of a series of questions and/or tasks designed to test memory, language skills, thinking ability, and other intellectual functions. A free 10-minute memory screening can help reassure a healthy person or direct people who need follow-up testing to a clinician. Early detection allows people to participate in legal and financial planning discussions with their families, share their care wishes, and take control of treatment to improve quality of life. It also opens up options such as participating in clinical trials for drug and behavior modification therapies. It’s important to note that a screening result is not a diagnosis; rather, it can signal if a person should follow up with a physician for a thorough evaluation.

Remember Together supports AFA C.A.R.E.S. (Community Memory Screening and Awareness-Raising Education: The Road to Early Detection and Care), a new program to expand memory screenings year-round. AFA C.A.R.E.S. is made possible with a grant from the Edward N. and Della L. Thome Memorial Foundation, Bank of America, N.A., Trustee.

Alzheimer’s Foundation of America (AFA)
The Alzheimer’s Foundation of America, based in New York, is a national nonprofit organization that unites more than 1,700 member organizations nationwide with the goal of providing optimal care and services to individuals confronting dementia, and to their caregivers and families. Its services include a toll-free hot line staffed by licensed social workers, educational materials, a free quarterly magazine for caregivers, and professional training. For more information about AFA, call toll-free 866-232-8484, visit www.alzfdn.org, follow us on Twitter (@alzfdn), and “like” us on Facebook.

For More information on Dementia and Caregiving

Check Out Alzheimer’s Speaks Below

Get In The Holiday Spirit

With This Fantastic CD or MP3

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Staying Mental Healthy When Caring

Plus Alzheimer’s Disease Research Center

111114 ASR jill gafner Marita Garrett

Click Above To Go To The Show

The Show Goes Live Tuesday Nov 11th, 2014 at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London time

Today on Alzheimer’s Speaks Radio we will be raising awareness on staying mentally healthy when caring for someone with dementia for the first hour; and then the second hour we will learn about Pittsburgh’s Alzheimer’s Disease Research Center.

jill gafner picOur first guest will be Jill LaFaive Gafner founder of Global Training Experts. I love her story, as it shows the power of her shift and how she has leveraged her new skills in caregiving with her base skill set of coaching and training. Jill has earned her Certified Dementia Practitioner and Alzheimer’s Disease and Dementia Training certificates through the International/National Council of Certified Dementia Practitioners. Jill also authored the book, Personal Positioning for the Caregiver”, a motivational guide for JIll Gafner book covercaregivers on staying mentally healthy while caring for their patients. Join the conversation and find out what tips Jill has to share with you.

Contact Jill at:      Website         Phone   (586) 419-6073

Marita Garrett_picOur second guest will be Marita Garrett from the Alzheimer’s Disease Research Center at the University of Pittsburgh Department of Neurology.  Come find out that the Center is up too!

Contact Marita at:   garrettm@upmc.edu

Phone     (412) 916-4552

Alz Dis Rearch Center logo PAFor Information on Dementia and Caregiving,

Checkout Our Website Below

combo_of_alz_spks_sevicesLooking For A Great Holiday Gift For Someone With Dementia?

Enjoy Technology Enhanced Music

combineid AlzMusCon logo and CDAvailable as a CD or MP3

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Glen Campbell’s Film “I’ll Be Me” Is Out And Worth Seeing!

Glen Campbell’s Film

“I’ll Be Me”

You Will Laugh and Cry,

But Most Of All

You Will Be Touched

By This Powerful Film

Call a theater close to you to find out if the movie is playing.

If Not, Let Them Know It Should Be!

Normally, I’m not a big fan of celebrity advocacy for dementia.  I know many will say big names equal a big following, but when it comes to dementia we need more then people showing up one time for a performance to be entertained.

We need people that are going to be emotionally touched by a celebrity performance or advocacy. Touched in a way that lasts long beyond walking out of a theater or event.  One which shifts their perceptions and educates them at the same time.  One that makes people think.  One having a strong impact getting people wanting to discuss what they have just experienced.  One that ignites a passion to join a cause effecting so many.  One that develops compassion and creativity to make a difference.

Glen Campbell’s Documentary, “I’ll Be Me,” Does Just That! 

Kudos to Glen, his wife Kim, his children, friends and peers in the music industry.  Each of you played a powerful role in raising awareness for Dementia.  You showed the true impact this disease has on everyday relationships. How it changes lives no matter who you are. How popular you’ve been or are, how much money made or currently have, where you live, how old you are… and the list goes on….

Nothing Can Protect You From This Disease. 

My hope is that one day soon one of the many big names in this film will take the bull by the horns and pull together a fund raising single, like a “We Are The World,” the benefit single for victims of famine in Africa. It raised over $60 Million, which was distributed to Ethiopia, Sudan, and other impoverished countries.  Or better yet maybe a “Live Aid Concert for Dementia!”  With so much talent, being just as vulnerable to this disease as the rest of us, they could truly make a huge impact on finding a cure and providing support services for those living with the disease.

Just a few of the stars featured in this film who know and love Glen Campbell are:  Bruce Springsteen, Bill Clinton, The Edge, Paul McCartney, Jay Leno, Vince Gill, Jimmy Webb, Blake Shelton, Sheryl Crow, Keith Urban, Brad Paisley, Steve Martin, Chad Smith and Taylor Swift.  If you know any of these influential people or others in power positions, please reach out to them and have a conversation about pulling a star studded group together to raise funds to improve lives of people around he world. It is done all the time for major disasters.

 This Is A Major Disaster. 

It just doesn’t happen to be weather or war related.  This is an international health crisis which will touch everyone in their lifetime on some level. A person every 4 seconds somewhere in the world is diagnosed with dementia. The numbers are frightening and our budgets to dealing with both research dollars and social support are embarrassingly low!  It is time to come together as world.  To join forces to improve lives and really make a difference.

There Is No Escaping It!

Here is where the show is playing in my area in Minnesota

Marcus Theater – Oakdale, MN

AMC Southdale – Edina , MN

Regal Brooklyn Center Stadium 20 – Brooklyn Center, MN

lori_with_radioFor all of those involved or who wished they would have been involved in this film, or for those like me who just saw the the film; I would love to have you on Alzheimer’s Speaks Radio to discuss why you felt this was an important film and how it had an impact on your life, what you are willing to commit to, to help raise awareness and educate others or to help support those dealing with the disease.  What you would like to see in the future regarding dementia. What ideas do you have to make a difference to help shift our care culture?

Contact Lori La Bey, founder of Alzheimer’s Speaks to be part of a radio show.  I would actually love to set a special 2 hour show to allow people time to reflect and share their thoughts across the globe.  For those of you that know me, you know I feel strongly about having open and honest conversations which allow us to shift our care culture for Dementia from Crisis to Comfort.

Kudos to the Glen Campbell family and those involved in making this incredibly honest film.  What a beautiful gift to the world this was.

I’m sure the family has taken some heat for exposing this disease and what some might say as “using” Glen in the process.  I know what that feels like. It’s awful.  My own mother had the disease for 30 years.  We had plenty of time to discuss how to leverage an awful disease, an awful situation and make it beneficial to others. There is power in having purpose.  Glen shinned through in this film even as the disease nibbled away at him.  Glen had purpose.  He was able to link to what he loved and could do it way longer then the doctors ever imagined possible. Sharing true loving stories of real life is never a bad things, once we step outside our egos and understand it’s for the greater good.

Again, I say “Kudos Campbell family for having the strength and courage to make Glen’s life full as well as his family, friends and fans doing what he loved for as long as he could.”

Dementia Knows No Boundaries.

We Shouldn’t Either.

So Join the Global Cause

To Shift Our Dementia Care From Crisis to Comfort

SocialMedia081114_purpleangel_carousel TMClick Above To Learn More About The Purple Angel Project

A Big THANK YOU To National Tour Sponsors

Of  “I’ll Be Me”

PointClickCare, Pathway Health, CliftonLarsonAllen, Covenant Health Network, HJ Sims, Essential Decisions, Inc., Attitude Edge Companies, Messerli & Kramer P.A., Disney Family Fund, Easter Seals, Leading Age and to our Minnesota Sponsors where I saw the film: UCare, Volunteers of America, Mayo Clinic, Open Heart Foundation and Aging Services of Minnesota

For More Information On Dementia and Caregiving

Click Below and Check Out Alzheimer’s Speaks

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Click Below For a Special Holiday CD

Designed With New Technology

For Those With Dementia

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Powerful and Interesting Video on Famous People With Dementia

Powerful & Interesting Video on

Famous People With Dementia

I found this so interesting and the ending so touching.

What did you think of this video?

Looking for more information on

Dementia and Caregiving?

Click below for more resources

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To Ensure Your Enjoy The Holidays

Check Out This Special CD

Made Specifically For Those With Dementia

combineid AlzMusCon logo and CD

CLICK ABOVE TO

Listen to Samples of the Songs

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