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Poem Inspired By Disease – Matter of Fact

Matter of Fact

By Ron Louie, MD

Her face was matter of fact when she heard the pronouncement. 

The neuropsychologist was her colleague; he remained professional, but slipped in some sympathy with the data, which I could not appreciate.

She didn’t display a mask of depression, or Parkinson disease.

Her face remained pliable, not pleased, but neither terribly pained, no exhibition of perplexity, or petulance, or surprise, a pensive look, retaining its complex grace, a quiet reserve, a solemn alertness, the beauty of humane consciousness, with no further expectations.

In her own practice, she had encountered early Alzheimer disease first hand:

that wonderful younger woman, whose baby she had delivered, working in accounting until the numbers became exotic, then alien; she had told me about that patient, with shock, sadness, and resignation.

But I didn’t understand this. I wouldn’t. It was the guy, his tests, the setting.

At home, I made her try to draw a clock, count backward, recite words, and copy intersecting rectangles.  She tried, this good doctor who had always bested me in calculus, organic chemistry and marriage.  She wasn’t angry.

So how could I be mad? She was setting the example, as she had done her whole life, her whole career, without pessimism or regret, or fanfare, just ready to go on, even though her words and steps might mutate, unpredictably, ever aware of the possible endpoints, with each of us now grappling this present moment, trying to recognize its identity.

Dedicated to IRJ, MD; suggested by Meryl Comer

Neurology® 2018;90:139. doi:10.1212/WNL.0000000000004841

Listen above to Dr. Louie read this poem. 

 

 

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What’s New in Dementia?

What’s New in Dementia?

on Alzheimer’s Speaks Radio

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Tuesday we have Peter Rabins, MD, MPH, who is the Author of “The 36-Hour Day.”  He is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine.

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Contact Information For Dr Peter Rabin

https://jhupbooks.press.jhu.edu/content/36-hour-day 

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Alzheimer’s Speaks Radio – Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Alzheimer’s Speaks Radio -Tuesday June 23rd, 2015

11am EST, 10am CST, 9am MST,  8am PST and 4pm London Time

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Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Welcome to Alzheimer’s Speaks Radio.  We are thrilled you are going to join us. Please know on all of our shows we love to hear from our listeners. So feel free to call in or use the chat box to talk to us.

Today we have Maarten Fischer a Dutch Native who moved to Montana and will explain the concept of Dementia/Care Farms. Maarten has been involved in “Multifunctional Agriculture,” including “Care Farms.” In the Netherlands they are the largest sources of day programs with over 1500 farms empowering  30.000 clients on an annually.   Contact Maarten via:  Website or call  406-752-3697

Also joining the conversation will be Eilon Caspi Ph.D., Gerontologist & Dementia Behavior Specialist. Check his Website or his blog

Our second guest will be Constance Hanstedt author of “Don’t Leave Yet, How My Mother’s Alzheimer’s Opened My Heart,” which was named a finalist in the National Indie Excellence Awards for memoir. Contact Constance

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For More Resources on Dementia and Caregiving go to Alzheimer’s Speaks.

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Beautiful Song on Early Onset Dementia – You Are Here

A Beautiful Song on Early Onset Dementia –

“You Are Here”

Please Share with others.

For More Information on Dementia and Caregiving

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Dementia Chats Educational Webinar Recorded Session – March 10th 2015

Dementia Chats Educational Webinar

Recorded Session – March 10th, 2015

031015_DC_snap_dena_robert_Paulan_robert_eilon click_above_watch_recorded_webinarToday we discussed our healthcare system with our experts living with the diagnosis of dementia.  How do we get doctors and medical professionals to get educated and knowledgeable not only about dementia specific to their specialty, but to  find out and provide supportive services to assist those dealing with the disease.  Many great examples were given and strategies were discussed in this hour long session.

For more information on the Dementia Chats Educational Webinar Series, CLICK HERE

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WALA’s 20th Annual Spring Conference – Creating a Dementia Friendly Culture

WALA’s 20th Annual Spring Conferencewala MakingMemoriesLogoCreating a Dementia Friendly Culture

There is still time to REGISTER!

I hope you can join us!

 Wednesday, March 18, 2015

12:30 – 4:30 p.m.

Everyone Is Welcome To Attend!

Creating a Dementia Friendly Culture – One Community At a Time: A Panel Presentation

Every person with dementia has the right to live well in their community and everyone- from governments and communities to businesses and individuals – has a role to play in making this a reality. It is now the time for action to improve the lives of people living with this condition. Creating a Dementia Friendly Community focuses on improving inclusion and quality of life for people with dementia through a high level of public awareness and understanding of dementia.

Dementia Friendly Communities are popping up in every corner of Wisconsin – each with unique characteristics that tap into local interests and talents. While this is a larger cultural issue, learn why assisted living providers are seeing increased census through participation. During this session, panel experts will discuss the barriers people with dementia face in their community and provide you with detailed methods on running a DFC from a global, national, state, and local perspective.

Sponsored by Senior Living University

Meet & Greet Reception – 6:00 – 7:30 p.m.

Let’s play “Memory”! This meet-and-greet will put you in front of more industry leaders and decision makers in one night than you would normally be able to connect within a month. Attendees will not only have the chance to reconnect with colleagues and make new connections, but will also participate in a networking game of “Memory” for a chance at a prize!

Networking reception sponsored by Wipfli LLP

Cash bar service sponsored by M3 Insurance

Download a registration form or register at the WALA Store!

For more information on Dementia and Caregiving

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