Posts Tagged ‘long term care’

Protecting Our Elders – Raising Their Voices

Craving by Dr Eilon Caspi

Let Their Voices Be Heard

“With an estimated 80,006 deaths of residents due to COVID in long-term care homes nationwide — approximately 10,000 additional deaths reported since a month ago — and significant family visitation restrictions still in place in many LTC homes across the nation, it seems as though listening to the voice of elders in these care settings is now more important than ever!” Dr. Eilon Caspi

KARE 11 Investigates: Elder neglect alleged in locked down facilities

Maltreatment reports dropped during the pandemic, but some families say loved ones suffered emotional and physical neglect as families were locked out for months. Very , very sad story.

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RESEARCH SURVEY Caregiver Burnout & Dementia

Chantell Horn, is a student studying for the Graduate Diploma in Occupational Health and Safety Management at Southern Institute of Technology, New Zealand. She is currently completing her dissertation which would enable her to look at the reality of burnout among dementia caregivers and the effects on them.

Take The Survey Now

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life


For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

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Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Study of Deaths Pertaining to Dementia Resident to Resident Offers Insights to Inform Policy and Prevention

We at Alzheimer’s Speaks and Dementia Chats are so proud of Eilon Caspi’s work to improve the quality of life for those living with dementia.  This is one of his latest articles.  It is such a privilege to work with a man who is so dedicated to making a positive difference in the lives of others. Thank you Eilon.

Study of Deaths – Resident – to – Resident Incidents in Dementia

Offers Insights to Inform Policy and Prevention

Analyzing the incidents between residents in dementia in long-term care homes may hold the key to reducing future fatalities among this vulnerable population, according to new research from the University of Minnesota School of Nursing. Gathered from media accounts and death review records, the exploratory study by Eilon Caspi, PhD, is the first to examine the circumstances surrounding the death of elders as a result of resident-to-resident incidents in dementia in the United States and Canada.

Despite growing concerns about the projected growth in the number of people with dementia and the expected rise in resident-to-resident incidents, the phenomenon is not currently being tracked by the two largest federally mandated clinical and oversight systems in nursing homes in the U.S.

“The fact that we are not capturing and tracking this phenomenon represents a major missed opportunity for learning and prevention of these incidents,” says Caspi, the study’s author and a research associate at the School of Nursing. “We need to develop a data-driven national action plan to reduce these incidents and ensure that frail and vulnerable residents will remain safe in the last years of their lives. Delivery of evidence-based staff training programs to improve understanding, prevention and de-escalation of these episodes is urgently needed.”

Nearly half (44 percent) of all fatalities were the results of physical contact classified as push-fall.

While men and women equally died as a result of these incidents, three-quarters of exhibitors were men.

More than half (59 percent) of all incidents took place inside bedrooms and 43 percent involved roommates.

Evenings (44 percent) were the most common time for incidents to occur, with 38 percent of all incidents occurring on weekends. 62 percent were reportedly not witnessed by staff.


Feeling humbled and honored. #WEGOHealthAwards 

These awards seek to recognize Patient Leaders who are making an impact with their advocacy.

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See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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What Matters Most: Cognitive Self Assessment

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Dementia and Long Term Care Services

Newman Long Term Care Talks Dementia

Alzheimer’s Speaks Radio

Friday, November 24th, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

This coming Thursday, we are thrilled to have Deb Newman as our guest on Alzheimer’s Speaks Radio.  Deb is a pioneer in the long term care insurance industry and founder of Newman Long Term Care – one of the largest and most successful long term care marketing organizations in the country. Deb’s focus is on helping people understand that planning ahead will allow them to finish life well.

Contact Information For Deb Newman




We are honored by your response to our offering of the Dementia Friendly Cruise. We just got back so there will be much to share in the near future!

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Using Lavender to Treat Dementia

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Quality Aging Survey – Take it Now!

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu


Join the Dementia Friendly Cruise –

Before We Set Sail!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com


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Using Lavender to Treat Dementia

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Push Research Forward- Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner




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Voices from the Trenches – CNA’s Speak Out

CNA’s Speak Out on Dementia

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Alzheimer’s Speaks Radio

Corey Rotella began her work in long term care 2008, as a caregiver on the memory care unit. It quite literally changed her life. She is a member of the Alzheimer’s association, a co-author of both the blog and book CNA edge: A voice from the trenches of long term care.

Contact Corey Rotella:

visionaries76@gmail.com           coreyannerotella@gmail.com         

Buy the Book on Amazon


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Meet Me in Orange County on June 4th

Can’t Make It?  You can Still Have An Impact. 

Sponsor me to help raise fund for Women’s Research on Dementia


At Maria Shriver’s Move For Minds Event


Learn How You Can Host A Screening of the Hollywood Film

“His Neighbor Phil”


4 Pillars of Prevention



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Why America Should Embrace Aging

Why America Should Embrace Aging  

Most of us don’t want to grow old. We’d rather put it off. In a recent article by the Associated Press-NORC Center, it said that Americans 40 and older would rather not think about getting older at all.

We enjoy our lives and celebrate our birthdays with blinders on. Who cares if another candle adds to the growing bright flame atop the cake? Each year that we move passed 45 and draw closer to 50, we cringe inside. Birthdays become a day to ignore and to hurry past.

If there’s one thing I learned from my parents, old age will catch up with you no matter how much anti-wrinkle cream one uses. “It’ll be here before you know it, so you better enjoy life.” The wisdom comes from my smart mother.

Since most of us know getting older will come one day, why do we pretend it won’t? Is it our admiration for youthfulness? Or do we dread the inevitable that old age leads to death and dying?

Whatever your feeling about the topic right now, one day each of us will be forced to face it like a man or in my case, like a woman. But for how long do you give yourself the pleasure of disregarding the topic altogether? Most wait until we’re broke and need help.

Two other studies come to mind when thinking about the aging challenges. One is the Long-Term Care Over an Uncertain Future, and the other is America Talks: Protecting Our Families’ Financial Futures.

The first one found that roughly 7 out of 10 people turning age 65 will need long-term care during their lifetimes (3 years.) While the other found, people underestimate their future need. Not just a little either. A whopping 63% of Americans say they will NOT need long-term care at all. Do they believe they’ll never get old? Maybe they should take a look at their grandparents.

Why do I care whether people accept growing older or not? I don’t really. Some of my close friends would rather get shot than learn to accept it. It’s a common dilemma many faces. But when snubbing the truth turns into blind ignorance, especially when planning for future needs, I do care, a lot. Because individuals will find a hard life waiting for them if they don’t plan. I see it all too often. They land in Medicaid nursing homes. And it’s tragic.

Carol_M_graphic_for_articleRecently, I helped steer an important report on the topic of aging. We called it America Has a Major Misconception on Aging. We interviewed 44 thought leaders in senior care. The four questions we asked:

Why is there a drastic difference in people’s perception vs reality of future aging care?

What are the consequences for not being prepared?

How would you close the discrepancy gap?

What advice do you have for consumers about their future care needs?

The replies and suggestions are golden and consumers would benefit by paying close attention and following their advice.

“People equate aging and long term care with death and defeat.”

“Care has been driven by crisis management versus proactive and preventative care.”

“If you are prepared, you can choose the care you receive. If you are unprepared, care is chosen for you.”

“The entire family can be wiped out financially, emotionally, and otherwise. That’s a high price to pay for keeping your head in the sand.”

“Most people don’t have enough money to pay for long-term care out-of-pocket, but have too much money to qualify for Medicaid.”

“Most people falsely believe Medicare will cover the costs of long term care services they will need.”

“Long term care needs to get more mainstream media attention, and not just the risks, but the consequences of aging.”

“Have consistent talks with your family about your long term care plan and maintain the ongoing dialogue.”

“Include long term care as part of your retirement planning. Begin saving and preparing for those needs.”

Getting the general public to face their future need for care is the biggest struggle most elder care professionals run up against. And the struggle intensifies each year since the number of people turning 65 broadens. I could bury my head and ignore this grave issue. But since most people do that, I’m choosing the opposite. I asked 44 senior care authorities to help me find solutions.

They complied. Read what they predict and what they suggest to deliver us from the anguish of aging.

Carol Marak is a contributor for the senior living and healthcare market. She advocates older adults and family caregivers. Read her work at AssistedLivingFacilities.org and SeniorCare.com. Find her on LinkedIn and contact her at Carol@SeniorCare.com.

You could make a difference for your loved one with Alzheimer’s.

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