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Posts Tagged ‘Life’

We Are Family- The Butterfly Model

Alzheimer's Speaks Radio with Dr. Cathy Greenblat and Corinne Maunder

A New Dementia Film

“We Are Family”

The host of Alzheimer’s Speaks Radio, Lori La Bey is proud to interview her friends Corinne Maunder and Cathy Greenblat who created the film, “We Are Family.”  It was shot in Nottingham, England at Landermeads where life is celebrated daily. Dr David Sheard is the creator of the Butterfly Model featured in this film. Corinne is the Director, Producer and Camera Operator and she owns Fire Films.  Cathy is the Executive Producer and Photographer for the film.  These two amazing women have done several exceptional films on dementia care which can be found at this website: SIDE BY SIDE: LOVE AND JOY IN DEMENTIA CARE A MULTIMEDIA PROJECT.

Here is our interview below

Enjoy Their Other Films:

Corinne Maunder & Dr. Cathy Greenblat Joint Website:

Go to Joint Website

 Contact Information for Corinne Maunder

Email  Website 

Contact Information for Dr. Cathy Greenblat

Email Website

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 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Starts Feb 17th, 2019

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Alzheimer’s — A Part Of The Plot?

Alzheimer’s — A Part Of The Plot?

By: Michelle Remold

One of my hobbies is collecting quotes. I started this hobby in college as a way to pass the time, but now I have a book to write quotes in that I hear or read. There are a few quotes that have stayed with me, however there is a quote by Ashleigh Brilliant that became one of my favorites because I liked the humor related to it, but I have also learned the truth behind it as well. The quote I am referring to is, “My life has a superb cast, but I can’t figure out the plot.”

This was one of the first quotes I wrote in my book. Being in college, a humorous side to this quote stuck out to me, in fact it still makes me smile. I remember thinking about people I met in college and trying to figure out how they might play a role in my life later on. Truthfully, outside of the group that helped me present my Memory Trunk program in nursing facilities and adult day centers and a few other friends, I still don’t have an answer for the roles everyone else has in my life. If nothing else, they helped make me the person I am today.

When I read the quote now though, it seems to have a different maybe deeper meaning. There are some people who have been in my life that have impacted it greatly. As I have written about before, my grandpa had Alzheimer’s when I was growing up and is really the reason I even became interested in the gerontology field. I have had many great-aunts and uncles who have taught me numerous things and a great-grandma who lived to be 97, who helped me realize it’s the small things in life that make it enjoyable, like sausage pizza. My life was also touched by dementia a second time with my dad’s mom, which taught me that though you may know something, you can always learn more.

In a way this quote also makes me think of Alzheimer’s. Alzheimer’s affects and touches everyone differently, including caregivers. I’d be lying if I said that I didn’t wonder why or what was supposed to come as a result of the disease both times it touched my life. The fact is that I did wonder this. My grandpa’s diagnosis led me to what I would eventually choose as a career. I don’t know what direction my grandma’s dementia will take me in yet and I have realized that that is okay.

I have learned that sometimes life isn’t meant to be figured out. Sometimes you just have to let the plot roll out in front of you. It sounds weird to say, but in my life Alzheimer’s has almost ended up being a blessing in disguise. It has taught me many life lessons and has brought me closer to family. It has taught me how to leave my reality and enter a completely different one. It has taught me patience, compassion, when to just not say anything, and the value of just listening.

Honestly, I do think my life has a superb cast of friends, family, cousins, coworkers, grandparents and mentors. I wouldn’t trade any of them. Another part of that cast who isn’t always welcome, is Alzheimer’s. I don’t doubt that my life will be impacted again by Alzheimer’s and that it will happen in a variety of ways. One thing I know though, is that I will learn from it, that somehow it will play a role in the overall plot of my life and that I will have my superb cast right there with me. After all, I just want to enjoy life while I can and help as many people as I can while I am here.

 

??????????????????????????????? Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Geriatric Social Work from Minnesota State University Mankato.

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I need to apologize to everyone for being late with cheering in the New Year and thanking each and every one of you for your love, support and advocacy for dementia through my work here on Alzheimer’s Speaks.  All though I had good intentions to write an article to celebrate the passing of another year, I just wasn’t ready to write an authentic piece.  One I thought you all deserve.

You see this past year was a difficult for me and I needed to do a bit more processing of things from both my heart and mind before I sat down to write and express my gratitude.  So here it is.  I hope you enjoy it.

2015 Allows Opportunity to Change and Expand

Through Death and Loss I Have Learned So Much

Grandma in bed sleeping me trying towakeher040410On February 28th, 2014, my Mother passed away after a 30 Year battle with dementia.

She was a New Years baby and so the 1st, was always Mom’s day… a big party to honor her.

This year a visit to the cemetery.

mario up close

Shortly after, our beloved puppy, “Mr. Mario” passed and joined my mother.

To say 2014, was a good year is difficult at best to say, especially when I feel I have lost so much in my life. Yet, when I’m able to sit back and reflect on why these losses are hitting me so hard, I have to smile.  The great love I was gifted in my life to feel such overwhelming grief really has been such a blessing.  When I allow myself to look at my loss as a gift of great opportunity and to appreciate the priceless value of my relationships with others – family, friends, co-workers, pets, children and yes, even strangers.  Each and every encounter with another is a blessing in it’s own fashion. An opportunity to smell the roses and watch the petals of life unfold as they bask in the love and light of a simple moment in time, so many of us take for granted.

Each of these encounters affords us the opportunity to make a particular moment in time memorial or not.  We have the power to make an amazing difference in the life of another, which then effects us on level we sometimes don’t even know.  Sometimes, too late to tell the other party.

My goal for 2015, is to be more present not only with others, but nature in general as well as myself when I am alone.  I want to slow down and live with gratitude, even when things don’t make sense and seem to be going south, when I want to go north.  I am going to chose to embrace the thought, I am never alone… that none of us are. I am going to not only chose to believe this but to actually live my life more authentically knowing there is a grand plan which all of us are players in.  One which wants a beautiful life for each of us.  But I also believe that in order to value beauty we sometimes when need to be tested to see the ugly or scary side of things.  It’s like the Ying and Yang.  We can’t have a high without a low which puts things in perspective.  Sometimes it is easier to see how lucky we are when we see someone less fortunate.

I know over the years, I’ve also learned to find beauty in what I used to think was not proper, or ugly or whatever term you want to use.  But as I’ve gotten older, I have found if I just stop and take the time to look for the simplest of beauties… I could find them. I am choosing in 2015 to be more conscious of how I live my life.  I hope you will join me in finding beauty and a sense of peace in your life too.

new years eve better clock and glassesMy we each cheer in 2015, in our own unique way.

My we all be kinder to ourselves and others.

My we embrace each moment before us looking for the beauty in life.

My we each love fully understanding the pain of our loss which evidentially will occur,

is a gift only great love can give.

Please know I am here to support you any way I can.

Again thank you for your love, support and advocacy.

Lori La Bey of Alzheimer's Speaks and Senior Lifestyle TrendsLori La Bey founder of Alzheimer’s Speaks

For additional information on Dementia and Caregiving go to:

alzsnap_serv_072413

My we always know we are not alone.

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OLYMPUS DIGITAL CAMERAToday we are blessed to have Author Kate Swaffer with us who has written Love, Life, Loss, A Roller Coaster of Poetry.  Kate was diagnosed with dementia at the age of 49.  She will share with us her very intimate world as she lives it and sees it, through poetry and more.  This was a very interesting conversation with great insights!  don’t forget to check out Kate’s book.  It’s wonderful.

 
Contact Kate though:
Website  http://kateswaffer.com   Twitter  – https://twitter.com/KateSwaffer

Facebook    https://www.facebook.com/kate.swaffer

kates_book_cover

rawad_and_ipadOur second guest Rawad Sheikh, is the founder of “Touching Care”.   She found through her personal experience with Alzheimer as a caregiver that Caregivers experience and suffer from high levels of depression which is derived from many factors mainly feeling lonely and isolated, and lack of emotional and social support which lead to poor quality of life and early admission to care facilities specially that the amount of time and care increases on caregivers as the disease progresses.
Inspired by her experience, Rawad established her application that uses the power of Reminiscence and provides comprehensive information, tools and resources and most importantly social and emotional support to help those caring for their loved ones.
Rawad can be reached via the following:

raward_logo_2
Facebook fan page:
http://www.facebook.com/touching.care
Website:
http://www.touchingcare.com

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