Feeds:
Posts
Comments

Posts Tagged ‘Lewy Body’

Re-Imagine Life with Dementia

Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

041817 ASR graphic 1pm DAA Karen Love Robert Bowles

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

other_int_and_projct

DF cruise conference 041017 2kathy notices

Copy of DC_HQ_062714_banneryellow2

keynote_no_text__2_pic

st_therese_hnp_111616_1

additional_resources

maria_move_for_minds_w_more_info_banner_041717

LA_PoP_061517_lori

CAC_horizontal_banner_w_prono_code_032917

ARPF_for_Blog

Save

Read Full Post »

Join Dementia Chats Webinar Today at 3pm EST It’s FREE!

Join Dementia Chats Webinar

Today at 3pm EST, 2pm CST, 1pm MST, 12pm PST

It’s Fun And Free

DC_HQ_062714_solidyellow2 color photos

Click Above For More Information

Tuesday Nov. 25th, 2014

1pm EST, 2pm CST, 1pm MST, 12pm PST

Here are our Experts

harry_urbanHarry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

Driving Steve PonathSteve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

dena_dotsonDena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

mICHAEL_ELLENBOGEN_SPEAKINGMichael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Robert Bowles Pharma PicRoberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dementia Chats Hosts

lori_with_radioLori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving.   Her mother has struggled with dementia for over 30 years and she is now in her end stages of the disease.

Eilon Caspi picEilon Caspi, is a PhD, Gerontologist and Dementia Behavior Specialist. He runs The Center for Prevention of Resident-to-Resident Aggression in Dementia.   Eilon will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations. Eilon can also be reached via another website. Eilon can also be reached via another website.
Check Out This Great Holiday Music!

combineid AlzMusCon logo and CDFor Additional Dementia Resources

Click Below

 

Read Full Post »

Sandy Halperin, has Dementia.  He is a strong advocate for the disease as is his daughter Karen Halperin Cyphers, who has her Ph. D.  Karen wrote a great article called “From a daughter’s perspective,” which was published by the Florida Medical Association.  In this article Karen’s lists a guide for physicians working with those with Early Stage Alzheimer’s Disease.  I think it is good information for all of us to know and pass along.

Click on the graphic below to bring you to the full article

sandy_daughters_article_for_Doctors_

I would love to hear your thoughts on the article? 

Are the other things you think the medical profession needs to do differently or consistently?

Personally, I think this article is worth cutting out and giving to every physician. 

They need much more training and information on dementia then they are getting.

 

Read Full Post »

LBDA Webinar: Exercise and Dementia

 

WHEN: Wednesday, March 6, 2013, 2:00-3:00 pm EST

Click here to register.

Please join LBDA for our upcoming webinar on “Exercise and Dementia,” presented by Dr. Jeffrey M. Burns. Dr. Burns will discuss the evidence that physical exercise is beneficial for the brain and promotes healthy brain aging.
Additionally, Dr. Burns will examine the studies supporting the idea that exercise may be a viable prevention strategy and therapeutic approach for treating neurodegenerative disorders such as Parkinson’s disease, Alzheimer’s disease and dementia with Lewy bodies.
Dr_BurnsAbout Our Presenter:

Jeffrey M. Burns, MD, MS is the Edward H. Hashinger Associate Professor of Neurology and the Associate Director of the University of Kansas Alzheimer’s Disease Center. Dr. Burns also directs the Clinical and Translational Science Unit and is the Associate Director of the Heartland Unit for Neuroscience Trials.

Dr. Burns graduated from the University of Notre Dame and attended medical school at the University of Kansas School of Medicine. After medical school, Dr. Burns completed his residency in neurology at the University of Virginia followed by a post-doctoral fellowship at the Alzheimer Disease Research Center at Washington University in St. Louis. In 2009, Dr. Burns completed his Masters of Science in Clinical Research at the University of Kansas School of Medicine.

The Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.   Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit www.lbda.org.

alz_spkslogofromwebsite_083112

Read Full Post »

What a Wonderful World

with Dementia Video

The majority of us in this video have dementia including Alzheimer’s and Lewy Body Dementia.We all attend Reflections in Cornwall for day care and activities including Cognitive Stimulation Therapy. We have made this short film to show that we are just normal people and we all thoroughly enjoyed the making of this film. If this film makes you smile please would you donate a little of your money to the Lewy Body Society which is the chosen charity of Dementia Awareness Day, Sept 15th 2012.

Read Full Post »

Hi Everyone,

Lori La Bey Host of
Alzheimer’s Speaks Radio

I don’t often write to ask for your help, but this is one of those times I must reach out to you.  One of the biggest advocates for dementia, Norrms McNamara has been BANNED FROM FACEBOOK.

 One man can make a difference. 

Norrms has proven that and you can too!

Norrms McNamara,  knows of which he speaks. 

He lives with the disease and has honored us all by allowing us an inside peak as to what life is like with dementia.  Norrms has helped so many people world wide with his beautiful poetry and prose, but even more so for his unwavering commitment to shift our dementia care culture world wide.

Norrms was the voice who shared with me the concept of the Memory Cafe which I brought over to the US and now they are popping up all over, as the need is so great for this new type of social support for people living with memory loss.

Norrms started Dementia Awareness Day last year and it has grow and gotten the support of individuals and communities world wide.  Here is the link for more information on Dementia Awareness Day.

This is a man who is working on dementia friendly communities and business models over in the UK.  His insights are many, his passion is endless and his purpose is powerful.

Please watch the video and then sign the petition for Norrms voice to be heard on facebook.  Facebook allows Norrms to make connections to people, organizations and communities in need; which would not be possible through other means.  Is that not one of the largest benefits to Facebook?  United people around the world…I sure  think so!  Norrms isn’t selling anything but hope and new ways to live with a disease that torments so many.  Please let his gift to the world continue.

One man can make a difference. 

Norrms has proven that and you can too!

Here is the Link to the Petition

Thank You for Your Help!

Lori La Bey

 

Read Full Post »

%d bloggers like this: