The Challenges Young Adults Caring For Their Parents With Dementia Have

Listen Live or Listen at Your Convenience Tuesday – Jan 31st, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the Feb 1st at 6am in Australia AEDT

Listen To The Radio Show By Clicking Below

Our Host, Lori La Bey talks with Lily Morales whose mother has what the doctors believe is Vascular Dementia. Lily is 28-years-old and has been caring for her mother for the last 8 years. She has found that the topic of dementia at her age is taboo with others her age; and she wants to change that by sharing her story. Lily would love to see a cure or a therapy to reverse symptoms so people could retain or reverse cognitive decline to live as independently as possible.  Tuesday we will hear their story.

Contact Lily Morales:     

Email      

Instagram   Lilymorales2394 

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   contact Lori La Bey.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Check Out Lori La Bey’s Book:

Pre-Order Now – A Great Gift For Anyone At Any Age

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Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Trainings, Family Support, Perspective Clients, and Support Gatherings.

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Lewy Body Dementia with Paula Biever

Tune in Tuesday May 7th, 2019 at 2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London & in Australia on May 7th at 6am

Click below to listen to the radio show

Lori La Bey talks with advocate and volunteer Paula Biever.  She will share why she got involved volunteering with the Lewy Body Dementia Association, what she has learned and how to connect people to more information and support on Lewy Body Dementia. 

Join us for the conversation and feel free to call in with questions or comments  
(323) 870-4602

Contact Information

Lewy Body Dementia Association          https://www.lbda.org

Lewy Body Dementia Association  – FaceBook –          https://www.facebook.com/LewyBodyDementia

Minnesota East Metro LBD Caregiver Support Group
Paula Biever, Facilitator:  651-641-0130 

Twin Cities Support Group for Persons with Lewy Body Dementia
Paula Biever, Facilitator:  651-641-0130 

Fight Alzheimer’s Together

Diana Pierce of “What’s Next with Diana Pierce” talks with Lori La Bey , CEO of Alzheimer’s Speaks helping us reframe our expectations to replace fear with HOPE!

Diana Pierce and Lori La Bey

Push Dementia Forward – Participate!

Digital Dementia Summit is online and FREE from May 20-26, 2019

Click Above to Register

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Upcoming Public Events with Lori La Bey

Friday, May 10^th – 10:30am – 12:30pm

Film Screening & Talk Back

“A Timeless Love”

Gable Pines at Vadnais Heights      651-829-3171

1260 East Co. Rd. E, Vadnais Heights, MN 55110

Friday, May 17^th  – 10:30am – 12:30pm

Educational Program 

“Shifting from Crisis to Comfort”

Gable Pines at Vadnais Heights      651-829-3171

1260 East Co. Rd. E, Vadnais Heights, MN 55110

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Video Interviews with Those Living with Dementia

Click Below Download Tips

Find A Memory Café In Your Area

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Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

Save

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Join Dementia Chats Webinar Today at 3pm EST It’s FREE!

Join Dementia Chats Webinar

Today at 3pm EST, 2pm CST, 1pm MST, 12pm PST

It’s Fun And Free

Click Above For More Information

Tuesday Nov. 25th, 2014

1pm EST, 2pm CST, 1pm MST, 12pm PST

Here are our Experts

Harry Urban, Founder of “Forget Me Not,” a closed support group on Facebook for those with dementia, their care partners, professionals and advocates.

 

Steve Ponath, was diagnosed with EOAD in 2011. He has become an advocate for those who can’t speak out about the disease. It’s time to bring awareness to everyone of what this disease does to not only the patient, but to the caregiver’s and loved ones who are on this journey with us.

Dena Dotson, was diagnosed with Lewy Body with probable Alzheimer’s at age 47 2011. She is working hard to decrease the stigma attached with dementia.

Michael Ellenbogen, is 54 years old. His career was in Information Technology, where he was a high level manager. Michael was diagnosed with Alzheimer’s Disease at the age of 49. He is no longer able to work. Michael now spend my time trying to increase awareness of this disease, and work to increase funding for research. He just finished writing his book outlining my experience with Alzheimer’s.

Roberts Bowles, sold his pharmacy in December 2010, Robert lost his purpose in life. Eighteen months later, he was diagnosed with Lewy body dementia. One year after his diagnosis, I found my purpose in life again….that of dementia awareness and transparently journalizing and sharing my experience, strength and hope seeking to help both persons with dementia and their care partners.

Robert’s mother and father both had dementia

Dementia Chats Hosts

Lori La Bey, Founder of Alzheimer’s Speaks is also the creator and host of Dementia Chats. She facilitates the group and asks our experts living with dementia questions and pull participants into the conversation to get their questions answered and their comments heard. Lori is a professional speaker and trainer on dementia and caregiving.   Her mother has struggled with dementia for over 30 years and she is now in her end stages of the disease.

Eilon Caspi, is a PhD, Gerontologist and Dementia Behavior Specialist. He runs The Center for Prevention of Resident-to-Resident Aggression in Dementia.   Eilon will be assisting Lori in managing the webinars as well as monitoring participants conversations so we make sure we stay interactive and on top of all conversations. Eilon can also be reached via another website. Eilon can also be reached via another website.
Check Out This Great Holiday Music!

For Additional Dementia Resources

Click Below

 

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Here’s An Article All Medical Professionals Need To Read About Dementia

Sandy Halperin, has Dementia.  He is a strong advocate for the disease as is his daughter Karen Halperin Cyphers, who has her Ph. D.  Karen wrote a great article called “From a daughter’s perspective,” which was published by the Florida Medical Association.  In this article Karen’s lists a guide for physicians working with those with Early Stage Alzheimer’s Disease.  I think it is good information for all of us to know and pass along.

Click on the graphic below to bring you to the full article

I would love to hear your thoughts on the article? 

Are the other things you think the medical profession needs to do differently or consistently?

Personally, I think this article is worth cutting out and giving to every physician. 

They need much more training and information on dementia then they are getting.

 

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Lewy Body Webinar: Exercise and Dementia

LBDA Webinar: Exercise and Dementia

 

WHEN: Wednesday, March 6, 2013, 2:00-3:00 pm EST

Click here to register.

Please join LBDA for our upcoming webinar on “Exercise and Dementia,” presented by Dr. Jeffrey M. Burns. Dr. Burns will discuss the evidence that physical exercise is beneficial for the brain and promotes healthy brain aging.
Additionally, Dr. Burns will examine the studies supporting the idea that exercise may be a viable prevention strategy and therapeutic approach for treating neurodegenerative disorders such as Parkinson’s disease, Alzheimer’s disease and dementia with Lewy bodies.
About Our Presenter:

Jeffrey M. Burns, MD, MS is the Edward H. Hashinger Associate Professor of Neurology and the Associate Director of the University of Kansas Alzheimer’s Disease Center. Dr. Burns also directs the Clinical and Translational Science Unit and is the Associate Director of the Heartland Unit for Neuroscience Trials.

Dr. Burns graduated from the University of Notre Dame and attended medical school at the University of Kansas School of Medicine. After medical school, Dr. Burns completed his residency in neurology at the University of Virginia followed by a post-doctoral fellowship at the Alzheimer Disease Research Center at Washington University in St. Louis. In 2009, Dr. Burns completed his Masters of Science in Clinical Research at the University of Kansas School of Medicine.

The Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.   Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit www.lbda.org.

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What a Wonderful World with Dementia Video

What a Wonderful World

with Dementia Video

The majority of us in this video have dementia including Alzheimer’s and Lewy Body Dementia.We all attend Reflections in Cornwall for day care and activities including Cognitive Stimulation Therapy. We have made this short film to show that we are just normal people and we all thoroughly enjoyed the making of this film. If this film makes you smile please would you donate a little of your money to the Lewy Body Society which is the chosen charity of Dementia Awareness Day, Sept 15th 2012.

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URGENT! Your Help is Needed NOW to Protect Dementia Awareness

Hi Everyone,

Lori La Bey Host of
Alzheimer’s Speaks Radio

I don’t often write to ask for your help, but this is one of those times I must reach out to you.  One of the biggest advocates for dementia, Norrms McNamara has been BANNED FROM FACEBOOK.

 One man can make a difference. 

Norrms has proven that and you can too!

Norrms McNamara,  knows of which he speaks. 

He lives with the disease and has honored us all by allowing us an inside peak as to what life is like with dementia.  Norrms has helped so many people world wide with his beautiful poetry and prose, but even more so for his unwavering commitment to shift our dementia care culture world wide.

Norrms was the voice who shared with me the concept of the Memory Cafe which I brought over to the US and now they are popping up all over, as the need is so great for this new type of social support for people living with memory loss.

Norrms started Dementia Awareness Day last year and it has grow and gotten the support of individuals and communities world wide.  Here is the link for more information on Dementia Awareness Day.

This is a man who is working on dementia friendly communities and business models over in the UK.  His insights are many, his passion is endless and his purpose is powerful.

Please watch the video and then sign the petition for Norrms voice to be heard on facebook.  Facebook allows Norrms to make connections to people, organizations and communities in need; which would not be possible through other means.  Is that not one of the largest benefits to Facebook?  United people around the world…I sure  think so!  Norrms isn’t selling anything but hope and new ways to live with a disease that torments so many.  Please let his gift to the world continue.

One man can make a difference. 

Norrms has proven that and you can too!

Here is the Link to the Petition

Thank You for Your Help!

Lori La Bey

 

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