Exploring Lewy Body, Loved Ones and Poetry

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Listen in. I know you will be glad you did!

The Radio Show Goes Live – Thursday – Nov, 14th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on Nov. 15th at 6am in Australia

Lori La Bey host of Alzheimer’s Speaks Radio talks with poet Su Croll who shares her experience of caring for her Father with Lewy body dementia.  Her prose express the range of emotions when caring for someone with a chronic illness and insights as to the caring journey itself from many angles.  Listen in anytime once the show goes live as all episodes are archived for your convenience.

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Hands and Face by Su Croll

It is true. I will remember the hands and face.

The whole frustrating trickery of the thing.

My mother tells how she dogged him

to get all numbers limned at their true points.

Noon and midnight made for due north.

Six headed south. The clock becoming

a demented compass, a supposed proof

fumbled for in that doctor’s office

right before my dad was officially diagnosed.

I don’t know where his attempted drawings

of clocks are today. I don’t know how

that suddenly uncertain face triggered

his ragged response. Three and nine left off

or the hands wayward and drawn in the blank

outside the clock. I don’t know why that wrong

clock condemned him, tripped him up, making

that day the day they told us with all certainty

it was dementia.

Contact Su Croll at:

Website:  https://sucroll.wordpress.com

Book:  https://www.turnstonepress.com/books/poetry/cold-metal-stairs.html

FaceBook:  https://www.facebook.com/su.croll.9 

Thank you for joining Alzheimer’s Speaks Radio.  We hope you subscribe and share this episode with your family, friends, clients and colleagues.

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

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The Purple Angel Project & NAPA

The New Global Symbol for Dementia

Finally a symbol for dementia that can be recognized around the world, with no language barriers!

We need as many people as possible to send a letter of support to NAPA (National Alzheimer’s Project Act) asking them to get behind and support the Purple Angel symbol which is the new global symbol for dementia.  No longer is it acceptable for countries, organizations or individuals to be divided on this issue.  The disease touches far too many people, both those diagnosed as well as their family, friends and co-workers.  It is in the worlds best interest to join forces and use one symbol to describe and help raise awareness for the various types of dementia:  Alzheimer’s disease, Lewy Body Dementia, Frontotemporal Dementia, Vascular Dementia and all the others.

SEND NAPA AN EMAIL SUPPORTING THE PURPLE ANGEL

napa@hhs.gov

Note in the subject line “PLEASE SUPPORT THE PURPLE ANGEL PROJECT”

If you are not familiar with the Global Purple Angel her is a bit of information about why it was designed and who started this movement. The goal of the symbol is very simple:

• To raise awareness and education of all types of dementias.
• To show support for those dealing with all types of dementias; both those diagnosed as well as those that care for them.
• To remove the fear, isolation and stigmas associated with the disease.
• To become a global symbol for dementia that has no language barriers.
• To have the “Global Purple Angel” become as well known and accepted as the “Pink Ribbon” for breast cancer, allowing people to live with dignity.
• To provide an economical way to work in collaboration.

This purple angel symbol can be used by anyone who is raising awareness of dementia anywhere in the world. The symbol has been developed by people with dementia and carers, and is not connected to any established organization.

The purple angel symbolizes a guardian over those living with dementia, as well as their families and friends, but also as a helper to all those working so hard to raise awareness of dementia around the world.

Jane Moore, a carer from Camelford, and Norrms McNamara, who has dementia and was a driving force behind the creation of the first dementia friendly community in the UK, produced the original design. Lynette Richards and Jeff Talbot produced the global version. They own the designs, but have given permission for the symbol to be used freely by anyone who is raising awareness of dementia, as long as they get feedback about how it is used.

For More Information On The Purple Angel Project And How You Can Get Involved, Please Visit Our Website Below For More Details.

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Lewy Body Webinar: Exercise and Dementia

LBDA Webinar: Exercise and Dementia

 

WHEN: Wednesday, March 6, 2013, 2:00-3:00 pm EST

Click here to register.

Please join LBDA for our upcoming webinar on “Exercise and Dementia,” presented by Dr. Jeffrey M. Burns. Dr. Burns will discuss the evidence that physical exercise is beneficial for the brain and promotes healthy brain aging.
Additionally, Dr. Burns will examine the studies supporting the idea that exercise may be a viable prevention strategy and therapeutic approach for treating neurodegenerative disorders such as Parkinson’s disease, Alzheimer’s disease and dementia with Lewy bodies.
About Our Presenter:

Jeffrey M. Burns, MD, MS is the Edward H. Hashinger Associate Professor of Neurology and the Associate Director of the University of Kansas Alzheimer’s Disease Center. Dr. Burns also directs the Clinical and Translational Science Unit and is the Associate Director of the Heartland Unit for Neuroscience Trials.

Dr. Burns graduated from the University of Notre Dame and attended medical school at the University of Kansas School of Medicine. After medical school, Dr. Burns completed his residency in neurology at the University of Virginia followed by a post-doctoral fellowship at the Alzheimer Disease Research Center at Washington University in St. Louis. In 2009, Dr. Burns completed his Masters of Science in Clinical Research at the University of Kansas School of Medicine.

The Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.   Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit www.lbda.org.

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Love, Laughter and Lewy Body Dementia

Our Guests today are Mary McGrath who will speak to us about her journey with her husband who has Lewy Body Dementia

Mary McGrath and her husband Jim

and Angela Taylor with the Lewy Body Dementia Association

Angela Taylor with the Lewy Body Dementia Association

Today we will learn about:

• What is Lewy Body Dementia?
• Are certain demographics more likely to get this disease?
• Real life examples of symptoms and how to cope with them as a Care Partner as well as a person with symptoms
• Coping skills – Caring for yourself as well as the person with dementia
• How and where to find support
• How can the disease affect your relationships not only with your loved one with the disease but family, friends and coworkers.
• finding balance in caring for someone with Lewy Body Dementia
• Does early diagnosis help and if so how?
• What type of treatment is available for those with Lewy Body?
• Is the disease reversible?
• How can you help spread awareness about Lewy Body Dementia?
• Finding the good in Lewy Body Dementia
• What should you do if you think you or a loved is having symptoms of the disease?
• What resources are available for people dealing with Lewy Body Dementia?

Click on the white arrow in the black circle in the box below to listen to the show

Mary McGrath can be reached through her website

http://www.maryzmcgrath.com

Angela Taylor can be reached at the Lewy Body Association at

http://www.lbda.org

lblbda@lbda.org

404-935-6444

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