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Posts Tagged ‘Lewy Body Dementia Association’

Love Is All Around Us, Just Waiting For Us To Find It!

Love Is All Around Us,

heart_rocks

Just Waiting For Us To Find It!

Some days as we walk our path into the world of dementia, the road can feel bumpy and hard; not knowing where we are going or how the next moment will roll out.

But during my journey

I have learned one very important lesson.

You find only

what you are willing to see. 

heart_in_skyIf we focus on the past and what we feel we have lost, we don’t allow gratitude to enter our life. The pleasure of appreciation for what we did have. 

If we focus on the scariness of the future and all the unknowns, we shut down the opportunity to create or allow brilliant moments to occur.

BUT…

When we live in the moment before us RIGHT NOW, we have the power to create and allow into our lives that which we crave… love, engagement, acceptance, comfort, peace… laughter.

heart_sunset_treeI wish for you this Valentines Day that you see and accept the promise of hope and love that surrounds you in every nano second of each day, especially when it it not obvious. I personally know how difficult this can be to do, but I also know it is well worth the effort.

It is our individual choice to decide what we want to focus on. What we want to believe.  What we want to create.  What we want to allow to in our life.  I encourage you to slow down and look at the rocks, the sky, the trees and all that surrounds you. You may be very surprised and the signs of hope and love you see in places you never imagined.

Look For The Signs

They will warm your heart and bring you peace

in the most difficult and loneliest of moments.

May you each have a blessed day wrapped in love knowing you are not alone.

Lori La Bey of Alzheimer's Speaks & Senior Lifestyle TrendsLori La Bey, founder of Alzheimer’s Speaks

For more resources on dementia and caregiving

check out Alzheimer’s Speaks below

alzsnap_serv_072413Check Out Our Partners And Their Services Below!

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Webinar:

Easy Ways to Raise Lewy Body Dementia Awareness

Date: 

June 19, 2013 – 2:00pm3:00pm

Location:

Online

Please join us for the upcoming Webinar: Easy Ways to Raise Lewy Body Dementia Awareness, Wednesday, June 19, 2:00-3:00 pm EDT. This webinar will explore innovative ways to create LBD awareness in your community through LBD Flower Day, distributing materials to physicians, hosting a fundraising or outreach event or reaching out to your local media and government. We will discuss fun ways to get your community energized about the Lewy Body Dementia Awareness Movement and spread the word about LBD!

Participation requires computer and phone access. Click here to register for the webinar.

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LBDA Webinar: Exercise and Dementia

 

WHEN: Wednesday, March 6, 2013, 2:00-3:00 pm EST

Click here to register.

Please join LBDA for our upcoming webinar on “Exercise and Dementia,” presented by Dr. Jeffrey M. Burns. Dr. Burns will discuss the evidence that physical exercise is beneficial for the brain and promotes healthy brain aging.
Additionally, Dr. Burns will examine the studies supporting the idea that exercise may be a viable prevention strategy and therapeutic approach for treating neurodegenerative disorders such as Parkinson’s disease, Alzheimer’s disease and dementia with Lewy bodies.
Dr_BurnsAbout Our Presenter:

Jeffrey M. Burns, MD, MS is the Edward H. Hashinger Associate Professor of Neurology and the Associate Director of the University of Kansas Alzheimer’s Disease Center. Dr. Burns also directs the Clinical and Translational Science Unit and is the Associate Director of the Heartland Unit for Neuroscience Trials.

Dr. Burns graduated from the University of Notre Dame and attended medical school at the University of Kansas School of Medicine. After medical school, Dr. Burns completed his residency in neurology at the University of Virginia followed by a post-doctoral fellowship at the Alzheimer Disease Research Center at Washington University in St. Louis. In 2009, Dr. Burns completed his Masters of Science in Clinical Research at the University of Kansas School of Medicine.

The Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.   Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit www.lbda.org.

alz_spkslogofromwebsite_083112

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STARZ’ “BOSS” KELSEY GRAMMER PARTICIPATES IN

PUBLIC SERVICE INITIATIVE ON BEHALF

OF THE LEWY BODY DEMENTIA ASSOCIATION

PSA Campaign Anchors Organization’s Effort to Raise Awareness about Degenerative Brain Disorder Affecting 1.3 Million Americans

ATLANTA – (August 15, 2012) – Golden Globe® and Emmy® award winning actor Kelsey Grammer, star of the critically acclaimed STARZ Original series “Boss,” recently completed two public service announcements for the Lewy Body Dementia Association (LBDA).

Grammer portrays fictional Chicago Mayor Tom Kane, who last season was diagnosed with Lewy body dementia (LBD), the second most common form of progressive dementia.  More than 1.3 million Americans have been diagnosed with the disease, which affects almost everything about a person, including thinking, movement, and behavior. The disease also affects sleep and automated systems such as blood pressure and digestion; people with LBD can have severe medication sensitivities, especially certain tranquillizers.
Early diagnosis is critical and often involves a specialist, because some LBD symptoms resemble Alzheimer’s or Parkinson’s disease.  People with LBD experience changes in memory or thinking that disrupt normal activities, plus varying combinations of other symptoms, such as slowness of movement, hallucinations, or disturbed sleep, such as physically acting out their dreams.
The two PSA’s, :35 and a :95 second clips, hope to raise awareness and support for LBD. Early recognition, diagnosis, and treatment can significantly improve quality of life for people with LBD.

Watch and share the LBDA PSA (:95 SECOND VERSION)

(NOTE:  You will have to go tot he bottom of the page and pick the Lewy Body video)

http://www.starz.com/originals/Boss/Videos#/lewy-body-dementia-full  

Watch and share the LBDA PSA (:35 SECOND VERSION)http://www.starz.com/originals/Boss/Videos#/lewy-body-dementia-shortened

“Public awareness of Lewy body dementia is vital to improve the rate of early diagnosis, appropriate treatment and optimum quality of life for LBD patients and their families,” said Angela Herron, President of LBDA’s Board of Directors. “Our goal is to reach families who may be dealing with LBD but who don’t have a diagnosis yet. This public service announcement is a landmark step forward for this disease.”

The collaboration between Grammer, Starz Entertainment and the Lewy Body Dementia Association underscores the critical need for early diagnosis and increased public awareness of this important health condition.
The STARZ Original Series “Boss” is set to premiere its second season on Friday, August 17th at 9pm ET/PT.  Starring Kelsey Grammer in his Golden Globe®- winning role as fictional Chicago Mayor Tom Kane, the series also stars Connie Nielsen, Hannah Ware, Jeff Hephner, Kathleen Robertson, Troy Garity and Rotimi.  Produced by Lionsgate, “Boss” earned a Golden Globe® nomination for Best Drama Series for its debut season and is currently shooting season two in Chicago. Joining the ensemble cast as series regulars this season are Jonathan Groff (Spring Awakening, “Glee”), SanaaLathan (“Nip/Tuck,” A Raisin in the Sun), and Tip “T.I.”  Harris.
In season two of “Boss,” Kane ferociously beats back the physical symptoms of his illness with high doses of medication.  But this comes at a cost — experiencing heightened psychological manifestations of the disease.  Without his longtime advisors Ezra Stone and Kitty O’Neil, Kane is also forced to reconfigure his inner circle.  Surrounded by strangers and without much time left, he acts quickly to protect and repair his legacy by cutting out the cancers within the political machine.  But as corrupt heads roll and his list of enemies grows, Kane’s virtuous actions begin to erode the very foundation of power he’s worked a lifetime to build.  In order to maintain it, Kane must govern as he always has-ruthlessly.

To learn more about LBD or find support, visit the Lewy Body Dementia Association at www.lbda.org.

To obtain the PSA for network or website play please contact Elizabeth Patrick, epatrick@lbda.org, 404-935-6444 ext. 101.

The Lewy Body Dementia Association

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.  Through outreach, education and research, LBDA supports those affected by Lewy body dementias. To learn more about LBD and LBDA please visit www.lbda.org.

About Starz Entertainment

Starz Entertainment, LLC, is a premium movie and original programming entertainment service provider operating in the United States. The company offers 17 premium channels including the flagship STARZ® and ENCORE® brands with approximately 20.7 million and 34.2 million subscribers respectively.  Starz Entertainment airs in total more than 1,000 movies and original series every month across its pay TV channels. Starz Entertainment is recognized as a pay TV leader in providing HD, On Demand, HD On Demand and online advanced services for its STARZ, ENCORE and MOVIEPLEX brands.  Starz Entertainment (www.starz.com) is an operating unit of Starz, LLC, a wholly-owned subsidiary of Liberty Media Corporation (NASDAQ: LMCA).

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Love, Laughter and Lewy Body Dementia

Our Guests today are Mary McGrath who will speak to us about her journey with her husband who has Lewy Body Dementia

Mary McGrath and her husband Jim

and Angela Taylor with the Lewy Body Dementia Association

Angela Taylor with the Lewy Body Dementia Association

Today we will learn about:

  • What is Lewy Body Dementia?
  • Are certain demographics more likely to get this disease?
  • Real life examples of symptoms and how to cope with them as a Care Partner as well as a person with symptoms
  • Coping skills – Caring for yourself as well as the person with dementia
  • How and where to find support
  • How can the disease affect your relationships not only with your loved one with the disease but family, friends and coworkers.
  • finding balance in caring for someone with Lewy Body Dementia
  • Does early diagnosis help and if so how?
  • What type of treatment is available for those with Lewy Body?
  • Is the disease reversible?
  • How can you help spread awareness about Lewy Body Dementia?
  • Finding the good in Lewy Body Dementia
  • What should you do if you think you or a loved is having symptoms of the disease?
  • What resources are available for people dealing with Lewy Body Dementia?

Click on the white arrow in the black circle in the box below to listen to the show

Mary McGrath can be reached through her website

http://www.maryzmcgrath.com

Angela Taylor can be reached at the Lewy Body Association at

http://www.lbda.org

lblbda@lbda.org

404-935-6444

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