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Posts Tagged ‘Karen Love’

Re-Imagine Life with Dementia

Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

041817 ASR graphic 1pm DAA Karen Love Robert Bowles

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

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Alzheimer’s & Dementia Health Club & Products For Those Diagnosed

Alzheimer’s Speaks Radio

021015 ASR MEmeory and Company fit kits

Click_above_to_listen_buttonTuesday, April 21st, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

This is being replayed as it is a great information!

Alzheimer’s Speaks Radio where the voice of all is heard and respected.  We love sharing great resources, ideas, products, services, tools as well as hearing your thoughts and ideas.  If you have something you think would help the dementia community lease contact me.

Ashley Kwong recognized a missing and very needed area in the health care industry.  A Health Club for people with Alzheimer’s disease and related dementias. Come learn on how and why she created “Memory & Company.” You will see Ashley is a dedicated, empathetic person, who is very passionate about improving the lives of seniors, especially those with Alzheimer’s disease and related dementias, dedicating her life to this cause.

Mail at: Memory & Company 100 Renfrew Dr. Suite 110, Markham Ontario, Canada L3R 9R6

Phone:  905-888-8808

Our second guests are Karen Love co-founder and Kelly Sheets of FIT Kits® which provide dementia engagement products that are research, tested and developed with the mission of helping people living with dementia to live more fully.  FIT Kits®  believes everyone has within them the ability to ignite the spirit in someone living with dementia.

There is no known cure for Alzheimer’s

But thanks to clinical trials, advances have been made. More medicines are needed to provide patients, caregivers and their physicians with treatment choices.

Click Below To See If You Qualify For A Trial

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Join The Purple Angel Project

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For more information on Dementia and Caregiving

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Health Club and Products for Those With Alzheimer’s And Other Dementias

Alzheimer’s Speaks Radio

Live Tuesday Feb 10th, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time!

Mark Your Calendars!

021015 ASR MEmeory and Company fit kits

Click Above To Listen To The Show!

Health Club and Products for Those With Alzheimer’s And Other Dementias

Welcome to Alzheimer’s Speaks Radio where the voice of all is heard and respected.  Come join the conversation and let us hear your thoughts and ideas.

memory_and_company_health_club_logoAshley Kwong recognized a missing and very needed area in the health care industry.  A Health Club for people with Alzheimer’s disease and related dementias. Come learn on how and why she created “Memory & Company.” You will see Ashley is a dedicated, empathetic person, who is very passionate about improving the lives of seniors, especially those with Alzheimer’s disease and related dementias, dedicating her life to this cause.

Mail at: Memory & Company 100 Renfrew Dr. Suite 110, Markham Ontario, Canada L3R 9R6

Phone:  905-888-8808

fit_kits_for_blog_logoOur second guests will be Karen Love co-founder and Kelly Sheets of FIT Kits® which provide Dementia Engagement Products that are research, tested and developed with the mission of helping people living with dementia to live more fully.    Everyone has within them the ability to ignite the spirit in someone living with dementia.

For more information on Dementia and Caregiving go to Alzheimer’s Speaks.

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A Big Thanks To Our Collaborators!

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HELP US TO MAKE THE VOICES OF

PEOPLE LIVING WITH DEMENTIA

HEARD IN WASHINGTON DC!

CCAL-Advancing Person-Centered Living is working with the University of Buffalo-Institute for Person-Centered Care on a research project funded by the Retirement Research Foundation. One of the aims of the study is to gather feedback from a geographically diverse group of people about what they feel is important and/or needed concerning dementia care in America.

The aim of the survey is to develop agreement on priorities for dementia care, research, education, and funding from the perspectives of people living with dementia, family care partners, and advocates for people with dementia. As someone with knowledge about dementia, we invite you to take part in this study. It is easy to participate and will not involve much of your time.

There will be at least one more round of the survey as we build agreement. We hope that you, will participate in the multiple rounds. We will ask you for your email at the end of the survey so we can send the next survey to you. Your responses and any other information you provide will not be linked to your email. The research has been approved by the Internal Review Board at the University of Buffalo.

A written survey and a pre-addressed, postage-paid envelope can be mailed to you if you would prefer this method instead of completing the survey online. Please call the number below and leave your name and address.

We will combine the views of everyone who takes part in the survey. We will use the information to help inform federal policymakers about what people feel is important and needed concerning dementia care to better inform and shape their priorities.

Respond by April 25, 2014

To Take Part Online Click Here Now!

CCAL LOGO WITH UBTo Request a Paper Version Contact:

Dr. Davina Porock
Director, UB Institute for Person-Centered Care
(716) 829 2260
Or email ipcc@buffalo.edu

Thank you for helping us make your voice heard!

Karen Love, Founder, CCAL-Advancing Person-Centered Living
Davina Porock, PhD, Director UB Institute for Person-Centered Care

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Building Alliances For Person Centered Care

Lets talk radiolori_and_sherri_nov_radioClick above to  go to the radio show

The live show starts at 11am EST,10am CST, 9am MST, 8am PST and 4pm London time.

All shows are archived so you can listen to them later too!

You can call in with your comments and questions as well

(714) 364-4757

Building Alliances For

Person Centered Care

This will be a fantastic show with a wide variety of guests.  From formal national efforts to grassroots.  All giving voice and shifting our dementia care culture in their own way.  Come and listen and learn how you to can participate in providing person centered care and what it means to these individuals.

Our first guest will be Karen Love from CCAL – Advancing Person-Centered Living and the Dementia Action Alliance. She is a passionate person making huge strides to improve our dementia care culture.

Karen LoveKaren Love – CCAL –  Advancing Person-Centered Living

Our second half will have a variety of individual talking about the latest social support group for those dealing with dementia and their care partners – Memory Cafe’s, Alzheimer’s Cafe’s and Dementia Cafe’s. We will talk with facilitators and well as those that attend.  Come join the conversation with Carole Larkin, Jytte Lokvig, John and Virginia Sweeney and Ed and Judy Meehan.

carole_larkin_pic_jpegCarole Larkin – Third Age Services

Jytte Lokvig picJytte Lokvig – Alzheimer’s A to Z

john_and_virginia_sweeneyJohn and Virgina Sweeney – Arthur’s Memory Cafe Members

IM000609.JPGEd and Judy Meehan – Arthur’s Memory Cafe Members

Learn more about Cafe’s for those with dementia & Find a Cafe Mentor

Enter your Cafe int Alzheimer’s Speaks Resource Directory

Alz_Spks_Logo_Website_090413Check Out Alzheimer’s Speaks Resource Website

For More Information

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Mission-driven Organizations Align to

Make Person-Centered Dementia Care the Norm

Three organizations with person-centered care at the core of their missions (CCAL – Advancing Person-Centered Living, Eden Alternative, and Planetree) today announced they have joined together as a leadership team to form the Dementia Action Alliance. The Dementia Action Alliance will coalesce and connect the voices of people living with dementia, their care partners and other advocates to inform key policy, research, and service provider stakeholders about the importance and benefits of making person-centered care the standard for dementia care in our country.

The United States is facing unprecedented growth in the number of people living with dementia – currently estimated at 5.4 million Americans and growing at an alarming rate as the baby boom generation ages. A recent article in the New England Journal of Medicine found that dementia costs now exceed those for cancer and heart disease. Despite the high expenditures, the quality of dementia care in general across the country is not up to par. Person-centered care, which is recognized as the gold standard by the Institute of Medicine, would improve quality as well as reduce costs.

“The Dementia Action Alliance heralds a timely Call to Action to cross the quality care chasm into the gold standard of person-centered practices both improving quality of care and reducing overall care expenses – important benefits for everyone,” said Karen Love, Founder of CCAL.

The leadership team has begun to engage grass root groups across the country that include and represent people living with dementia and their advocates to learn what THEY feel is most needed and important for dementia care practices, public policies, and research agendas. A one-day thought leaders’ Summit will be held in Washington, DC in Spring 2014 to share these perspectives and priorities and to discuss how to begin implementing them.

Michael Lepore, PhD, Director of Quality, Research and Evaluation for Planetree, notes: “By aligning research, policy, and practice efforts, and advancing implementation of person-centered care to support individuals living with and affected by dementia, the Dementia Action Alliance is supporting our collective human desire to realize compassion in action.”

“Our three organizations are deeply committed to creating person-centered environments and experiences. By gaining the support and involvement of national, state, regional, and local entities in this alliance, we can reach the ‘tipping point’ that makes person-centered care the only acceptable norm for our country”, Chris Perna, CEO of Eden Alternative said.

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Two Sharecare Experts Join Forces to Celebrate National Alzheimer’s & Caregiver Month

Two of the Top 10 most influential online experts on Alzheimer’s disease according to ShareCare – the health and wellness experts site launched by Dr. Oz – Lori La Bey (#1) of Alzheimer’s Speaks and Sherri Snelling (#4) of Caregiving Club announced today a joint project in November to celebrate National Caregiver Month and National Alzheimer’s Awareness Month.

The “Let’s Talk Tuesdays” series of caregiving radio programs on La Bey’s Alzheimer’s Speaks blog talk radio channel features both ShareCare experts interviewing other thought leaders on caregiving topics to help empower, enlighten and engage the nation’s 65 million family caregivers. In addition to La Bey discussing the growing trend in Memory Cafes and Snelling talking about the tipping points and health risks caregivers face, the hosts have selected a line-up of experts ranging in topics from technology to volunteerism to entertainment and education programs.

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Click above to go directly to Alzheimer’s Speaks Radio page. 

Shows run 2 hours and start each Tuesday at

11am EST, 10am CST, 9am MST, 8am PST, 4pm London time

All programs are archived for ease of access.

The programs will air live every Tuesday in November from 10 a.m. to Noon CT and features: Eric Hall, Chairman of the Board of the newly launched Alzheimer’s Global Initiative; Brooks Kenny of Lotsa Helping Hands will talk about volunteering to help caregivers; Cathie Borrie, author of The Long Hello, will talk about adapting her memoir for the stage; Daniel and Ellen Potts will talk about the first middle school language arts curriculum for Alzheimer’s awareness Let Me Be Your Memory; Gary Kaye, founder of IntheBoomBox.TV will talk on caregiving technology; Walter Greenleaf Stanford Center on Longevity will discuss a global student design challenge to help early-stage dementia sufferers with safety and independence; Karen Love CCAL will discuss Advancing Person Center Living & Dementia Action Alliance on Building Alliances for Person-Centered Care; Carole Larkin from Third Age Services will discuss Memory Cafes.  Some members will also tell us what they think about these groups and Ruth Curran creator of Cranium Crunches will discuss brain games and smartphone apps to help caregivers engage with loved ones and learn to relax. Check the host web sites for detailed guest information.

“Caregivers often say they feel all alone which is why Lori and I teamed up for this special effort on her talk radio program to encourage caregivers, especially the 15 million Americans caring for a loved one with Alzheimer’s disease, to call in and talk to us as well as learn from other experts about resources and services to help them and to know they are not alone,” says Sherri Snelling, founder and CEO of Caregiving Club and author of “A Cast of Caregivers – Celebrities Stories to Help You Prepare to Care.” “Part of our role as ShareCare experts is providing guidance and advice to caregivers who don’t know where to turn. My personal mission is to help caregivers navigate caring for their loved one while also finding time to care for themselves – what I call the Sandwich Generation juggling act.”

“My goal is to shift the dementia care culture worldwide, from crisis to comfort, by giving a voice to all which is why this November we’re going to highlight caregiver challenges and solutions,” says Lori La Bey, founder of Alzheimer’s Speaks. “If we can help even one person with dementia or those caring for others as a result of these radio shows and help change how dementia care is perceived, received and delivered, then we’ll start the spark that will ignite a huge difference caregiver’s lives.”

About Caregiving Club
Sherri Snelling, CEO and founder of the Caregiving Club and author of A Cast of Caregivers – Celebrities Stories to Help You Prepare to Care, is a nationally recognized expert on America’s 65 million family caregivers with special emphasis on how to help caregivers balance self-care while caring for a loved one. Sherri has been honored as one of the Top 10 Influencers on Alzheimer’s by Sharecare, the online health and wellness experts site created by Dr. Mehmet Oz. She is a caregiving contributor reaching 15 million readers monthly through the Huffington Post, Forbes.com, PBS/Next Avenue, MariaShriver.com, MORE.com, Alzheimer’s Association and Caring.com. She is also a TV producer, program host and celebrity interviewer at red carpet galas, creator of the Me Time Monday weekly videos in support of the non-profit Healthy Mondays Campaign, Caregiver’s Network Webinar host for Lifecare’s 61,000 employer clients and the former Chairman of the National Alliance for Caregiving based in Washington, D.C. Sherri has been a caregiver for her maternal grandparents and recently for her father who passed away from prostate cancer.

Follow on Twitter: @SherriSnelling and @CaregivingClub and learn more at: caregivingclub.com

About Alzheimer’s Speaks
Lori La Bey is founder of Alzheimer’s Speaks, a U.S.- based advocacy group that provides education and support for those dealing with Alzheimer’s disease and dementia. She was named the #1 Influencer online for Alzheimer’s by Sharecare with Dr. Oz in November of 2012. Her training programs are designed for people with memory loss, care partners, professionals and the public. She is a highly sought after speaker, trainer, and advocate for new delivery systems and attitudes towards those with memory loss. Her mission is to deliver programs such as her Dementia Chats Webinar™, platforms and collaborations such as Memory Cafes and Dementia Friendly Campaigns to the US. Along with the newly launched Resource Directory which allows the world to share knowledge in an easy to use format. In addition to her radio show, Lori has been a contributing author in four books and is currently working on two books. Lori is a long-time caregiver for her mother who has Alzheimer’s disease and has also been a caregiver for her father.

Follow on Twitter at: @AlzSpks and learn more at: www.alzheimersspeaks.com

About ShareCare
Sharecare, created by Dr. Mehmet Oz and Jeff Arnold, is the online destination for content contributors including the most prestigious associations, leading brands, eminent hospitals and significant healthcare organizations and professional societies that represent the world’s foremost medical expertise. From the American Red Cross to Colgate to Johns Hopkins Medicine to the National Academy of Sports Medicine, Sharecare.com is bringing together diversity in thought leadership from the top minds in the healthcare field to provide consumers with multiple perspectives within a single web site dedicated to improving health. SharecareNow, a partnership of Sharecare and powered by WCG, is dedicated to facilitating more meaningful online conversations about health and wellness among patients, physicians, brands and associated healthcare organizations and professionals. They have identified the Top 10 influencers on a variety of topics including Depression, Diabetes, Heart Disease, Nutrition, Eye Health, Breast Cancer and Children’s Health. In 2012 they added influencers for Alzheimer’s disease. Learn more at: sharecare.com

 

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