Feeds:
Posts
Comments

Posts Tagged ‘John Sweeney’

My Heartbreaking Journey with Alzheimer’s – A Caregiver’s Lament

Celebrate World’s Alzheimer’s Month – Share Your Story

Another heartfelt prose from John Sweeney one of our community members. John’s honesty will touch anyone who reads his words below. The heartache and love that holds us together when dementia hits someone we love.

My Heartbreaking Journey with Alzheimer’s – A Caregiver’s Lament

At my 80th birthday party, with the family gathering in fall of 2009,

Family noticed Virginia’s memory problem they couldn’t define,

Our daughters had made observations that they brought to my attention,

Concluded that Mom had memory issues, they were reticent to mention,

Things for which I was very unaware, because of my closeness to her,

I had missed many of the little indicators that would frequently occur,

But the family had seen the signs, to them they were in plain view,

After that I started to watch, sadly as I came to see them too,

Signs of forgetfulness seem to display more often than before,

Observations, painful to me, seem to be recurring more and more,

One painful example, she urgently called to my attention one day,

Her husband would be at the airport soon, we needed to be underway,

She needed to go to the bathroom while at a family affair,

“That young gal here is going to take me and show me where”,

It was a granddaughter that she loved so much in days of yore,

So very painfully sad that my love didn’t know her anymore,

Our daughters had come to visit with us at our apartment one day,

She called me aside whispering to me, sadly I heard her say,

“Who are those two ladies we were talking with out there?”

Fear shook through my frame as I became very much aware,

Slowly realizing I was losing the woman I had loved over 60 years,

This terrible disease, Alzheimer’s, was filling me with many fears,

It seemed now was time to explore with specialist in neurology,

At what point in this heartbreaking path now do we seem to be,

The Doctor set up an appointment with Neuro technicians for a brain scan,

From there he would have what was needed for a treatment plan,

With an aviator’s style head gear with contacts and wires everywhere,

It looked like a swim cap, the kind that Esther Williams used to wear,

The diagnosis stung when the description of the problem was read,

And I was shockingly informed with news that I had come to dread,

Alzheimer’s was the diagnosis, more news that hurt to the core,

For I had read many of the outcomes of this terrible disease before,

My mind raced, thoughts buzzed violently in my aged head,

As I contemplated what sorrow, pain and anxieties lay ahead,

As time passed, terrible anxieties burdened the love of my life,

It pained me greatly to see the stress in her, my beloved wife,

“We need to call my parents or grandmother so they hear from me!”

Her parents passed in the 1940s and her grandmother in 1953,

She would panic, searching, the “baby” was nowhere in sight,

A horrible feeling, sobbing kept awake in the middle of the night,

It soon became apparent, caring for her was beyond my ability,

Painfully searching, at this point what could the answer be,

After counsel with all the family, we all soon became aware,

The best solution for her well being was a room in Memory Care,

As I filled out the application, with my eyes filled with tears,

I realized we would be separated for the first time in 70 years,

She moved to memory care in the month of January 2019,

More evidence of cognitive regression was gradually seen,

One of the most painful experiences not noticed before,

That most of the time, she doesn’t know who I am anymore,

But with everything we have lost, and how our lives are stressed,

I remember fondly my 70 years with her, I have been blessed.

By John Sweeney – John lives in an Independent Living apartment in Cherrywood Pointe of Roseville, MN.   His wife Virginia is in Memory Care in the same facility.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

One Man’s Fight to Get His Long-Term Care Policy Holder to Payout

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Listen to Alzheimer’s Speaks Radio Thursday Dec 24th at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 25th at 6am in Australia,

Lori La Bey host of Alzheimer’s Speaks Radio talks with John Sweeney who has been married to his wife Virginia for nearly 70 years.  Virginia is living with dementia and John has been an amazing care partner and role model in how his has chosen to care for his bride. Today he will share his experience about his plight and success with Long-Term Care insurance.  He will share tips and techniques that helped him successfully secure payment, even though verbiage and definitions of care services had changed since he bought Virginia’s policy.

All shows are accessible to listen to once they go live,

Virginia Sweeney
This News Clip Features John and Virginia Sweeney Who Are Members of
Arthur’s Memory Cafe

Contact John Sweeney with Questions:

Email:  jrsvhs70@gmail.com

Address:  Cherrywood Pointe – 2680 Lexington Ave #325, Roseville, Mn 55113

Those Living with Dementia Talk Openly About

Holiday Stress Triggers on Dementia Chats

Today Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation with the true experts on dementia, those living with a diagnosis. Our Topic is Holiday Stress Triggers for those Living with Dementia In this video you will hear those living with dementia speak articulately as they talk about holiday stress triggers, how they adapt to changing situations and environments as well as giving care partners ideas to make the holidays run smooth.

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See what Others have to say about Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What a Great Holiday Gift for a Family Dealing with Dementia! 

Check out this book helping families deal with a dementia diagnosis. 

You can get a holiday discount too!

USE CODE – LORI

The book is called Parental Dementia:   A Guide through all the Difficult Questions by Keith Galas has spent more than 20 years helping families work through all of the questions that keep popping up through the dementia journey. The book even has some great worksheets to help keep your thoughts and needs organized.

Discount Code is: Lori (Save $5.99)

You can purchase the book by going to

www.ParentalDementia.com

What a Great Holiday Gift for a Family Dealing with Dementia!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

Read Full Post »

Fabulous Fiblets And Sundowner Symptoms

Fabulous Fiblets

By John Sweeney, Care Partner for his wife Virginia

Every since the “sundowner’s” episodes commenced about 3 years ago, I would try to convince my wife, Virginia that this is her home.  Show her pictures, furniture and clothes to convince her.  It wasn’t working, her “dreams” were very real to her and she would think that I had her confused with someone else.   About a year ago, with the good counsel of people like Sue from the memory cafe and Carolyn from “The Gathering”  I started “getting in the moment” with her, not arguing about the facts, but role playing in the time she was in.   This was uncomfortable for me at first, as it didn’t seem natural to be deceptive to the love of my life.   But it gave her comfort and takes the trauma out of it. 

Although it shouldn’t have been uncomfortable, as the Irish (which I’m one of) are known for fibbing! 

Frequently Virginia gets visibly upset because she can’t find “the little girl, or the little boy.”  She worries that she has done something wrong in his/her care.   My response, “he/she was just visiting with us and he/she is back home with his/her parents”. Again, this solves the concern at the moment. 

Care giving is mostly “on the job training”  it usually gets better with more experience.

 

Thank you so much for sharing your insights with our community John.  I’m sure it will help many.

We are so gratefully to have you and Virginia participate in Arthur’s Memory Cafe

Lori La Bey, Founder of Alzheimer’s Speaks


Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips



 

Read Full Post »

Memory Cafe Members Are Panelists In Education Forum

Members of Arthur’s Memory Cafe in Roseville were panelists at an educational event called “Finding Comfort In Caring For Those With Memory Loss.”  The program was held Wednesday July 10th at the Fairview Community Center.  It was sponsored by the Roseville Area Senior Program and  Arthur’s Residential Care

George_and_annie_SeilerGeorge and Annie Seiler, are Members of Arthur’s Memory Cafe

Photo compliments of Roseville Patch.  For full article click here.

Janell Wampler, Program Coordinator for the Roseville Area Schools/Senior Program opened the program by highlighting all the great resources Roseville offers their community.

The panelist from Arthur’s Memory Cafe where:  Oliver and Dixielee Dufrene, George and Annie Seiler and John Sweeney who cares for his wife Virginia.

 Melissa Seeley, with Senior Community Services talked about a new technology which helps caregivers stay organized and in touch called CareNextion.org.

Kristin Ptichford for Arthur’s Residential Care shared information about how their small group homes provide intimate care in a home-like environment.

Lori La Bey, Founder of Alzheimer’s Speaks also presented new views on our dementia care culture, including an overview of what a Memory Cafe is, who it is for and what people can expect when they come.

“We have people who drive one hour one way to come to our meeting!” say s La Bey. “We Know there are others in the area who would also benefit from these fun groups.”

J. Arthur’s Memory Cafe meets on the 2nd & 4th Wednesdays of the month, from 1-3pm  at J. Arthur’s Coffee Shop located at 2441 Rice Street in Roseville, Minnesota.   Feel free to call us us as well.  La Bey can be reached at 651-748-4714 or call the coffee shop at (651) 294-4782.

For more resources visit Alzheimer’s Speaks Website

alz_spkslogofromwebsite_083112

Read Full Post »

%d bloggers like this: