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Great Video On Things To Consider When Deciding

To Drive With Dementia

Thank TruthfulKindness for making this video.

What Are Your Thoughts on Driving and Dementia?

We would love to hear from you.

For more information on dementia and caregiving

Click Below

alzsnap_serv_072413Say “Hi” To Our Collaborators

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Glen Campbell’s Film “I’ll Be Me” Is Out And Worth Seeing!

Glen Campbell’s Film

“I’ll Be Me”

You Will Laugh and Cry,

But Most Of All

You Will Be Touched

By This Powerful Film

Call a theater close to you to find out if the movie is playing.

If Not, Let Them Know It Should Be!

Normally, I’m not a big fan of celebrity advocacy for dementia.  I know many will say big names equal a big following, but when it comes to dementia we need more then people showing up one time for a performance to be entertained.

We need people that are going to be emotionally touched by a celebrity performance or advocacy. Touched in a way that lasts long beyond walking out of a theater or event.  One which shifts their perceptions and educates them at the same time.  One that makes people think.  One having a strong impact getting people wanting to discuss what they have just experienced.  One that ignites a passion to join a cause effecting so many.  One that develops compassion and creativity to make a difference.

Glen Campbell’s Documentary, “I’ll Be Me,” Does Just That! 

Kudos to Glen, his wife Kim, his children, friends and peers in the music industry.  Each of you played a powerful role in raising awareness for Dementia.  You showed the true impact this disease has on everyday relationships. How it changes lives no matter who you are. How popular you’ve been or are, how much money made or currently have, where you live, how old you are… and the list goes on….

Nothing Can Protect You From This Disease. 

My hope is that one day soon one of the many big names in this film will take the bull by the horns and pull together a fund raising single, like a “We Are The World,” the benefit single for victims of famine in Africa. It raised over $60 Million, which was distributed to Ethiopia, Sudan, and other impoverished countries.  Or better yet maybe a “Live Aid Concert for Dementia!”  With so much talent, being just as vulnerable to this disease as the rest of us, they could truly make a huge impact on finding a cure and providing support services for those living with the disease.

Just a few of the stars featured in this film who know and love Glen Campbell are:  Bruce Springsteen, Bill Clinton, The Edge, Paul McCartney, Jay Leno, Vince Gill, Jimmy Webb, Blake Shelton, Sheryl Crow, Keith Urban, Brad Paisley, Steve Martin, Chad Smith and Taylor Swift.  If you know any of these influential people or others in power positions, please reach out to them and have a conversation about pulling a star studded group together to raise funds to improve lives of people around he world. It is done all the time for major disasters.

 This Is A Major Disaster. 

It just doesn’t happen to be weather or war related.  This is an international health crisis which will touch everyone in their lifetime on some level. A person every 4 seconds somewhere in the world is diagnosed with dementia. The numbers are frightening and our budgets to dealing with both research dollars and social support are embarrassingly low!  It is time to come together as world.  To join forces to improve lives and really make a difference.

There Is No Escaping It!

Here is where the show is playing in my area in Minnesota

Marcus Theater – Oakdale, MN

AMC Southdale – Edina , MN

Regal Brooklyn Center Stadium 20 – Brooklyn Center, MN

lori_with_radioFor all of those involved or who wished they would have been involved in this film, or for those like me who just saw the the film; I would love to have you on Alzheimer’s Speaks Radio to discuss why you felt this was an important film and how it had an impact on your life, what you are willing to commit to, to help raise awareness and educate others or to help support those dealing with the disease.  What you would like to see in the future regarding dementia. What ideas do you have to make a difference to help shift our care culture?

Contact Lori La Bey, founder of Alzheimer’s Speaks to be part of a radio show.  I would actually love to set a special 2 hour show to allow people time to reflect and share their thoughts across the globe.  For those of you that know me, you know I feel strongly about having open and honest conversations which allow us to shift our care culture for Dementia from Crisis to Comfort.

Kudos to the Glen Campbell family and those involved in making this incredibly honest film.  What a beautiful gift to the world this was.

I’m sure the family has taken some heat for exposing this disease and what some might say as “using” Glen in the process.  I know what that feels like. It’s awful.  My own mother had the disease for 30 years.  We had plenty of time to discuss how to leverage an awful disease, an awful situation and make it beneficial to others. There is power in having purpose.  Glen shinned through in this film even as the disease nibbled away at him.  Glen had purpose.  He was able to link to what he loved and could do it way longer then the doctors ever imagined possible. Sharing true loving stories of real life is never a bad things, once we step outside our egos and understand it’s for the greater good.

Again, I say “Kudos Campbell family for having the strength and courage to make Glen’s life full as well as his family, friends and fans doing what he loved for as long as he could.”

Dementia Knows No Boundaries.

We Shouldn’t Either.

So Join the Global Cause

To Shift Our Dementia Care From Crisis to Comfort

SocialMedia081114_purpleangel_carousel TMClick Above To Learn More About The Purple Angel Project

A Big THANK YOU To National Tour Sponsors

Of  “I’ll Be Me”

PointClickCare, Pathway Health, CliftonLarsonAllen, Covenant Health Network, HJ Sims, Essential Decisions, Inc., Attitude Edge Companies, Messerli & Kramer P.A., Disney Family Fund, Easter Seals, Leading Age and to our Minnesota Sponsors where I saw the film: UCare, Volunteers of America, Mayo Clinic, Open Heart Foundation and Aging Services of Minnesota

For More Information On Dementia and Caregiving

Click Below and Check Out Alzheimer’s Speaks

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Click Below For a Special Holiday CD

Designed With New Technology

For Those With Dementia

combineid AlzMusCon logo and CD

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Join Alzheimer’s Speaks Radio Tuesday

Join Alzheimer’s Speaks Radio Tuesday

052714_ARS_jane_sweenye_taux_trlClick Above And Listen From Your Computer

Live Tuesdays at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time!

Call in to join the conversation (714) 364-4757

Please “LIKE” the show and share with your families, friends & colleagues

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Our first guest Jane Sweeney, used a pen name of JC to write “Caregiver: My Love Story, Facing Dementia.” This is a powerful and very “caregiver friendly” book. The book is her tribute to her sweetheart Bernie, to honor his love. Jane wanted and needed to share what she learned. By giving to others tips she learned from her own journey, Jane hopes to bring awareness to the difficulties faced by so many walking this path.

 

 

jane sweeney BookCover

Website

patitent_access_Dr_shubinOur second guest will be Dr. Shubin is active in research for dementia. As the Director and Principal Investigator of Neuro-Therapeutics, Inc., he provides opportunities for those diagnosed to be involved in cutting edge research in neurology. Today, he will talk to use about a phase 3 clinical study. The trial involves LMTX, a Tau protein aggregation inhibitor for patients with early Alzheimers. LMTX™ acts by reducing levels of aggregated or misfolded Tau proteins, which are associated with the progressive neurodegeneration of Alzheimer’s disease.

Patient_Access_Dr_shubin_For more information  contact Keeley Fernandez, Study Coordinator by Email (626)250-2070 ex 730

Website

Facebook

Email: info@AlzheimersStudies.com

Phone 1-855-786-7259           1-855-786-7259

All shows are archived to so you can listen anytime.

Check out Alzheimer’s Speaks for more resources and information –

Alz Speaks multi logo_091113Blog, Free Webinars, Tools, Resource Directory and more.

 

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Alzheimer’s Speaks Radio – Music Matters – Learn Why!

Welcome to Alzheimer’s Speaks Radio

asr_logo_lori_and_micWe listen to all voices on dementia.

Click here to go directly to the show.

Alzheimer’s Speaks Radio goes live at 11am, EST,  10am CST, 9am MST, 8am PST and 4pm London time.

Call in to speak with the host Lori La Bey    (714) 364-4757

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This Tuesday, May 6th, 2014, we will have Ron Gregory CEO of Alzheimer’s Music Connect and it’s parent company LifeMusic, Inc.. Ron has been touched by dementia through several family members and has applied his skill set to make a difference in how we care for those with dementia. Come join the conversation and learn how powerful music is and how it can help you and those you care for.

Website – Alzheimer’s Music Connect               Phone 855-543-3687

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Our second guest will be Atlanta musician Vince Zangaro who is a man with a musical mission. After his dad was diagnosed with Alzheimer’s, Zangaro left his corporate job to care for him. The lessons within this dynamic have re-inspired Zangaro’s love for music. Come and learn what he is up to and how you can participate and help his cause to improve life for those dealing with dementia.

Pamela Van Ahn, is Executive Director of Caring together in Hope and is supported by her siblings and an Uncle who serve as its Board members. Caring Together in Hope is a 501(c)(3) organization that strives to alleviate a portion of the family caregiver’s role by assisting with financial help in respite care. The foundation is dedicated to being an advocate to those families who care for a loved one at home with a diagnosis of AD/dementia. We share our knowledge as former caregivers, leverage the services currently offered by existing organizations, and deliver interim care services in the AD/dementia client’s home. In addition, the foundation is actively involved in many local initiatives that raise awareness about the personal, physical, emotional, spiritual and financial challenges that come with a person with dementia.

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Here Is the Schedule:

Alzheimer’s Music Fest

Outside

12:00-12:40 Ghostrain
12:50-1:10 Jeff Fritz
*5 min Alzheimer’s Knowledge Speaker
1:20-2:00 Jason Grant Davis Band
2:10-2:30 Charles Spann
2:40-3:20 Elder Sun
3:30-3:50 Paths Left Undone
*5 min Alzheimer’s Knowledge Speaker
4:00-4:40 The Lost Boys
4:50-5:10 Casey Camp
5:20-6:00 Role of the Observer
*5 min Alzheimer’s Knowledge Speaker
6:10-6:30 Jon Latham
6:40-7:20 Starting Fires
7:30-8:10 The Mike Watson Band
8:20-9:00 Nine Times Blue
*5 min Alzheimer’s Knowledge Speaker
9:10-9:50 The Thrillhammers
Inside
12:00-12:20 Andrew Katter
12:30-1:10 Five O’clock Devil
*5 min Alzheimer’s Knowledge Speaker
1:20-1:40 Alex Guthrie
1:50-2:30 Anne-Marie Perry
2:40-3:00 Liz Lee
*5 min Alzheimer’s Knowledge Speaker
3:10-3:50 Over the Effect
4:00-4:20 Lianne Hutcheson
4:30-5:10 The Bitteroots
*5 min Alzheimer’s Knowledge Speaker
5:20-5:40 Luna & Sol
5:50-6:30 Zangaro
6:40-7:00 Peyton Parker
*5 min Alzheimer’s Knowledge Speaker
7:10-7:50 Alchemy
8:00-8:20 Madison Shea
8:30-9:10 Avenue of the Giants
9:20-9:40 Wade Sapp
*5 min Alzheimer’s Knowledge Speaker
9:50-10:30 Gurufish

Email Vince:   vincezangaro@gmail.com                Phone him at:     770-547-3244

Check out Alzheimer’s Speaks Website for more resources and information

Alz Speaks multi logo_091113Blog, Free Webinars, Tools, Resource Directory and more.

For A Keynoter Shifting Perceptions Around The World

Lori La Bey of Alzheimer's Speaks and Senior Lifestyle Trends

Lori La Bey founder of Alzheimer’s Speaks

Contact Lori La Bey and ask what the chickens are all about.

You will be surprised and want some chickens for yourself, your staff and your clients!

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Click Here to go to show page

Dementia & Wandering –

What We Need To Know

Live Each Tuesday 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

Call in (714) 364-4757(714) 364-4757 or use the chat box to comment

Karen Francis is the owner of “Calling All Angels Geriatric Case Management,” and today we are going to discuss dementia and wandering. Join the conversation and learn safety tips.

Contact Info

KarenCallingAllAngels@yahoo.com

Shishuka Malhotra, MD, is a Board Certified Psychiatrist and Assistant Professor of Psychiatry at Northeast Ohio College of Medicine in Akron-Canton, OH. She has over fifteen years of research, clinical and administrative experience and has conducted more than 70 clinical and experimental trials. She is also the President, Medical Director and founder of Neuro-Behavioral Clinical Research, Inc

Contact Info

Crystal Blackford at Neuro-Behavioral Clinical Research, Inc., 330-493-1118 330-493-1118.

4825 Higbee Ave, NW, Suite 102 Canton, OH 44718

 

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Small Business Tackles the NFL Alumni Cognitive Concerns thru Coaching

From the Sidelines to the Frontlines / From the Press Box to the Memory Box

(Indian Land, SC) –  South Carolina based Keep In Mind, Inc., President Ellen (Roberts) Belk; is announcing a Dementia Care Coaching Initiative, targeted to those former professional Football players and their family caregivers who are either suffering from or worried about cognitive decline.

Belk, a former NFL beat reporter, on-air talent and producer for New York outlets WFAN, WLIB and eYada.com; has dedicated the last 13 years of her career to advocating for those with a dementia diagnosis while training and supporting their caregivers as a Dementia Care Solutions Expert.

“80% of all dementia care is delivered by family members or close relatives. And, often these folks are thrust into those duties with zero experience. We provide dementia care solutions that can ease their burdens,” says Belk. She hopes to merge both her previous and present career ‘worlds’ and bring much-needed support to those former NFL players and their families who would benefit from her expertise.

Dementia isn’t a specific disease. Instead, dementia describes a group of symptoms affecting thinking and social abilities severely enough to interfere with daily functioning. Many causes of dementia symptoms exist.

Keep In Mind, Inc. offers customized Dementia Care training for family caregivers. “We have a holistic Dementia Care philosophy and we provide suggestions and solutions, based on the issues the caregivers share with us.” Belk explains.

“I am in a unique position; that certainly sets me apart from my peers in Dementia,” she continues. “From my years inside professional sports and most notably professional football, I understand the mindset of former athletes. I relate to their competitiveness and the intensity of the game. Having that perspective is essential. I can ‘coach’ their caregivers how to use those past characteristics to their benefit now. Dementia care is tough, but it can be much easier when you utilize a person’s past history in their care planning.”  

Belk graduated from Marquette University with a degree in Broadcast Journalism as a scholarship athlete.  Her sports radio broadcasting journey began in Milwaukee at WTMJ and WISN; then moved to WBT in Charlotte before landing in the Big Apple.

Career highlights in New York, include being the game day studio producer for Giants Football, the on-sight producer for both the Jets & Giants Monday Night Show and the Jets daily beat reporter for three seasons. At the pinnacle, Belk was co-hosting a nightly sports talk show on eYada.com. After the September 11th, 2001 attacks; Belk left New York and sports broadcasting and transitioned into healthcare.

Through continuing education and boots-on-the-ground experience from the frontlines of care; Belk emerged as a recognized Dementia Solutions Expert specializing in operations, caregiver training and patient advocacy. Remarkably she successfully navigated from the NFL sidelines & locker rooms to being an accomplished leader in Dementia Care. 

In 2011, Belk and her husband opened Keep In Mind, Inc. In addition to the caregiver training packages; they offer a Corporate Wellness initiative, designed for family caregivers who must maintain a career/job outside of their care duties. For more information and caregiver resources visit: 

Listen to Alzheimer’s Speaks Radio Show with NFL Play By Play Voice Gerry Sandusky of the Baltimore Ravens.  Host Lori La Bey discussed with Gerry the NFL, player and family needs along with  Gerry’s new book Forgotten Sundays.

021114_ASR_gerry_sandusky_NFLClick Above To Listen

For additional resource provided by Alzheimer’s Speaks Click Below

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alzheimersspeaks_radio_logo_from_websiteClick on Above link to go directly to the program

Airs Live Tuesday August 20th, 2013

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time

All shows are archived

Legal Crisis –

Avoid The Perfect The Storm when Illness Hits

Ramsey_2Our guest to will be Ramsey Bahrawy, who is an elder Law Attorney with Bahrawy Law Offices. He also hosts and produce a TV program called “Your Money Your Life.” His program appears in 32 states on local cable TV and also on You Tube. Our topic today is hot one and we encourage you to call in with your questions and comments.

You can reach Ramsey Bahrawy:

(978) 682-1141

Ramsey logo

Innovation In Adult Day Programs

sillars amy picOur second guest will be Amanda Sillars, MSW, LCSW. with Total ADHC Solutions, Inc.. Amanda is first and foremost an advocate for Adult Day Services with an unparalleled understanding of the Adult Day Service Industry. She been involved in Adult Day Services for over fifteen years, as a speaker, consultant, author, trainer, expert witness and psychological consultant. She is committed to the integrity of the business and passionate about finding solutions to decrease the financial burden of healthcare costs in our country. Amanda is diligent about researching current trends and finding ways to integrate this knowledge into ADS programs.

Amanda Sillar can be reached:

Sillars logo total adhc solutions

 

 

 

 

 

 

 

 

For more resources check out our website below

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