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Posts Tagged ‘grief’

DOWN THE RABBIT HOLE: A JOURNEY THROUGH END STAGE DEMENTIA

Tuesday April 26th – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the April 27th at 6am in Australia AEDT

Listen to the Show – Click Below

Ms. Veronika Zyss began writing after her husband’s death. At first, it was to make sense of her feelings. The book turned out to be very cathartic for her. Expressing her feelings made it easier to come to terms with them. During the process Veronika thought her sharing her story might help others. Since then, her book has been endorsed, published globally, and she has appeared on Alzheimer’s podcast and as a guest author. Listen in to this amazing story!

Contact Veronika Zyss

Email  

Purchase Veronika’s Book – DOWN THE RABBIT HOLE: A JOURNEY THROUGH END STAGE DEMENTIA       

All Shows are Archived

Be Our Next Guest. Email us at Alzheimer’s Speaks Radio

Register for a Live Demo Tour of Dementia Map on Zoom!

Dementia and the Arts is an Educational Panel where all levels of artists and all types are welcome. Our goal is to elevate panelists work and ability to create beauty in many forms. They will share examples of various types of art they participate in, how, and why they started, what they have learned, and what they personally get out of making art. Panelists, do not have to attend all sessions.

As you will see from the sample video above, conversations are comfortable, casual, and fascinating. We have so much to learn from one another. All recordings will be prerecorded and published to Alzheimer’s Speaks YouTube channel with a specific playlist channel for easy access. Each episode will be pushed out on Alzheimer’s Speaks social media channels as well.

Anyone living with dementia interested in participating, please reach out to Lori La Bey via email, or Private message her on FaceBook

Subscribe to Alzheimer’s Speaks YouTube To Receive All Our Videos

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

For a Complete List of Dementia Chats Videos – Click Here

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Upcoming Public Events Lori La Bey Will Be At:

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

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Find A Memory Café In Your Area

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We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Project CARE Study the Effects of Stress

Tuesday – Sept. 7th, 2021 – 2pm EDT, 1pm CDT, 12pm MDT, 11am PDT & 7pm London BST, 8pm South Africa SAST, and on the 8th at 4am in Australia AEST

Click Below to Listen to the Interview

Our Host, Lori La Bey will be talking with Ryan Linn Brown who is a 5th year PhD student in Psychological Sciences at Rice University.  Ryan is a passionate science communicator and researcher who focus is on the biological mechanisms through which psychological stress like bereavement and family caregiving disrupts the immune, autonomic, and endocrine functions within our bodies.

We are live today so call in and join the conversation. 

Ask your questions or make a comment at (323) 870-4602

Contact Project CARE

Email:  careduringcovid@rice.edu

Website:  www.ryanlinnbrown.com 

Twitter: @RyansScience

LinkedIn: https://www.linkedin.com/in/ryan-brown-244474113/

Facebook: https://facebook.com/ryansscience/

All Shows are Archived

Be Our Next Guest. Email us at Alzheimer’s Speaks Radio

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

For a Complete List of Dementia Chats Videos – Click Here

Register for a Live Demo Tour of Dementia Map on Zoom!

Upcoming Public Events Lori La Bey Will Be At:

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial


Find A Memory Café In Your Area

2 FREE SERVICE OFFERS BELOW

We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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May we all take a moment of silence in prayer for our brave soldiers who gave their lives to keep us all safe.  May we wrap their families in love and gratitude for the extreme sacrifice they endured losing a loved one.  May families feel our deep since of appreciation and gratitude, not only on this day but throughout each day going forward.   

Click Below To Watch Dementia Quick Tip #11

Click Below To Watch Dementia Quick Tip #10

We would love to here your thoughts and comments on these tips.

You can find more tips on our YouTube Channel

Alzheimer’s Speaks Radio – shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

FREE SERVICE OFFER BELOW

Do You Like to Sing, Humm or Dance?

The Next Sing-Along, Sing-Alone is May 28th, 2020 -2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London, 8pm South Africa and on the 6th at 5am in Australia AET

Instructions to Join May 28th Zoom Sing-a-Long Are Below:

Join Zoom Meeting
https://us02web.zoom.us/j/89295095391?pwd=WW40T0JhZy91YlhRUGFoZ1o4NUNXQT09

Meeting ID: 892 9509 5391
Password: 489425

Alzheimer’s Speaks Radio shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound information, not just sound bites since 2011.

Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

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Dementia, Grief & Haiku

Alzheimer’s Speaks Radio shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Thursday – Jan. 23rd, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 9th at 6am in Australia

Listen to the Radio Interview Below

Watch the Video Interview Below

On this episode our host Lori La Bey, talks with Mary Todd a wife whose husband Jim was diagnosed with dementia and who has found writing Haikus healing and Nancy Niero an ordained clergywoman specializing in the ancient practice of anointing in end-of-life care,  We will explore the emotions a care partner experiences as the disease progresses and how writing can help. 

All shows on Alzheimer’s Speaks Radio are accessible to listen to at anytime to once they go live – Enjoy.

Contact Mary Todd

Read Mary Todd’s PDF of Alzheimer’s Grief Haiku 

Email Mary: mtodd75@verizon.net

Mary Todd FaceBook: https://www.facebook.com/profile.php?id=100010144062136

Contact Nancy Niero:

Email:  nancy@anointjourney.com

Website:  https://www.anointjourney.com

Anoint Facebook Page   https://www.facebook.com/Anoint-1621888641462580/      

Phone:  (303) 601-6430

Here is our first tip on Tears, Fears and Joy. We would love to here your thoughts and comments on this tip.

Dementia Chats – Those Living with Dementia Talk Openly

Today Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation on Dementia Chats with the true experts on dementia, those living with a diagnosis. Our Topic is Holiday Stress Triggers for those Living with Dementia In this video you will hear those living with dementia speak articulately as they talk about holiday stress triggers, how they adapt to changing situations and environments as well as giving care partners ideas to make the holidays run smooth.

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
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The Forget-Me-Not Memory Café Building Community & Lifting Spirits

The Forget-Me-Not Memory Café Building Community & Lifting Spirits

On Alzheimer’s Speaks Radio 

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Forget-Me-Not Memory Cafe

Today we are lucky to have three team members; Andrea Carruthers, Jody Loseth and Kathy Thonvold from the West Central Dementia Awareness Network (WCDAN).  We talked about their “Forget-Me-Not Memory Café” and several additional dementia friendly efforts they are involved.

Contact Information For

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Click Above or Email  wcdanmn@gmail.com

Depression, Sadness, Grief & Dementia

https://youtu.be/-IvL5MJI5Kg

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Depression, Sadness, Grief & Dementia

Depression, Sadness, Grief & Dementia

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.
Today we discussed the following:
Depression, Grief, Sadness and Dementia
Today we address the following:
Dementia vs Depression
Grief, sadness and depression
Dementia and loneliness
Added stress for Care Partners due to loneliness
Quiet isn’t always lonely
Fear and depression
Advocacy and purpose can replace fear and depression
Depression is a personal experience
Sadness vs Depression
Look for things to be grateful for
Does loneliness have to do with how we grew up?
Care Partners are afraid of saying anything that might upset their person with dementia.
A sadness felt by both sides for different reasons
Listen and validate feelings
“Happy Places” can shift sadness and depression
Everyone with dementia is different and has their own “Happy Places.”
Thank You To Our Experts Living With Dementia:
Harry Urban
Laurie Scherrer
Bob Savage
Truthful Loving Kindness
Brian LeBlanc
Susan Suchan
Brought To You By Lori La Bey, Founder of
www.AlzheimersSpeaks.com
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Learn How To Host A Screening Of The

Hollywood Film “His Neighbor Phil”

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 Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

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Now is the perfect opportunity to join the Move for Minds experience. Please sign up today and we’ll thank you by giving you a pair of Beats urBeats Earphones ($99 value) at our Move for Minds event on June 4.  (Limit one Beats UrBeats Earphones per person-offer ends 5/24)

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Join the fun at one of the events in eight different cities where you can participate in an extraordinary workout and panel discussion.  Leeza Gibbons  will be the moderator.  All you have to do is sign up online and commit to a fundraising minimum of $250.00.

Check Out The Panel of Experts

• Dr. Daniel Amen, M.D. – Brain Health 

 • Tana Amen – Nutritionist

• Katy Bowman – Biomechanist

 • Mallika Chopra– Meditation Expert

•  Dr. Joshua Grill, Ph.D. – Alzheimer’s Research

•  Lori La Bey– Caregiving / Alzheimer’s & Dementia Activist

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4 Pillars of Prevention

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Valentines Day: The Side Not Talked About

Valentines Day  –

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The Darker Side

Most people think of love, happiness and joy on Valentines Day. The day is wrapped around those currently in our life as we celebrate our relationships.  Tokens of love like flowers, chocolate and jewelry allowing those feeling to linger, but for many others Valentines Day can be extremely painful.

The loss of a loved one in our life can trigger thoughts of longing for what once was.  Grief can take hold as tears roll down ones face and and the heart longs for the precious connection it once had. The longing of physical touch; a kiss, a hug or just holding hands is no longer possible.

For some, the pain of loss lingers way past the day marked on the calendar as Valentines Day.  For some, each and every holiday triggers the loss of the physical presence of the one they loved.

Earlier this week, I was in Indiana and Illinois at three Clarendale properties doing screenings of “His Neighbor Phil.” At the last screening, a woman in the audience can up and gave me a beautiful poem about love and loss. I wanted to share it with all of you.

The Poem is Titled

“Grief is the Price of Love”

The Author is Unknown

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May this poem give those grieving some peace of mind and heart knowing the greatest gift one can receive in a life time, comes with two price tags…. grief and gratitude.

May we all be lucky enough to love so deeply and completely to feel both “grief for a great love” knowing it’s “sister gratitude” will help fill the holes in our heart and help us find peace in our life once again.

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Dementia And Ambiguous Loss

A Special Evening with Dr. Pauline Boss

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Please attend this very special evening with Pauline Boss, author of Ambiguous Loss. The evening’s topic will be “Coping with Losing Someone One Memory at a Time.”

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Dr. Pauline Boss provides a name for what families and caregivers experience with Alzheimer’s disease and other illness or conditions that cause memory loss. She discusses the immense pain of such loss, its effects on family members, and importantly, how to live with the ambiguous loss of a loved one’s dementia without hindering one’s own health. She challenges the idea of closure with new information about grief and loss and offers guidelines for finding meaning, hope, and resilience despite a loved one’s memory loss.

To Purchase Tickets: 

http://paulineboss.bpt.me/

Nursing CEU’s Are Available

For More Information:

612-824-2345

www.Rakhma.Org

Office@Rakhma.Org

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Whats Does Father’s Day Feel and Look Like From Heaven?

What Does Father’s Day

Feel and Look Like

From Heaven?

By Lori La Bey, Founder of Alzheimer’s Speaks

Dear Dad,

You have been gone now for 15 years and my heart still sinks at the thought of the loss of you.  This Father’s Day was even harder as I was up at the lake, preparing your beautiful home for sale. As packed and organized things this weekend I thought… What Does Father’s Day Feel and Look Like From Heaven?

Do you feel my loss?

Do you feel how much I love you?

Do you know how much you meant to me and still do?

Do you realize all you taught me?

Do you see the tears run down my face?

Do hear me sniffling as I talk to you wanting so badly your advice or a comforting hug?

Do you watch me struggle?

Do you see me succeed?

Do you smile when I am joyful?

Do you miss me as much as I miss you?

Do I make you proud?

Does your soul ache to be together at times, like mine does?

Do you experience emotions like we have here on earth?

Are you peaceful and content where you are?

Is heaven really as wonderful as they say?

Do watch down on me or have your flown away?

I hope you know what a wonderful Dad you were to me.  So Dad, what does Father’s Day look like and feel like from heaven?

Your loving daughter,

Lori

 

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Third Mother’s Day Without Mom

Feeling Lost and Privileged

Below is an article I wrote for my first Mother’s Day without Mom.  It was a very healing moment writing about her. I feel it still stands true and maybe, just maybe it will help others on their own healing journey.  I hope  you enjoy it.

By Lori La Bey – copyright 2014

Lori La Bey of Alzheimer's Speaks & Senior Lifestyle Trends

Lori La Bey founder of Alzheimer’s Speaks

Through my mother’s thirty year journey with dementia she continued to guide and teach me; love me in ways I did not know where possible, especially in times of illness.  It’s now been 72 days since mom slipped into the heavens and joined my father. Although I can rationalize her journey on earth is over and she is now in a much better place, free of pain, fully mobile and mind intact; I am struggling.

Today I Will Visit Her Grave Site With My Beautiful Daughter Danielle,

Who Loved Her Grandma So Very Much.

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Going There Gives Me A Sense Of Peace.

headstoneThe Cemetery, A Place Where I Can Honor Her,

Leave Roses And Balloons In Honor Of Our Relationship And

The Love We Had For One Another.

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Throughout My Life, My Mother Has Been My Logical And Loving Conscious.

Mom Was My Rock.

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Mom is the one I could always depend on. She was not only my mother, but my best friend.  As my friend Lisa Hirsch titled her book, “My Mother My Hero”  pretty much sums it up!

Through tough times she was my guide and support.

On special occasions we celebrated together.

Mom Taught Me:

To look for the tiniest of things to be grateful for.

To hold a hand out to those in need.

To love deeply.

To consciously make a difference in my life and others.

To work hard and be responsible.

To understand my impact on others; realizing, appreciating and honoring the world is much larger than myself and that we are all interconnected.

To understand that to be a Mother one does not have to have their own child; but rather to be willing to adopt a child in mind, body, heart and soul.

To make a connection and difference in someone’s life, is to be a Mother.

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Mom Showed Me How By The Way She Lived Her Own Life.

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Leading by example showing me a variety of ways to be a compassionate person.

How to listen to others, not just hear their words.

To look for nonverbal signs of what others truly want or need, when their words were lost or pride held them back.

To look past the everyday judgments and see the whole person standing before me.

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Through Illness Mom Taught Me:

To let go of control. To realize it is a mirage, a trap of guilt and pleasure.

To embrace the simplicity of life.

To smile and spread grace.

To love more deeply than I ever knew was possible.

To laugh hard and authentically to embed the moment into my soul.

To look for and create joy in all moments of life, no matter how difficult they are.

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To talk openly and honestly with others acknowledging all emotions without embarrassment.

To understand we are all in this life together and that shame, guilt and denial shut us down. Realizing the only way to get past those crunching emotions is to be open, honest and proud you’ve recognized them and what has triggered them; allowing you to move through them. Past them. Over them.

To not only say, “I’m sorry” when wrong, but to change my behavior to avoid it from happening again.

To feel my fear, think of alternatives to remove it and to be brave enough to take action to reclaim the life I envision.

To follow my instincts even when they seem goofy or senseless.

To trust in a higher power than myself, knowing I’m never alone.

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To honor everyone’s beliefs.

To realize prestige, money and objects are just things.  They will not make you a better person; until you realize they can be powerful tools to expand your work for the greater good.

She taught me the importance of being person centered and what it truly means – which is how and why I created “Your Memory Chip.”  –  Are they Safe?, Are they Happy? Are The Painfree?

Through All These Lessons And More,

I Find I Still Want Her Back In This Physical World Where I Live.

Some days my heart aches so bad I think it will explode; or maybe, just maybe it will stop beating all together.  I logically believe and know in my heart mom is in a much better place. In heaven with my dad probably dancing and laughing with many friends and family who have also passed.

But Today, My Mind Wonders…

How Long Will The Pain Of Her Loss Last?

My heart longs for the warmth of her being.

My body reaches out to touch and embrace her, wanting to feel the calmness she always gave me.

My soul wants to be in her physical presence.  The presence that grounds me and allows me to feel strong and confident; even when weak.

My nostrils want to take in one last breath of her essence.

My mind wants to create more moments of joy with her.

Yes Today I Will Go To The Cemetery,

Where I Know She Is Not.

Mom’s soul is not limited to the small patch of grass next to her headstone.

Mom is in the air I breathe.

She is in the sunlight that warms me and ignites my growth.

She is the rain that falls, filled with nutrients and washing away the toxins.

She is the snow that chills me and brings a brilliant beauty by white washing this canvas called earth.

She is the sunset that screams at me to be amazed by our God and the beauty which surrounds me.

She is the moon that calls me to reflect, regenerate and give gratitude for the life I am blessed to live.

Mom, on this Mother’s day I honor you,

and all Mothers who have warmed a child’s heart, taught us soul lessons, loved us unconditionally as we have taken missteps, stumbled and fallen.

To all women who have been then there to pick us up and wipe us off.

Who have kissed a booboo.

Given a hug when we have felt unworthy.

Who sat silently in our presence when no words were needed to make us feel safe and loved.

To your hand, when you reached out to let us know we are not alone.

To your words of encouragement when we were down.

To your thoughtful and thoughtless

celebration when we finally got it right!

Each Mother is special.

An “Earth Angel” Guiding Us In This Physical World.

Thank you to all Mother’s, for who you are and what you do for the world at large.

Thank you Mom for all you taught me.

All you gave me.

All you continue to give me from the other side.

Your continued connection through dreams and through our souls has been a beautiful gift to me.

May Your Mother’s Day Be blessed. 

May You Hear The Love My Heart Sings For You.

heart on sheet music

I thought I would add this short video, one of many, which means the world to me.  It’s of my mom singing in her end stages.

For More Information And Resources On Dementia And Caregiving

Go To Our Website Below.

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Help Raise Awareness. 

Host A screening of the new dementia film “His Neighbor Phil.”

Join The Purple Angel

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