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Posts Tagged ‘George Vradenburg’

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

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Trish Vradenburg

May Trish’s  family and friends feel the love and support the world is sending them

Trish’s Deep-Rooted and Unflinching Passion to Fight Alzheimer’s Creates Admirable and Aspirational Legacy

UsAgainstAlzheimer’s Co-Founder and Vice-Chair Trish Vradenburg’s unflinching spirit – her creativity and imagination, quick-witted humor, empathy, generosity and her exceptional tenacity to stop the suffering of others – was captured in her every action. It is with immense sadness that UsAgainstAlzheimer’s announces her passing, and it is with the utmost gratitude that the organization cherishes her legacy and forges ahead in her memory.

Trish’s life was an inspiring portrait of creativity and versatility, employing her gifts of writing and storytelling throughout a successful professional career. She began her career as a speechwriter in the U.S. Senate. She wrote for various television shows, including Designing Women, Family Ties and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages.

As a journalist, she wrote extensively for The New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play about a sitcom writer and her mom battling Alzheimer’s disease together, was produced at The Kennedy Center in Washington, D.C., and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Brazil.

Founded with her husband George Vradenburg, UsAgainstAlzheimer’s was born out of their passion to fight back against Alzheimer’s disease, which Trish’s mother, Bea Lerner, the wife of her father Joseph H. Lerner, succumbed to in 1992. Trish’s unique whimsical style, the perfect complement to George’s more serious side, was instrumental in leading the organization on a path to make meaningful progress against a disease that caused their family so much pain.

Trish was a gifted and relentless advocate. She helped achieve increased funding for Alzheimer’s research and build a growing public-private consensus that a cure for the disease must be reached by the year 2025. Recently, she spearheaded the launch of the Alzheimer’s Party, imploring members of Congress to join a bipartisan movement to end Alzheimer’s disease.

Trish also served on the Council of Theater J and on the boards of DC Vote and the Vradenburg Foundation.

This Power House Couple Will Be Missed

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Trish and George Vradenburg

She is survived by her adoring husband George; daughter Alissa Vradenburg and son-in-law Michael Sheresky of Los Angeles, CA; son Tyler Vradenburg and daughter-in-law Jeannine Cacioppe Vradenburg of Chicago IL; grandchildren Harrison Sheresky, Skyler Sheresky, May Vradenburg and Gavin Vradenburg; and her brother Rabbi Michael Lerner and sister-in-law Cat Zavis of Berkeley, CA. She was preceded in death by her father, Judge Joseph H. Lerner, and mother, Bea Lerner.

Private family funeral services will take place later this week in Los Angeles, followed by a public memorial service in Washington, D.C., on May 9 at a venue to be determined. Family and friends will be honoring Trish’s legacy; details will be shared as they become available.

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UsAgainstAlzheimer’s is an innovative, patient-centered non-profit demanding – and delivering – a solution to Alzheimer’s. Driven by the suffering of millions of families, UsAgainstAlzheimer’s presses for greater urgency from government, industry and the scientific community in the quest for an Alzheimer’s cure – accomplishing this through its own patient-centered effective leadership, collaborative advocacy and strategic investments.

Founded in 2010, UsAgainstAlzheimer’s has worked across sectors to: (1) secure the national goal of preventing and effectively treating Alzheimer’s by 2025; (2) help secure nearly $1 billion in additional public funding for Alzheimer’s research over the past few years; (3) drive global efforts that resulted in the leaders of the world’s most powerful nations, the G7 group, to embrace a similar 2025 goal and to call for greater levels of research investment and collaboration; (4) transform the system of Alzheimer’s clinical trials for greater speed, efficiency and quality; and (5) forge a global process of industry, regulators and payers to bring greater clarity to the approval and payment of innovative medicines for Alzheimer’s.

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Fighting Alzheimer’s – Join The Cause

Fighting Alzheimer’s

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The Fighting Alzheimer’s Campaign 

Alzheimer’s Speaks recently participated in Mediaplanet’s Fighting Alzheimer’s campaign where we united with likeminded industry leaders to raise awareness about the need for increased funding for research, how to better the lives of those living with Alzheimer’s and how to assist their families and caregivers. The campaign was distributed through USA TODAY on November 28th 2016 and is now published online. For the full campaign, visit: futureofpersonalhealth.com.

Featured in this special section along side of Alzheimer’s Speaks you will hear from some of the great leaders fighting dementia such as:

Maria Shriver with The Women’s Alzheimer’s Movement,

George & Trish Vradenburg from USAgainstAlzheimers, 

Dr. Eliezer Masliah, M.D, and Director of the National Institute on Aging Division of Neuroscience and Paula Hunter a caregiver for both parents who had Alzheimer’s and she is committed to being involved with clinical trials,

The Alzheimer’s Steadfast Study,

ClinicalTrails.Gov,

Namzaric,

The Alzheimer’s Foundation of America,

Lou-Ellen Barkan President and CEO of CaringKind,

The Alzheimer’s Association and

The Triad Research Study.

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Lori La Bey of Alzheimer’s Speaks.

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New Initiatives Making Great Head Way In Dementia

New Initiatives Making Great Head Way

In Dementia

Listen in at 2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time.

Click Below to Listen to the Achive

042616 ASR UsAgainstAlz

We are doing a two hour special Tuesday, April 26th to highlight the expansive work of UsAgainstAlzheimer’s.  The first hour we will talk with Founders George and Trish Vradenburg.  The second hour we will focus on several of their subgroups to find out what they are up to as well.

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USAAGeorge Vradenburg

George Vradenburg is Chairman of UsAgainstAlzheimer’s, which he co-founded in October 2010. George was named by U.S. Health and Human Services Secretary Kathleen Sebelius to serve on the Advisory Council on Research, Care, and Services established by the National Alzheimer’s Project Act and has testified before Congress about the global Alzheimer’s pandemic. He is a member of the World Dementia Council. George and USAgainstAlzheimer’s co-convene both the Leaders Engaged on Alzheimer’s Disease (LEAD) Coalition and the Global CEO Initiative on Alzheimer’s Disease. He and his wife, Trish, have long been dedicated members of Washington’s civic and philanthropic community. George is Chairman of the Board of The Phillips Collection, Trustee of the University of the District of Columbia and a member of the Council on Foreign Relations and The Economic Club of Washington. He has served in senior executive and legal positions at CBS, FOX and AOL/Time Warner. George and Trish published Tikkun Magazine for 10 years (Editor-in-Chief Rabbi Michael Lerner is Trish’s brother).

USAATrish Vradenburg

Trish Vradenburg is Vice-Chair of UsAgainstAlzheimer’s, which she co-founded in October 2010. Trish began her career in Washington, D.C. as a speechwriter in the U.S. Senate. She has written for various television shows, including Designing Women, Family Ties, and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages. As a journalist, she has written extensively for the New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play, was produced at The Kennedy Center in Washington, D.C. and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Portuguese in Brazil. She serves on the Council of Theater J, and on the boards of DC Vote and the Vradenburg Foundation. She presently writes three blogs. 

USAA JAson Resendez

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Jason Resendez directs the LatinosAgainstAlzheimer’s Network & Coalition, the nation’s first national initiative to activate Latino health, policy, and community stakeholders in the fight against Alzheimer’s and dementia. Previously, Jason served as senior manager of strategic partnerships at the National Council of La Raza (NCLR), the nation’s largest Latino advocacy organization.

USAA Drew Holzapfel

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Drew Holzapfel serves as the Executive Director of The Global CEO Initiative on Alzheimer’s Disease, a coalition of private sector leaders from pharma, biotech, finance and healthcare delivery.  Prior to joining the initiative, Drew was at Pfizer working on the company’s Alzheimer’s pipeline strategy and in commercial development for late stage compounds.

USAA Jill LesserWA2_Logo_Stacked_Tagline_2015

Jill Lesser  is President of WomenAgainstAlzheimer’s.  Motivated by her own personal experiences as caregiver to her mother with Alzheimer’s, she brings her passion and dedication to the cause. She joined the Board of UsAgainstAlzheimer’s, a nonprofit organization dedicated to stopping this disease.  Now, as President of the women’s network, her focus is to amplify the powerful voice of women – a group that is largely affected as both the patient and caregiver. Her organization gives women a platform to speak up, advocate for research funding and promote research challenges to find a cure.

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Virginia Biggar directs the Patient-Caregiver and Faith Initiatives at UsAgainstAlzheimer’s. Ginny brings 20 years of media and communications experience as a writer, reporter and filmmaker to the UsAgainstAlzheimer’s campaign. Ginny was a reporter for National Public Radio in Los Angeles and Washington D.C. prior to joining UsAgainstAlzheimer’s.

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Wicker Introduces Bill to Help Combat Alzheimer’s Disease

Wicker Introduces Bill to Help Combat Alzheimer’s Disease

Legislation Would Award Prizes for Breakthroughs in Research, Detection, and Cures

WASHINGTON – U.S. Senator Roger Wicker, R-Miss., today unveiled his legislation to create prize-based incentives to encourage more public-private collaboration in the fight against Alzheimer’s disease and other causes of dementia. The “Ensuring Useful Research Expenditures is Key for Alzheimer’s (EUREKA) Act” would not replace other funding and research initiatives for Alzheimer’s but add another route for breakthroughs. The bipartisan bill is cosponsored by Sens. Shelley Moore Capito, R-W.Va., Angus King, I-Maine, and Brian Schatz, D-Hawaii.

“America has always been the home of groundbreaking innovation,” Wicker said. “We compete to create, build, and make a difference in people’s lives. The ‘EUREKA Act’ seeks to channel this pioneering spirit through competition to help us better understand, detect, and ultimately cure Alzheimer’s disease. Given today’s budget constraints, it is important to find a way to supplement existing funds to further this critical research.”

The National Institute of Health (NIH) has set a goal of curing Alzheimer’s by 2025. Today, Alzheimer’s is the most expensive disease in America and has a 100 percent fatality rate. According to a report released earlier this year, caring for people with Alzheimer’s disease and other dementias is estimated to cost the United States $226 billion in 2015, with one in five Medicare dollars spent on an Alzheimer’s victim. Unless a cure is found, treatment costs are expected to grow to an estimated $1.1 trillion by 2050.  In Mississippi, 12 percent of senior citizens have Alzheimer’s. The number of victims is expected to rise 27.5 percent by 2025, increasing from 51,000 to 65,000.

The EUREKA Act is an important step in the right direction. It will spark smart public-private partnerships and leverage America’s best minds toward ending this cruel disease once and for all.

We can make sure it passes and make real progress toward a cure – but only if you speak out today.

Click here to add your name and tell the Senate to pass the EUREKA Act and help us find a cure faster!

Wicker’s legislation is supported by the XPRIZE Foundation, Alzheimer’s Foundation of America, UsAgainstAlzheimer’s, Alzheimer’s Association, Eli Lilly and Company, BrightFocus Foundation, and the MIND Center at the University of Mississippi Medical Center.

“This legislation, which will reward researchers who meet certain milestones in Alzheimer’s disease drug development with cash prizes, will help spur innovation and accelerate discovery of a cure or disease modifying treatment,” said Charles J. Fuschillo, Jr., President and CEO of the Alzheimer’s Foundation of America. “We, as a nation, still must work to make Alzheimer’s disease research a national priority and make it’s funding on par with other major disease states.”

“We applaud Senator Wicker for advancing an innovative approach to preventing and treating Alzheimer’s disease by 2025,” said George Vradenburg, Founder and Chairman of UsAgainstAlzheimer’s. “The EUREKA Act would spark smart public-private partnerships to leverage America’s best minds with the great work at NIH in a fiscally responsible manner. We look forward to working with Senator Wicker to advance the EUREKA Act into law.”

“An advance in Alzheimer’s research has the potential both to save millions of lives and billions of dollars for the nation’s public health programs,” said Robert Egge, Executive Vice President of Alzheimer’s Association. “With the cooperation of the medical and research communities, we are at a tipping point. We have the ideas, the technology and the will, but we need a focused commitment from the federal government, including robust support for Alzheimer’s research at the National Institutes of Health.”

“This is a time of great and deserved hope in dementia as Congress and the National Institutes of Health have begun to address chronic underfunding of research,” said Ian Kremer, Executive Director of Leaders Engaged on Alzheimer’s Disease. “The Act’s focus on pay for success highlights that we need not only more research but better research, research that changes the lives of people living with dementia today and that reduces or eliminates the risk of people having to live with dementia in the future.”

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“Senator Wicker has been a champion for Alzheimer’s research and related public health policy,” said Patty Dunn, Executive Director of the Alzheimer’s Association Mississippi Chapter. “We applaud his commitment to support a robust National Alzheimer’s Plan by cosponsoring the successful Alzheimer’s Accountability Act and encouraging increased research funding for the National Institutes of Health. Our advocates work closely with his office and appreciate Senator Wicker’s introduction of the innovative EUREKA Act and its goal of advancing research breakthroughs for Alzheimer’s disease.”

The EUREKA Act would authorize the Director of the NIH to work with other federal agencies to establish prize challenges informed by the research milestones contained in the National Plan to Address Alzheimer’s Disease. Challenges could focus in a number of areas including:

Identification and validation of Alzheimer’s biomarkers;
Development of non-invasive and cost-effective early detection and diagnostic tools;
Repurposing of existing drugs to address Alzheimer’s disease; and
Development of new tools and approaches to care for persons with Alzheimer’s disease.

An advisory council that would include experts in organizing and managing such challenges as well as patient advocates and industry representatives will be constituted to determine the competitions, while a separate judging panel will evaluate submissions and make recommendations for awards to the Director of NIH.

Prize challenges enable government sponsors to pay only when a prize team achieves specified goals or milestones. Although funds will be authorized and reserved for awards, prizes will only be granted when teams achieve clearly defined objectives, making the EUREKA Act a cost-effective tool to support the pursuit of the 2025 goal. Additionally, EUREKA would permit the receipt of donations from the private sector and from individuals to fund the competition and build the award fund.

We can make sure it passes and make real progress toward a cure – but only if you speak out today.

Click here to add your name and tell the Senate to pass the EUREKA Act and help us find a cure faster!

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How We Can Stop The Dementia?

Plus New Caregiver Video on Alzheimer’s

Today we had the privelege to talk with George Vradenburg, President of the Vradenburg Foundation who has had an up close and personal look at Alzheimer’s disease.  He has taken his personal experience and his business skills to form US Against Alzheimer’s, an organization set out to change our Dementia Care Culture as we know it.  George talked about the biggest challenges we are facing are:

  • Removing the stigmas associated with dementia and building a collaborative movement for change
  • The lack of fiscal resources for  research
  • The sluggish approval for new drugs and the high cost of clinical trials

We learned how this disease is effecting society and what we can all do to make a difference.  Collaboration is king.  Listen in and learn how YOU CAN JOIN FORCES!

Join the conversation.  Learn how this disease is effecting society.  Learn how YOU CAN MAKE A DIFFERENCE!

To Contact or Get Involved with Us Against Alzheimer’s:

Website: www.usagainstalzheimers.org

E-mail for questions about how to get involved: takeaction@usagainstalzheimers.org

Facebook: www.facebook.com/usagainstalz

Twitter: @usagainstalz

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The second half of the show featured a new caregiver video, “Alzheimer’s Knows No Borders” created to  raise awareness for dementia and Alzheimer’s disease. Bakhus Saba, a leading Alzheimer’s Disease care advocate, song writer and video producer along with Andre Deplonty of Deplonty Productions made this video featuring caregivers from around the world.

Cynthia Gilley with “The Alzheimer’s Caregiver” also joined the conversation as she and her dad were in the video.  You can also find them on Facebook, just search for “The Alzheimer’s Caregiver.”

Check Out the Video Here

Bakhus Saba can be reached on Facebook.  He is located in Canada.

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Bakhus Saba, son and songwriter

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Here is an important note

from our friends

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Sec. Sebelius and HHS are considering recommendations to strengthen the National Plan to Address Alzheimer’s Disease right now.

Ensure that the updated plan is aggressive enough to stop this disease.

Send a letter to HHS today to urge them to strengthen the plan.

After more than a year of discussion and debate, deep across-the-board cuts to government programs – including invaluable Alzheimer’s biomedical research, public health, and caregiver support initiatives – have gone into effect. It’s time to redouble our efforts.

These cuts come right as the Department of Health and Human Services (HHS) is working to update the National Plan toAddress Alzheimer’s Disease, which set the landmark national goal of preventing and treating Alzheimer’s disease by 2025. But we won’t achieve that goal unless public officials commit to a detailed road map and sufficient funding.

We have a brief window of opportunity right now to make our voices heard loud and clear before HHS releases an updated plan in the coming weeks.

 

Tell HHS to stand with the millions of families affected by Alzheimer’s and strengthen the National Plan to Address Alzheimer’s Disease.

The consequences of the across-the-board cuts are real and significant. Worthy research projects could go unfunded. That’s why we must come together to ensure that the national plan aggressively moves us closer to stopping this disease – and that means increasing funding, supporting caregivers, and setting milestones to achieve the 2025 goal.

Committed activists like you helped shape the first iteration of this groundbreaking plan. But the next version must be stronger – laying out the milestones we need to meet the 2025 goal. Otherwise, we won’t know who to hold accountable for achieving our goal. And we can’t let that happen.

Tell HHS to strengthen the National Plan to Address Alzheimer’s Disease.

The Advisory Council on Alzheimer’s Research, Care, and Services – on which I proudly serve – met in January to make recommendations to HHS on how to improve the national plan. We emphasized the urgent need for greater federal research funding, stronger and expanded support for families and caregivers, and a real road map with milestones to advance us towards the ultimate goal: the prevention and effective treatment of Alzheimer’s disease by 2025.

These recommendations are so important to the effectiveness of the plan that the Council unanimously approved them. Now your participation is critical. HHS can’t ignore thousands and thousands of Americans demanding accountability and clarity in the plan to end this national health crisis.

Tell Sec. Sebelius and HHS to move boldly and quickly towards ending the heartache and pain caused by Alzheimer’s – strengthen the national plan today.

Alzheimer’s is a deadly and unforgiving disease that affects 5.4 million Americans and costs hundreds of billions of dollars to our country each year. One in seven American workers is, or has been, a caregiver for a loved one with Alzheimer’s or dementia. A crisis of this magnitude merits an equally serious response.

With your support, we’ll get the plan we need to make it happen. We can beat Alzheimer’s.

Sincerely,

George Vradenburg
Chairman and Co-Founder
USAgainstAlzheimer’s

USAgainstAlzheimer’s is a community of enraged and engaged individuals who have been touched by Alzheimer’s disease and are committed to the bold and attainable goal of ending Alzheimer’s by 2020.

We are caregivers, advocates, family members, researchers, and more, united by our frustration at a broken status quo and dedicated to mobilizing individuals to raise awareness of the human toll and fiscal crisis and to demand transformative policies to stop the disease.

Like us on Facebook | Follow us on Twitter
Learn more at USAgainstAlzheimers.org

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Founder’s of US Against Alzheimer’s

Featured on Fox News

Click Here

and watch this fantastic video on the power couple  George and Trish Vradenburg

who are  putting their money where their mouth is to make a difference in dementia!

JOIN THE FIGHT

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