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Posts Tagged ‘Frontotemporal dementia’

Myrna Norman Shares Lessons She Has Learned Since Being Diagnosed with FTD

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Tuesday – Dec 22nd, 2020 -2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 23rd at 5am in Australia AET

Contact Myrna Norman

 Email   

Phone: 604-477-9628

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Due to the great response we are getting to Dementia Map, we are making it easier for people to learn more about all the features of the site. We have set up group sessions for individuals and organizations to attend and learn more about how to maximize your exposure through Dementia Map.

Learn how and why this directory is critical to those living with dementia, their family & friends, as well as professionals in the industry.

Register for a Live Demo Tour of Dementia Map on Zoom!

Today Lori La Bey, founder of Dementia Chats and Alzheimer’s Speaks facilitates a conversation with the true experts, those living with a diagnosis of dementia. Lori has always understood the importance of listening to those living with an illness and she wants to share their voices with you.

For a Complete List of Dementia Chats Videos – Click Here

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

2 FREE SERVICE OFFERS BELOW

We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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The Purple Angel Project & NAPA

The Purple Angel Project & NAPA

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The New Global Symbol for Dementia

Finally a symbol for dementia that can be recognized around the world, with no language barriers!

We need as many people as possible to send a letter of support to NAPA (National Alzheimer’s Project Act) asking them to get behind and support the Purple Angel symbol which is the new global symbol for dementia.  No longer is it acceptable for countries, organizations or individuals to be divided on this issue.  The disease touches far too many people, both those diagnosed as well as their family, friends and co-workers.  It is in the worlds best interest to join forces and use one symbol to describe and help raise awareness for the various types of dementia:  Alzheimer’s disease, Lewy Body Dementia, Frontotemporal Dementia, Vascular Dementia and all the others.

SEND NAPA AN EMAIL SUPPORTING THE PURPLE ANGEL

napa@hhs.gov

Note in the subject line “PLEASE SUPPORT THE PURPLE ANGEL PROJECT”

If you are not familiar with the Global Purple Angel her is a bit of information about why it was designed and who started this movement. The goal of the symbol is very simple:

  • To raise awareness and education of all types of dementias.
  • To show support for those dealing with all types of dementias; both those diagnosed as well as those that care for them.
  • To remove the fear, isolation and stigmas associated with the disease.
  • To become a global symbol for dementia that has no language barriers.
  • To have the “Global Purple Angel” become as well known and accepted as the “Pink Ribbon” for breast cancer, allowing people to live with dignity.
  • To provide an economical way to work in collaboration.

This purple angel symbol can be used by anyone who is raising awareness of dementia anywhere in the world. The symbol has been developed by people with dementia and carers, and is not connected to any established organization.

The purple angel symbolizes a guardian over those living with dementia, as well as their families and friends, but also as a helper to all those working so hard to raise awareness of dementia around the world.

Jane Moore, a carer from Camelford, and Norrms McNamara, who has dementia and was a driving force behind the creation of the first dementia friendly community in the UK, produced the original design. Lynette Richards and Jeff Talbot produced the global version. They own the designs, but have given permission for the symbol to be used freely by anyone who is raising awareness of dementia, as long as they get feedback about how it is used.

For More Information On The Purple Angel Project And How You Can Get Involved, Please Visit Our Website Below For More Details.

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Hi Everyone,

Lori La Bey Host of
Alzheimer’s Speaks Radio

I don’t often write to ask for your help, but this is one of those times I must reach out to you.  One of the biggest advocates for dementia, Norrms McNamara has been BANNED FROM FACEBOOK.

 One man can make a difference. 

Norrms has proven that and you can too!

Norrms McNamara,  knows of which he speaks. 

He lives with the disease and has honored us all by allowing us an inside peak as to what life is like with dementia.  Norrms has helped so many people world wide with his beautiful poetry and prose, but even more so for his unwavering commitment to shift our dementia care culture world wide.

Norrms was the voice who shared with me the concept of the Memory Cafe which I brought over to the US and now they are popping up all over, as the need is so great for this new type of social support for people living with memory loss.

Norrms started Dementia Awareness Day last year and it has grow and gotten the support of individuals and communities world wide.  Here is the link for more information on Dementia Awareness Day.

This is a man who is working on dementia friendly communities and business models over in the UK.  His insights are many, his passion is endless and his purpose is powerful.

Please watch the video and then sign the petition for Norrms voice to be heard on facebook.  Facebook allows Norrms to make connections to people, organizations and communities in need; which would not be possible through other means.  Is that not one of the largest benefits to Facebook?  United people around the world…I sure  think so!  Norrms isn’t selling anything but hope and new ways to live with a disease that torments so many.  Please let his gift to the world continue.

One man can make a difference. 

Norrms has proven that and you can too!

Here is the Link to the Petition

Thank You for Your Help!

Lori La Bey

 

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