Feeds:
Posts
Comments

Posts Tagged ‘founder of Memory People’

I’m tired

By Rick Phelps, Founder of Memory People

I’m tired. I say that alot anymore. I tell Phyllis June all the time. Leeanne, anyone who listens.

But sometimes its not a tired as you would expect. I like to think I am in the early stages of this disease. Somedays I know better, but I still like to think that I am.

But I am tired. I imagine other patients like me are also. What I am tired of is not being able to remember.

I can’t remember a day when I could remember things. It puts such a mental and physical strain on a person. I think my brain is working way to much.

Having to try to remember everything. And not being able to. It’s constant. I know it will get worse.

My greatest fear is and always will be for the ones who cannot communicate this. The ones this disease has robbed them of being able to even say they have no idea what is going on.

I wake up in the middle of the night in a panic. Not knowing where I am, or what is going on. I have these horrible nightmares. As many patients do.

In the mornings as soon as my eyes open this disease is there. Course it would be. It’s ones brain. Everything that goes on is controlled by your brain.

Just not being able to remember is only a small part of it. But the day in and day out of not remembering is getting the best of me. Mentally.

Go figure. The one thing this disease does, robs you of your memories and thoughts, is the very thing that I and others are struggling with daily.

Then knowing that today is or very well could be the best it is ever going to be. I am posting this not for any sort of sympathy, I just want to explain what I go through, and what I am sure your loved one is, even if they can no longer communicate it.

I’m tired. I suppose its no wonder. This disease drains you mentally and physically. I often think I cannot put one foot in front of the other. But know I must.

Remember this, your loved one is effected in many ways other than memory loss. The brain controls everything we do, not just our memory.

I would love just once to say “hey, I remember that.” or to be able to understand half the things people tell me.

And to be able to go from room to room in your own house and know why your in the bedroom, or in the laundry room. It’s the things we take for granted that this disease takes.

I cannot imagine how a caregiver/family member sits and watches their loved one fade away. This has to be the worst feeling, the most horrible thing to watch, and not able to do one thing about.

You, the caregiver have to be tired as well…

Read Full Post »

Alzheimer’s Speaks Radio on

Elder Abuse & “Faded Flowers” a Motion Picture on Alzheimer’s Disease

William Lightfoot
Elder Abuse Consultant

Today we had a wonderful show with Bill Lightfoot, an Elder Abuse Consultant.  We discussed the different types and variables of abuse along with what you should do if you suspect abuse and who you should report such to.

Tony D’Alessio Executive Producer
of the Motion Picture
Faded Flowers

The second half of the show we were honored to have Anthony D’ Alessio, of  Hungry Coyote Entertainment  and the Executive Producer and writer of the motion picture “Faded Flowers.”  A film about early onset Alzheimer’s disease.  Tony is a great advocate for raising awareness and funds  for services for those dealing with dementia, as well as securing a cure for the disease.

Rick Phelps Our
Expert Living with
Dementia

Rick Phelps is our shows own “Expert Living with Dementia,” who also joined our chat and added some great insights to both conversations.  I highly encourage everyone not only to take the time to listen to this episode,  but to help support both Elder Abuse and the Motion Picture “Faded Flowers.”

You too can help raise awareness just by passing this show along to your family, friends, co-workers and advocates. If you have a twitter account we would love for you to tweet to your followers as well.

It always amazes me what we can do when we work together!

To listen to the radio show click on the

white triangle in the black circle in the graphic below.

Contact Information is Below for Both of Our Guests

Lightfoot Consulting Associates
Legislative & Governmental Affairs Specialist
Elder Abuse, Neglect & Exploitation
Domestic & Family Violence
Richmond, Virginia
804-986-4631
lightfootwh@comcast.net
You can connect, or better yet follow Bill Lightfoot on Facebook, Linkedin & Twitter

Here is Information on Faded Flowers

Below is a Public Service Announcement

Compliments of Faded Flowers to Raise Awareness for Alzheimer’s

Faded Flowers Website

http://fadedflowersfeature.com/

Follow the production on twitter

@fadedflowersmov

utilize the twitter hashtag #fadedflowers to share any Early Onset Alzheimer’s related info on twitter

For press inquiries, or to schedule an interview with writer/executive producer Anthony D’ Alessio,

Contact the film’s publicist, Tom Larkin at 480.256.8986 or by emailing fadedflowersmovie@gmail.com

Read Full Post »

%d bloggers like this: