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Posts Tagged ‘engagement’

Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

See Other Poems Here

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 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

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Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Dementia: Healing Moments Study Enhancing Lives

Alzheimer’s Speaks Talks with

Rev. Dr. Jade Angelica, Founder

of Healing Moments & the Research Team!

Watch the Video Interview Below

Listen to the Radio Interview Below

Join Lori La Bey, host of Alzheimer’s Speaks Radio for a very interesting conversation with three women on a mission to improve dementia care by supporting those that care for individuals living with a diagnosis.  Through improv, care partners learn to reframe and refocus how to care.  Listen in and learn and feel free to reach to them for more details on their clinical research and program.

Rev. Dr. Jade Angelica is the founder and director of Healing Moments for Alzheimer’s. She cared for her own mother who died from Alzheimer’s disease in 2011.  She designs and leads workshops, services, and trainings for Healing Moments. Jade wrote the book Where Two Worlds Touch: A Spiritual Journey Through Alzheimer’s Disease.

Kelsey Spalding Wilson is a doctoral candidate in Clinical Psychology at the University of Iowa. She is now completing a clinical neuropsychology internship at the St. Louis VA, working with Veteran’s with neurological disorders.

Edmarie Guzman-Velez moved to the US to complete her doctoral degree in Clinical Psychology at the University of Iowa.  She is now a postdoctoral fellow at the Massachusetts General Hospital and Harvard Medical School studying the preclinical stage of Alzheimer’s disease.

Contact Healing Moments:

Website:  http://www.healingmoments.org/

Emails:       jadeangelica@gmail.com

Kelsey-spalding@uiowa.edu

Eguzman-velez@mgh.harvard.edu

Jade’s Phone:     563-582-4724

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Creating Joy filled Visits with Julie Bigham

Alzheimer’s Speaks Radio

Creating Joy filled Visits with

Julie Bigham

Click Below

julie Bigham graphics 101618

Lori La Bey, host of Alzheimer’s Speaks Radio talks with Julie Bigham creator of Joy Filled Visits.  They discuss how Julie helps families engage those they love with dementia. Tune in and learn about a new tool and techniques to create remarkable moments.  Julie is also working on a companion book as she has had some many requests for more information.  You can visit her website to learn more.

Contact Julie Bigham at Joy Filled Visits, LLC

Email:  julsbigham@yahoo.com

Website: www.joyfilledvisits.com

Phone:  704-910-9279

Join Lori La Bey and Aegis Living

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Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

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Push Research Forward – Join the A-List

 What Matters Most – Cognitive Self Assessment

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alist fall issue snap 2018


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Technology Lab Helps Families Decide What Will Work For Their Situation

Alzheimer’s Speaks Radio Talks with

 Larry Carpenter of the Augustana Care Learning Lab

Listen Below

 Lori La Bey, host of Alzheimer’s Speaks Radio interviews Larry Carpenter of the Augustana Care Learning Lab for Eldercare Technologies.  They will discuss their mission and vision along with some of the latest technology they display for people to touch feel and test out, helping them decide what will help them in their situation today and in the future.

Contact the Learning Lab:

Website:     http://thelearninglab.org

Email:     kingallsmaloney@augustanacare.org

Phone:    612-843-6790  

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

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Great Ideas on How to Engage those with Dementia

Alzheimer’s Speaks Radio Talks with

Julie Bigham on How to Create Joy

Lori La Bey host of Alzheimer’s Speaks Radio is excited to have Julie Bigham join her Tuesday April 10th, 2018, to discuss how to help families engage those they love with dementia. Join the conversation by calling in or using the chat box to talk with us.

Contact Julie Bigham at Joy Filled Visits, LLC

Email:  julsbigham@yahoo.com

Website: www.joyfilledvisits.com

Phone:  704-910-9279

 

 

 

Looking for a Speaker?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Meet Lori La Bey in April

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Push Research Forward – Join the A-List

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Helping Family Create Joy Filled Moments

Helping Family Create Joy Filled Moments

Alzheimer’s Speaks Radio

112817 ARS Graphic for Jullie Bigham 2

Alzheimer’s Speaks Radio Host, Lori La Bey, is excited to have Julie Bigham join her Tuesday Feb 6th, to  discuss how to help families engage those they love with dementia. Join the conversation by calling in or using the chat box to talk with us.

Contact Julie Bigham at Joy Filled Visits, LLC

Email:  julsbigham@yahoo.com

Website: www.joyfilledvisits.com

Phone:  704-910-9279

Meet Lori La Bey In March at:

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The Impact of Humor and Laughter when Living with Dementia

The Impact of Humor and Laughter

when Living with Dementia

 Welcome To Dementia Chats Where Voices of Those Diagnosed with Dementia are Heard and Raised.

Today we discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012. – See more at: https://www.alzheimersspeaks.com/dementia-chats-webinar

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Truthful Loving Kindness
Brian LeBlanc
Harry Urban

Brought To You By and Facilitated By Lori La Bey, Founder of
www.AlzheimersSpeaks.com

Facilitated By
Eilon Caspi, Ph.D., Gerontologist and Dementia Behavior Specialist
http://dementiabehaviorconsulting.com
http://eiloncaspiabbr.tumblr.com

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

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Insights from Arthur’s

Here is One of Many Free Video Tips

Define What “Quality” Means to You

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

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Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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