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Posts Tagged ‘end of life’

Together in Dementia with Dr. Anne Kenny

Alzheimer’s Speaks Radio Host, Lori La Bey talks with Dr. Anne Kenny, a geriatrician and palliative care physician, author of Making Tough Decisions about End-of-Life Care in Dementia and Founder of Together in Dementia – an educational/informational blog/coaching/course platform with a mission to provide physician-informed approach to care from someone who has also traveled the dementia journey. 

Contact Dr. Anne Kenny

Website  

www.togetherindementia.com

Email

Facebook Business Page https://www.facebook.com/TogetherInDementia/

Twitter

https://twitter.com/AnneKennyMD

LinkedIn

https://www.linkedin.com/in/anne-kenny-b1809b19a/

Let Your ideas be heard around the world!

Email Lori La Bey, host of Alzheimer’s Speaks Radio if you would like to participate in the show or submit your thoughts and ideas for others to hear.

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All Radio Shows are Archived

The time has come for comfortable, informative conversations to hit the airwaves highlighting dementia care! We are thrilled to announce “Dementia Divas – Caregiving & The Arts.” Click the graphic above to check out the trailer featuring Teepa Snow, Dr. Macie Smith and Lori La Bey.

Dementia Divas coming soon on SaltBox TV, a free online streaming service.

Watch Additional Videos or Download a PDF to Easily Access Titles & Links

Learn About Becoming A Dementia Chats Experts

Contact Dementia Chats

Take A Peak Below At Our FREE Educational Resources Go To Our Website Now

Register for a Live Demo Tour of Dementia Map on Zoom!

Lori La Bey Can Help Your Organization For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

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Preparing Caregivers for End-of-Life Care

Tuesday Jan. 11th, 2022 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the 12th at 6am in Australia AEDT

Click Below to Listen to the Radio Show Below

Call in with Your Questions or Comments at (323) 870-4602

Our Host, Lori La Bey will be talking with Ben Darr, the Co-founder of Open Caregiving, a platform that helps caregivers learn about end-of-life care and find the best provider for their needs. Ben was born and raised in New York City and still lives in Brooklyn today.

Contact Ben Darr at Open Caregiving

Website      https://www.opencaregiving.com/

Email      hello@opencaregiving.com

Facebook      https://www.facebook.com/opencaregiving

LinkedIn      https://www.linkedin.com/company/opencaregiving

Be Our Next Guest. Email us at: Alzheimer’s Speaks Radio

Subscribe and Check Out All Our Shows All are Archived

Register for a Live Demo Tour of Dementia Map on Zoom!

ARTS & DEMENTIA EDUCATIONAL PANEL:

Dementia and the Arts is an Educational Panel where all levels of artists and all types are welcome. Our goal is to elevate panelists work and ability to create beauty in many forms. They will share examples of various types of art they participate in, how, and why they started, what they have learned, and what they personally get out of making art. Panelists, do not have to attend all sessions.

Anyone living with dementia interested in participating, please reach out to Lori La Bey via email, or Private message her on FaceBook

As you will see all conversations are comfortable, casual, and fascinating. We have so much to learn from one another. All recordings can be found on Alzheimer’s Speaks YouTube Playlist.

Our Experts: Mark Timmons, Dr Lonni Schicker, Cate Booth Lau, Christine Thelker, Karen Creekmoore, Laurie Scherrer, and Truthful Loving Kindness. Conversation facilitated by Lori La Bey founder of Alzheimer’s Speaks.

Today our panelists living with dementia discuss how changes in the weather can impact their daily lives and more. We also discuss the effects of storms, the moon, solar flares, and eclipses. Hear how light effects their attitude and routines. Also hear their thoughts on the terms like Sundowning, Rundowning, and Brain Fatigue.

For a Complete List of Dementia Chats Videos – Click Here

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

Contact Lori La Bey with any questions you have:

Website: https://www.alzheimersspeaks.com/dementia-chats-webinar

Email: DementiaChats@AlzheimersSpeaks.com

Upcoming Public Events Lori La Bey Will Be At:

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial


Find A Memory Café In Your Area

2 FREE SERVICE OFFERS BELOW

We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Exploring & Understanding Compassionate Choices To Honoring Final Wishes

Thursday – Aug 19th, 2021 – 2pm EDT, 1pm CDT, 12pm MDT, 11am PDT & 7pm London BST, 8pm South Africa SAST, and on the 20th at 4am in Australia AEST

Click Below to Watch The Video Interview

Understanding Options & Final Wishes

Before You Need Them Is Critical!

Lori La Bey will be talking with Kim Callinan the President and CEO of Compassion & Choices and Matt Whitaker is National Director of Integrated Programs. Today we will learn about options and choices available when people are discussing their wishes when it comes to end of life.

Kim leads the organization’s strategy to empower people to take charge of the final chapter of their lives, help people plan for a possible dementia diagnosis, and advocate for closing disparities in end of life care.

Kim has led efforts around authorizing and implementing medical aid in dying in several states and jurisdictions, frequently testifies before state legislatures, and serves as a national thought leader on end-of-life care options.

Matt works to support medical education, end of life planning and client services nationwide. He has helped lead state-level campaigns to increase access to end of life choice, and has spoken at numerous conferences on bioethics and person-centered care across the country. He’s also testified as an expert resource on end of life choice to numerous state agencies and legislative committees.

Know Your Options

Show Kindness, Allow Dignity, Empower All By Giving Comfort For End Of Life Choices

Click Below To Listen To The Show

Contact Compassion and Choices

Website: https://compassionandchoices.org/

Tools:

Dementia Values & Priorities Tool – helps you develop a set of instructions outlining your care/treatment wishes at different stages of dementia

Dementia Decoder  – https://diagnosisdecoder.org/decoder/dementia – preparing for an appointment with the doctor when you or a loved one have dementia

Dementia V&P Tool Video

Twitter: @CompAndChoices

FaceBook: @CompassionandChoices  

YouTube: CompassionChoices 

Instagram:
CompassionAndChoices

All Shows are Archived

Be Our Next Guest. Email us at Alzheimer’s Speaks Radio

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

For a Complete List of Dementia Chats Videos – Click Here

Register for a Live Demo Tour of Dementia Map on Zoom!

Upcoming Public Events Lori La Bey Will Be At:

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial


Find A Memory Café In Your Area

2 FREE SERVICE OFFERS BELOW

We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Dementia, Grief & Haiku

Alzheimer’s Speaks Radio shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Thursday – Jan. 23rd, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 9th at 6am in Australia

Listen to the Radio Interview Below

Watch the Video Interview Below

On this episode our host Lori La Bey, talks with Mary Todd a wife whose husband Jim was diagnosed with dementia and who has found writing Haikus healing and Nancy Niero an ordained clergywoman specializing in the ancient practice of anointing in end-of-life care,  We will explore the emotions a care partner experiences as the disease progresses and how writing can help. 

All shows on Alzheimer’s Speaks Radio are accessible to listen to at anytime to once they go live – Enjoy.

Contact Mary Todd

Read Mary Todd’s PDF of Alzheimer’s Grief Haiku 

Email Mary: mtodd75@verizon.net

Mary Todd FaceBook: https://www.facebook.com/profile.php?id=100010144062136

Contact Nancy Niero:

Email:  nancy@anointjourney.com

Website:  https://www.anointjourney.com

Anoint Facebook Page   https://www.facebook.com/Anoint-1621888641462580/      

Phone:  (303) 601-6430

Here is our first tip on Tears, Fears and Joy. We would love to here your thoughts and comments on this tip.

Dementia Chats – Those Living with Dementia Talk Openly

Today Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation on Dementia Chats with the true experts on dementia, those living with a diagnosis. Our Topic is Holiday Stress Triggers for those Living with Dementia In this video you will hear those living with dementia speak articulately as they talk about holiday stress triggers, how they adapt to changing situations and environments as well as giving care partners ideas to make the holidays run smooth.

Book Your Next Event, Staff/Management or Family Training for 2020 & 2021 with Lori La Bey today! Consulting and Mentoring also Available.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

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Dementia – Finding Comfort

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

The Show Goes Live – Tuesday – Oct. 29th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 31st at 6am in Australia

Click Above To Go To The Show

Today Lori La Bey, host of Alzheimer’s Speaks Radio talks with Trish Laub’s whose care for her parents, one with Alzheimer’s disease shaped her into an expert through lived experiences. Trish learned more than she probably wanted to know on living with Alzheimer’s, dignified care, and end of life. She has a great book series you can check out below on her journey and experience caring for her parents. Join our live conversation Tuesday Oct 29th by utilizing the chat box or call in with your questions or comments at (323) 870-4602. We love to hear from our listeners!

Listen in. I know you will be glad you did!

Check Out Trish Laub’s Book Series

Contact Information on Trish Laub

Website:  www.trishlaub.com

Email: info@trishlaub.com

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

World Dementia Council Requests Your Help

Complete Survey By Oct. 30th, 2019

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

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The Silent Killer – Poem by Gwen Barnes

I dreamt about my mum today

a cruel disease took her away

it crept up upon her from behind

and slowly crushed synapses in her mind

I watched it happen

I couldn’t fight

I was powerless, as she was

in it’s might

I sometimes hear the latest news

the scientists have made

the next breakthrough

but this killer is still at large

it’s appetite is on turbocharge

its killing millions in it’s wake

it must be stopped

for humanity’s sake

So all I can do is hope and pray

that it doesn’t get me one day

there’s evidence to suggest it will

by then there may well be a pill

to cure this dreaded predator of the brain

to let old age have it’s longest reign

to enjoy this life, to be fit and well

until it’s time to bid my last farewell.

By Gwen Barnes

(in loving memory of my mum who passed away with Alzheimer’s in 2016)

Take The Survey Through 9/15/19

Dementia Airport Travel Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

Read Full Post »

End Of Life Planning Explore New and Existing Options

End Of Life Planning

On Alzheimer’s Speaks Radio

031516 ASR Funerla Options Dan Hanson

Tuesday at 2pm EST, 1pm CST, 12pm MST, 11am PST and 4pm London Time

Or Listen Later To Any Of The Archives

Today we will talk with Dan Hanson who has dedicated his life to helping people understand their options when it comes to end of life issues. As someone who has been in the funeral industry and who has owned a funeral home, he knows the best practices.  Dan loves helping people find the right choices for themselves and their families. His goal is to give unbiased information about new and existing options that many don’t know about, allowing them to plan the best celebration of life to meet their needs.   In doing so he has found it helps families and friends deal with their loss

Contact Information Dan Hanson                                          

(612) 229-6695                                  

dan@livingtreeplan.com                  invertedhammer@gmail.com 

www.livingtreeplan.com

For Additional Resources On Dementia & Caregiving

Resources_HQ_070114_purpleEmail Lori La Bey At Alzheimer’s Speaks To Get Instructions

To List Your Business, Tool or Product In Our FREE Resource Directory.

Dementia Chats FREE Educational Webinars

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To watch past webinars click above.

Join The Purple Angel Project

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Protect Your Loved Loved Ahead Of Time,

Should They Wander

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A Shell of a Body or a Shell of a Soul?

People refer to a person in mid to late stage Alzheimer’s as someone who lives in “A Shell of a Body.”  What does that really mean?  Most people use this phrase when communication no longer exists like it used to.

What I find interesting is people at the end stage of life may no longer communicate like they used to, but somehow they are viewed differently.  We have educated people one by one that a person who is in a coma or is receiving hospice or palliative care can “take in” what is going on around them; even though they may not be able to respond like they used to.  There is a level of respect still intact, one that seems to be missing in many cases when it comes to memory loss.

We have taught people to engage in conversation and touch a person who is in their end stage of life.  We have learned to look for different signs and signals from those we love and work with.  Society at large has been trained to dig deeper and not be so superficial and judgmental during these times. In fact, the medical profession encourages caregivers to continue to connect with a person in their end stage of life. We have been taught to appreciate relationships on a soul level, one with never dies and is engaged with all that is around them.

I challenge you to teach the world the same lesson about connecting with someone who has memory loss.  It is no longer acceptable to refer to any individual as living in “A Shell of a Body that can be cast away and forgotten.”   We must teach people the soul lives on and is engaged.

As a World we must recognizing there is a huge difference between the statement, “A Shell of a Body and a Shell of a Soul.”

Below is a short video clip where I tell a couple of stories to show the difference.

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The New Hybrid CAR Egiver™  

by Lori La Bey of Alzheimer’s Speaks and Senior Lifestyle Trends   

Being a Caregiver can be stressful yet very rewarding.  The problem I see with society today is the guilt from the judgment.  As Caregiver’s guilt can come from the person we are caring for.  Other times it comes from our family, friends, and onlookers. Judgment  is powerful and can make us feel powerless.  It can stop a Caregiver in his tracks from doing things differently or hiring support help. 

Many times Caregiver’s feel they are being watched and judged.  They are fearful of making changes knowing others may call them on those changes.  They don’t have the strength or desire to get into a confrontation with others.  There are too many other things to concentrate on.  They don’t have the energy or the time to waste, so they keep doing things the same way even when they are not working so well.   

As professionals in the industry we need to educate people on what I call the “New Hybrid CAR Egiver™.”  “CAR” stands for “Conscience Awakening of Relationships.”  “Egivers “has its own acronym but bottom lines stands for “Emotional Givers.”  There is so much more to Caregiving then our “To Do Lists”.  To Do Lists allow Caregiver’s to feel they are in control and doing something positive to help.  Yet true Caregiving is about embracing a relationship and providing emotional balance to the one we are caring for and our self, while assuring necessary tasks are completed.   

For myself, I came to this realization after my Father’s death in 2001.  For example, there is a huge difference between orchestrating lunch vs. going out to lunch with my Father as a daughter.  The focus of the interaction totally shifts.  People should not lose the base of their relationship to become a Caregiver.  The relationship should be enhanced.  

Lori La Bey of Alzheimer's Speaks and Senior Lifestyle Trends

 

For more information on the Hybrid CAR Egiver™ and other presentations you can contact Lori La Bey of Alzheimer’s Speaks and Senior Lifestyle Trends through her websites:  

www.AlzheimersSpeaks.com  

www.SeniorLifetyleTrends.com

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