Posts Tagged ‘education’

Dementia: Stigma, Education & Adapting to Life on Dementia Chats

Dementia Chats 

Where voices of those diagnosed are heard.

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia.

Today’s video covers the stigma attached to all types of dementia, the need for education and how people diagnosed and caring for someone with dementia adapt to their new normal.  I know you will find their insights powerful. 

You will hear from the following Experts Living with Dementia:

Harry Urban

Paulan Gordon

Laurie Scherrer

Bob Savage

Michael Ellenbogen

Mary Radnofsky

Facilitated by:

Lori La Bey, Founder of Alzheimer’s Speaks

Please feel free to share this video with others. 

That is why we make them!

The Dementia Chats Series started in July of 2012,  – Watch other videos at:


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Dementia, Empathy & Conflict Resolution


Alzheimer’s Speaks Radio Talks 

Teaching Empathy and Conflict Resolution

to People with Dementia”

Live Tuesday, March 13th, 2018 – 2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Tuesday, Radio Host Lori La Bey talks with Dr. Cameron Camp, Gerontologist and Psychologist, who has been on the show a few times in the past.  On this show, Cameron and his wife Linda, a retired Montessori teacher, will discuss the new book they have written,”Teaching Empathy and Conflict Resolution to People with Dementia.”

You can reach the Camp’s

Email<  Cameron@Cen4ARD.com      



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See what LeadingAge has to say about Lori La Bey.

 “Feedback from the conference planning committee and our leadership team was extremely positive. 

Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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The SHARE Program: Support, Health, Activities, Resources and Education

 Alzheimer’s Speaks Radio

The SHARE Program:

Support, Health, Activities, Resources and Education  

Thursday we will have Carol Whitlatch, Assistant Director of Research & Education and Senior Research Scientist at the Benjamin Rose Institute on Aging with us.  For over 25 years, Dr. Whitlatch studied a variety of topics related to family caregiving including: developing and evaluating intervention programs including the SHARE program (Support, Health, Activities, Resources and Education) which she will talk to us about today.  Join the conversation!

Contact Information For Carol Whitlatch:




Learn how you can host a screening and talk back of “His Neighbor Phil.”







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Children with Dementia

Children with Dementia

Say It Can’t Be True!

03211 ASR Graphic Dementia Mom FINAL

Today we are lucky to have a Mother who is willing to share her story of love, frustration and a passion to expand education, awareness and funding for childhood dementia.  You will be amazed at the terrifying journey Lorena Demian is living and how she has learned to look at life differently through their dementia experience.

Contact Information For

Alzheimer’s Association 24 hour line: 1-800-272-3900

Lorena Demian butterflymusicalnotes.7@gmail.com





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  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

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June 4, 2017
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Donate & help her raise funds for research.

Any and all donations are appreciated.


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Architect Of Change – Moving Humanity Forward


Maria Shriver’s

Architect Of Change –

Moving Humanity Forward


Additional Resources

Pets & Dementia On Dementia Chats

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Close to Home

By: Michelle Remold

It’s was fifteen years ago when my grandfather was first diagnosed with Alzheimer’s.  At the time he was diagnosed, it was both a frightening and challenging experience for our family.  My mom talks about the many sleepless nights wondering what was going to happen to my grandpa as the disease progressed and trying to find the resources to help our family cope with the disease and find the care he now needed.  There is also the memory of realizing that we could no longer care for my father at home.  I remember commenting to my parents that I was, as it seemed to me, the only student with only one grandparent at school for Grandparents Day when my grandpa could no longer attend and I didn’t understand why. However,  growing up I remember feeling like I was the only kid in school with a grandparent who had Alzheimer’s and looking back my mom stated that she remembers feeling like we were alone with having a loved one with the disease.

As the years went by, we all came to realize that we were not the only family coping with a loved one with Alzheimer’s.  In fact, as time went by we realized that Alzheimer’s was “closer to home” than you think.  Grandparents of my friends were diagnosed with Alzheimer’s.  My parent’s coworkers had family and friends that were affected by either Alzheimer’s or dementia. People that we saw every Sunday at church services were diagnosed with Alzheimer’s.  One of the most important resources that we discovered was a support network of other families with the disease.  It made it a lot easier to cope with what was going on with my grandpa when we were able to talk with others that were experiencing the same thing.  There was a support group at the local senior center that also helped us to learn more about Alzheimer’s and how it affects families. Through that organization, we discovered a wonderful group of volunteers that were willing to sit with my grandpa to give my grandma a break to get needed errands done.

It seems to me that one of the best things that came out of the diagnosis of Alzheimer’s is having other people to talk to about it. I still have people that have recently had a parent, relative, or friend diagnosed that will share their experiences with me and tell me how nice it is to talk to someone that understands. While everyone’s experience is different, it seems that discussing Alzheimer’s or dementia is much easier knowing that the person you are talking to has gone or is going through similar things. While a diagnosis of Alzheimer’s or dementia can feel lonely, it helps to remember there are others around to support you.

???????????????????????????????Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

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Read a Book

By: Michelle Remold

One of my favorite past times is reading. I enjoy reading anything by John Steinbeck and have two lists of books I am trying to read my way through. During my undergrad however, I discovered a new literary area that I enjoyed reading. This area was made up of personal accounts from those who had first hand experiences with Alzheimer’s and dementia.

I have read non-fiction books before, but they haven’t really been anything that sparked my interest. Within the last couple of years however, I have found that reading personal accounts of Alzheimer’s and dementia are a strong interest area for me. It provides a glimpse into someone else’s experience with the disease.

Reading personal accounts provides the opportunity to find comfort in similarities of the disease and the differences increases my compassion for those dealing with the disease while increasing  my knowledge. While I also enjoy reading books about Alzheimer’s and dementia based on research and theory, I find personal accounts to be more educational in their own right. Often they give insight to things about the diseases that aren’t discussed in everyday conversations. They address everything from tears shed to laughs shared to struggles and triumphs.

I think that personal accounts of Alzheimer’s and dementia make coping with the disease a little easier. They help reiterate that you are not alone in dealing with it and can provide the support and comfort that someone may need. While nothing can take the place of conversations, I believe that reading a book, on anything you may be trying to learn about, can be beneficial. In the case of caring for or working with individuals with Alzheimer’s and dementia, I think that knowledge is power and encourage everyone to read a book.

??????????????????????????????? Michelle graduated from the University of Northern Iowa with her Bachelor of Arts in Gerontology: Social Sciences and a minor in Family Studies. She is currently pursuing her Master’s degree in Aging Studies and Nursing Home Administration from Minnesota State University Mankato.

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