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Posts Tagged ‘Early Onset Alzheimer’s Disease’

Dementia Friendly Products and Collaborations

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Note Date and Time Change – Click Above to Go to The Show Page

This weeks show is scheduled for Monday May 4th at

1pm EST, 12pm CST, 11am MST, 10am PST and 6pm London time.

Join Alzheimer’s Speaks Radio today for a conversation about a new product coming to market called “Droplet.” Sohan Japa, Co-founder and leader of business development and operations will be with us, along with Joshua Newth, Co-founder and leading engineering and product development.  This is an exciting new product with a variety of uses for everybody.

You can learn more about Droplet by watching this 2 minute video

droplet_kickstarter_snapDroplet Website

droplet_logo_blkWe will also discuss the city of Roseville, MN an their kickoff event to become dementia aware and friendly.  If you are aware of other dementia friendly programs and services please call in and tell us about them.

Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.

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Go to AlzheimersSpeaks.com for more information on dementia and caregiving.

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Help For Struggling Caregivers

Help For Struggling Caregivers

Click_below042115 ASR Michelle ChaffeeAlzheimer’s Speaks Radio

Tuesday April 28th, 2015

11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

Alzheimer’s Speaks Radio was created to have honest discussions and real needs and resources for those dealing with dementia.  Please feel free to call into the show (714) 364-4757)  or use the chat box to communicate with us during the live show.  If you can’t  make the live show we would still love to hear your thoughts about the topic.

Today we have patient advocate, Michelle Chaffee from Minneapolis, MN with us.  It was through Michelle’s own family medical crisis along with her professional background that she created Alska.  Michelle understood the needs of caregivers across the spectrum of care and saw the gaps in the care system, which lead to the creation of a remarkable tool that supports and empowers individuals and optimizes delivery of care.  Come join us and learn how this tool might be able to assist you.

For more information on dementia and caregiving

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A Gift Given By One Of Our Heroes Living & Dying With Dementia – Dena Dotson

A Gift Given By One Of Our Heroes Living & Dying With Dementia 

Tuesday at 11am EST, 10am CST, 9am MST, 8am PST and 4pm London Time

040715 ASR Tribute To Dena Dotson Life

Alzheimer’s Speaks was sadden with the loss of one of it’s experts living with dementia.  On April 1st, 2015, Dena Dotson planned to leave this world in hopes of a better life.  Although everyone may not agree with her decision, it is important for us to honor her work and advocacy to improve the lives of others living with dementia. We will not judge her decision but accept the fact that none of us can really know what decision we would make if to walk in her shoes.

Today Dena no longer suffers from the symptoms of dementia which made her life unbearable. Today we  celebrate the gifts she gave us while here and grieve her loss together as a community.

Please note this is a replay so you won’t be able to call in today.

For more information on dementia and caregiving

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A Huge Step In The Right Direction – Festival Foods In Wisconsin Becomes Dementia Friendly

A Huge Step In The Right Direction –

Festival Foods In Wisconsin Becomes Dementia Friendly

DF_grocery_store_festival_foodsclick_aboveFor more information and Dementia and Caregiving

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Beautiful Song on Early Onset Dementia – You Are Here

A Beautiful Song on Early Onset Dementia –

“You Are Here”

Please Share with others.

For More Information on Dementia and Caregiving

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Your Vote Is Needed For The Film “Finding the Why” for Dementia – It’s up for a People’s Choice Telly Award!

Your Vote Is Needed

This brilliant short film, “Finding the Why” is up for a People’s Choice Telly Award and we need to get the most votes to win. Please CLICK HERE to vote.  Make sure to register and log in order for your vote to count.

Share the link with your networks!  finding_the_why_telly_awards

click_aboveRemember you need to log in and register for your vote to count!

Pass the link to this page on to your

friends, groups, circles, tribes and colleagues…

Thank you for your assistance. 

This is a beautiful short film having big impact around the world.

For more information on dementia and caregiving

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Feeling So Blessed

alz Lori mom photo logoToday I am feeling so blessed and humbled by a beautiful article written by Mara Botonis the author of “When Caring Takes Courage.”  Not only does it honor my work, but more importantly my mother’s thirty year journey with dementia.

Needless to say, without my mother being diagnosed with Alzheimer’s I would probably still be selling residential real estate. I wouldn’t be known as an advocate on steroids for Alzheimer’s disease and dementia. I wouldn’t have met such terrific new friends and colleagues all over the world.  I surely wouldn’t be a speaker or a writer. In fact, I actually can’t  imagine missing out on all of the life lessons I was taught through moms illness.  Yes, life would be much different, and much less then it is today for me.

Click Here To Read The Article

“Lori La Bey, the “Oprah” of Alzheimer’s”

Chronic illness and loss can and will be difficult there is no doubt about that, but it can also give us great life lessons, increase our drive and passion to live life fully, simply and respectfully. How are you going to chose to look at an live life?

aging_and_dementia_picFor more information on Dementia and Caregiving

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Join Dementia Chats Free Educational Webinar Tuesday March 24th 3pm EST

Join Dementia Chats Free Educational Webinar

Click_below__4_more_info_on_DCCopy of DC_HQ_062714_bannerpurpleTuesday March 24th

3pm EST, 2pm CST, 1pm MST 12pm PST

and 8pm London Time

Meet our Experts living with dementia

    Harry Urban                   Robert Bowles          Michael Ellenbogen

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     Steve Ponath               Paulan Gordon                  Dena Dotson

Driving Steve PonathDC paulan gordondena_dotson

Come with your questions, comments and insights to share.

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Join Alzheimer’s Speaks Radio

Tuesday, March 24th, 2015

ASR 032415 Mary Kay BaumClick_above_to_listen_buttonLive 11am EST, 10am CST, 9am MST, 8am PST and 4pm London time.

If you can’t join us live, you can always listen to the show later.  All shows are archived for your convenience.

Alzheimer’s Speaks loves hearing everyone’s opinions and insights to living with dementia.  Today we all have the great honor to speak with Rev, Mary Kay Baum who is not only diagnosed with dementia, but who is doing amazing work to improve lives.  In fact I personally got the chance to meet her and interview her the other week at the Wisconsin Assisted Living Association 1/2 intensive preconference on building Dementia Friendly Communities and Businesses.

I promise this will be a wonderful conversation and you will walk away some brilliant new insights on how to live with the disease gracefully.

Check out Mary Kay Baum’s website  or Call her at (608)935-5834

For more information on Dementia and Caregiving go Alzheimer’s Speaks

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Boy Scout to Eagle Scout – A Vision Of Improving Lives Of Those Living With Dementia

Boy Scout to Eagle Scout

A Vision Of Improving Lives Of Those Living With Dementia

lucas_by_fish_tank_2Like many children, Lucas Cronin was touched by the likes of dementia through his Nana.  His Grandmother on his father’s side had been diagnosed with Alzheimer’s disease for over a decade.  To honor his Nana, Lucas decided to take action.  He would lace his passion for salt water fish with a project to improve the lives of those living with dementia.

Lucas decided to construct a salt water fish tank in a memory care center. Although this sentence sounds simple and outcome honorable, there were many parts to make this project a reality.

First was to find supporting data that the salt water fish improves lives.  He found the supportive data he was looking for in the below articles. An article which highlighted a Purdue study that states Aquariums may pacify Alzheimer’s patients.  The Purdue University research paper showed colorful fish in an aquarium improved the health and well-being of memory care patients. People with dementia were less likely to become agitated, and they ate better when present in a room with an aquarium filled with colorful fish. In fact, according to the researcher, one lady who had not spoken for more than five years, asked, “Are there 5 or 6 fish in there?”  Lucas also found another article titled Aquarium therapy which  highlights potential health benefits.

His parents Paul and Sally Cronin, along with his brothers Mclain and Elijah all supported Lucas and his vision.  Next, was to run the idea by his troop 9559.  Assistant Scout Master (ASM) Robert Riegel also encouraged Lucas to move forward with his project.  He even volunteered to help on the project as did Co-Scouts Nathan Kaufman, Kyle Findlay, Nick Schroepfer.

So even with a team set up to help there was so much more that needed to be done.  Researching how to build a salt water tank, itemizing all the things needed to build and supply the tank, raising the funds to purchase the items and finding a home for the tank when finished.  Yes there was a lot of work still needing to be done.

The research was extensive.  In fact Lucas discussed his idea with a salt water expert, Owner of Local Fish Store and Maintenance Company “Wet World,” Michael Hunter.  Mr. Hunter too decided to get involved and served as an adviser/mentor for some more advanced aquarium techniques.

Raising funds and securing supplies did not happen overnight.  In fact, the project took persistence. Lucas had to raise over $6,000 in financial donations from local businesses, family and friends and in-kind product donations from manufacturers and suppliers in the reef keeping industry. This is one of the largest Eagle Projects in the history of Northern Star Council.

Below is List of Donors:

Wet World

Hydor USA

Bulk Reef Supply

Dr. Tim’s Aquatics

Legacy Wealth

Resultants for Business

Norflex inc.

Stebgo Metals

NextReef

Valley Creek Builders

You would  think finding a home for a free salt water tank would be a no brainer, especially with the data showing the health benefits, but logic doesn’t always follow the path of least resistance in the real world.  Getting a name of the right person to talk to and finding time in their busy schedule took longer than planned, only to find several communities did not have money in their budget to maintain the tank, $200/month.

Than at last, Lucas found the perfect partner for his project with the help of Mr. Jim Bradshaw.  He introduced Lucas to Boutwells Landing in Oak Park Heights in Minnesota.  There he spoke with Deb Campbell, the Director of Activities. Boutwells was thrilled with the project and was grateful to receive this wonderful gift which would enhance their resident’s lives.

Lucas still was in need of information on how to build the physical tank stand and canopy.  He had no prior experience in woodworking, so he needed an expert to help him.  At Boutwells he found Joe Carufel, a resident who was a woodworking expert.  Joe jumped on board to be a mentor to help guide him with his project.  Lucas created the designs using a 3-D sketching software and brought them to Joe to review.  Together they tweaked the designs a bit and built the stand.

lucas_videoClick above to learn more about the project

It was nineteen months from conception that Lucas was able to install 190 gallon salt water fish tank.   

lucas and friend with coral setting up tankfish_list_lucasKudos Lucas For Improving Lives!

For Information on Dementia And Caregiving

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