Posts Tagged ‘dignity’

In Honor of Susan Suchan

One voice that has been significantly missed this past year is Susan Suchan.  She lived her life fully even when diagnosed with dementia. We continue to celebrate her birthday and the love, compassion and dear friendship she brought into our lives.

Through Death,

Our Connection Remains

It was an honor to work with Susan on Dementia Chats.  Her insights were brilliant and her laughter contagious.

A few of us gathered to honor what would have been Susan’s 62nd birthday.  Please watch and feel free to share Susan’s life and the impact she had on others.  Remember each one of us have the opportunity to lift and inspire others by sharing our authentic self with one another, just as Susan did.

For poems by Mary Radnofsky read on the above video Click Below: https://www.alzheimersspeaks.com/images/Poetry/2_poems_mary_R_about_susan_suchan.pd

To see Truthful’s blog on Susan Click Below: https://truthfulkindness.com/memoriam/susan-suchan/

You never knew what would happen next….

A Bit More About Susan

Susan Suchan was the mother of two grown daughters and five beautiful grandchildren. She was a nurse for 23 years and was diagnosed with Early Onset Alzheimer’s Disease (EOAD) at the age of 48; an additional diagnosis of Frontotemporal dementia(FTD)/Primary Progressive Aphasia (PPA). Susan advocated for and about the “lived experience”, working to change perceptions, stigma and help bring to life, and the realness of her disease process. She has had the opportunity to speak Nationally and locally. Susan was awaiting the release of a documentary featuring her life, showing the effects on friends and family relationships, finances and end of life discussions. The film is called, “Susan’s Story” and is still in need of funds to complete.

Here Are Some of Our Dementia Chats Sessions Featuring Susan

Help Make “Susan’s Story” a Documentary, a Reality 

In honor of what would have been Susan Suchan’s 62nd birthday, her family and the producers of the documentary, invite you to help complete the film.  The documentary is in post-production and the final $125,000 is still needed to complete the film. 

Please contact Russ Kirkpatrick, the Producer/Director of the film, if you have questions or would like to make a contribution. Tax deductible contributions can be made to one of two 501(c)(3) organizations associated with the film. 

Contact information: russ@kkp.film

Link to the trailer of Susan’s Story: https://vimeo.com/302739507

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Smart Adaptive Clothing – Making Life Easier!

Alzheimer’s Speaks Radio

Smart Adaptive Clothing

Thursday October 25th, 2018

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Watch Now

Listen to the Radio below

102518 ASR Nancy Connor

Thursday, October 25th, Lori La Bey, host of Alzheimer’s Speaks Radio will interview Nancy Connor, founder of Smart Adaptive Clothing and Christie Mandia who is in charge of media relations for the company.  Nancy and Christine will explain and the needs behind the concept of Smart Adaptive Clothing and the benefits to all.  Learn how these clothes can restore a persons dignity and allows the ease of dressing oneself or having others assist them.  Please check out their line of clothing and use the discount code AlzSpks when purchasing.






Contact Smart Adaptive Clothing

Web:  smartadaptiveclothing.com

Telephone: (201) 519 – 0498

Facebook: Smart Adaptive Clothing

Instagram: Smart Adaptive Clothing

Twitter: Smart Adaptive Clothing


Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips

Push Research Forward – Join the A-List

 What Matters Most – Cognitive Self Assessment

Click Below For Results:

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Lori La Bey of Alzheimer’s Speaks Radio Interviews Anthony Cirillo

Join Alzheimer’s Speaks Radio Tuesday

081815 ARS Anthony cirilloWhen Lori La Bey Interviews Anthony Cirillo

Click Above Graphic For Alzheimer’s Speaks Radio To Listen.

We go live at:  2pm EST, 1pm CST 12pm MST, 11am PST and 7pm London Time!

Register once ahead of time and listening is a breeze!

Anthony’s approach to care will get you to laugh and empower you to keep going!

As a gifted singer-performer, Anthony Cirillo has been to Nashville to record and has sung around the country. He uses his performing gifts in his keynote speeches and press engagements.

Anthony is an experienced thought leader in the healthcare industry, one who knows how to navigate the industry. He understands the seniors and caregivers perspective and needs and he brightens the lives and promotes the quality of life and the dignity to all he touches.

Join the Cause to Shift Dementia Care – Click Below

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For Additional Resources Go To Alzheimer’s Speaks Below


Make a Difference – Join A Clinical Trial

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Critical Timing Contact Congress Today To Improve Dementia Tomorrow!

Critical Timing Contact Congress Today

To Improve Dementia Tomorrow!

If you sent a message last week asking your members of Congress to stop the sequester, thank you! Today, we are hoping you — members of the ActivistsAgainstAlzheimer’s Network — will call your members of Congress directly. As we discussed last week, the looming sequestration will be devastating to scientific research, including Alzheimer’s research. It’s critical that members of Congress hear from you and other constituents. We are hoping to flood their phone lines today.

Some of you are in a unique position: Your lawmakers are part of a small group of Congressional leaders who will play an over-sized role in the decision about the proposed cuts to biomedical research funding. However, ALL members of Congress need to hear from constituents.

A call should take just a few minutes. Here are the easy steps to follow:

1)  Find your state and lawmaker on the list below. If your state is not listed then find your members of Congress here: http://www.contactingthecongress.org/

· Alabama: Sen. Shelby

· California: Rep. Pelosi

· Connecticut: Rep. DeLauro

· Georgia: Rep. Kingston

· Illinois: Sen. Durbin

· Kentucky: Sen. McConnell, Rep. Rogers

· Maryland: Sen. Mikulski, Rep. Hoyer

· Nevada: Sen. Reid

· New York: Rep. Lowey

· Ohio: Speaker Boehner

· Texas: Sen. Cornyn

2) Call the Congressional switchboard at 1-202-224-3121 and ask to be connected to your member of Congress. (Or call directly if you use link above.)

3) When a staff person answers, ask to speak to the Health Legislative Assistant. (It may take a couple of minutes to connect to the right person.) Tell them you are a constituent, briefly explain how Alzheimer’s has impacted your life or others in your life, and tell them you are opposed to Congress allowing across-the-board spending cuts without regard to their impact on biomedical research.

4) Most calls will end there, but if you want to add more, share your personal experience with Alzheimer’s or use these key points:

·  Alzheimer’s and other dementias place an overwhelming burden on caregivers and on the nation’s health system, costing us $200 billion this year alone, $140 billion of which is borne by Medicare and Medicaid.

·   The overall costs will grow to $1 trillion annually in the future, so stopping Alzheimer’s now through innovative research will literally save trillions of dollars down the road.

·  Sequestration would reduce funding for the National Institutes of Health by more than $2 billion, even though the NIH provides the foundation for private sector medical innovation.

· Alzheimer’s disease slowly steals one’s intellect, ability to communicate, independence, dignity, and even control over basic bodily functions like eating ad personal hygiene.

5) If you can, please let me know that you’ve made the call so we can track how many people called.

6) Please share this email with family and friends and ask them to take a few minutes to call!



Help stop Alzheimer’s in the next decade.

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