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Posts Tagged ‘Dementia Action Alliance’

Re-Imagine Life with Dementia

Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

041817 ASR graphic 1pm DAA Karen Love Robert Bowles

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

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Dementia Action Alliance – Webinar – “Living Fully with Dementia”

DAA logo Medium“A nation joined will make the difference.”

You are invited you to join our Special Living Fully with Dementia – Personal Perspectives” Discussion on Wednesday, July 15th, 2015 at:

1:00 pm Eastern    12:00 pm Noon  Central     11:00 am Mountain     10:00 am Pacific Time

We are honored that Alexander “Sandy” Halperin, DDS; Truthful Loving Kindness; Robert Bowles Jr., R.Ph. and Harry Urban will share insights and inspiring messages from their uniquely personal journeys as advocates, mentors, bloggers, and speakers in the U.S. and globally.

We know their experiences will provide much food for thought for our efforts to advance “Living Fully with Dementia” across our country.

We will use an online ZOOM platform with expanded capacity that will allow us to see one another and talk to one another.

To join our meeting, please follow these directions:

Join from PC, Mac, iOS or Android:  https://www.zoom.us/j/950829550

Or join by phone:   (415) 762-9988      Meeting ID:  950 829 550

If you have not used Zoom before, go through the following steps about 5-7 minutes before the meeting, as you may need to download software.

1.    Go to www.zoom.us on your computer.

2.    Look at the strip along the top of their website and to the right side and you will see their small blue Join a Meeting click-through.

3.    Click on Join a Meeting (It may tell you to download software)

4.    Enter the meeting code   950829550

5. Or Join By Phone:   (415) 762-9988        Meeting ID:  950 829 550

Do not hesitate to contact Jackie at jpinkowitz@gmail.com or 732.212.9036 with any questions you may have.

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them. We are a volunteer coalition engaged in changing our nation’s understanding and attitude of dementia through serving as a trusted source for education, conversations, and advocacy.

For Additional Resources on Dementia and Caregiving

Click Below

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Join an Alzheimer’s disease clinical trial today.

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Join The Purple Angel Project

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Calling all People Diagnosed with Dementia and Their Caregivers

Calling All People Diagnosed With Dementia

And Their Caregivers

Take A Survey

A Few Minutes Of Your Time

Could Impact Those Dealing With Dementia For A Lifetime

Click Below For Details 

There is a separate survey for those with dementia and those caring for them.  Your response is critical to help Dementia Action Alliance serve you and meet your needs.  Thank you for your assistance in advance.

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For more information on dementia and caregiving

Click Below

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Join the Purple Angel Project

Click Below

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Dementia : A Nation Joined Will Make The Difference!

 “A nation joined will make the difference.”

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 Dear DAA Friends & Partners:

We received a grant from the Harvey Picker Center of Innovation & Applied Research in Long-Term Care to gather feedback from people living in the United States with dementia, as well as family and friend care partners, on their priorities and preferences for accessing and utilizing information resources.  This collective feedback will be used to determine how best to make resource materials about living well with dementia available for people across the country.

Please disseminate this Invitation throughout your Organization and Professional Networks.

The Survey needs to be completed no later than June 26, 2015.  

Please complete a short on-line survey regarding your priorities & preferences for information and resources about dementia care and services.                          ​

 CLICK ON THE SURVEY LINK THAT APPLIES TO YOU:

PERSON LIVING WITH DEMENTIA IN THE U.S.   

FAMILY OR FRIEND CARE PARTNER  IN THE U.S. 

All information will be kept confidential and only used to collectively inform the resources that would be most meaningful to you.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on http://daanow.org/survey/ .

Sincerest Appreciation for Sharing this Request with Your Colleagues and Networks,

Jackie Pinkowitz; Karen Love; Jill Harrison; Walter Coffey; Chris Laxton; Chris Perna

DAA Leadership Team

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them.  We are a volunteer coalition engaged in changing our nation’s understanding of and attitudes about dementia through serving as a trusted source for education, conversations, and advocacy.  It was founded and is led by five organizations with person-centeredness at the heart of their missions:  CCAL-Advancing Person-Centered Living; Planetree; The Eden Alternative; AMDA, the Society for Post-Acute & Long Term Care Medicine and LeadingAge Georgia.

Looking for A Way To Raise Awareness?

Click Below

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You could make a difference for your loved one with Alzheimer’s.

Click Below

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For More Information and Resources on

Dementia and Caregiving

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“Person-Centered Matters” is a beautiful and compelling 16-minute video

Dementia, Including Alzheimer’s

Has Become A National Challenge

In The U.S.!

Over 5 million Americans are currently living with dementia – or one in nine people age 65 and older – and the number will escalate at an alarming rate as the baby boom generation ages. It’s very likely you know someone in your extended family or community with this condition.

Dementia costs now exceed those for cancer or heart disease. Despite the high expenditures, dementia care in the U.S. is fragmented, the quality of paid care is uneven, and most services and supports are NOT following the gold standard of person-centered practices. Person-centeredness nurtures well-being by supporting one’s dignity, individuality, personal preferences, and choices.

Person-centered care is the gold standard and can help make life better for people living with dementia and for those who care about them.     “Person-Centered Matters” is a beautiful and compelling 16-minute video produced by the Dementia Action Alliance and filmed by a former National Geographic filmmaker. It portrays five people living with dementia and how person-centered care helps them live more fully.

YOU can help improve dementia care in the U.S.

Become a Champion of Change and make a difference!

 

WATCH The Video

SHARE The Video

CHAMPION Person-Centered Care

The Dementia Action Alliance consists of Champions of Change across the country — people who are living with dementia, their family and friend care partners, and other advocates, groups and communities who believe the time is NOW to improve dementia care in the U.S. and help people live more fully with dementia.

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“A Nation Joined Will Make a Difference”

The Dementia Action Alliance is a national partnership to coalesce and connect people, organizations, and communities to come together for collective impact to help people who have dementia and their care partners live well with dementia.  The Alliance is led by CCAL-Advancing Person-Centered Living, AMDA: The Society for Post-Acute and Long-Term Care Medicine, Broyles Foundation, CareGivers United, LeadingAge/Georgia, Planetree, and The Eden Alternative.

For Additional information on Dementia and Caregiving

Check Out Alzheimer’s Speaks Below

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Mission-driven Organizations Align to

Make Person-Centered Dementia Care the Norm

Three organizations with person-centered care at the core of their missions (CCAL – Advancing Person-Centered Living, Eden Alternative, and Planetree) today announced they have joined together as a leadership team to form the Dementia Action Alliance. The Dementia Action Alliance will coalesce and connect the voices of people living with dementia, their care partners and other advocates to inform key policy, research, and service provider stakeholders about the importance and benefits of making person-centered care the standard for dementia care in our country.

The United States is facing unprecedented growth in the number of people living with dementia – currently estimated at 5.4 million Americans and growing at an alarming rate as the baby boom generation ages. A recent article in the New England Journal of Medicine found that dementia costs now exceed those for cancer and heart disease. Despite the high expenditures, the quality of dementia care in general across the country is not up to par. Person-centered care, which is recognized as the gold standard by the Institute of Medicine, would improve quality as well as reduce costs.

“The Dementia Action Alliance heralds a timely Call to Action to cross the quality care chasm into the gold standard of person-centered practices both improving quality of care and reducing overall care expenses – important benefits for everyone,” said Karen Love, Founder of CCAL.

The leadership team has begun to engage grass root groups across the country that include and represent people living with dementia and their advocates to learn what THEY feel is most needed and important for dementia care practices, public policies, and research agendas. A one-day thought leaders’ Summit will be held in Washington, DC in Spring 2014 to share these perspectives and priorities and to discuss how to begin implementing them.

Michael Lepore, PhD, Director of Quality, Research and Evaluation for Planetree, notes: “By aligning research, policy, and practice efforts, and advancing implementation of person-centered care to support individuals living with and affected by dementia, the Dementia Action Alliance is supporting our collective human desire to realize compassion in action.”

“Our three organizations are deeply committed to creating person-centered environments and experiences. By gaining the support and involvement of national, state, regional, and local entities in this alliance, we can reach the ‘tipping point’ that makes person-centered care the only acceptable norm for our country”, Chris Perna, CEO of Eden Alternative said.

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