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Posts Tagged ‘Dementia Action Alliance’

DAA’s Conference – Practical Solutions For Living Well With Dementia

Tuesday – July 26th, 2022 – 1pm EST, 12pm CST, 11am MST, 10am PST & 7pm London GMT, 8pm South Africa SAST, and on the July 27th at 5am in Australia AEDT

Watch the Video Interview Below

Our Host, Lori La Bey will be talking with representatives of Dementia Action Alliance, known as DAA, about their upcoming conference being held September 19-21, 2022, at the Crowne Plaza Hotel in Union Station in Downtown Indianapolis, Indiana.

Laurie Scherrer was diagnosed with Early Onset Alzheimer’s & FTD at the age of 55 and was able to continue a professional career so she turned her focus towards helping others through their dementia journey. Laurie serves on the Dementia Action Alliance Board of Directors and Advisory Board.  She is a Dementia Mentor, Purple Angel and active in many support groups. She is frequently a cohost of Alzheimer’s Speaks Radio and a panel member for Dementia Chats which highlights voices of dementia and their amazing insights.   She is an international speaker and has been featured in many articles and documentaries including New York Times, AARP, PBC, Dementia 101, South Africa Sunday Times, and the Reading Eagle. 

John-Richard Pagan is living with Lewy Bodies Dementia.  He no longer fears his dementia diagnosis, in large part due to Dementia Action Alliance. Having attended the last conference, held in Atlanta, Georgia, John-Richard’s care partner Diana ended the conference with an unexpected closing as she expressed their growth in understanding, as well as in the desire to be true advocates at living better lives today with a dementia diagnosis.

Cyndy Luzinski is an advanced practice nurse and the founder and executive director of Dementia Together, a nonprofit organization in Northern Colorado which cultivates joy while building stronger connections for those living with dementia, their care partners, and the community.

Listen to the Podcast Below

To Contact Dementia Action Alliance

DAA Website

Conference Link

Laurie Scherrer at Dementia Daze

Cyndy Luzinski at Dementia Together

For Information on Alzheimer’s Speaks Radio, Playlists, & More Click Here

All Radio Shows are Archived

When Dementia Takes a Back Seat To Other Health Issues Plus Examples of Misperceptions, Hallucinations, Delusions and Misunderstandings On Dementia Chats™ Today our experts living with dementia give us great examples of situations where dementia can be ignored, or not acknowledged when other health issues pop up. They also give us great examples of the differences between hallucinations, delusions, misunderstandings and misperceptions.

Watch Additional Videos or Download a PDF to Easily Access Titles & Links

Learn About Becoming A Dementia Chats Experts

Contact Dementia Chats

Share & Pass This Great Conversation Below Onto Others

Take A Peak Below At Our FREE Educational Resources Go To Our Website Now

Register for a Live Demo Tour of Dementia Map on Zoom!

Lori La Bey Can Help Your Organization For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Upcoming Public Events Lori La Bey

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

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A Tribute to Our Friend and Advocate Paulan Gordon

The above video is in Memory of Paulan Gordon a good friend to many and a global advocate who lived with vascular dementia. Paulan was fearless and progressive in her mission to improve dementia care & support. She helped people understand what stigmas where attached to a diagnosis of dementia and routinely educated people how to recognize and reduce stigmas through inclusion and giving people hope that living well with dementia was possible.

This video was pulled together in collaboration of three organizations which Paulan was actively involved in: Dementia Action Alliance (DAA), Dementia Mentors, and Alzheimer’s Speaks. We thank all of the individuals that shared their love and respect for Paulan Gordon and her advocacy.

Donate to Honor Paulan Gordon’s Advocacy Work

1) Donate at www.daanow.org
2) Click on the Donate Tab
3) Select the amount & complete your information
4) In Comment Box, note “In Memory of Paulan Gordon”

The Paulan’s family will be notified of your donation.

Click on Paulan Gordon Legacy to read a beautiful Tribute to Paulan, which includes so many videos of her work.

Above is a Video Shared by Paulan Gordon’s Family

Contact Lori La Bey  with questions, branding needs or visit www.AlzheimersSpeaks.com

Be Our Next Guest. Email us at Alzheimer’s Speaks Radio

All Shows are Archived

ARTS & DEMENTIA EDUCATIONAL PANEL:

After receiving multiple requests to formally continue to highlight the artwork of those living with dementia, The Arts & Dementia Educational Panel will formally launch this November. All levels of artists and all types of art are welcome. Our goal is to elevate panelists work and ability to create beauty in many forms. They will share examples of various types of art they participate in, how, and why they started, what they have learned, and what they personally get out of making art. Panelists, do not have to attend all sessions.

Anyone living with dementia interested in participating, please reach out to Lori La Bey via email, or Private message her on FaceBook

Below is an Example of What the ARTS & DEMENTIA PANEL Will Explore & Share

As you will see from the sample video above, conversations are comfortable, casual, and fascinating. We have so much to learn from one another. All recordings will be prerecorded and published to Alzheimer’s Speaks YouTube channel with a specific playlist channel for easy access. Each episode will be pushed out on Alzheimer’s Speaks social media channels as well.

Anyone living with dementia interested in participating in the ARTS & DEMENTIA EDUCATIONAL PANEL please reach out to:

Lori La Bey via email, or on FaceBook

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

For a Complete List of Dementia Chats Videos – Click Here

Register for a Live Demo Tour of Dementia Map on Zoom!

Upcoming Public Events Lori La Bey Will Be At:

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Plymouth International Virtual Dementia Conference

Day 1: Wednesday 27 October | 13:00–16:30Day

2: Wednesday 3 November | 13:00–16:30Day

3: Wednesday 10 November | 13:00–16:30

More Information to Come

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial


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We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Re-Imagine Life with Dementia

Re-Imagine Life with Dementia

on Alzheimer’s Speaks Radio

041817 ASR graphic 1pm DAA Karen Love Robert Bowles

Karen Love is the Executive Director of the Dementia Action Alliance, a non-profit, charitable organization working to make dementia symptoms better understood and accommodated as a disability, improving support for individuals and families living with dementia, eradicating stigma and ensuring full inclusion in all matters concerning living with dementia.                               

Robert Bowles is a retired pharmacist and past President of the Georgia Pharmacy Association. In 2012, at the age of 64, he was diagnosed with Dementia with Lewy bodies. Both of Robert’s parents had dementia.

Contact Information for Dementia Action Alliance (DAA):

www.daanow.org,               info@daanow.org

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Dementia Action Alliance – Webinar – “Living Fully with Dementia”

DAA logo Medium“A nation joined will make the difference.”

You are invited you to join our Special Living Fully with Dementia – Personal Perspectives” Discussion on Wednesday, July 15th, 2015 at:

1:00 pm Eastern    12:00 pm Noon  Central     11:00 am Mountain     10:00 am Pacific Time

We are honored that Alexander “Sandy” Halperin, DDS; Truthful Loving Kindness; Robert Bowles Jr., R.Ph. and Harry Urban will share insights and inspiring messages from their uniquely personal journeys as advocates, mentors, bloggers, and speakers in the U.S. and globally.

We know their experiences will provide much food for thought for our efforts to advance “Living Fully with Dementia” across our country.

We will use an online ZOOM platform with expanded capacity that will allow us to see one another and talk to one another.

To join our meeting, please follow these directions:

Join from PC, Mac, iOS or Android:  https://www.zoom.us/j/950829550

Or join by phone:   (415) 762-9988      Meeting ID:  950 829 550

If you have not used Zoom before, go through the following steps about 5-7 minutes before the meeting, as you may need to download software.

1.    Go to www.zoom.us on your computer.

2.    Look at the strip along the top of their website and to the right side and you will see their small blue Join a Meeting click-through.

3.    Click on Join a Meeting (It may tell you to download software)

4.    Enter the meeting code   950829550

5. Or Join By Phone:   (415) 762-9988        Meeting ID:  950 829 550

Do not hesitate to contact Jackie at jpinkowitz@gmail.com or 732.212.9036 with any questions you may have.

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them. We are a volunteer coalition engaged in changing our nation’s understanding and attitude of dementia through serving as a trusted source for education, conversations, and advocacy.

For Additional Resources on Dementia and Caregiving

Click Below

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Join an Alzheimer’s disease clinical trial today.

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Join The Purple Angel Project

PA_join_the_cause_snap_w_urlTo Raise Awareness

 

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Calling all People Diagnosed with Dementia and Their Caregivers

Calling All People Diagnosed With Dementia

And Their Caregivers

Take A Survey

A Few Minutes Of Your Time

Could Impact Those Dealing With Dementia For A Lifetime

Click Below For Details 

There is a separate survey for those with dementia and those caring for them.  Your response is critical to help Dementia Action Alliance serve you and meet your needs.  Thank you for your assistance in advance.

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For more information on dementia and caregiving

Click Below

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Join the Purple Angel Project

Click Below

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Dementia : A Nation Joined Will Make The Difference!

 “A nation joined will make the difference.”

DAA off logo

 Dear DAA Friends & Partners:

We received a grant from the Harvey Picker Center of Innovation & Applied Research in Long-Term Care to gather feedback from people living in the United States with dementia, as well as family and friend care partners, on their priorities and preferences for accessing and utilizing information resources.  This collective feedback will be used to determine how best to make resource materials about living well with dementia available for people across the country.

Please disseminate this Invitation throughout your Organization and Professional Networks.

The Survey needs to be completed no later than June 26, 2015.  

Please complete a short on-line survey regarding your priorities & preferences for information and resources about dementia care and services.                          ​

 CLICK ON THE SURVEY LINK THAT APPLIES TO YOU:

PERSON LIVING WITH DEMENTIA IN THE U.S.   

FAMILY OR FRIEND CARE PARTNER  IN THE U.S. 

All information will be kept confidential and only used to collectively inform the resources that would be most meaningful to you.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on http://daanow.org/survey/ .

Sincerest Appreciation for Sharing this Request with Your Colleagues and Networks,

Jackie Pinkowitz; Karen Love; Jill Harrison; Walter Coffey; Chris Laxton; Chris Perna

DAA Leadership Team

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them.  We are a volunteer coalition engaged in changing our nation’s understanding of and attitudes about dementia through serving as a trusted source for education, conversations, and advocacy.  It was founded and is led by five organizations with person-centeredness at the heart of their missions:  CCAL-Advancing Person-Centered Living; Planetree; The Eden Alternative; AMDA, the Society for Post-Acute & Long Term Care Medicine and LeadingAge Georgia.

Looking for A Way To Raise Awareness?

Click Below

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You could make a difference for your loved one with Alzheimer’s.

Click Below

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For More Information and Resources on

Dementia and Caregiving

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“Person-Centered Matters” is a beautiful and compelling 16-minute video

Dementia, Including Alzheimer’s

Has Become A National Challenge

In The U.S.!

Over 5 million Americans are currently living with dementia – or one in nine people age 65 and older – and the number will escalate at an alarming rate as the baby boom generation ages. It’s very likely you know someone in your extended family or community with this condition.

Dementia costs now exceed those for cancer or heart disease. Despite the high expenditures, dementia care in the U.S. is fragmented, the quality of paid care is uneven, and most services and supports are NOT following the gold standard of person-centered practices. Person-centeredness nurtures well-being by supporting one’s dignity, individuality, personal preferences, and choices.

Person-centered care is the gold standard and can help make life better for people living with dementia and for those who care about them.     “Person-Centered Matters” is a beautiful and compelling 16-minute video produced by the Dementia Action Alliance and filmed by a former National Geographic filmmaker. It portrays five people living with dementia and how person-centered care helps them live more fully.

YOU can help improve dementia care in the U.S.

Become a Champion of Change and make a difference!

 

WATCH The Video

SHARE The Video

CHAMPION Person-Centered Care

The Dementia Action Alliance consists of Champions of Change across the country — people who are living with dementia, their family and friend care partners, and other advocates, groups and communities who believe the time is NOW to improve dementia care in the U.S. and help people live more fully with dementia.

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“A Nation Joined Will Make a Difference”

The Dementia Action Alliance is a national partnership to coalesce and connect people, organizations, and communities to come together for collective impact to help people who have dementia and their care partners live well with dementia.  The Alliance is led by CCAL-Advancing Person-Centered Living, AMDA: The Society for Post-Acute and Long-Term Care Medicine, Broyles Foundation, CareGivers United, LeadingAge/Georgia, Planetree, and The Eden Alternative.

For Additional information on Dementia and Caregiving

Check Out Alzheimer’s Speaks Below

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Mission-driven Organizations Align to

Make Person-Centered Dementia Care the Norm

Three organizations with person-centered care at the core of their missions (CCAL – Advancing Person-Centered Living, Eden Alternative, and Planetree) today announced they have joined together as a leadership team to form the Dementia Action Alliance. The Dementia Action Alliance will coalesce and connect the voices of people living with dementia, their care partners and other advocates to inform key policy, research, and service provider stakeholders about the importance and benefits of making person-centered care the standard for dementia care in our country.

The United States is facing unprecedented growth in the number of people living with dementia – currently estimated at 5.4 million Americans and growing at an alarming rate as the baby boom generation ages. A recent article in the New England Journal of Medicine found that dementia costs now exceed those for cancer and heart disease. Despite the high expenditures, the quality of dementia care in general across the country is not up to par. Person-centered care, which is recognized as the gold standard by the Institute of Medicine, would improve quality as well as reduce costs.

“The Dementia Action Alliance heralds a timely Call to Action to cross the quality care chasm into the gold standard of person-centered practices both improving quality of care and reducing overall care expenses – important benefits for everyone,” said Karen Love, Founder of CCAL.

The leadership team has begun to engage grass root groups across the country that include and represent people living with dementia and their advocates to learn what THEY feel is most needed and important for dementia care practices, public policies, and research agendas. A one-day thought leaders’ Summit will be held in Washington, DC in Spring 2014 to share these perspectives and priorities and to discuss how to begin implementing them.

Michael Lepore, PhD, Director of Quality, Research and Evaluation for Planetree, notes: “By aligning research, policy, and practice efforts, and advancing implementation of person-centered care to support individuals living with and affected by dementia, the Dementia Action Alliance is supporting our collective human desire to realize compassion in action.”

“Our three organizations are deeply committed to creating person-centered environments and experiences. By gaining the support and involvement of national, state, regional, and local entities in this alliance, we can reach the ‘tipping point’ that makes person-centered care the only acceptable norm for our country”, Chris Perna, CEO of Eden Alternative said.

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