Feeds:
Posts
Comments

Posts Tagged ‘Death’

The Silent Killer – Poem by Gwen Barnes

I dreamt about my mum today

a cruel disease took her away

it crept up upon her from behind

and slowly crushed synapses in her mind

I watched it happen

I couldn’t fight

I was powerless, as she was

in it’s might

I sometimes hear the latest news

the scientists have made

the next breakthrough

but this killer is still at large

it’s appetite is on turbocharge

its killing millions in it’s wake

it must be stopped

for humanity’s sake

So all I can do is hope and pray

that it doesn’t get me one day

there’s evidence to suggest it will

by then there may well be a pill

to cure this dreaded predator of the brain

to let old age have it’s longest reign

to enjoy this life, to be fit and well

until it’s time to bid my last farewell.

By Gwen Barnes

(in loving memory of my mum who passed away with Alzheimer’s in 2016)

Take The Survey Through 9/15/19

Dementia Airport Travel Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

Read Full Post »

In Honor of Susan Suchan

One voice that has been significantly missed this past year is Susan Suchan.  She lived her life fully even when diagnosed with dementia. We continue to celebrate her birthday and the love, compassion and dear friendship she brought into our lives.

Through Death,

Our Connection Remains

It was an honor to work with Susan on Dementia Chats.  Her insights were brilliant and her laughter contagious.

A few of us gathered to honor what would have been Susan’s 62nd birthday.  Please watch and feel free to share Susan’s life and the impact she had on others.  Remember each one of us have the opportunity to lift and inspire others by sharing our authentic self with one another, just as Susan did.


For poems by Mary Radnofsky read on the above video Click Below: https://www.alzheimersspeaks.com/images/Poetry/2_poems_mary_R_about_susan_suchan.pd

To see Truthful’s blog on Susan Click Below: https://truthfulkindness.com/memoriam/susan-suchan/

You never knew what would happen next….

A Bit More About Susan

Susan Suchan was the mother of two grown daughters and five beautiful grandchildren. She was a nurse for 23 years and was diagnosed with Early Onset Alzheimer’s Disease (EOAD) at the age of 48; an additional diagnosis of Frontotemporal dementia(FTD)/Primary Progressive Aphasia (PPA). Susan advocated for and about the “lived experience”, working to change perceptions, stigma and help bring to life, and the realness of her disease process. She has had the opportunity to speak Nationally and locally. Susan was awaiting the release of a documentary featuring her life, showing the effects on friends and family relationships, finances and end of life discussions. The film is called, “Susan’s Story” and is still in need of funds to complete.

Here Are Some of Our Dementia Chats Sessions Featuring Susan

Help Make “Susan’s Story” a Documentary, a Reality 

In honor of what would have been Susan Suchan’s 62nd birthday, her family and the producers of the documentary, invite you to help complete the film.  The documentary is in post-production and the final $125,000 is still needed to complete the film. 

Please contact Russ Kirkpatrick, the Producer/Director of the film, if you have questions or would like to make a contribution. Tax deductible contributions can be made to one of two 501(c)(3) organizations associated with the film. 

Contact information: russ@kkp.film

Link to the trailer of Susan’s Story: https://vimeo.com/302739507

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

Read Full Post »

Thoughtful Life Wishes For The Dying Process

 Thoughtful Life Wishes

For The Dying Process

on Alzheimer’s Speaks Radio

Tuesday, November 21st, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time

Join Lori La Bey, Host of Alzheimer’s Speaks Radio and her guest Jon Braddock on Tuesday.  Jon is the founder and CEO of My Life and Wishes, an education and digital planning platform with a mission to help families become “thoughtfully prepared” for the inevitable, their own death.

Contact Jon Braddock at:

https://www.facebook.com/jon.braddock

https://twitter.com/jonbraddock

https://www.facebook.com/mylifeandwishes/

Get Jon’s Free Checklist

 

A Big “Thank You” To Our Sponsors of

Our Dementia Friendly Cruise

Click Below to Download the Tips

Find a Memory Cafe & Get Resources

Read More to Get Resources

Read Full Post »

A New Perspective After Tragedy Hits – Dementia and the Golden Thread to Live Life Fully

Alzheimer’s Speaks Radio

with Kristiane Cates

A New Perspective After Tragedy Hits –

Dementia and the Golden Thread to Live Life Fully

Dementia: The Golden Thread to Live Life Fully

Thursday we are lucky to have the passionate and powerful speaker Kristiane Cates who is the Author of “The Golden Thread, A Memoir.”In the book you will hear her tragic story of how and when thirty seconds changed everything in her life.  Kristiane will share with us her journey with dementia and how her path to healing after her son’s death has helped her prepare for the effects dementia has had on her life. Her mission is to demonstrate brave, audacious grace when dealing with life’s challenges.

Contact Information For Kristiane Cates:

Website: KristianeCates.com          Twitter: @KristianeCates

InstaGram: Kristiane Cates              FaceBook: Kristiane Cates

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Today we discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

Click Below to Download the Tips

 

Insights from Arthur’s

Here is One of Many Free Video Tips

Define What “Quality” Means to You

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

Save

Save

Read Full Post »

Valentines Day: The Side Not Talked About

Valentines Day  –

roses

The Darker Side

Most people think of love, happiness and joy on Valentines Day. The day is wrapped around those currently in our life as we celebrate our relationships.  Tokens of love like flowers, chocolate and jewelry allowing those feeling to linger, but for many others Valentines Day can be extremely painful.

The loss of a loved one in our life can trigger thoughts of longing for what once was.  Grief can take hold as tears roll down ones face and and the heart longs for the precious connection it once had. The longing of physical touch; a kiss, a hug or just holding hands is no longer possible.

For some, the pain of loss lingers way past the day marked on the calendar as Valentines Day.  For some, each and every holiday triggers the loss of the physical presence of the one they loved.

Earlier this week, I was in Indiana and Illinois at three Clarendale properties doing screenings of “His Neighbor Phil.” At the last screening, a woman in the audience can up and gave me a beautiful poem about love and loss. I wanted to share it with all of you.

The Poem is Titled

“Grief is the Price of Love”

The Author is Unknown

poem_grief_is_the_price_of_love_unknown_author

May this poem give those grieving some peace of mind and heart knowing the greatest gift one can receive in a life time, comes with two price tags…. grief and gratitude.

May we all be lucky enough to love so deeply and completely to feel both “grief for a great love” knowing it’s “sister gratitude” will help fill the holes in our heart and help us find peace in our life once again.

additional_resources

Radio_HQ_062314_purple2  for radio show header 071114

HNP snap Autumn_Leaves

keynote_no_text__2_pic

copy-of-dc_hq_062714_bannerpurple

mc_memory_cafe_snap

other_int_and_projct

memory_cafedirectory_with_url_2

cac_logo_comibined_113016

 

Read Full Post »

Whats Does Father’s Day Feel and Look Like From Heaven?

What Does Father’s Day

Feel and Look Like

From Heaven?

By Lori La Bey, Founder of Alzheimer’s Speaks

Dear Dad,

You have been gone now for 15 years and my heart still sinks at the thought of the loss of you.  This Father’s Day was even harder as I was up at the lake, preparing your beautiful home for sale. As packed and organized things this weekend I thought… What Does Father’s Day Feel and Look Like From Heaven?

Do you feel my loss?

Do you feel how much I love you?

Do you know how much you meant to me and still do?

Do you realize all you taught me?

Do you see the tears run down my face?

Do hear me sniffling as I talk to you wanting so badly your advice or a comforting hug?

Do you watch me struggle?

Do you see me succeed?

Do you smile when I am joyful?

Do you miss me as much as I miss you?

Do I make you proud?

Does your soul ache to be together at times, like mine does?

Do you experience emotions like we have here on earth?

Are you peaceful and content where you are?

Is heaven really as wonderful as they say?

Do watch down on me or have your flown away?

I hope you know what a wonderful Dad you were to me.  So Dad, what does Father’s Day look like and feel like from heaven?

Your loving daughter,

Lori

 

alz_spks_programs_graphic_w_HNP_082115

 

 

 

 

Read Full Post »

Older Posts »

%d bloggers like this: