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Posts Tagged ‘Cruising Through Caregiving’

Insights Into Dementia with Dr. Patrick Doyle on Alzheimer’s Speaks Radio

Insights Into Dementia

with Dr. Patrick Doyle on

Alzheimer’s Speaks Radio

022718 ASR Brightview

Thursday, Lori La Bey, host of Alzheimer’s Speaks Radio will interview Dr. Patrick Doyle, the Director of Dementia Care, for Brightview Senior Living.  Dr. Doyle is also a Principal Faculty Member in the Center for Innovative Care in Aging, at John Hopkins School of Nursing. He has also designed, implemented, and evaluated person-centered dementia care practices in over 35 Brightview Senior Living communities, while at the same time, confronting the realities of dementia in his own family.

Check out the We Believe Video from Brightview Senior Living

Contact Information for Dr. Patrick J. Doyle

218 North Charles Street, Suite 220
Baltimore, Maryland 21201
   Phone: 410-246-7584                  Email: pdoyle@bvsl.net  

                        

Here is Jennifer Fitzpatrick’s book which Brightview Senior Living was so kind to sponsor for our Dementia Friendly Cruise last fall.

Cruising_through_caregiving_book_cover_jennfifer_fitzpatrick

 

Looking for a Speaker?

See what LeadingAge has to say about Lori La Bey.

 “Feedback from the conference planning committee and our leadership team was extremely positive. 

Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Meet Lori La Bey in March

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Update on Our Dementia Friendly Cruise

Update On Our Dementia Friendly Cruise

Here at Alzheimer’s Speaks we take our commitment to “Dementia Friendly Travel” very seriously.   We are finding the need to clarify our relationship going forward with Kathy Shoaf, Elite Cruises and Vacations, LLC, and Cruise Planners/American Express who we used as our travel agent on our first cruise to the Caribbean last month.  The need for clarification is due to two major factors.

1)    There is much confusion and misconceptions in dementia communities around the world, about Alzheimer’s Speaks involvement with future Dementia Friendly Cruises being marketed by Kathy Shoaf, Elite Cruises and Vacations, LLC, and Cruise Planners/American Express. To clarify, Alzheimer’s Speaks has never been involved, nor will we be involved in their future events.

2)    Due to an overwhelming response for Alzheimer’s Speaks to provide additional Dementia Friendly Travel, we have decided to do so under the titles of “Dementia Friendly Travel with Lori La Bey”and/or “Dementia Friendly Travel with Alzheimer’s Speaks,” so there will be no confusion going forward.  This decision was not made lightly as it was after serious review of feedback from our dementia friendly program team and many attendees.   We are honored and vow to hold to a high standard of providing Dementia Friendly Travel in the future.

Although the symposium and programs were highly rated, and many told us they can’t wait to do it again, we can’t apologize enough to those of you who had difficulties in any fashion regarding the cruise.  Please know we have meticulous notes to improve the travel process, communication chains and our programming; to make our next venture even more fun and resourceful than the last.

Thank you again, for your understanding and your continued support of Alzheimer’s Speaks. 

We are truly humbled and honored in your faith is us and promise to always continue to raise the bar when it comes to dementia. 

We Still Owe You a Beautiful Article on Our Dementia Friendly Cruise.

Below Are Some Great Pictures to Hold You Over.

Again I would like to Acknowledge

Our Sponsors for the Cruise

 

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We’ve all wrestled with a guilt trip – aging parents or a sick spouse who fear that we will not respect their wishes to stay at home. Statistics reaffirm that seventy-five percent of families try to do just that, despite the physical and emotional challenges of 24/7 dementia care. Often families turn to outside professional home care support.

Please take our A-LIST needs assessment survey and let us know your opinions on paid nursing support.

Decisions about care are deeply personal for those living with dementia and their families. I know from experience that there are no easy answers. Whether you are living with dementia, are a current or past caregiver, or just concerned about your memory, please take this survey and let us know what matters to you when it comes to professional home care.

24/7 care is often central to the Alzheimer’s experience. Every one of us facing this challenge – patients and care partners alike – strives to honor and help our loved ones live well with dementia. Home care providers and policy makers want to know what matters most to the A-LIST.

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Cruising Through Caregiving with Author Jennifer Fitzpatrick

 “Cruising Through Caregiving”

with Author Jennifer Fitzpatrick

on Alzheimer’s Speaks Radio

Tuesday, November 14th, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time

Today we have Jennifer L. Fitzpatrick, back with us.  She is the author of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One. She is a gerontology instructor at Johns Hopkins University and also the founder of Jenerations Health Education, Inc. a full service training company.

Contact Information For Jennifer Fitzpatrick

Website               Twitter   @fitzpatrickjen

A Big “Thank You” To Our Sponsors of

Our Dementia Friendly Cruise

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Find a Memory Cafe & Get Resources

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Stop Asking How Her Day Was

Stop Asking How Her Day Was

by Jennifer L. FitzPatrick

“How was your day, Mom?”  “What did you have for lunch, Uncle Jim?”  When a loved one with a dementia diagnosis resides in a nursing home or an assisted living community, caregivers often struggle during their visits. Well-meaning caregivers typically attempt to have a regular conversation with their older loved one, forgetting that this person no longer has the ability to reason or to control impulses, and often will not even remember who the visitor is.  This person with dementia also often misunderstands questions or is unable to articulate answers that make sense to the caregiver. Boredom and frustration result for both the caregiver and the person with dementia.

It’s essential for caregivers to embrace new ways of socializing during a nursing home or assisted living visit. Some television is fine, particularly if it is a show or movie that is in the patient’s long-term memory (think Gone with the Wind or Lawrence of Arabia for someone in their eighties or nineties). But to truly connect and engage the person with dementia, caregivers should embrace activity instead of conversation.

Many persons with advanced dementia, whether male or female, tend to most appreciate interaction and visits with others that are what I would call “dude-like.” While certainly not true of all boys and men, the vast majority of males in our society do not necessarily need to talk to each other to enjoy each other’s company. A woman often doesn’t get it when her husband goes to a baseball game with a buddy, and they never talk about that buddy’s impending divorce. The two men simply enjoy watching the baseball game together, and that is the way her husband is there for his buddy. Extensive conversation is not always necessary, nor is it always welcome. When trying to connect with your older loved one who has dementia, try to think of two dudes hanging out—no matter the gender of either party.

Often you are going to have the most satisfying experience with loved ones who have dementia when you do an activity with them rather than initiate a discussion. While persons with dementia may not be able to speak, they still might be able to sing. Music penetrates the long-term memory, and many persons with dementia can sing along, tap their feet, or even dance to an old favorite tune. (Think the Temptations’ “My Girl” or The Rolling stones’ “You Can’t Always get What You Want” for patients in their sixties or seventies.)

Try some art activities. If your older loved one knitted before she was diagnosed, maybe she still can. She also may be able to paint, draw or garden. If your older loved one enjoys animals, bring your dog to her nursing home or assisted living and let her pet Rover.  Go out for a walk and look at the fall foliage or enjoy the beautiful sunset together. Give Mom a manicure, massage her back or just hold her hand.  Listen to talk radio.  This can be a super activity for those older than 70 as listening to radio shows will be familiar in the long term memory. Sometimes just sitting together without the pressure of having to come up with questions or discussion topics can be very relaxing for you both.  It takes some getting used to, but eventually you will be more comfortable with silence.

Obviously there will be trial and error to see which activities your loved one responds to most favorably.  But typically an activity or spending quiet time together is going to be more satisfying for both of you than asking her how her day was.

Thanks for reading this excerpt of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One by Jennifer L. FitzPatrick, MSW, LCSW-C, CSP!  The founder of Jenerations Health Education,  Jennifer is also an instructor at Johns Hopkins University’s Certificate on Aging program and has been an Education Consultant to the Alzheimer’s Association of Greater Maryland for a decade.  You can reach her at www.jenniferfitzpatrick.com.   To purchase Cruising Through Caregiving

 

Click Below & Follow The Radio ShowDementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

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An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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Reducing the Stress of Caring for a Loved One

Reducing the Stress of Caring for a Loved One

on Alzheimer’s Speaks Radio

Thursday, August 3rd, 2017, we are lucky to have Jennifer L. FitzPatrick, the author of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One.  She is a gerontology instructor at Johns Hopkins University and also the founder of Jenerations Health Education, Inc. a full service training company.

Contact Information For Jennifer FitzPatrick

Twitter @fitzpatrickjen

Dementia Friendly Cruise –

Special Pricing Runs Out Soon!

Short Video Below

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

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Only 3 simple Question

Color Your Mind by Maria Shriver

“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners.  I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”

~  Lori La Bey, founder of Alzheimer’s Speaks

 

 

 

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