Posts Tagged ‘Clinical Trials’

Alzheimer’s – Fighting for my Life

Click Below To Listen To The Show

Lori La Bey talks with the Authors of “Fighting for my Life.”   Jamie Tyrone has a 91% chance of developing Alzheimer’s disease and she’ll tell us why.  Needless to say, she is an advocate to find a cure and she believes in and enrolls in clinical trials herself.  Dr. Marwan Sabbagh is a leading expert in Alzheimer’s diagnosis, treatment and research and the director of Cleveland Clinic Lou Ruvo Center for Brain Health in Las Vegas, Nevada. We will discuss why they joined forces to write this book and what others can expect to get out of the book.

Contact Information:

Website: http://www.fightingformylifebook.com

What Questions You Have For Those Living With Dementia?

Below Video compliments of Dementia Chats

Those with dementia talk needs and strategies to incorporate when building dementia friendly communities and businesses.

Find out 1) who do you need on your team and why. 2) Why are the little things so important. 3) What others are doing that is working well.

Additional Dementia Chats Interviews:

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below


Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Diana Pierce and Lori La Bey

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

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Making A Difference With Technology With Patrick Talley

Technology – Making a Difference

071415 ARS Patrick Talley TechnologyJoin Alzheimer’s Speaks Radio live Tuesday July 14th, 2015 at

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time

Call in or use the chat box to communicate with us.

Alzheimer’s Speaks Radio has been raising awareness and providing resources for those dealing with dementia since 2011.  All voices are welcome on the show.  Do you have a story to tell?  A product that will make living with dementia easier?  Are you doing research to create a cure? We want to hear from you.

Today we are lucky to have Patrick Talley the founder of Stories etc (free app), Swaha (free app), HeraTrack (monitoring bracelet).  Patrick is a fun uplifting person who is on a mission to make a difference in peoples lives. He and his team are focused on helping caregivers and those struggling with age related issues.

Check Out Alzheimer’s Speaks Resource Website


Join an Alzheimer’s disease clinical trial today.

AlzTeam Banner-475x358 - CopyNo insurance is needed to participate.

SocialMedia081114_purpleangel_carousel TM

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Are You Close To Malvern, PA? If So, Buy Your Tickets Before They Are Sold Out!

 A Beautiful Play on Dementia and Caregiving

“My Mother Has Four Noses”

jonatha my mother 4 noses june 2015 showClick Above To Purchase Your Tickets Today

lori_with_radio“This is an incredible opportunity to see a heart wrenching and heart warming play about a daughters journey with her mother who has dementia.  The music alone is worth going to the play for, but the story will stay with you and you’ll want to come back to see it again with a friend.  I’ve seen it four times!  Each time, the play touches me differently, yet profoundly.”                                        ~  Lori La Bey found of Alzheimer’s Speaks

Acclaimed singer/songwriter Jonatha Brooke “rocks it” (The New Yorker) in this touching mother-daughter love story. Brooke shares her experience caring for her eccentric and ailing mother, weaving 10 new songs through stories of their final two years together. Don’t miss this one-woman play The New York Times raves is “poignantly funny, beautifully created.”

“An affectionate, well-crafted, surprisingly funny new musical.” (New York Post)

“Immensely relatable. Gorgeously arranged.” (TIME OUT/Critic’s Pick)
Tickets start at $27. Premium tickets can be purchased for $65 (weekday) and $75 (weekend) and include priority seating and a signed CD of My Mother Has 4 Noses.

For More Resources on Dementia And Caregiving Click Below


Help Push Research Forward – Join A Clinical Trial

AlzTeam Banner-475x358 - CopyJoin an Alzheimer’s disease clinical trial today.

No insurance is needed to participate.

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Dementia : A Nation Joined Will Make The Difference!

 “A nation joined will make the difference.”

DAA off logo

 Dear DAA Friends & Partners:

We received a grant from the Harvey Picker Center of Innovation & Applied Research in Long-Term Care to gather feedback from people living in the United States with dementia, as well as family and friend care partners, on their priorities and preferences for accessing and utilizing information resources.  This collective feedback will be used to determine how best to make resource materials about living well with dementia available for people across the country.

Please disseminate this Invitation throughout your Organization and Professional Networks.

The Survey needs to be completed no later than June 26, 2015.  

Please complete a short on-line survey regarding your priorities & preferences for information and resources about dementia care and services.                          ​




All information will be kept confidential and only used to collectively inform the resources that would be most meaningful to you.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on.    Findings from the survey will be provided to policymakers, healthcare practitioners, service providers and organizations and will be posted on http://daanow.org/survey/ .

Sincerest Appreciation for Sharing this Request with Your Colleagues and Networks,

Jackie Pinkowitz; Karen Love; Jill Harrison; Walter Coffey; Chris Laxton; Chris Perna

DAA Leadership Team

The Dementia Action Alliance is committed to helping people live fully with dementia and supporting those who care about them.  We are a volunteer coalition engaged in changing our nation’s understanding of and attitudes about dementia through serving as a trusted source for education, conversations, and advocacy.  It was founded and is led by five organizations with person-centeredness at the heart of their missions:  CCAL-Advancing Person-Centered Living; Planetree; The Eden Alternative; AMDA, the Society for Post-Acute & Long Term Care Medicine and LeadingAge Georgia.

Looking for A Way To Raise Awareness?

Click Below


You could make a difference for your loved one with Alzheimer’s.

Click Below

10313_Banner-A_475x358Visit our website above today.

For More Information and Resources on

Dementia and Caregiving


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Driving and Dementia A Special On Alzheimer’s Speaks Radio

Driving and Dementia

A Two Hour Special

 Aired Live On Tuesday July 23rd, 2013

Go there now to listen to Recorded Program


This is one of the most difficult and frustrating topics to address when it comes to dementia.

This program was designed to allow us to hear from a variety of voices: from those with dementia to Doctors, Insurance Professionals, State Patrol, trainers and caregivers.

Together we can begin to break through the myths and stigmas and help people design a practical and fair method to assist them when tackling this issue.

Our Experts Are:

driving_dr_weismanDr. David Weisman Neurologist a works with clinical trials in stroke, Alzheimer’s disease, multiple sclerosis, and Parkinson’s disease.




Drivingi MattGurwellMatt Gurwell is the founder & CEO of Keeping Us Safe and had worked for many years as a State Patrol

info@keepingussafe.org    www.keepingussafe.org



Driving_JD_Howard_J. D. Howard, Executive Director

Insurance Consumer Advocate Network





Jack Schatz, is a Care Partner for his wife with dementia. He kept her behind the wheel as long as possible and he will tell us why he felt this was important.



Michael Ellenbogen, Steve Ponath, Kathy Murray, Mary Bailey and Terry Berry are all living with the disease and spoke from their various experiences with the disease.

Driving Kathy Murray_v2Driving  Mary Bailey

michael_ellenbogen_croppedDriving Steve Ponath

We Also Continued The Driving And Dementia Conversation On


Click on the Video Below to Watch The Recorded Webinar


For More Resources Click below on the Alzheimer’s Speaks Website


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WEGO Health has a link to several clinical trials.  It’s easy to find out if you qualify for any be completing a short form.

Here is the link

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