Posts Tagged ‘carers’

The Power of Compassionate Touch

Click Below To Listen Thursday – Aug. 29th, 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 30th at 6am Australia. All Shows are Archived for Ease of Access.

Click Above to Go To The Show

Join Alzheimer’s Speaks Radio where true talk radio thrives covering sound information, not sound bites. Host, Lori La Bey will be talking with Beth Propp, RN and AGEucate Training Institute Certified Master Trainer. Today we will have a very important conversation about the importance of touch for those living with dementia and those that care for them.

Contact Information for Compassionate Touch & AGE-u-cate

Contact Person: Mary Petersen, Director of Client Engagement

Phone:  817.857.1157 ext. 204

Email:  Mary.Petersen@ageucate.com

Website: www.AGEucate.com

AGEucate Training Institute:  Bedford, TX h

Take The Dementia Airport Travel Survey Below

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below


Coming to Woodbury, MN – Sept 25th and 26th

Coming to Toms River, NJ – Oct 8th and 9th

Coming to Elmhurst, IL – Oct 16th & 17th

More Information to Come

Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

Diana Pierce and Lori La Bey

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Fight Alzheimer’s Together

Push Dementia Forward – Participate!

Find A Memory Café In Your Area

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The Imapct of Dementia on Spouses & Care Partners

Have You Ever Wondered What Impact Dementia Has on Spouses

& Care Partners?

Today we Discussed: How Spouses and Care Partners are Impacted by Dementia This is a very interesting conversation which covers the good, bad, ugly and indifference that can impact spouses and Care Partners of those diagnosed with dementia. You will hear practical every day occurrences which will help you not only understand the disease better but give you some ideas on conversations to have, ways to engage and support both Care Partners and those they are caring for.

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012. You can see archived videos by clicking on the Dementia Chats logo above or by visiting our YouTube Channel.

A big “Thank You” to our experts living with dementia: Michael Ellenbogen, Bob Savage, Truthful Loving Kindness, Laurie Scherrer, Craig Hanke and Paulan Gordon.

Brought To You and Facilitated By Lori La Bey, Founder of Alzheimer’s Speaks ad Dementia Chats.   

Looking for a Keynoter or Consultant?

See what LeadingAge has to say about Lori La Bey.

 “Feedback from the conference planning committee and our leadership team was extremely positive. 

Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Meet Lori La Bey in March

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Push Research Forward – Join the A-List

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Video – We Need to Reassess the Word “Behavior” in Dementia Care

Video Interview –

Why We Need to Reassess the

Word “Behavior” in Dementia Care

If you want to just listen to the audio click below

Alzheimer’s Speaks Radio doesn’t usually do video, but we knew this was going to be a very interesting conversation and so we wanted to fully capture it. Lori La Bey had the privilege of having Geert Bettinger, from the Netherlands on the show with us.  He is the Author of “Moving on by standing still,” a different view of Problem behaviors.  She also  had two amazing Co-Hosts; Harry Urban and Laurie Scherrer both living with a diagnosis of dementia.

Geert Can be Reached:

Email:  geertbettinger@gmail.com




A Big “Thank You” To Our Sponsors of

Our Dementia Friendly Cruise

Click Below to Download the Tips

Find a Memory Cafe & Get Resources

Read More to Get Resources


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What Does Cooking, Motor Biking & Dementia Have In Common?

What Does Cooking, Motor Biking & Dementia

Have In Common?

Motor bikeDaniel and Emanuel motor bikr dessert

Not A Clue?  Read On!

Today, I am writing to tell you about Daniel and Emanuel, who are doing something amazing to raise money for Alzheimer’s Disease International.

Daniel and Emanuel are professional chefs that will embark on a sponsored 5,500km motorcycle ride from Argentina to Peru. The 6 week trip starts today will see them negotiate the feet of the Andes as well as the Americas tallest peak, the Aconcagua.

Daniel and Emanuel plan to cook their way along the route while raising awareness of Alzheimer’s disease. When Daniel’s mother, Emanuel’s grandmother, was diagnosed with the condition, they said family and friends found her memory loss hardest to adjust to. Daniel reflects, “Don’t you remember, I told you so, were usual words that hit her the hardest.” The pair chose ADI as their charity because they wanted to help people in low and middle income countries across the world.

motot bikeDaniel and mother motor bike Emanuel and grandmother

The duo will set off from Buenos Aires on the 10 January, traveling along the feet of the Andes 1,000km west of the city. They will then negotiate the path into Chile which stands at over 3,000 meters high. Arriving in Santiago they will head west to the pacific and then north towards their final destinations, Lima and Cusco in Peru.

Click hereto pledge whatever you can on their FirstGiving webpage

You can also be a part of their journey by liking their adventure on Facebook.

I have to tell you just love these stories!  Thank you Daniel and Emanuel!

Thank you in advance for any support you can give these men for raising awareness and taking the time to make a difference to improve our dementia care around the world.

For more information on dementia check out our website below


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J. Arthur’s Memory Cafe sings its annual Care Partner Credo to all those giving care to others.  Hope you enjoy.

Check out


If you know of a Memory Cafe please let us know.  Alzheimer’s Speaks is trying to keep track of them in our International Collaborative Resource Directory for Dementia.

Click on the graphic below to contact us.


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If you missed the Dementia Chats Session today, there is no need to worry.  All sessions are FREE and recorded for your convenience.  You can go to the Alzheimer’s Speaks website to find past recordings and handouts, along with upcoming sessions.  Here is the direct link to the page where you can find the links and handouts.  We all hope you find the discussion helpful.

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Hi Everyone,

Lori La Bey Host of
Alzheimer’s Speaks Radio

I don’t often write to ask for your help, but this is one of those times I must reach out to you.  One of the biggest advocates for dementia, Norrms McNamara has been BANNED FROM FACEBOOK.

 One man can make a difference. 

Norrms has proven that and you can too!

Norrms McNamara,  knows of which he speaks. 

He lives with the disease and has honored us all by allowing us an inside peak as to what life is like with dementia.  Norrms has helped so many people world wide with his beautiful poetry and prose, but even more so for his unwavering commitment to shift our dementia care culture world wide.

Norrms was the voice who shared with me the concept of the Memory Cafe which I brought over to the US and now they are popping up all over, as the need is so great for this new type of social support for people living with memory loss.

Norrms started Dementia Awareness Day last year and it has grow and gotten the support of individuals and communities world wide.  Here is the link for more information on Dementia Awareness Day.

This is a man who is working on dementia friendly communities and business models over in the UK.  His insights are many, his passion is endless and his purpose is powerful.

Please watch the video and then sign the petition for Norrms voice to be heard on facebook.  Facebook allows Norrms to make connections to people, organizations and communities in need; which would not be possible through other means.  Is that not one of the largest benefits to Facebook?  United people around the world…I sure  think so!  Norrms isn’t selling anything but hope and new ways to live with a disease that torments so many.  Please let his gift to the world continue.

One man can make a difference. 

Norrms has proven that and you can too!

Here is the Link to the Petition

Thank You for Your Help!

Lori La Bey


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High Quality Dementia Care


By Diane Lightfoot, Director of Communications, United Response

Back in March 2012, the ‘Prime Minister’s Challenge on Dementia’ white paper was launched which included a list of 14 commitments, covering: Improvements in Health and Care; Creating Dementia Friendly Communities that Understand How to Help; and Better Research.

Commitment 4 in this white paper refers to “A Dementia Care and Support Compact signed by leading care home and home care providers”.It further goes on to explain in detail that ten top organisations have signed up to deliver high-quality relationship-based care and to provide support to people with dementia. Furthermore, they have also signed up to actively engage and to involve the wider community in this work.

The white paper illustrates the culmination of better insights into the scope and extent of the major effects of dementia in the UK. These figures which have been extracted from the Alzheimer’s Society website help to underline some of the key points:

  1. 800,000 people living in the UK have dementia. Within 10 years this will increase to 1 million and by 2051 the figure will be 1.7 million
  2. Presently only 41% of people with dementia receive a diagnosis
  3. The propensity to have dementia rises with age, from 1 in 1,400 (40-64years) to 1 in 6 (80+ years)
  4. Family carers subsidize 34.8% of the £23billion cost of dementia to the UK. This equates to a staggering £8billion.

Nevertheless, statistics only form part of the story. Indeed, the most important message that was taken from this year’s Dementia Awareness Week, which ran from 20-26 May, was to remember that there’s a lot more to a person than the dementia. The emphasis should be on the person, not the dementia.

This approach goes hand in hand with United Response’s person-centered approach to supporting people with dementia. Indeed, this approach is at the focal point of everything that we have done over the past 39 years.

The Prime Minister’s white paper highlights the need for a similar, personalised approach to dementia support. It explains in great detail about ‘relationship based care and support’. The most important question that needs to be addressed is; how will this work within the NHS?

Searching online under ‘Dementia Awareness Week’ revealed a web chat which was run by two clinical nurse specialists, who both work at a Midlands NHS Trust, with 50 years’ experience of dementia and caring for older people.

The web chat helped to illustrate the fact that their dementia training is split up into a mixture of both mandatory sessions for new members of staff and monthly voluntary sessions. Actually, the majority of NHS hospitals are beginning to understand that there are major benefits to be gained from giving person-centred dementia care training to their staff.

At this Midlands Trust they had been providing this form of training for over ten years. The techniques and tools taught in such training turned out to be both ingenuous and creative.

The Trust in question implemented a ‘Getting to Know Me’ form for dementia patients. This is a reworked version of a form initially put together by the Dementia Services Development Centre at Stirling University. The form is filled in by the patients family or carer and it incorporates both the patient’s previous life and experiences. By making use of this personal insight, staff can strive to meet the needs of the person they support.

The Trust also has activity coordinators in place whose main role is to help calm people prone to agitation. They encourage ‘purposeful activities’ for those who need to be stimulated whilst in a hospital environment.

Essentially, this particular Trust has also formed excellent working relationships with external organisations. For example, they have worked very closely with the Alzheimer’s Society on a number of projects such as Memory Lane and the Forget-Me-Not Lounge.

Most of the techniques, tools, projects and campaigns specified in the web chat revealed a common trend. It was all about staff choosing to adopt a patient (or person)-centred approach.

At United Response, we believe that a person-centred approach is essential in helping to provide effective dementia support. Furthermore, we have looked to develop expertise in this type of support for as long as we have existed as an organisation, as demonstrated by our Best Practice Guide. For more information about the dementia support available please visit: http://www.unitedresponse.org.uk/what-we-do/dementia/

We are extremely pleased to have put that approach into place which shows that we have full confidence in it. Our belief in the approach has been taken onboard by the Government, leading charities and the NHS, as they look to the future of dementia support.

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