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Posts Tagged ‘Care Partners’

Connecting in the Land of Dementia

Connecting in the Land of Dementia

on Alzheimer’s Speaks Radio  

Tuesday Sept. 13th, 2016

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time

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Tuesday we will have Deborah Shouse a former family caregiver, Alzheimer’s advocates, writer, and performer. She has a passion for helping people find the gifts and blessings in the care partners’ journey through dementia. Deborah is the author of the Love in the Land of Dementia and the newly published Connecting in the Land of Dementia:Creative Activities to Explore Together.

Reach Deborah at:  DementiaJourney.org

Additional Resources

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You Might Be In Denial Or Burnt Out As A Care Partner If…

You Might Be In Denial

Or Burnt Out As A Care Partner If…

By Lori La Bey, founder of Alzheimer’s Speaks

Hi Everyone,

I wanted to apologize to anyone who was offended by the original title of this piece “You Might Be Demented If…”  Although I got many comments saying the article was right on, I only received one comment on the title which used the word “demented.”   I loved her honesty and willingness to raise awareness of how important our words are, which I am well aware of.

In fact, I struggled with what word(s) to choose… dementia, demented, losing it, going crazy…  I wanted this to be a takeoff of “You Might Be A Redneck…” by Jeff Foxworthy, to be lighthearted enough to be heard, yet hit home with a punch; and so I chose the word “demented.”  I was actually looking forward to having our community discuss the importance of words and their perceptions.  In fact, here are a couple of great resources on just that point:

Dementia alliance International

Dementia Action Alliance

Anyways, hear is the article with a new title.  I think it will still hit home and be shared by others which is the point of writing it in the first place, to raise awareness.  What I have learned is the shift to dementia friendly is taking hold even STRONGER than I thought which is wonderful!

Sometimes I wonder who has dementia, myself included.  As Care Partners we are the ones whose executive function is supposed to be intact.  We are the ones who are to be logical and understanding…   But I’ve found caregiver denial and caregiver burnout looks very much like dementia.  Here are some signs you might be a Care Partner in denial or burnt out!

You Might Be In Denial Or Burnt Out As A Care Partner If…

You call a person with dementia to remind them of an appointment and then wondered why they aren’t ready to go or miss the appointment… Because they have a memory problem!

You Might Be In Denial Or Burnt Out As A Care Partner If…

If you try to argue with a person with dementia…  Because you know darn well someone with a cognitive impairment can’t always process information logically.

  You Might Be In Denial Or Burnt Out As A Care Partner If…

You have given someone with dementia directions to the bathroom and found out later they got lost and had an accident and then got mad at the person…  Because you didn’t connect the dots that you may have been able to avoid that embarrassing situation for them and you by assisting them to the restroom.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You ask someone with dementia a complex question and then are surprised when they get angry or look at you with a blank stare…  When you know it’s best to break things down into 1 or 2 simple steps.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You snap at someone for repeating the same thing over and over… When you know it’s new to them each and every time!

You Might Be In Denial Or Burnt Out As A Care Partner If…

You finish a sentence for a person living with dementia because it was taking them way “TOO LONG” to state their thoughts and then were surprised when they either pull out of the conversation or got mad at you for seemingly no reason…  When we all know most people with dementia need a few extra seconds to process their thoughts.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You direct all your questions and comments to the Care Partner while ignoring the person with dementia and then wondered why the person with dementia becomes withdrawn and non-responsive…  Knowing that all people want to feel valued and validated, even those living with dementia.

 You Might Be In Denial Or Burnt Out As A Care Partner If…

You spoke to a person with memory loss in a loud tone and slow pace… Because apparently you can’t differentiate the difference between being hard of hearing and having dementia.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You told someone with dementia they can’t drive anymore getting into a big fight with them…  As you held tight to not validating their feelings of loss of independence because you were totally focused on your own feelings of guilt and grief of the changes in your relationship.

Yes, sometimes I wonder who really has dementia… Don’t you?

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Sky Factory Offers Relaxation & Comfort

In A Variety Of Environments

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Join us today, Friday at: 2:00pm EST, 1:00pm CST, 12:00pm MST, 11:00am PST 

and 7:00pm London Time

Today we have Ray Ward from the Sky Factory, who will share this fabulous technology which creates a relaxing environment most anywhere.  Here from Deb Bland with Polar Ridge to her thoughts as a Marketing Director of an Assisted Living and Memory Care Community.

Reach Ray Ward Below:

rayw@skyfactory.com

641-919-5529(m)

641-472-1747 ext 211

Alzheimer’s Speaks Resource Website

alz_spks_programs_graphic_w_HNP_082115Alzheimer’s Team (Clinical Trials)

Alz team new ad home page 091515The New  Dementia Film “His Neighbor Phil”

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Alzheimer’s Speaks Radio – Interviews Cast and Crew of “His Neighbor Phil” A New Powerful Film On Life With Dementia

Alzheimer’s Speaks Radio

081115 ARS His Neighbor Phil

“As soon as I saw the film, His Neighbor Phil, I knew it had the unique ability to take the world by storm to change perceptions of dementia and help people and organizations create dementia-friendly families, communities and businesses.”  

Lori La Bey, Founder of Alzheimer’s Speaks

HNP_teaser_clipsClick Above to Watch this Teaser

Don’t miss the fascinating conversation about the new film soon to be launched which will play a significant role in shifting our dementia care culture.

For more details on the film, contact Lori La Bey.

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Important Announcement – Dementia Chats Webinars Changes Time

Important Announcement 

Dementia Chats Webinars Changes Time

Copy of DC_HQ_062714_solidyellow1Click Above For General Information

The 2nd and 4th Tuesday of Each Month NOW AT:

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time.

Click Here To Directly Enter The Webinar

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For More Resources and Information on Dementia and Caregiving

Click Below 

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Alzheimer’s Speaks Radio – Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Alzheimer’s Speaks Radio -Tuesday June 23rd, 2015

11am EST, 10am CST, 9am MST,  8am PST and 4pm London Time

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Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Welcome to Alzheimer’s Speaks Radio.  We are thrilled you are going to join us. Please know on all of our shows we love to hear from our listeners. So feel free to call in or use the chat box to talk to us.

Today we have Maarten Fischer a Dutch Native who moved to Montana and will explain the concept of Dementia/Care Farms. Maarten has been involved in “Multifunctional Agriculture,” including “Care Farms.” In the Netherlands they are the largest sources of day programs with over 1500 farms empowering  30.000 clients on an annually.   Contact Maarten via:  Website or call  406-752-3697

Also joining the conversation will be Eilon Caspi Ph.D., Gerontologist & Dementia Behavior Specialist. Check his Website or his blog

Our second guest will be Constance Hanstedt author of “Don’t Leave Yet, How My Mother’s Alzheimer’s Opened My Heart,” which was named a finalist in the National Indie Excellence Awards for memoir. Contact Constance

Website        Facebook    

For More Resources on Dementia and Caregiving go to Alzheimer’s Speaks.

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No insurance is needed to participate.

Join The Purple Angel Project

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Join Us For Dementia Chats Tuesday

Join Us For Dementia Chats Tuesday

DC_HQ_062714_solidyellow2 color photosDementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia.

Tuesday June 9th, 2015 – 3pm EST, 2pm CST, 1pm MST, 12pm PST and 8am London Time

Click Here To Enter

To Learn More About Dementia Chats or to Watch Past Webinars

Join an Alzheimer’s disease clinical trial today. No insurance is needed to participate.

Click Below

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