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Posts Tagged ‘Care Partners’

Move for Minds with Maria Shriver

Move for Minds with Maria Shriver

WHAT IS MOVE FOR MINDS?

  • On Saturday, June 4th, Equinox Sports Clubs in eight different cities across the United States will become ground zero for a one of a kind experience to support women’s brain research into Alzheimer’s and raise awareness of the fact that Alzheimer’s disproportionately impacts women. For the second year, this unique event brings together two powerhouse brands in Equinox and Maria Shriver.
  • Participants in Equinox Sports Clubs in New York, Los Angeles, Orange County, San Francisco, Boston, Dallas, Miami and Washington, D.C. will fundraise to participate in a one-hour work out specifically designed by Equinox’s top fitness experts to optimize both body and brain health. This workout marries the benefits of yoga and mindful meditation with the adrenaline rush of cross training.
  • Following the innovative brain/body workout, attendees will engage with one another socially in a groundbreaking marketplace where they will get to meet and hear from leading superstars of brain research, fitness, food, nutrition, stress, sleep and caregiving.
  • Move for Minds is an unprecedented gathering of empowered women, men and leading experts who believe funding women’s brain research will help us solve the Alzheimer’s epidemic and answer the question: Why are so many people getting Alzheimer’s and why are the majority of them women?

WHEN WILL IT TAKE PLACE? 

  • Saturday, June 4th from 10 a.m. to 1 p.m. in each of the cities except for Dallas (1-4 p.m.).

WHO WILL BE THERE? 

  • Some of the superstars joining participants from coast to coast include include Maria Shriver, Ann Romney, Dr. Lisa Genova, Dr. Daniel Amen, Dr. Roberta Brinton, Dr. Adam Gazzaley, Dr. David Perlmutter, Dr. Richard Isaacson, Dr. Dena Dubal, Dr. Reisa Sperling, Bob Roth, Mallika Chopra, Brooke Burke, Leeza Gibbons,  Liz Hernandez, Dr. Pamela Peeke, Mary Hart, Moll Anderson, Lori La Bey and others.
  • Participants include over a thousand women and men of all ages who come together for an empowering, educational and inspiring day of exercise and information. They are intent on learning about brain health and the lifestyle choices to make when we are young to better protect our brains as we age.
  • Participants in the day’s activities must be at least 16 years of age. Anyone under 18 years old, must be accompanied by an adult.

WHERE WILL THE MONEY GO?

  • 100% of the funds raised by the over 1,250 attendees and their network of supporters will benefit The Women’s Alzheimer’s Movement, a non-profit devoted to raising awareness of the fact that women are disproportionately affected by Alzheimer’s disease and raising funds to research why that is.
  • Proceeds will support women-based research efforts at leading Alzheimer’s research institutions and in the labs of individual scientists.

HOW TO SIGN UP: 

  • Every attendee must sign up at MoveForMinds.org where they select a city of their choice, and register as a fundraiser. They then reach out to their networks via email and/or social media to raise at least $250 to support WAM. Gifts will be awarded to the highest fundraisers in each club.
  • If people want to form a team, they can call Samara Metz at (310)873-5000, and she will help them establish one. A team must consist of a minimum of 5 people, each of whom must have their own fundraising page and pledge to raise a minimum of $250.
  • If you cannot attend the event, donate to someone who can. Go to MoveForMinds.org and look for a friend or person you want to support. Or you can join donate to Maria Shriver’s page. If you’d like to sponsor a caregiver to participate in Move for Minds you can underwrite her $250 fundraising minimum at MoveForMinds.org.

ABOUT WOMEN’S BRAIN RESEARCH & ALZHEIMER’S DISEASE  

  • There are 5.4 million people living with Alzheimer’s in America
  • Every 66 seconds someone in the United States develops Alzheimer’s and two thirds of them are women.
  • A woman in her early sixties is about two times as likely to develop Alzheimer’s than breast cancer over the remainder of her life.
  • By 2050, 16 million brains will have fallen victim to Alzheimer’s and a majority of them will belong to our mothers, sisters, daughters and friends.
  • Alzheimer’s is the only disease among the top ten causes of death in America that cannot be slowed, prevented or cured.
  • Of the top killer diseases, Alzheimer’s disease research is severely underfunded. In 2017, the NIH will spend $910 million in Alzheimer’s research while it spends over $6 billion on cancer research, $1.3 billion on heart disease research and $3 billion on HIV/AIDS research.
  • Per a recent WebMD and Shriver Report Snapshot: Insight into Alzheimer’s Attitudes and Behaviors, while 96% of survey respondents have heard of Alzheimer’s, nearly half aren’t concerned with getting the disease and only 11% have asked their doctors about preventing it.

ABOUT THE CONNECTION BETWEEN YOUR BODY AND YOUR BRAIN

  • In fact, in a recent study of Americans at a higher risk for developing Alzheimer’s disease due to the presence of the APOE 4 gene found that the brains of the high risk individuals who exercised regularly looked much more like the brains of volunteers who were not predisposed to Alzheimer’s disease. Meanwhile the brains of sedentary high-risk subjects appeared to be slipping, structurally toward dysfunction. http://well.blogs.nytimes.com/2014/07/02/can-exercise-reduce-alzheimers-risk/?_r=0
  • Regular exercise also helps those coping with the disease and their caregivers and research shows that fit patients and caregivers have far less anxiety, irritability and depression that those who did not work out. http://www.nbcnews.com/health/aging/better-treatment-alzheimers-exercise-n397461
  • Both yoga and meditation are ‘brain exercises’ that engage different parts of the brain through breathing, movement, changing, visualization and concentration. This forces the brain to develop new connections and stimulate neuroplasticity which prevents physical brain degradation. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • Chronic stress and related stress hormones could negatively affect brain structures important for memory and cognition, like the hippocampus. Chronic stress is also associated with inflammation in the body and in the central nervous system/brain that is linked to Alzheimer’s disease and other disorders of aging. Yoga can reduce stress hormones and inflammatory factors, and teach an individual over time how to cope more effectively and protect the body from going through the stress response. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • A 2013 study showed that as little as 15 minutes of daily meditation can significantly slow the progression of memory loss. Eight weeks after beginning a regular practice, participants had improved functional connectivity in the default mode network (ie the part of your brain that never shuts down) and slowed shrinkage of the hippocampus (ie the part of your brain responsible for memory which is affected by Alzheimer’s). http://www.prevention.com/health/brain-health/mindfulness-meditation-slows-progression-alzheimers-and-dementia

 

 

 

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Connecting in the Land of Dementia

Connecting in the Land of Dementia

on Alzheimer’s Speaks Radio  

Tuesday Sept. 13th, 2016

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London time

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Tuesday we will have Deborah Shouse a former family caregiver, Alzheimer’s advocates, writer, and performer. She has a passion for helping people find the gifts and blessings in the care partners’ journey through dementia. Deborah is the author of the Love in the Land of Dementia and the newly published Connecting in the Land of Dementia:Creative Activities to Explore Together.

Reach Deborah at:  DementiaJourney.org

Additional Resources

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You Might Be In Denial Or Burnt Out As A Care Partner If…

You Might Be In Denial

Or Burnt Out As A Care Partner If…

By Lori La Bey, founder of Alzheimer’s Speaks

Hi Everyone,

I wanted to apologize to anyone who was offended by the original title of this piece “You Might Be Demented If…”  Although I got many comments saying the article was right on, I only received one comment on the title which used the word “demented.”   I loved her honesty and willingness to raise awareness of how important our words are, which I am well aware of.

In fact, I struggled with what word(s) to choose… dementia, demented, losing it, going crazy…  I wanted this to be a takeoff of “You Might Be A Redneck…” by Jeff Foxworthy, to be lighthearted enough to be heard, yet hit home with a punch; and so I chose the word “demented.”  I was actually looking forward to having our community discuss the importance of words and their perceptions.  In fact, here are a couple of great resources on just that point:

Dementia alliance International

Dementia Action Alliance

Anyways, hear is the article with a new title.  I think it will still hit home and be shared by others which is the point of writing it in the first place, to raise awareness.  What I have learned is the shift to dementia friendly is taking hold even STRONGER than I thought which is wonderful!

Sometimes I wonder who has dementia, myself included.  As Care Partners we are the ones whose executive function is supposed to be intact.  We are the ones who are to be logical and understanding…   But I’ve found caregiver denial and caregiver burnout looks very much like dementia.  Here are some signs you might be a Care Partner in denial or burnt out!

You Might Be In Denial Or Burnt Out As A Care Partner If…

You call a person with dementia to remind them of an appointment and then wondered why they aren’t ready to go or miss the appointment… Because they have a memory problem!

You Might Be In Denial Or Burnt Out As A Care Partner If…

If you try to argue with a person with dementia…  Because you know darn well someone with a cognitive impairment can’t always process information logically.

  You Might Be In Denial Or Burnt Out As A Care Partner If…

You have given someone with dementia directions to the bathroom and found out later they got lost and had an accident and then got mad at the person…  Because you didn’t connect the dots that you may have been able to avoid that embarrassing situation for them and you by assisting them to the restroom.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You ask someone with dementia a complex question and then are surprised when they get angry or look at you with a blank stare…  When you know it’s best to break things down into 1 or 2 simple steps.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You snap at someone for repeating the same thing over and over… When you know it’s new to them each and every time!

You Might Be In Denial Or Burnt Out As A Care Partner If…

You finish a sentence for a person living with dementia because it was taking them way “TOO LONG” to state their thoughts and then were surprised when they either pull out of the conversation or got mad at you for seemingly no reason…  When we all know most people with dementia need a few extra seconds to process their thoughts.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You direct all your questions and comments to the Care Partner while ignoring the person with dementia and then wondered why the person with dementia becomes withdrawn and non-responsive…  Knowing that all people want to feel valued and validated, even those living with dementia.

 You Might Be In Denial Or Burnt Out As A Care Partner If…

You spoke to a person with memory loss in a loud tone and slow pace… Because apparently you can’t differentiate the difference between being hard of hearing and having dementia.

You Might Be In Denial Or Burnt Out As A Care Partner If…

You told someone with dementia they can’t drive anymore getting into a big fight with them…  As you held tight to not validating their feelings of loss of independence because you were totally focused on your own feelings of guilt and grief of the changes in your relationship.

Yes, sometimes I wonder who really has dementia… Don’t you?

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Sky Factory Offers Relaxation & Comfort

In A Variety Of Environments

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Join us today, Friday at: 2:00pm EST, 1:00pm CST, 12:00pm MST, 11:00am PST 

and 7:00pm London Time

Today we have Ray Ward from the Sky Factory, who will share this fabulous technology which creates a relaxing environment most anywhere.  Here from Deb Bland with Polar Ridge to her thoughts as a Marketing Director of an Assisted Living and Memory Care Community.

Reach Ray Ward Below:

rayw@skyfactory.com

641-919-5529(m)

641-472-1747 ext 211

Alzheimer’s Speaks Resource Website

alz_spks_programs_graphic_w_HNP_082115Alzheimer’s Team (Clinical Trials)

Alz team new ad home page 091515The New  Dementia Film “His Neighbor Phil”

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Alzheimer’s Speaks Radio – Interviews Cast and Crew of “His Neighbor Phil” A New Powerful Film On Life With Dementia

Alzheimer’s Speaks Radio

081115 ARS His Neighbor Phil

“As soon as I saw the film, His Neighbor Phil, I knew it had the unique ability to take the world by storm to change perceptions of dementia and help people and organizations create dementia-friendly families, communities and businesses.”  

Lori La Bey, Founder of Alzheimer’s Speaks

HNP_teaser_clipsClick Above to Watch this Teaser

Don’t miss the fascinating conversation about the new film soon to be launched which will play a significant role in shifting our dementia care culture.

For more details on the film, contact Lori La Bey.

top_sponsors_HNP_081115For Additional Resources on Dementia and Caregiving

Click Below

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Join a Clinical Trial

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Important Announcement – Dementia Chats Webinars Changes Time

Important Announcement 

Dementia Chats Webinars Changes Time

Copy of DC_HQ_062714_solidyellow1Click Above For General Information

The 2nd and 4th Tuesday of Each Month NOW AT:

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time.

Click Here To Directly Enter The Webinar

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For More Resources and Information on Dementia and Caregiving

Click Below 

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Alzheimer’s Speaks Radio – Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Alzheimer’s Speaks Radio -Tuesday June 23rd, 2015

11am EST, 10am CST, 9am MST,  8am PST and 4pm London Time

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Join Us to Discuss Dementia/Care Farms Plus The Author Of “Don’t Leave Yet”

Welcome to Alzheimer’s Speaks Radio.  We are thrilled you are going to join us. Please know on all of our shows we love to hear from our listeners. So feel free to call in or use the chat box to talk to us.

Today we have Maarten Fischer a Dutch Native who moved to Montana and will explain the concept of Dementia/Care Farms. Maarten has been involved in “Multifunctional Agriculture,” including “Care Farms.” In the Netherlands they are the largest sources of day programs with over 1500 farms empowering  30.000 clients on an annually.   Contact Maarten via:  Website or call  406-752-3697

Also joining the conversation will be Eilon Caspi Ph.D., Gerontologist & Dementia Behavior Specialist. Check his Website or his blog

Our second guest will be Constance Hanstedt author of “Don’t Leave Yet, How My Mother’s Alzheimer’s Opened My Heart,” which was named a finalist in the National Indie Excellence Awards for memoir. Contact Constance

Website        Facebook    

For More Resources on Dementia and Caregiving go to Alzheimer’s Speaks.

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No insurance is needed to participate.

Join The Purple Angel Project

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