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Making Caregiving Less Disruptive

Making Caregiving Less Disruptive

Alzheimer’s Speaks Radio

with Liz O’Donnell

2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Tuesday October 17th, 2017, Alzheimer’s Speaks Radio Host Lori La Bey will speak with Liz O’Donnell the author of Mogul, Mom & Maid: The Balancing Act of the Modern Woman.  Her book picks up where other business books leave off. Liz will discuss the impact caregiving can have on women, their careers and ways businesses can support those trying to balance both. Her website WorkingDaughter.com supports women who are balancing caring for an aging parent and their career. Liz is the founder of Rent-A-Sister, a company that provides support services to family caregivers. Join us for an interesting conversation and learn how to make caregiving less disruptive in your life.

Liz O’Donnell can be reached:

Blog WorkingDaughter.com

Phone:  617-433-8003

Twitter:  @LizOD

We Set Sail In 3 Weeks

Join Us!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Learn What the City of Roseville, MN

to be Dementia Friendly

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Host the Dementia Film “His Neighbor Phil”

 

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Stop Asking How Her Day Was

Stop Asking How Her Day Was

by Jennifer L. FitzPatrick

“How was your day, Mom?”  “What did you have for lunch, Uncle Jim?”  When a loved one with a dementia diagnosis resides in a nursing home or an assisted living community, caregivers often struggle during their visits. Well-meaning caregivers typically attempt to have a regular conversation with their older loved one, forgetting that this person no longer has the ability to reason or to control impulses, and often will not even remember who the visitor is.  This person with dementia also often misunderstands questions or is unable to articulate answers that make sense to the caregiver. Boredom and frustration result for both the caregiver and the person with dementia.

It’s essential for caregivers to embrace new ways of socializing during a nursing home or assisted living visit. Some television is fine, particularly if it is a show or movie that is in the patient’s long-term memory (think Gone with the Wind or Lawrence of Arabia for someone in their eighties or nineties). But to truly connect and engage the person with dementia, caregivers should embrace activity instead of conversation.

Many persons with advanced dementia, whether male or female, tend to most appreciate interaction and visits with others that are what I would call “dude-like.” While certainly not true of all boys and men, the vast majority of males in our society do not necessarily need to talk to each other to enjoy each other’s company. A woman often doesn’t get it when her husband goes to a baseball game with a buddy, and they never talk about that buddy’s impending divorce. The two men simply enjoy watching the baseball game together, and that is the way her husband is there for his buddy. Extensive conversation is not always necessary, nor is it always welcome. When trying to connect with your older loved one who has dementia, try to think of two dudes hanging out—no matter the gender of either party.

Often you are going to have the most satisfying experience with loved ones who have dementia when you do an activity with them rather than initiate a discussion. While persons with dementia may not be able to speak, they still might be able to sing. Music penetrates the long-term memory, and many persons with dementia can sing along, tap their feet, or even dance to an old favorite tune. (Think the Temptations’ “My Girl” or The Rolling stones’ “You Can’t Always get What You Want” for patients in their sixties or seventies.)

Try some art activities. If your older loved one knitted before she was diagnosed, maybe she still can. She also may be able to paint, draw or garden. If your older loved one enjoys animals, bring your dog to her nursing home or assisted living and let her pet Rover.  Go out for a walk and look at the fall foliage or enjoy the beautiful sunset together. Give Mom a manicure, massage her back or just hold her hand.  Listen to talk radio.  This can be a super activity for those older than 70 as listening to radio shows will be familiar in the long term memory. Sometimes just sitting together without the pressure of having to come up with questions or discussion topics can be very relaxing for you both.  It takes some getting used to, but eventually you will be more comfortable with silence.

Obviously there will be trial and error to see which activities your loved one responds to most favorably.  But typically an activity or spending quiet time together is going to be more satisfying for both of you than asking her how her day was.

Thanks for reading this excerpt of Cruising Through Caregiving: Reducing The Stress of Caring For Your Loved One by Jennifer L. FitzPatrick, MSW, LCSW-C, CSP!  The founder of Jenerations Health Education,  Jennifer is also an instructor at Johns Hopkins University’s Certificate on Aging program and has been an Education Consultant to the Alzheimer’s Association of Greater Maryland for a decade.  You can reach her at www.jenniferfitzpatrick.com.   To purchase Cruising Through Caregiving

 

Click Below & Follow The Radio ShowDementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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A New Perspective After Tragedy Hits – Dementia and the Golden Thread to Live Life Fully

Alzheimer’s Speaks Radio

with Kristiane Cates

A New Perspective After Tragedy Hits –

Dementia and the Golden Thread to Live Life Fully

Dementia: The Golden Thread to Live Life Fully

Thursday we are lucky to have the passionate and powerful speaker Kristiane Cates who is the Author of “The Golden Thread, A Memoir.”In the book you will hear her tragic story of how and when thirty seconds changed everything in her life.  Kristiane will share with us her journey with dementia and how her path to healing after her son’s death has helped her prepare for the effects dementia has had on her life. Her mission is to demonstrate brave, audacious grace when dealing with life’s challenges.

Contact Information For Kristiane Cates:

Website: KristianeCates.com          Twitter: @KristianeCates

InstaGram: Kristiane Cates              FaceBook: Kristiane Cates

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Today we discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

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Insights from Arthur’s

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Define What “Quality” Means to You

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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Dementia Poem – A ROSE IN THE SNOW

 

Another Gorgeous Poem About Dementia

By One Of Our Members

If you have something you would like to share contact us!

 A ROSE IN THE SNOW

Author – Alana LeClaire

 

His dazed, tired eyes were far away

in deep blue oceans where he once played

But the little girl beside him prays

that one day he will remember her name.

It seemed more certain for a rose

to bloom in ice cold winter snow

than for grandfather to recall the name

of a little girl who waits in faith.

We were all casting her hope away,

trying to help her “cope,”

to ease the pain of a little girl

who longs for a rose in the snow.

Then, one night, grandfather sat next to a window

that displayed a crescent moon.

He turned away his face from it

to look across the room.

He smiled at her,

She ran to him,

He gently caressed her face.

Then, he leaned over and in her ear

He slowly whispered her name.

Her smile was such

that its radiance

could now outshine the moon…

And somewhere on Earth,

on a snow-filled mountain,

a rose emerged in bloom.

 

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

I Don’t Endorse Products and Services Often,

But I Love This Company!

Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States.  The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three.  They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time.  I am so blessed to witness their work.  Kudos Arthur’s Residential Care!

Lori La Bey, founder of Alzheimer’s Speaks

 

Insights from Arthur’s – Here is One of Many Free Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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What’s New in Dementia?

What’s New in Dementia?

on Alzheimer’s Speaks Radio

050217 ASR 36 Hour day 2

Tuesday we have Peter Rabins, MD, MPH, who is the Author of “The 36-Hour Day.”  He is a professor of the practice in the Erickson School of Aging Management Services at the University of Maryland, Baltimore County. He was the founding director of the geriatric psychiatry program and the first holder of the Richman Family Professorship of Alzheimer Disease and Related Disorders in the Department of Psychiatry and Behavioral Sciences of the Johns Hopkins University School of Medicine.

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Contact Information For Dr Peter Rabin

https://jhupbooks.press.jhu.edu/content/36-hour-day 

www.Amazon.com

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Quick Tips For Alzheimer’s Caregivers

Quick Tips For Alzheimer’s Caregivers

on Alzheimer’s Speaks Radio

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Thursday, April 27th, 2017 

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Today we have Celia Koudele’s whose Mother, Grandmother, and an Aunt all died from Alzheimer’s.  She worked at the Alzheimer’s Association of Central and Western Kansas for 9 years as a Helpline Specialist. Celia is the author of, “The Little Book for Alzheimer’s Caregivers” to help other families based on her experiences.

Contact Information For Celia Koudele

Website: www.AlzCaregivers.net

Instagram: Alzcaregivers

Twitter: AlzheimersCaregivers

Facebook: www.Facebook.com/AlzheimersCaregivers.info

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Join Our Cruise filled with Hope and Fun!

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Join Lori La Bey at Move for Minds in Orange County, CA

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Man’s Best Friend Supports a Mother with Dementia

Alzheimer’s Speaks Radio Welcomes

Author, Michael Gordon Bennett

041117 ASR Graphic MicahelBennett Rustys War

Thursday we will have Author, Michael Gordon Bennett, of “Rusty’s War: A Battle of the Mind,” which tells the story of his mother’s battle with Alzheimer’s and how she’s come to depend on her dog for support.  Come join in and hear some helpful tips and lessons learned by a caring son.

Contact Information For

Website: www.michaelgordonbennett.com

Email: mcontact@michaelgordonbennett.com

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Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.  You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen, Paulan Gordon, Truthful Loving Kindness, Brian LeBlanc, Laurie Scherrer, Mary Howard, Susan Suchan and Harry Urban

For Additional Educational Videos Click Below

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Move4MindsBlogMARIA SHRIVER’S EXCITING EXPERIENCE

FOCUSED ON THE MIND-BODY CONNECTION

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Join Lori La Bey In Orange County

Can’t Make it?   Donate & help her raise funds for research.

Any and all donations are appreciated.

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