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Posts Tagged ‘Ann Campanella’

The AlzAuthors Share Their Stories

Alzheimer’s Speaks Radio

Visits with Five women From the AlzAuthors

Today we are lucky to have five women; Jean Lee, Ann Campanella, Kathryn Harrison, Marianne Sciucco and Vicki Tapia; who are part of the AlzAuthors, each will share their unique story with us and why they decided to join forces to assist others dealing with dementia.

Contact Info:

Jean Lee

Email:  jean@alzheimersdaughter.com

Twitter:  @JeanLee18

Blog – Alzheimer’s Daughter:   http://jeanllee.blogspot.com

Facebook:  https://www.facebook.com/AlzheimersDaughter

Ann Campanella

Website:  www.anncampanella.com

Blog:  https://fieldsofgrace22.wordpress.com/

Facebook:  https://www.facebook.com/anncampanella.author/

Twitter: @authorAnnC

Instagram: @horses_2nd_time_around

Kathryn Harrison

Website: weedsinnanasgarden.com

Email: kharrison@flipturnpublishing.com

Twitter: KathHarrisonArt

 

Marianne Sciucco

Email:  mariannesciucco@gmail.com

Vicki Tapia

Email: vicki.tapia@gmail.com

Facebook: facebook.com/SomebodyStoleMyIron

Twitter: @vicleetap

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

I Love This Company!

Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States.  The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three.  They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time.  I am so blessed to witness their work.  Kudos Arthur’s Residential Care!

Lori La Bey, founder of Alzheimer’s Speaks

 

Insights from Arthur’s

Here is One of Many Free Video Tips

Help Define What “Quality” Means to You

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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Dementia Film – Life Flows On & Author of Motherhood Lost & Found

Alzheimer’s Speaks Radio –

Live Tuesday August 5th, 2014

11am EST, 10am CST, 9am MST, 8am PST and 4pm London time

All shows are also archived for your convenience

080514_ASR_india_film_ann_campanellaClick Above To Go To The Show

Dementia Film

Vishaal Life flows on film posterOur first guest will be a film maker from India, Vishaal Nityanand, who is the Chairman at Cinematic Arts Productions.  His new film about Dementia, “Life Flows On,” will soon be released.  Find out how you can see this film and what drove Vishaal to do this project. You can contact Vishaal through his website.

Ann Campanella, Author of

Ann Campanella book frontcoverOur second guest will be Ann Campanella, Author of the memoir “Motherhood – Lost and Found,” which can be purchased on Amazon. Ann’s story is an interesting one.  It is the story of her mother’s descent into Alzheimer’s at the same time Ann was longing to become a mother herself.  Ann can be reached through the website.

For More Resources on Dementia and Caregiving

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An Excerpt From The Memoir Motherhood: Lost and Found

An Excerpt From

Motherhood: Lost and Found

By Ann Campanella

ann_campanella_at_her_farmAnn Campanella at her farm

Motherhood: Lost and Found tells the story of my mother’s descent into Alzheimer’s at the same time I was longing to become a mother myself. In this excerpt from the memoir, my mother’s behavior has become erratic and unpredictable, but she has not yet been diagnosed with Alzheimer’s. My brother has brought her to Charlotte, NC, where he and I live, so that we can take her to Duke University Medical Center to be evaluated. When Mom says she wants to go up the hill “to check on Odd,” she is referring to her younger brother who lives miles away at Lake George, NY.

Ann will be interviewed on Alzheimer’ s Speaks Radio August 5th.  Join us for the conversation.

Ann Campeanella with mom and daughterAnn with her Mother and Daughter

(From Motherhood: Lost and Found, p. 112-115)

Will and I drive my mother back and forth from his house to mine for a few days, until the end of the week, when I decide it’s easier to just keep her at my place. The changing of locations confuses her. Besides, I want to be here in case the doctor calls from Duke. Will and I have decided that as soon as we hear something, we’ll put her in the car and head to the hospital.

The sky is dark and overcast and the weatherman is predicting storms. Except for the few minutes when I run down to the barn to feed the horses, I feel utterly trapped. The worst thing is missing my writing groups. I help Mom bathe and brush her teeth. I help her put on her underwear and Depends. I direct her to the bathroom over and over. She refuses to wear diapers even though she has accidents several times a day. I’m drowning in wet clothes.

Is this what having a baby would be like? I’m caught between the grind of caring for her and the hope of one day having a child. How could I possibly do both? Will I have to give up one or the other? Questions surge through my body, making my stomach clench.

Mom is constantly agitated. I go upstairs to my room to read for half an hour. The entire time I hear my mother below me opening doors and closets, looking in drawers, opening the dishwasher, going in and out of the bathroom. I can’t concentrate enough to take in what I’m reading; her constant motion makes me nervous. Where is she going? What is she doing with my stuff? When I ask her what she’s looking for, she stares at me with a question in her eyes. “Uh, I’m not sure.” Then she goes back to opening drawers, closing them, opening doors, closing them. It’s as if her body still wants to do the things she’s always done – walk around the living room and the kitchen straightening up after my father, picking up his dishes from the table, throwing away old newspapers, folding laundry, putting things away. She can’t turn it off.

When I come downstairs I find Mom wearing my favorite grey sweatpants, a pair she gave me. Unlike garden variety sweats, these are tailored, with darts in the front. I wear them around the house, and they are nice enough to run errands in. They are my second skin in the winter. They must have been hanging in the laundry room. I can understand her confusion because she used to have an identical pair, just one size larger, but hers were lost over a year ago.

“Ann, I can’t believe I found these,” she says, smiling. Now that she has lost weight she fits easily into my clothes, although the waist band bulges a bit.

“Um, Mom, those are my pants,” I say, ashamed at how much I want to get her out of them. What if she has another accident?

Her smile begins to fade. “You mean they’re not mine?” She looks down at her legs.

“Remember, we both have a pair like that?”

She frowns. “But they look just like my pants. And they fit so well.”

I rummage in her suitcase for another outfit. The skirt she was wearing earlier is balled up and wet. “I think I need to do a load of laundry,” I say. “How ‘bout I wash those?”

“These? The ones I’m wearing?” She touches her fingers to her thighs. “They’re clean.”

I can’t believe her confusion ends when it comes to laundry. It would be so much easier if she was confused about everything. I pull out a pair of green pants from her suitcase. “They might look clean, but I think they have a spot on the back. Besides, these will match your top better.” I have resorted to lying. At this moment, there’s nothing more I want in this world than to get my pants back.

Mom hasn’t noticed that the front door is locked. But as soon as this thought crosses my mind, she walks down the hall and fiddles with the knob. “What’s this?” she says in an irritated voice. “Am I a prisoner?” Has she become telepathic?

“No, of course not, Mom,” I say soothingly. “I always keep the door locked when I’m home, just because I’m way out here in the woods. Of course you can go outside. Look, the key’s right here.” I unlock the door.

She is through it in an instant, saying, “I’m going up the hill to check on Odd.” Dark clouds gather above the trees and thunder rumbles in the distance.

“Mom,” I yell, “it’s starting to rain!” She ignores me and keeps walking down the driveway. For a moment, I wonder if she would be safe wandering on her own for a little while. It would give me a break and might take the edge off of her agitation. We have eleven acres. Surely she’d keep to the path and turn around when she realized it was raining. Even if she made it down to the road, there’s very little traffic. We have kind neighbors. Wouldn’t they bring her back or call me if she got into trouble? Maybe then she’d be ready for a nap. Part of me wishes desperately that someone would find her, just so I could share this madness. Joel’s been in New York for the week, and I haven’t been able to see my friends or talk in any detail with them on the phone since my mother arrived. Every minute of the day I’ve had to be with her, to keep my eye on her. I’ve never felt so alone.

My mother’s foot slips on the gravel and she teeters, but stays upright. I imagine her falling, breaking a hip.

“Mom!” I run after her and hook my arm in hers.

“Oh, hi, dear,” she says.

I turn my face up to the sky and squint as if I have just noticed the rain. It’s coming down in large drops and my hair is already soaked. I know I should be worried about her getting wet and sick, but at this moment it seems nothing will slow her down. Pneumonia might be a relief.

“Maybe we should turn around,” I say.

“Oh, but I want to go see my brother.”

I smile at my mother as lightning flashes over her head. “I’ll go with you after the rain stops. I promise.”

For more information on Ann, Click Here

To Order The Book Click Below

Ann Campanella book frontcoverJoin Author Ann Campanella and Lori La Bey

on Alzheimer’s Speaks Radio

Radio_HQ_062314_purple2  for radio show header 071114Click Above To Go To The Live August 5th, 2014 –

12pm EST, 11am CST, 10am MST, 9am PST and 5pm London time

or listen to the show later at your convenience.

For Additional Resources on

Dementia & Caregiving

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