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Posts Tagged ‘Alzheimer’s and Dementia’

New Caring and Coping Series During the Pandemic

Wednesday – Jan 6th, 2021 -2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 7th at 5am in Australia AET

Watch the Video Interview Below

Today our host Lori La Bey is proud to announce Alzheimer’s Speaks Radio has partnered with the Roseville Alzheimer’s and Dementia Community Action Team who provides resource information for caregivers and people living with dementia.  We will talk with Sara Barsel and Paula Biever about how community needs for support have increased during the pandemic. The “Dementia: Caring & Coping during the Pandemic” is a new series to inspire people to reach out to get support and to highlight services that are working during all the restriction so other organizations may duplicate them in their own areas.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Listen to the Interview Below

 Contact Roseville Alzheimer’s and Dementia Community Action Team

Website

Email

Sara Barsel      Email

Paula Biever Email

Radio Interview on Dementia Friendly Airports

Be Our Next Guest on Alzheimer’s Speaks Radio

Check Out Alzheimer’s Speaks Radio – All Shows are Archived.

“Stress, Dementia & Gratitude.”

Dementia Chats is a series of video conversations where we talk with the true experts on dementia, those living with a diagnosis. Lori La Bey, founder of Alzheimer’s Speaks facilitates a conversation and is amazed by every conversation what she learns about life with dementia. She encourages everyone not only to watch these videos, but to include those living with dementia in conversations and to listen closely to their insights. They know dementia better than anyone.

Learn more about Dementia here:  

https://www.alzheimersspeaks.com/dementia-chats-webinar

For a Complete List of Dementia Chats Videos – Click Here

Contact Lori La Bey with any questions via her website:

Register for a Live Demo Tour of Dementia Map on Zoom!

Take Advantage of the FREE Listing or the 50% Launch Discount on Paid Plans which Goes Away Soon!

Due to the great response we are getting to Dementia Map, we are making it easier for people to learn more about all the features of the site. We have set up group sessions for individuals and organizations to attend and learn more about how to maximize your exposure through Dementia Map.

Learn how and why this directory is critical to those living with dementia, their family & friends, as well as professionals in the industry.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial


Find A Memory Café In Your Area

2 FREE SERVICE OFFERS BELOW

We would love to here your thoughts and comments on this tip.

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

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Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

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Dementia Chats Webinar on Driving with Dementia

DC free web for sharecare

Driving with Dementia

Driving_with_demetia_on_dementia_chats_july_2013

Click Above to Watch

Note this is a prerecorded session this time and so you will not be able to actively participate in the discussion.

For more Information ad Resources on Dementia and Caregiving

Check Out Our Website Below

Alz Speaks multi logo_091113

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Music and Memory Project

Personalized Music Matters.  Please listen to this interview on WNYC’s SOUNDCHECK, Music & Memory social worker DAN COHEN joined host JOHN SCHAEFER to discuss the beneficial role music can play in elder care – particularly in Alzheimer’s and dementia patients.  Joined by ANN WYATT, Residential Care Policy & Strategy Consultant from the Alzheimer’s Association, they discussed the positive effects of personalized music for Alzheimer’s patients.

Click Here for RADIO INTERVIEW

Check out this video Alive Inside.  It is so amazing and more common than you might think!

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Life can be awful. Now it has gotten worse!

(Paraphrase of Woody Allen’s words and view of life)

 

Dr Richard Taylor

On Watching and Hearing the Wisdom of the new Federal Committee to write a plan to plan to write a plan (now to write a draft of a plan to plan  to write a plan) of how the Federal Government should lead/fund/Create the efforts of a few to “create a world without Alzheimer’s on or just before or after January 1, 2025…

I spent the last few days watching the self-anointed leaders of the Alzheimer’s crisis take a step backwards from their own promise (a plan to write a plan) and produce a framework of a plan to write a plan). And then spend a day telling each other the framework is not enough.

 

Finally I had to turn it off. Enough was/is enough. I commit to spend the remainder of my public life pointing out the fallacies, half-truths, myths, and stigmas these folks are creating and reinforcing out of one side of their mouths, while out of the other side comes their promise to undo what they persist in creating. Of course they can still suck through a straw in the middle of their mouths your support, donations, and prayers. And they can occasionally burp out a false hope or two every so often. We cannot let these foxes be the spokespersons for us. We cannot let them spend all our money on bench/cure research and relatively little on psychosocial research. We cannot let them decide for us who should the focus of their efforts and who can be ignored.It’s time for the chickens stand up and crow, to walk around a pick/peck. To be seen and heard.

 

Myths, half-truths, lies, and hoaxes are what we use as stand-ins to avoid thinking about specific individuals.  True we demonize some, we lionize others. We take pity on some, and worship others. Yet everyone is someone, distinctly different and fundamentally alike as you and I are with each other. But it is easier, safer to think of classes of human beings – by sex, race, ethnicity, disease groups, etc.

 

If we continue to buy the lie that Alzheimer’s Disease is sole cause of the public health crisis we are dooming more than another generation to feel “left out” of the dementia discussion, of the dementia research, of the dementia support (such as it is) provided by organizations and governments.

This is wrong, wrong, wrong.

 

 

If we continue to but the hoaxes, half-truths and myths promoted by organizations and researchers that all that is need is 13 more years, lots and lots more money spent quicker, and a committee or two to watch over the assured progress we are dooming the rest of the dementia community (those with a diagnosis of probably Alzheimer’s) to a life much emptier of quality, meaning, and joy while we wait for the clouds to part and the cure pill to come tumbling down on January 1, 2025.

 

This is wrong, wrong, wrong.

 

What are we goanna do for/about the increasingly bad state of life for 10 million Americans now living with some form of dementia, and 10 more millions of their care partners? What are the research priorities? Finding answers to today’s human problems, or making up a date when there will no longer be tomorrow’s problems.

 

Let us stop watching this happen. There is no plan, there is no science, and there is no growing consensus outside of a relatively small group of researchers, to find a cure on or near January 1, 2025.

 

Let us stand up and speak out. These emperors of Alzheimer’s are not the leaders who will address the dementia public health crisis. These emperors stand naked from their own inability to solve half or these of this 30-year-old crisis. They stand naked together and lacking little to no support from their scientific colleagues most of whom admit we are not even close to understanding Alzheimer’s/Dementia. Remember the findings of the NIH just last year/

Now comes a committee of the one eye (bench research) to proclaim “war on Alzheimer’s.” They even tell us the date the war will be over, if only we sacrifice the quality of life of those with it, so we can concentrate our energy, donations, money, prayers of finding a cure pill so no one else will ever get it and we can finally after all who now have it die, live in a world without Alzheimer’s (but of course still filled with the other fifty or so forms of dementia).

 

This is wrong, wrong, wrong.

 

They are declaring war, to the neglect of those who in whose name they want us to fight/donate. This war, as most wars comes down to power, influence, fame, and money. Though pure of motive in most of their minds and hearts, they have simply come to believe their own hoaxes, lies, half-truths, and stigmas. These in their twisted minds justify the war. The justify neglecting those in whose name the war is fraught, and write them off as collateral and relatively inexpensive casualties. This war is about opening up nursing home beds, saving Medicare, reducing the federal deficit. For these are the reasons/evidence they advance to justify the war. And, yes, there are occasional warnings of “this could happen to you if you don’t do and support what we ask/need. And who is the enemy? What is the enemy? Dementia? Alzheimer’s Disease? Stigmas and hoaxes? The symptoms of the poor, suffering, soulless, dying twice barely human beings who are living with the symptoms?

 

Be careful not to wound them while you shoot at their symptoms. Be careful not to demonize them with your neglect of their humanity, your weapons of war which may or may not slow down, reverse, eliminate, and/or destroy the symptoms – but then again the last 15 weapons (pills) we have developed have all failed, leaving broken hearts, broken half promises, crushed hopes in the minds and hearts of care partners and their partners

.

Please, please – For your own sake, the sakes of your family, and the rest of the world – stand up and speak out. We are quickly falling further and further behind in the race they created to capture the hearts, minds, and money of politicians and citizens. They first redefine the dementia crises with the words “The Alzheimer’s Crises.” And then they convinced others with power that they are suddenly smart enough to this time for sure truly claim the cure is just 13 years away with absolute certainty.

 

We all whispered to each other about how wrong this was. Wrote blogs, created petitions, made presentations to each other, fired off an occasional broad side via emails, and then we all went to bed. They have stayed up all night, running focus groups, reinforcing fears and stigmas, lobbying for 20 years for something that was “soon to come, light at the end of the tunnel, supported by breakthroughs. Claiming, now they know what to do, how to do it, they just lack a few pennies to support their efforts.

 

Now they spread false hopes, reinforce stigmas, state wishes as facts – all while under the all-knowing eyes of the Executive and Legislative branches of our government.

 

What is each of us going to do about out this? What are some of us going to do about this? What should all of us do about this?

 

You decide. I have.

 

Richard Taylor

 

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As a Speaker and Trainer myself I can honestly say Teepa Snow is one of my favorite instructors.  Watch this and you will see why.

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