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Archive for the ‘Young Onset Dementia’ Category

Open Mic Alzheimer’s Speaks Radio – How Are You Improving Dementia Care?

ThursdaySept. 22nd, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 23rd at 5am in Australia AET

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Click Below To Listen To The Radio Show

Join Alzheimer’s Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time.  We love raising all voices and delivering sounds news, not just sound bites!  So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties hold to having a respectful conversation.

Celebrate World’s Alzheimer’s Month With Us & Share Your Story

Join the Conversation 

Call In and Talk with us: 

323-870-4602

Share your personal dementia or caregiving story. Tell us about your service, product or tool you have which can help others dealing with dementia.  Have you written a book, penned or produced a song or film?  If so, we want to hear from you.  Maybe you are working on a research project or have a trial you are promoting.  Please call in and share your work with us.

Join the Conversation 

Call In and Talk with us: 

323-870-4602

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Talking with the Cast of the Play “The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s.”

Celebrate World’s Alzheimer’s Month – Share Your Story

ThursdaySept. 17th, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 18th at 5am in Australia AET

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Click Below To Listen To The Radio Show

Tune in and join the conversation Lori La Bey has with the cast of the incredible play, “The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s,” written by Reverend Dr. Jade Angelica.   

We hope you had an opportunity to listen to the play prior to this show. It aired on Spet 15th, 2020, and can be accessed any time. It’s a very powerful performance.  If you won’t able to listen to the play prior, that’s ok, you can go back and listen the play afterwards. 

The cast will share their thoughts about the play, what they learned about dementia in the process and more.  We would love for our audience to call in and tell us your thoughts about the play as well. 

Join the Conversation 

Call In and Talk with us: 

323-870-4602

Contact Jade Angelica for Information about the Play by Email 

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Listen to the Audio Play – The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s

Celebrate World’s Alzheimer’s Month – Share Your Story

TuesdaySept. 15th, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 16th at 5am in Australia AET

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Click Below To Listen To The Radio Show

Lori La Bey and Reverend Dr. Jade Angelica talk about the audio play she wrote called The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s. The play will be airing in full (90 Minutes) in todays show after Jade sets it’s up.  The inspiration for the play came from Jade caring for her mother, Jeanne, who died from Alzheimer’s in 2011. 

THE PLAY STARTS 26 MINUTES INTO THE SHOW

You will want to mark your calendars to join us on September 17th, 2020 at the same time as we are going to do a talk back with some of the cast of the audio play The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s. and your invited to join the conversation too! We encourage our listeners to call in and share their thoughts and experiences of listening to the audio play.  

Contact Jade Angelica for Information about the Play by Email 

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Open Mic – Families Impacted By Covid

Celebrate World’s Alzheimer’s Month – Share Your Story

ThursdaySept 10th, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 11th at 5am in Australia AET

Click Below To Listen To The Radio Show

Call in and talk with us:  323-870-4602

Lori La Bey invites families who have been forced to deal with the impact of Covid 19 like the rest of us, but in addition have been carrying for families members with dementia. 

Donald & Rita

Some are living in a community setting which has limited families from seeing their loved ones or how and when they can interact with them in order to prevent the spread of Covid.  Others have found they are on their own at home with little to no support to care for their loved one. 

Doris & Loretta

We would love for you to call in and share your stories and ideas to improve our system. 

Mary & Jim

Call in and talk with us:  323-870-4602

Virginia & John

Communities and service providers are welcome to call in as well, with the focus of the conversation being the impact on families and those living with dementia. We would love to hear what you have done and how you are pivoting to meet new regulations.

What have you seen that is working well and what isn’t working and why. 

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Take the Survey – Help Explore the Effects of Covid on Caring

Celebrate World’s Alzheimer’s Month – Share Your Story

The A List is committed to learning how you are coping over time and what issues are problematic as the COVID-19 pandemic drags on. Today they are asksing you to take Survey 6 in their COVID-19 What Matters Most series.

This survey asks about a new crop of issues that you may be managing or are problematic as we go into the fall. For example, do you have a safe “bubble” of family and friends you are comfortable gathering with now? What is your opinion on a possible vaccine, and would you want it if available? Are you concerned about voting safely? What other emerging issues concern you?

Take the Survey

You will also notice some of the same questions we’ve asked before. This means we can learn how you and other A-LISTERS are doing over time. Thank you for your trust, your time, and support.

Meryl Comer
A-LIST Founder and 24-year AD Caregiver

Please Feel Free To Share The Survey With Others

Join Alzheimer’s Speaks Radio to share your personal Covid Story of Caring for those Dementia on Thursday Sept 10th at 2pm ET, 1pm CT, 12pm MT and 11am PT.

Click the graphic below for more information.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Book: Love Doesn’t Care If You Forget

Celebrate World’s Alzheimer’s Month – Share Your Story

TuesdayAug 8th, 2020 2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 9th at 5am in Australia AET

Click Above To Listen To The Radio Show

Lori La Bey talks with Brianne Grebil, author ofLove Doesn’t Care If You Forget.” Join our conversation on finding deep love and eternal hope through the struggles of Alzheimer’s disease. Being able to reach that point on your journey with dementia changes everything.  Learn how Brianne got there and how she wants to help you find that place of peace too.  Get ready to curl up, listen and learn!

Call in and talk with us – 323-870-4602

Contact Brianne Grebil   

 Facebook   

Instagram      

Purchase book at Website or Amazon 

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Together We Saved The Alzheimer’s Stamp

#StampOutAlzheimers

Kathy Siggins and Lynda Everman are thrilled to share the welcome news that, thanks to YOUR advocacy, the US Postal Service has reinstated sales of the Alzheimer’s Disease Research Semipostal Stamp effective October 5, 2020:  https://about.usps.com/newsroom/national-releases/2020/0904-alzheimer-semipostal-fundraising-stamp-returning.htm

Before it was withdrawn in November 2019, over 8.2 million stamps were sold raising $1,061,777 for NIH supported research to advance better treatments, prevention, and cure of Alzheimer’s and related dementias. 

We’re grateful to all who took the time to advocate for this program. The document published in the Federal Register calling for comments to the proposed provisions governing the Discretionary Semipostal Stamp Program clearly noted that the impetus for continuing sales came from caring individuals and organizations in the Alzheimer’s community and our allies in Congress who were unwilling to see almost 492 million stamps needlessly destroyed.

Today’s announcement is a favorable milestone in a multi-year effort by Kathy and me. Kathy has championed this since 1999, leading the charge for the original Alzheimer’s commemorative stamp that was released in 2008 with these words from then Postmaster General John Potter: “With the Alzheimer’s Awareness commemorative stamp, we’ll ask Americans to use the power of mail to raise awareness about this tragic disease. We hope to draw attention to the causes of the disease, the impact it has on individuals, caregivers and society, and how research may eventually lead to treatments that prevent or halt the progression of the disease.”

With today’s announcement, we hope for this and more. Because it is a semipostal, it will raise awareness and critical research funds. Using the Alzheimer’s stamp honors the memory of those whom we’ve lost and signals our support for those still facing the challenges of this most difficult disease.

On a personal note, I imagine most of us have experienced the power of a handwritten card or letter to express support in times of personal distress and comfort in times of grief. I often think of my late husband Richard who, at the end of his life, resided in an assisted living community. He had a dear friend who frequently sent him a card or a short note. These got tucked in the pockets of Richard’s shirts and pants and were pulled out to be read again and again. With each reading he felt remembered, loved, and affirmed.  It was a simple, yet powerful gift, that a decade later I still remember with deep gratitude. With this reissue, we all have the opportunity to reach out in a similar way to someone needing encouragement and can now post it with a fundraising Alzheimer’s semipostal stamp.

Please continue to buy it, use it, gift it, and promote it to help #StampOutAlzheimers!

Purchase Your Stamps:

at: local post office

or online at: usps.com 

Beginning October 5th! 

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

A Poem Honoring A Father With Dementia

Celebrate World’s Alzheimer’s Month – Share Your Story

They call me Ernie

I guess that’s my name

I think they’re talking to me

Sorry my mind plays a game

I’m sitting here dying

And I don’t even know

My loved ones praying

They don’t want me to go

The love of my life

Is Darlene my wife

She gives me hugs and kisses

Tells me this is what she misses

My heart has a lot to say

Even if my mouth won’t make a sound

My mind won’t even tell me the day

My mind is foggy, or maybe just a cloud

I am a Marine

My boys, we were a team

We went over seas

Uncle Sam we tried to please

As I pray to God above

My heart is full of love

Know my love for you is the same

Even if I don’t know your name

I’m waiting for GOD to take me

My soul will fly free

Please don’t say sorry

Or give a worry

My brain is gone

But my heart pounds on

I’ll watch over you

Our love still feels brand new

No need to wave goodbye

For one day, I’ll see you

And say hi…..

Laura Hallbauer wrote this poem for and about her father living with dementia.

Click Above To Listen To The Radio Show

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Sarah Ashton – Part 2 of Her Dementia Story

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Watch Part 2 of the Interview Below

In Case You Missed Part 1

Click Below To Listen To The Radio Show

Lori La Bey founder of Alzheimer’s Speaks Radio talks with Sarah Ashton was diagnosed with early onset dementia at the age of 57. At that time, Sarah was working as a senior district manager for New South Wales Health in the Mid North Coast. Her position responsibilities included District Management for Accreditation, Risk Management Consumer Advocacy and Legislative Compliance.

Overnight, Sarah lost her job and most of her friends as her diagnosis became known. For the past few years, Sarah has been working as an advocate for Dementia Australia. She also sits on the National Dementia Advisory Council.

Contact Sarah Ashton

Email: SarahAAshton@BigPond.com or sesashton1@yahoo.com

Phone: 61-0468-635-816

FaceBook: Joining the Dots for Dementia

Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

Sarah Ashton on Diagnosis, Disruption, and Finding New Purpose

Thursday – Sept. 3rd, 2020 – 2pm ET, 1pm CT, 12pm MT, 11am PT & 6pm London, 8pm South Africa and on the 28th at 5am in Australia AET

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Watch Part 1 of the Interview Below

Watch Part 2 of the Interview Below

Click Below To Listen To The Radio Show

Lori La Bey founder of Alzheimer’s Speaks Radio talks with Sarah Ashton was diagnosed with early onset dementia at the age of 57. At that time, Sarah was working as a senior district manager for New South Wales Health in the Mid North Coast. Her position responsibilities included District Management for Accreditation, Risk Management Consumer Advocacy and Legislative Compliance.

Overnight, Sarah lost her job and most of her friends as her diagnosis became known. For the past few years, Sarah has been working as an advocate for Dementia Australia. She also sits on the National Dementia Advisory Council.

Contact Sarah Ashton

Email: SarahAAshton@BigPond.com or sesashton1@yahoo.com

Phone: 61-0468-635-816

FaceBook: Joining the Dots for Dementia

Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.

You or a loved one may be eligible for the study if you:

Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.

Accepting Dementia in Your Life

2 FREE SERVICE OFFERS BELOW

For a Complete List of Dementia Chats Videos – Click Here

We would love to here your thoughts and comments on this tip.

See What Others Have Say About Lori La Bey

I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!

Carla Koehl, Director of Community RelationsArtis Senior Living of Lexington

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Gains Alzheimer's Trail - Premiere on Alzheimer's Speaks YouTube Channel

Read Full Post »

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