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Archive for the ‘The Purple Angel Project forAlzheimer’s & Dementia’ Category

Tips to Living with and Working with Dementia in a Dignified Manor

Alzheimer’s Speaks Radio with

Cindy Bock – Dignified Dementia Coach

Oct 10th – 2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Cindy Bock, Dignified Dementia Coach is a nationally certified therapeutic recreation specialist, healthcare speaker, educator, trainer and dementia specialist for over 25 years. She demonstrates exemplary compassion and understanding of the cognitive and behavioral challenges of the aging process, especially those with dementia. Cindy utilizes a dignified approach to strengthen each individual’s remaining cognitive and physical abilities through structured wellness programs, to maintain their highest level of functioning.  Join us for a great conversation.

Call in with your questions or comments as we talk live. 323-870-4602

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Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Learn What the City of Roseville, MN

to be Dementia Friendly

Click Below to Download the Tips

Insights from Arthur’s 

Here is One of Many Free Tips

 

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Selfcare: Stress, Empathy & Sympathy

Alzheimer’s Speaks Radio

Selfcare: Stress, Empathy & Sympathy

with Dr. Arthur P. Ciaramicoli

Today Dr. Arthur P. Ciaramicoli, a licensed clinical psychologist joins us.  He has been treating clients for more than 35 years. He has been on the faculty of Harvard Medical School for several years, Chief Psychologist at Metrowest Medical Center, and director of the Metrowest Counseling Center and of the Alternative Medicine division of Metrowest Wellness Center in Framingham, Massachusetts. Dr. Ciaramicoli has written numerous books and has appeared on national TV shows like CNN, Fox News Boston, Good Morning America Weekend, The O’Reilly Report, and other shows.  His latest book, The Stress Solution: Using Empathy and Cognitive Behavioral Therapy to Reduce Anxiety and Develop Resilience was recently published in China.

Contact Information for Dr. Ciaramicoli:

Book: “The Stress Solution”

Website

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Film Director Kevin O’Neill Discusses Dementia

Alzheimer’s Speaks Radio

with Film Director Kevin O’Neill

Today we are lucky to have Kevin O’Neill who worked in television and film on shows like “Dr. Quinn Medicine Woman”, “Beverly Hills 90121″and “Highway to Heaven.” Kevin’s thirty-year background in acting has made him a strong director with actors. He has written and directed several short films, “Clark”, “Captain Fin”, “Lean”, Perception and “Undertaking.” “Undertaking” starred Los Angeles veteran Eddie Jemison.

Kevin’s short films have toured the film festival circuit winning ten grand jury awards. He has written four feature scripts “Thundersmack”, “Trestles”, “Undertaking” and “The Flamingo Kids”. Kevin has been a Course Director at Full Sail University where he has taught directing for over ten years. He has taught acting classes for the last twenty years in the Orlando area. In 2014 Kevin won two Bronze Telly Awards for his role in Online How To/ Instructional and Internet/Online Education videos.

Contact Information For Kevin O’Neill

FACEBOOK  https://www.facebook.com/KevinJamesONeill

TWITTER  https://twitter.com/KevinONeill5

OLIVE RANCH ROAD PRODUCTIONS  http://www.oliveranchroadproductions.com        

     The Impact of Humor and Laughter

when Living with Dementia

We discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

We Still Have Room on the

Dementia Cruise of Compassion & Camaraderie

Join Us!

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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Children Discuss a Parent or Grandparent Having Dementia

We Love When People Send Us Great Videos

Thank You Roger Santos!      

              The Impact of Humor and Laughter

when Living with Dementia

We discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

Join Us – We Still Have Room on the

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Click Below to Download the Tips

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

Read Full Post »

Dementia Poem – A ROSE IN THE SNOW

 

Another Gorgeous Poem About Dementia

By One Of Our Members

If you have something you would like to share contact us!

 A ROSE IN THE SNOW

Author – Alana LeClaire

 

His dazed, tired eyes were far away

in deep blue oceans where he once played

But the little girl beside him prays

that one day he will remember her name.

It seemed more certain for a rose

to bloom in ice cold winter snow

than for grandfather to recall the name

of a little girl who waits in faith.

We were all casting her hope away,

trying to help her “cope,”

to ease the pain of a little girl

who longs for a rose in the snow.

Then, one night, grandfather sat next to a window

that displayed a crescent moon.

He turned away his face from it

to look across the room.

He smiled at her,

She ran to him,

He gently caressed her face.

Then, he leaned over and in her ear

He slowly whispered her name.

Her smile was such

that its radiance

could now outshine the moon…

And somewhere on Earth,

on a snow-filled mountain,

a rose emerged in bloom.

 

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

I Don’t Endorse Products and Services Often,

But I Love This Company!

Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States.  The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three.  They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time.  I am so blessed to witness their work.  Kudos Arthur’s Residential Care!

Lori La Bey, founder of Alzheimer’s Speaks

 

Insights from Arthur’s – Here is One of Many Free Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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One of My Favorite Residential Homes for Dementia

I Don’t Endorse Products and Services Often,

But I Love This Company!

Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States.  The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three.  They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time.  I am so blessed to witness their work.  Kudos Arthur’s Residential Care!

Lori La Bey, founder of Alzheimer’s Speaks

 

Insights from Arthur’s – Here is One of Many Free Tips

 

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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The Authors of Living with Dying Share Their Stories & Insights

Alzheimer’s Speaks Radio Talk with

the Authors of “Living with Dying”

As They Share Their Stories & Insights

Thursday, August 24th we are lucky to have Authors Jahnna Beecham and Katie Ortlip, who wrote the book “Living with Dying.”  Join us as these two women share their friendship and love of life as well as their compassion for death.  They will teach us the lessons they learned on their journeyed

Contact Information For Jahnna Beecham and Katie Ortlip:

Website: http://livingwithdying.com/

Facebook: https://www.facebook.com/livingwithdyingbook/

Twitter: https://twitter.com/guideforcare

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward- Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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