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Archive for the ‘Robert Bowles of Dementia Chats’ Category

The Struggles & Gifts of Long-Distance Caregiving

Alzheimer’s Speaks Radio with

Author, Lisa Hirsch on the

Struggles & Joys of Long-Distance Caregiving

Tuesday June 12th, 2018 at 2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London

Listen By Clicking Below

Author Lisa Hirsch joins Alzheimer’s Speaks Radio Host, Lori La Bey to discuss long-distance caregiving.  Like many care partners, Lisa’s mother was diagnosed with Alzheimer’s disease. The two will discuss Lisa’s 14-year journey with her Mother and how illness transformed their relationship. Lisa’s love and admiration for her Mother grew each day as she listened and watched her Mother become her hero.

Contact Info Lisa Hirsch

Her International blog with over 250,000 viewers:  http://mommyhero.blogspot.com/

 

Lisa’s 2 Books are available on Amazon Worldwide in Kindle, Paperback & Audio:

https://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=lisa+hirsch  

other_int_and_projct

June 9th, 2018 – Over 200 people packed the room to hear Cyndy Luzinski and

Lori La Bey speak on living graciously with dementia.

Dementia-Friendly Communities of Northern Colorado is a local nonprofit organization which provides life enrichment opportunities (including memory cafes), care partner support, and dementia-friendly business education. We exist so that no one walking the dementia journey has to walk alone.

Website:  http://dementiafriendlycommunitiesnoco.org/

 

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Hospice – The “H” Word. Let’s Have a Discussion. What Are Your Thoughts?

Alzheimer’s Speaks Radio Talks with

Tina Ketchie Stearns

Listen Below

Or Watch Below

Lori La Bey, host of Alzheimer’s Speaks Radio will have a down to earth conversation with Tina Ketchie Stearns about the “H Word,” Hospice.  They will discuss why the hospice ribbon say “It’s About How You LIVE.”  We think you will find this a very interesting topic and one that has a lot of myths and stigma attached to it.

Contact Tina Ketchie Stearns

Email –  tina@itsabouthowyoulive.com

Websitehttps://www.itsabouthowyoulive.com/

Phone – 336-655-0200

 

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Poetry: The Long Goodbye

Here is another poem from one of our members, Joanne Souvercaze.

The Long Goodbye

By: Joanne Souvercaze        

 

Aging is honorable, a distinguished experience that we are blessed to experience

Age brings wisdom, age creates a lifetime of experiences surrounded by love, faith, family and friends

Creating memories that are beautiful, significant, extraordinary yet some are sad and difficult

Life is not perfection, it is living and embracing each moment we are given

Sadly for some, time becomes less memorable, less distinguished, more debilitating, for those whom are diagnosed with dementia (in our father case…Lewy Body dementia)

An experience so debilitating, disabling and difficult for all loved ones involved

Dementia for many, can be difficult to accept

As time goes on, so goes the mind

 

So says the one who has been diagnosed….

I don’t believe I have this condition called dementia, for I feel fine

They say I do, but I won’t accept it, not for sometime

Eventually I will have no choice, for I will have no knowledge of this thing called dementia and will be forced to accept what I do not know

They begin to take away my privileges, for why, I don’t understand

Is it because I now see images

I cannot drive is what they say, but I believe I can, I don’t understand

As said the father whom was diagnosed

As time goes on, so goes the mind

 

I knew you and loved you in days past, I know you and love you today, but tomorrow for I may not know your name or remember how much I loved thee

I cannot comprehend my thoughts

confused and scared each day

I want to fix this thing they say

that makes me so confused each day

I did not sign up for this I vow

just take me to the doctor now

My pride is gone and all my rights

I feel alone, misunderstood and oh so frightened

As said the father whom was diagnosed

As time goes on, so goes the mind

 

I need to go to where I know, for I feel this is not my home

Why do they keep me locked up here, for when my home is oh so near

I try to walk, they bring me back, they don’t understand…. I am a man

They say I must, this is my home, I do not care too, I have no say

I reached an age where I was free, free to choose my own way, but now….no more

I’m oh so tired watching these people, so many exhaust me, for I just need rest

All I ask is peace and quiet, and please remove these unwanted guest

Take me back to the home I remember, so I can stay forever, until my dying day

As said the father whom was diagnosed

As time goes on, so goes the mind

 

As time passes so do my precious memories, of my loved ones near and far,

for soon I won’t know who you are

I knew and loved you yesterday, somewhat today, for tomorrow I may not know your name

I yearn to have my family near, yet when they are…I oh so fear,  and push them far away, for the confusion is overwhelming

These strangers once I knew and loved, but now I know no more

Although this disease may have defeated, my love for you is ever eternal

Please know how much you meant to me, for when I forgot you, you were kind to me. And at those times I fought with thee, you never ever gave up on me

Deep in my heart my love for you, will always be, will always stay, until my dying day, until that last heartfelt beat

As time goes on, so goes the mind

 

Near the end I ask of you, are you my son are you my daughter, yes you answer, then that is why you so kind to me, please forever remember I loved all of thee

The end is near, although I may fear, I will be eternally with my dear wife once more, for that is where I want to go

And when I pass I pray you know, how deeply I loved you all, then, now and through eternal life my darling children

As time goes on, so goes the mind

 

Looking for a Speaker?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

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Meal Planning Help When Caring For Another

Alzheimer’s Speaks Radio with

Meal Planner,  Sara Scholtens

Lori La Bey, Founder and Host of Alzheimer’s Speaks Radio will talk with Sara Scholtens about meal planning when caring for another. She knows she has been a care partner for her father and what got her interested in meal planning for her own family and others. Learn how it can save you time, money and improve your health.  Get some paper and a pen to take notes!

 

Reach Sara Scholtens via:

Phone:  612-310-7630
Facebook: www.facebook.com/Plan.Eat.Be.Well.With.Sara/
Website:  www.mywildtree.com/Sara-Scholtens

 

Looking for a Speaker?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips

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A Brain Healthy Lifestyle with Dr. Paul Nussbaum

Alzheimer’s Speaks Radio Dives into

a Brain Healthy Lifestyle with

Dr. Paul Nussbaum

 Tuesday, April 17th, 2018 –

2pm EST, 1pm CST, 12pm MST, 11am PST, 7pm London

Alzheimer’s Speaks Radio Host, Lori La Bey is thrilled to have Dr. Paul Nussbaum back on the show again!  She knows Dr. Nussbaum always delivers great information using everyday language to help our listeners live a better life. Today they will talk about what is exactly is Brain Health, why it’s important with steps to apply.

Dr. Nussbaum is an international leader in Brain Health and Brain Health Lifestyle ®. He has 30 years experience in the care of adults and older persons suffering dementia, head injury, and many neuropsychiatric disorders.  He is Founder of the Brain Health Center, which provides independent medical examinations, neuropsychological assessments, and case management for those suffering neurological and neurobehavioral disorders. The Center also serves as the epicenter for Dr. Nussbaum’s Brain Health Lifestyle ®.

Join the conversation by calling in.   (323) 870-4602

Contact Information for Dr. Paul Nussbaum

                            Phone:  724-719-2833                               

 Email                                    Twitter: @brainhealthlife

Check Out Additional Resources from Alzheimer’s Speaks

 

 

Looking for a Speaker?

See what LeadingAge has to say

about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips

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The Imapct of Dementia on Spouses & Care Partners

Have You Ever Wondered What Impact Dementia Has on Spouses

& Care Partners?

Today we Discussed: How Spouses and Care Partners are Impacted by Dementia This is a very interesting conversation which covers the good, bad, ugly and indifference that can impact spouses and Care Partners of those diagnosed with dementia. You will hear practical every day occurrences which will help you not only understand the disease better but give you some ideas on conversations to have, ways to engage and support both Care Partners and those they are caring for.

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012. You can see archived videos by clicking on the Dementia Chats logo above or by visiting our YouTube Channel.

A big “Thank You” to our experts living with dementia: Michael Ellenbogen, Bob Savage, Truthful Loving Kindness, Laurie Scherrer, Craig Hanke and Paulan Gordon.

Brought To You and Facilitated By Lori La Bey, Founder of Alzheimer’s Speaks ad Dementia Chats.   

Looking for a Keynoter or Consultant?

See what LeadingAge has to say about Lori La Bey.

 “Feedback from the conference planning committee and our leadership team was extremely positive. 

Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Meet Lori La Bey in March

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Great News From UsAgainstAlzheimers.Org

 Great News From UsAgainstAlzheimers.Org

I’m writing to be sure you saw this exciting news about new Alzheimer’s legislation that was introduced in Congress yesterday. The Concentrating on High Value Alzheimer’s Needs to Get to an End [CHANGE] Act, developed by Senators Shelley Moore Capito (R-WV), Roger Wicker (R-MS), Debbie Stabenow (D-MI), and Bob Menendez (D-NJ) and Representatives Peter Roskam (R-IL) and Linda Sanchez (D-CA), is a bipartisan bill crafted to help support the millions of families affected by Alzheimer’s. UsAgainstAlzheimer’s has worked closely with the bill’s co-sponsors to conceptualize and develop this legislation.

The CHANGE Act encourages timely and accurate assessment, detection and diagnosis of Alzheimer’s, supports innovative approaches to support family caregivers, and removes regulatory barriers to disease modifying treatments. Read more about this exciting news here.

I encourage you to click here to email your Senators and Representative and ask them to cosponsor the CHANGE ActAnd please feel free to use the below tweets and blurbs for Twitter, Facebook, and any other social media platform you use.

Thank you and we look forward to working with you to advance this critical legislation for the Alzheimer’s community.

 

Want To Help Spread The News

Use the Social Media

Samples Below:

Organizational Handles: 

@UsAgainstAlz

@WomenAgstAlz

@vradenburg3

@UsA2_Latinos

@FaithAgainstAlz

@LEAD_Coalition

Congressional Handles:

@SenCapito

@stabenow

@PeterRoskam

@RepLindaSanchez

@SenatorWicker

@SenatorMenendez

 

 

Hashtag: #CHANGEAlznow

Twitter

It’s time for CHANGE in Alzheimer’s policy. We applaud @SenCapito @stabenow @PeterRoskam @RepLindaSanchez @SenatorWicker @SenatorMenendez for recognizing this. We are one step closer to stopping #alz @usagainstalz #CHANGEAlznow https://goo.gl/k6BwuW

We and @usagainstalz support CHANGE to #stopalz. The CHANGE Act represents a new way of thinking around diagnosis of #Alzheimers and support #caregivers. Thank you to our representatives for pushing this important issue forward. #CHANGEAlznow https://goo.gl/k6BwuW

RT to support CHANGE in #Alzheimers! @PeterRoskam and @RepLindaSanchez have taken the lead in supporting policy to overcome barriers in Alzheimer’s disease. We stand with @usagainstalz to #CHANGEAlznow! https://goo.gl/k6BwuW

@SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez are helping CHANGE the approach to #Alzheimers. TY for being part of the ‘us’ in @UsAgainstAlz https://goo.gl/k6BwuW #CHANGEAlznow

It will take CHANGE to #stopalz. Thanks to our representatives, we are transforming the approach to diagnosis, care, and a cure in #Alzheimers. Let’s collectively work to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW

CHANGE is in the air on Capitol Hill! TY @SenCapito, @stabenow, @PeterRoskam, @RepLindaSanchez, @SenatorWicker, @SenatorMenendez for your dedication to #CHANGEAlznow @usagainstalz https://goo.gl/k6BwuW

Facebook

The only way we’ll stop Alzheimer’s is by fighting this disease on every front. That’s why we’re proud to support the CHANGE Act, introduced in Congress this week. This groundbreaking legislation encourages timely diagnosis, promotes innovative approaches to supporting family care partners and removes regulatory barriers to disease-modifying treatments. Read more here: https://www.usagainstalzheimers.org/press/usagainstalzheimers-endorses-change-act

This week, the CHANGE Act was introduced in Congress. This legislation will help individuals with Alzheimer’s receive timely and accurate assessment, detection and diagnosis. Furthermore, the bill supports innovative approaches to support family caregivers, and removes regulatory barriers to disease-modifying treatments. Together, we can turn this bill into reality! Let your Senators and Representatives know that you support CHANGE by signing the petition here: https://actions.usagainstalzheimers.org/p/dia/action4/common/public/?action_KEY=21470&email= caitlin.pratt@annelewisllc.com&ask=15&amounts=15,25,50,100,250,500&track=20180207-nd

We fully support the Concentrating on High-Value Alzheimer’s Needs to Get to an End (CHANGE) Act. This bill will transform the approach to diagnosis, care, and cure of Alzheimer’s, and benefit millions of families. We are spreading the word on this important issue and educating the public about the legislation. Learn more about the bill and join the conversation here: https://goo.gl/k6BwuW. The more voices that join in, the faster we can achieve change – and stop Alzheimer’s.

 

Meet Lori La Bey in March

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