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Archive for the ‘Robert Bowles of Dementia Chats’ Category

Dementia – Research – Advocacy & Families

Alzheimer’s Speaks Radio

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Host Lori La Bey talks with Meryl Comer, Co-founder of Women Against Alzheimer’s, A-List team member and co-principal investigator for the PCORI Alzheimer’s Patient/Caregiver Powered Research Network (AD-PCPRN)  and Joan M. Griffin, Associate Professor of Health Sciences Research at the Mayo Clinic. Call in and join the convervsation on research and support.

Contact Information:

  A-LIST on UsAgainstAlzheimer’s       A-LIST Facebook          A-List YouTube   Join the A-List        

Joan M Griffin Email     

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonials https://youtu.be/oQILeOcQYN0

Video Interviews with Those Living with Dementia
Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Find A Memory Café In Your Area

Programming starts Feb. 17th, 2019 – Preview Below

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Powerful Poem Titled “They”

Once again, one of our community members writes a beautiful poem which points out just how much our words matter. Thank you Bob Savage!

A note from Bob Savage who is living with dementia –

Inspiration came from a recent national conference workshop that I attended where staff from a dementia care facility described what they are doing to improve communication with the people living in their facility. They used “THEY” at least 15 times when referring to the people living in their facility during their presentation. Each time they used the word “THEY” my stomach would cringe.

 THEY

By Bob Savage

 Who are these people who after one word we call them THEY

Did they have any choice as to why we call them THEY

Sometimes just one word (DEMENTIA) is why their THEY

Is a person any different after Dementia Diagnosed as THEY

We still love, hate, think, enjoy, cry, be depressed after THEY

We still love our family, friends, have enemies after THEY

We still love movies, parties, vacations, traveling after THEY

We still have emotional upsets, anger, frustrations after THEY

We do not like the loss of independence after THEY

We do not like the loss of social contact after THEY

We do not like people deciding and speaking for us after THEY

We do not like being a burden to those we love after THEY

We like to continue to speak for ourselves after our THEY

We like to be involved in all our decisions after our THEY

We like to set up new social contacts others after our THEY

We like to be accepted in our communities after our THEY

© of Bob Savage Living with Dementia 2018

If you would like to submit your poetry about dementia and caregiving make sure to include: The title of the piece Your by-line including your name as the author of the piece and any background or contact information you would like to share. Contact us  

See Other Poems Here

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See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Learn How Pain, Falls & Sleep Can Effect Dementia

Join Alzheimer’s Speaks Radio Thursday – December 20th

              2pm EST, 1pm CST, 12pm MST, 11am PST and 7pm London                  

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Lori La Bey, host of Alzheimer’s Speaks Radio interviews Cathy Ciolek is president of Living Well With Dementia, LLC.,  which provides education and consultation to promote well-being and positive expectations for people with dementia.  Today they will talk on how to recognize pain in people with dementia, fall prevention and challenges of those who have balance issues, along with how sleep patterns can effect dementia.

Contact Cathy Ciolek at:

Website:     www.livingwellwithdementiallc.com 

Email:          cciolek@livingwellwithdementiallc.com

Phone:        302-753-9725

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development      LeadingAge WA

For More Testimonials

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Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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Art Therapy – Elevating Dementia Care

Join Alzheimer’s Speaks Radio for a Great Conversation

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Lori La Bey, host of Alzheimer’s Speaks Radio will talk with Jael Weinberg, an Art Therapist who incorporates the creative process in many forms into her therapeutic work with residents at Aegis Living’s all memory care community, Callahan House. Today we will learn what art therapy is, how it is different from the typical arts and crafts most of us do and what the benefits are from art therapy.

I think you will learn a few new things Like I did that might just change your perception of art used as a form of therapy. We will discuss group sessions to one on ones, how emotions are released and created, as well as how energy levels can be adjusted all while building confidence and social engagement.

Contact Information for Jael Weinberg

Email:     Jael.weinberg@aegisliving.com

Phone:    206-452-0285

Website:  https://www.aegisliving.com

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development – LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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In Honor of Susan Suchan

One voice that has been significantly missed this past year is Susan Suchan.  She lived her life fully even when diagnosed with dementia. We continue to celebrate her birthday and the love, compassion and dear friendship she brought into our lives.

Through Death,

Our Connection Remains

It was an honor to work with Susan on Dementia Chats.  Her insights were brilliant and her laughter contagious.

A few of us gathered to honor what would have been Susan’s 62nd birthday.  Please watch and feel free to share Susan’s life and the impact she had on others.  Remember each one of us have the opportunity to lift and inspire others by sharing our authentic self with one another, just as Susan did.


For poems by Mary Radnofsky read on the above video Click Below: https://www.alzheimersspeaks.com/images/Poetry/2_poems_mary_R_about_susan_suchan.pd

To see Truthful’s blog on Susan Click Below: https://truthfulkindness.com/memoriam/susan-suchan/

You never knew what would happen next….

A Bit More About Susan

Susan Suchan was the mother of two grown daughters and five beautiful grandchildren. She was a nurse for 23 years and was diagnosed with Early Onset Alzheimer’s Disease (EOAD) at the age of 48; an additional diagnosis of Frontotemporal dementia(FTD)/Primary Progressive Aphasia (PPA). Susan advocated for and about the “lived experience”, working to change perceptions, stigma and help bring to life, and the realness of her disease process. She has had the opportunity to speak Nationally and locally. Susan was awaiting the release of a documentary featuring her life, showing the effects on friends and family relationships, finances and end of life discussions. The film is called, “Susan’s Story” and is still in need of funds to complete.

Here Are Some of Our Dementia Chats Sessions Featuring Susan

Help Make “Susan’s Story” a Documentary, a Reality 

In honor of what would have been Susan Suchan’s 62nd birthday, her family and the producers of the documentary, invite you to help complete the film.  The documentary is in post-production and the final $125,000 is still needed to complete the film. 

Please contact Russ Kirkpatrick, the Producer/Director of the film, if you have questions or would like to make a contribution. Tax deductible contributions can be made to one of two 501(c)(3) organizations associated with the film. 

Contact information: russ@kkp.film

Link to the trailer of Susan’s Story: https://vimeo.com/302739507

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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The King and The Pawn – A Poem a Families Dementia Journey

Another Beautiful Poem

Submitted By A Community Member

 

The King and The Pawn

  by Carol Brown

The King and The Pawn
The roles have now reversed as you
became the parent and I
became the child.

When you entered my space then
It became the games that people
play, or the games that
you and I played from
day to day.

My mindset became your mindset
for we were now one. My thoughts became your thoughts,
we thought like one.

My footsteps became your footsteps
as you followed me.

My world became your world
however difficult it might be.

When I roamed the house, you roamed
the house walking besides me,
watching my every footstep while protecting me.

When I crawled under the Baby Grand
Piano you followed me, removing me
from a dangerous place where I thought
we could play the game of hide and seek.

 

At night time, sleep was only a fallacy,

for this was the best time to roam the house
while you were asleep.

Climbing 13 stairs to get to
my “palace” on the second
floor, and locking myself
In the bedroom closet where I could
call for help through the closet door.

Returning down stairs, to a house
that was pitch black,
I would continue my mission to
steal popsicles from the refrigerator for my delight.

When I attempted to flee the house
against your advice, you changed the
locks on the doors and hid my
shoes to stop my flight.

When I was hospitalized and placed in
restraint, you advised medical staff
Of what I would do, but they
failed to listen and found me
down the hall, in a patient’s
room, hiding in the bathroom shower stall.

From 1994 until 2008 and
for fourteen years, with our brains
boggled and lives modified
to an arduous way of life,
My footsteps became
your footsteps as we roamed the
house together and played games my way .

Yes, I did it my way and you did
what I’d say.

” Doggone your time” is what I would say, for
having Alzhemier’s is a game,
a Chess Game that you,
(The Pawn)
and I
(The King)
played from day to day.

 

 Author Carol Brown,

Retired Probation Officer and Caretaker of my Father for 14 years

 

Thank you Carol for sharing your journey with us.

Lori La Bey, Founder of Alzheimer’s Speaks

 

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips



 

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Open Mic on Alzheimer’s Speaks Radio – Mark Your Calendar & Join Us!

Alzheimer’s Speaks Radio

Open Mic – Elder Abuse

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Lori La Bey, host of Alzheimer’s Speaks is joined on Open Mic with Cate Lau-Booth, Harry Urban, Craig Hanke and Kelley Horton.

All topics related to dementia and caregiving are welcome. 

We feel everyone’s input is valuable to shift our dementia care from crisis to comfort.  If you are living with a form of dementia or have symptoms, those that care or have cared for a loved one or are professional care partner, business professionals making a difference, authors, singers and song writers, film makers, advocates, politicians, family and friends of those with dementia…  Everyone is welcome to give insights, state needs they see and support to others as long as it is in a respectful fashion.  We look forward to hearing from you.

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Today our Dementia Chats Experts, those diagnosed and living with cognitive impairment, discuss what they would like to see their communities provide them to show they are truly a “Dementia Friendly Business or Communities.”  You will find great tips for businesses and communities to consider.

Our experts today are: Michael Ellenbogen, Laurie Scherrer, Bob Savage and Truthful Loving Kindness. Lori La Bey, founder of Alzheimer’s Speaks facilitates the conversation. Lori can be reached at or visit Alzheimer’s Speaks website.

Voices of Those Diagnosed with Dementia

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners both family and friends as well as professionals and advocates. Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

For More Dementia Chats Videos 

Join Lori La Bey and Aegis Living

Register for the FREE Film Screening


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Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below to Download the Tips

Push Research Forward – Join the A-List

What Matters Most: Cognitive Self Assessment


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