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Archive for the ‘Person CenteredCare’ Category

They Are Here! 2017 Move For Minds – Power Panel Videos

They Are Here!

2017 Move For Minds –

Power Panel Videos

Maria Shriver and Equinox Sports Clubs joined together in this one-of-a-kind fundraising event benefiting the Women’s Alzheimer’s Movement in its mission to fund research that will wipe out this mind blowing disease.  Participants were able to experience a unique mind-body workout class, an exclusive marketplace with brain healthy snacks, and an engaging panel discussion featuring superstars of brain research, fitness, nutrition and more. Get involved for 2018! moveforminds.org.

I can’t wait to see what Maria lines up for next year!

Check out the video below and get great information.

For those of you that follow me, as per your request I have pulled together my segments for you, so you can take a quick peak, but please when you have time listen to all of this panels.

The videos are loaded with great information

 

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Mom’s Not Acting Herself Today. Now what?

Mom’s Not Acting Herself Today.

Now what?

A new book helps family caregivers

know what to do.

Imagine this scenario: You are caring for your 83-year-old mother with Alzheimer’s, and she wakes one morning seeming ‘not herself’. She’s slower to get out of bed, seems more confused than usual, and barely eats her breakfast. She’s unable to tell you that anything is wrong.

Thousands of caregivers for persons with memory problems face similar situations each day: the person they care for is different, and they need to figure out what to do. Situations like this can be stressful and anxiety provoking. Here are a few questions the above caregiver may have:

“What can these symptoms possibly mean?”

“How can I tell if these symptoms are urgent?”

“If I want to phone someone for advice, what information should I have on hand?”

“What can I try at home to help my mother feel better?”

“What changes in her condition should I watch out for that would make me want to seek medical care?”

A new book from experts at the University of North Carolina at Chapel Hill and Duke University seeks to help caregivers answer these types of questions and more. The Alzheimer’s Medical Advisor: A Caregiver’s Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia (Sunrise River Press, 2017) is a comprehensive, evidence-based resource covering information on over 50 issues, from medical problems like abdominal pain, vomiting, or cough, to behavior or activity changes that may be associated with an illness, like increasing anxiety, worsening confusion, and not eating or drinking well. It encourages caregivers to be informed and prepared, providing basic symptom facts, information on urgent symptoms and complications, and practical tips for taking care of the person at home.

Richly illustrated and easy to read, the book is different from your typical ‘medical reference guide’, because people with cognitive problems often have different ways of expressing illness, can be difficult to transport for doctor’s visits, and may not want to follow doctor’s orders. Indeed, caregivers have a lot to juggle and consider; so, The Alzheimer’s Medical Advisor provides a great go-to reference to be used either as new problems arise or to prepare the caregiver in advance.

Now, imagine that you’re the same caregiver as above, but you have this book at your bedside. You have read the information on how to take vital signs, and so you measure them, and are reassured that they are normal. You are also alert to the signs of dehydration, including weakness and confusion, and decide to follow the home care tips to encourage your mother to drink more.

As you talk with the doctor’s office, you’re able to tell them the information they most want to know.  You’ll likely get better advice from the doctor’s office, know what questions to ask, and may even save yourself a trip to the doctor.

The book also provides information on many other health care related topics that most caregivers for someone with cognitive problems will eventually face, such as:

“How can I help the person I care for to take the medicines they need?”

“How can I find a good primary care provider, home care aide, or nursing home?”

“How can I make a hospitalization or surgery less stressful?”

“How can I take care of my health and safety while I’m helping someone else?”

“How can I prepare for the advanced stages of dementia?”

“How can I keep medical information organized?”

To find the answers to these questions and more, you can purchase The Alzheimer’s Medical Advisor: A Caregiver’s Guide to Common Medical and Behavioral Signs and Symptoms in Persons with Dementia from major retailers like Barnes & Noble and Amazon, and from the Sunrise River Press website.

Listen to a great conversation with Dr Sloane! 

Contact Information For Dr. Philip Sloane:

Address:  Department of Family Medicine,

University of North Carolina,

Chapel Hill, North Carolina,  27599-7595

Email:      Philip_Sloane@med.unc.edu  

Dementia Friendly Cruise –

Find Out What All the Excitement Is About!

Watch The Short Video Below

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Check  Out The Additional Resources

for Those Dealing with Dementia

Click Below And Get Involved – 

Only 3 simple Question

Color Your Mind by Maria Shriver

“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners.  I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”

~  Lori La Bey, founder of Alzheimer’s Speaks

 

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Find a Memory Cafe & Get Great FREE Resources For Dementia

 

Find a Memory Cafe & Get Resources

We all know having a wealth of appropriate resources available to us when looking for caregiving answers is critically important. The more options you have available to you, the better you can make caregiving decisions for your loved one.

Through our KalendarKards Memory Support System, Memory Joggers, and Memory Cafe Directory, we’re very proud to be one key source of support. However, we wanted to share even more, and today we’re focusing on resources to assist Memory Cafes.

Here at KalendarKards, we often say we provide “comfort and confidence” through the use of our System. Who better with whom to work on this resource-sharing effort than someone who strives to move us from “crisis to comfort?”

Read More to Get Resources

Dementia Friendly Cruise –

Find Out What All the Excitement Is About!

Watch The Short Video Below

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below And Get Involved- 

Only 3 simple Question

Color Your Mind by Maria Shriver

“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners.  I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”

~  Lori La Bey, founder of Alzheimer’s Speaks

 

 

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A Beautiful Poem About Alzheimer’s

Alzheimers 

By Paula Allen 

 

Down by the sea

on this beautiful day

Brings back memories

of my friend far away.

 

He became a fireman,

and later a nurse

Never thinking his studies

would bring him face to face

with the Alzheimer’s curse.

 

This disease that attacks the brain

was like a mirage that left me in doubt

and he in pain.

 

He got his degree and followed his dream,

Moved upstate by a running stream.

 

As a male nurse he was in great demand

The nursing home in town he worked

with compassionate command.

 

Such sorrow,

sadness he witnessed.

The alzheimer’s patients endure

Knowing there was to be no cure.

 

Years have passed and I received a note.

He had moved to a little hamlet  on

Long Island he wrote.

 

Retirement has come, if only I can.

Enjoy the long-term plan.

 

He used the phrase in the beginning

They’ve got me in the loop and I want to let go,

It was like a spider spinning his web in his head,

oh so slow

 

My kindhearted friend suffered with hallucinations,

confusion and sadness each morning,

The helplessness I felt

as the new day was dawning.

 

The compassionate nurse has now become

the patient, so filled with fear.

Is this the end of my retirement year?

 

Near the end he asked me to pray,

That someone, somewhere would find the cure someday.

 

Thank you Paula. We so appreciate you taking the time share your poem and heart with our community.

Dementia Friendly Cruise –

Find Out What All the Excitement Is About!

Watch The Short Video Below

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below And Get Involved- 

Only 3 simple Question

Color Your Mind by Maria Shriver

“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners.  I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”

~  Lori La Bey, founder of Alzheimer’s Speaks

 

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The SHARE Program: Support, Health, Activities, Resources and Education

 Alzheimer’s Speaks Radio

The SHARE Program:

Support, Health, Activities, Resources and Education  

Thursday we will have Carol Whitlatch, Assistant Director of Research & Education and Senior Research Scientist at the Benjamin Rose Institute on Aging with us.  For over 25 years, Dr. Whitlatch studied a variety of topics related to family caregiving including: developing and evaluating intervention programs including the SHARE program (Support, Health, Activities, Resources and Education) which she will talk to us about today.  Join the conversation!

Contact Information For Carol Whitlatch:

www.benrose.org/share

216.373.1693

share@benrose.org

Learn how you can host a screening and talk back of “His Neighbor Phil.”

 

 

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Hug a Father – Let Them Know They Are Appreciated

Hug a Father – Let Them Know They Are Appreciated

Throughout my life my Dad was a very special man, not just to our family but so many.  The stories friends would tell me later in life about how my Dad made them feel part of our family when they felt lost and alone in their own family.

My Dad allowed us all to dream, supporting us to go after our goals, never doubting our capabilities.

Dad was quick with a smile and a joke.

He was always there to help a friend or stranger.

He cared for my Mother with dementia and lead by example.

Dad had strong family values to the end.

I so miss my Father, but yet the lessons he taught through kindness will forever be with me.

May ever child have a man like my Father in their life.

We must all respect and know deep in our hearts being a Father just like being a Mother; isn’t just a biological thing.

Being a Father is about being a good person in heart and soul.

We all need good Father role models at all ages and stages of life.

So with great love and deep appreciation I say,

“Happy Father’s Day” to all the wonderful men out there.

Learn how you can host a screening and talk back of “His Neighbor Phil.”

 

 

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Life with Dementia. What is it Really Like?

 Life with Dementia.  What is it Really Like?

on Alzheimer’s Speaks Radio

Today we are lucky to have Brian Van Buren is a 66 year old black gay man living in Charlotte NC., who was diagnosed with vascular dementia and later Early Onset Alzheimer’s in 2015. Come listen and learn from his journey with dementia.

Contact Information For Brian Van Buren:

Email:  brpvb@aol.com

Learn how you can host a screening and talk back of “His Neighbor Phil.”

What a great success Move for Minds was on June 4th!

Thank you Maria Shriver for you passion to improve dementia awareness, education and research.

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