Thursday – Sept. 22nd, 2020 –2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 23rd at 5am in Australia AET
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Click Below To Listen To The Radio Show
Join Alzheimer’s Speaks Radio today on Open Mic as we shift dementia care from crisis to comfort around the world one episode at a time. We love raising all voices and delivering sounds news, not just sound bites! So, we invite you to call in and tell us how you are improving dementia care. We just ask all parties hold to having a respectful conversation.
Celebrate World’s Alzheimer’s Month With Us & Share Your Story
Join the Conversation
Call In and Talk with us:
323-870-4602
Share your personal dementia or caregiving story. Tell us about your service, product or tool you have which can help others dealing with dementia. Have you written a book, penned or produced a song or film? If so, we want to hear from you. Maybe you are working on a research project or have a trial you are promoting. Please call in and share your work with us.
Join the Conversation
Call In and Talk with us:
323-870-4602
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Celebrate World’s Alzheimer’s Month – Share Your Story
Thursday – Sept. 17th, 2020 –2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 18th at 5am in Australia AET
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Click Below To Listen To The Radio Show
Tune in and join the conversation Lori La Bey has with the cast of the incredible play, “The Forgiving & The Forgetting: Hope and Healing for Alzheimer’s,” written by Reverend Dr. Jade Angelica.
We hope you had an opportunity to listen to the play prior to this show. It aired on Spet 15th, 2020, and can be accessed any time. It’s a very powerful performance. If you won’t able to listen to the play prior, that’s ok, you can go back and listen the play afterwards.
The cast will share their thoughts about the play, what they learned about dementia in the process and more. We would love for our audience to call in and tell us your thoughts about the play as well.
Join the Conversation
Call In and Talk with us:
323-870-4602
Contact Jade Angelica for Information about the Play byEmail
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Celebrate World’s Alzheimer’s Month – Share Your Story
Another heartfelt prose from John Sweeney one of our community members. John’s honesty will touch anyone who reads his words below. The heartache and love that holds us together when dementia hits someone we love.
My Heartbreaking Journey with Alzheimer’s – A Caregiver’s Lament
At my 80th birthday party, with the family gathering in fall of 2009,
Family noticed Virginia’s memory problem they couldn’t define,
Our daughters had made observations that they brought to my attention,
Concluded that Mom had memory issues, they were reticent to mention,
Things for which I was very unaware, because of my closeness to her,
I had missed many of the little indicators that would frequently occur,
But the family had seen the signs, to them they were in plain view,
After that I started to watch, sadly as I came to see them too,
Signs of forgetfulness seem to display more often than before,
Observations, painful to me, seem to be recurring more and more,
One painful example, she urgently called to my attention one day,
Her husband would be at the airport soon, we needed to be underway,
She needed to go to the bathroom while at a family affair,
“That young gal here is going to take me and show me where”,
It was a granddaughter that she loved so much in days of yore,
So very painfully sad that my love didn’t know her anymore,
Our daughters had come to visit with us at our apartment one day,
She called me aside whispering to me, sadly I heard her say,
“Who are those two ladies we were talking with out there?”
Fear shook through my frame as I became very much aware,
Slowly realizing I was losing the woman I had loved over 60 years,
This terrible disease, Alzheimer’s, was filling me with many fears,
It seemed now was time to explore with specialist in neurology,
At what point in this heartbreaking path now do we seem to be,
The Doctor set up an appointment with Neuro technicians for a brain scan,
From there he would have what was needed for a treatment plan,
With an aviator’s style head gear with contacts and wires everywhere,
It looked like a swim cap, the kind that Esther Williams used to wear,
The diagnosis stung when the description of the problem was read,
And I was shockingly informed with news that I had come to dread,
Alzheimer’s was the diagnosis, more news that hurt to the core,
For I had read many of the outcomes of this terrible disease before,
My mind raced, thoughts buzzed violently in my aged head,
As I contemplated what sorrow, pain and anxieties lay ahead,
As time passed, terrible anxieties burdened the love of my life,
It pained me greatly to see the stress in her, my beloved wife,
“We need to call my parents or grandmother so they hear from me!”
Her parents passed in the 1940s and her grandmother in 1953,
She would panic, searching, the “baby” was nowhere in sight,
A horrible feeling, sobbing kept awake in the middle of the night,
It soon became apparent, caring for her was beyond my ability,
Painfully searching, at this point what could the answer be,
After counsel with all the family, we all soon became aware,
The best solution for her well being was a room in Memory Care,
As I filled out the application, with my eyes filled with tears,
I realized we would be separated for the first time in 70 years,
She moved to memory care in the month of January 2019,
More evidence of cognitive regression was gradually seen,
One of the most painful experiences not noticed before,
That most of the time, she doesn’t know who I am anymore,
But with everything we have lost, and how our lives are stressed,
I remember fondly my 70 years with her, I have been blessed.
By John Sweeney – John lives in an Independent Living apartment in Cherrywood Pointe of Roseville, MN. His wife Virginia is in Memory Care in the same facility.
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Celebrate World’s Alzheimer’s Month – Share Your Story
Thursday – Sept 10th, 2020 –2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 11th at 5am in Australia AET
Click Below To Listen To The Radio Show
Call in and talk with us: 323-870-4602
Lori La Bey invites families who have been forced to deal with the impact of Covid 19 like the rest of us, but in addition have been carrying for families members with dementia.
Donald & Rita
Some are living in a community setting which has limited families from seeing their loved ones or how and when they can interact with them in order to prevent the spread of Covid. Others have found they are on their own at home with little to no support to care for their loved one.
Doris & Loretta
We would love for you to call in and share your stories and ideas to improve our system.
Mary & Jim
Call in and talk with us: 323-870-4602
Virginia & John
Communities and service providers are welcome to call in as well, with the focus of the conversation being the impact on families and those living with dementia. We would love to hear what you have done and how you are pivoting to meet new regulations.
What have you seen that is working well and what isn’t working and why.
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
This survey asks about a new crop of issues that you may be managing or are problematic as we go into the fall. For example, do you have a safe “bubble” of family and friends you are comfortable gathering with now? What is your opinion on a possible vaccine, and would you want it if available? Are you concerned about voting safely? What other emerging issues concern you?
You will also notice some of the same questions we’ve asked before. This means we can learn how you and other A-LISTERS are doing over time. Thank you for your trust, your time, and support.
Meryl Comer A-LIST Founder and 24-year AD Caregiver
Please Feel Free To Share The Survey With Others
Join Alzheimer’s Speaks Radio to share your personal Covid Story of Caring for those Dementia on Thursday Sept 10th at 2pm ET, 1pm CT, 12pm MT and 11am PT.
Click the graphic below for more information.
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Celebrate World’s Alzheimer’s Month – Share Your Story
Tuesday – Aug 8th, 2020 –2pm EST, 1pm CST, 12pm MST, 11am PST & 6pm London, 8pm South Africa and on the 9th at 5am in Australia AET
Click Above To Listen To The Radio Show
Lori La Bey talks with Brianne Grebil, author of “Love Doesn’t Care If You Forget.” Join our conversation on finding deep love and eternal hope through the struggles of Alzheimer’s disease. Being able to reach that point on your journey with dementia changes everything. Learn how Brianne got there and how she wants to help you find that place of peace too. Get ready to curl up, listen and learn!
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Before it was withdrawn in November 2019, over 8.2 million stamps were sold raising $1,061,777 for NIH supported research to advance better treatments, prevention, and cure of Alzheimer’s and related dementias.
We’re grateful to all who took the time to advocate for this program. The document published in the Federal Register calling for comments to the proposed provisions governing the Discretionary Semipostal Stamp Program clearly noted that the impetus for continuing sales came from caring individuals and organizations in the Alzheimer’s community and our allies in Congress who were unwilling to see almost 492 million stamps needlessly destroyed.
Today’s announcement is a favorable milestone in a multi-year effort by Kathy and me. Kathy has championed this since 1999, leading the charge for the original Alzheimer’s commemorative stamp that was released in 2008 with these words from then Postmaster General John Potter: “With the Alzheimer’s Awareness commemorative stamp, we’ll ask Americans to use the power of mail to raise awareness about this tragic disease. We hope to draw attention to the causes of the disease, the impact it has on individuals, caregivers and society, and how research may eventually lead to treatments that prevent or halt the progression of the disease.”
With today’s announcement, we hope for this and more. Because it is a semipostal, it will raise awareness and critical research funds. Using the Alzheimer’s stamp honors the memory of those whom we’ve lost and signals our support for those still facing the challenges of this most difficult disease.
On a personal note, I imagine most of us have experienced the power of a handwritten card or letter to express support in times of personal distress and comfort in times of grief. I often think of my late husband Richard who, at the end of his life, resided in an assisted living community. He had a dear friend who frequently sent him a card or a short note. These got tucked in the pockets of Richard’s shirts and pants and were pulled out to be read again and again. With each reading he felt remembered, loved, and affirmed. It was a simple, yet powerful gift, that a decade later I still remember with deep gratitude. With this reissue, we all have the opportunity to reach out in a similar way to someone needing encouragement and can now post it with a fundraising Alzheimer’s semipostal stamp.
Please continue to buy it, use it, gift it, and promote it to help #StampOutAlzheimers!
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Celebrate World’s Alzheimer’s Month – Share Your Story
They call me Ernie
I guess that’s my name
I think they’re talking to me
Sorry my mind plays a game
I’m sitting here dying
And I don’t even know
My loved ones praying
They don’t want me to go
The love of my life
Is Darlene my wife
She gives me hugs and kisses
Tells me this is what she misses
My heart has a lot to say
Even if my mouth won’t make a sound
My mind won’t even tell me the day
My mind is foggy, or maybe just a cloud
I am a Marine
My boys, we were a team
We went over seas
Uncle Sam we tried to please
As I pray to God above
My heart is full of love
Know my love for you is the same
Even if I don’t know your name
I’m waiting for GOD to take me
My soul will fly free
Please don’t say sorry
Or give a worry
My brain is gone
But my heart pounds on
I’ll watch over you
Our love still feels brand new
No need to wave goodbye
For one day, I’ll see you
And say hi…..
Laura Hallbauer wrote this poem for and about her father living with dementia.
Click Above To Listen To The Radio Show
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Watch Part 2 of the Interview Below
In Case You Missed Part 1
Click Below To Listen To The Radio Show
Lori La Bey founder of Alzheimer’s Speaks Radio talks with Sarah Ashton was diagnosed with early onset dementia at the age of 57. At that time, Sarah was working as a senior district manager for New South Wales Health in the Mid North Coast. Her position responsibilities included District Management for Accreditation, Risk Management Consumer Advocacy and Legislative Compliance.
Overnight, Sarah lost her job and most of her friends as her diagnosis became known. For the past few years, Sarah has been working as an advocate for Dementia Australia. She also sits on the National Dementia Advisory Council.
Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Thursday – Sept. 3rd, 2020– 2pm ET, 1pm CT, 12pm MT, 11am PT & 6pm London, 8pm South Africa and on the 28th at 5am in Australia AET
Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.
Watch Part 1 of the Interview Below
Watch Part 2 of the Interview Below
Click Below To Listen To The Radio Show
Lori La Bey founder of Alzheimer’s Speaks Radio talks with Sarah Ashton was diagnosed with early onset dementia at the age of 57. At that time, Sarah was working as a senior district manager for New South Wales Health in the Mid North Coast. Her position responsibilities included District Management for Accreditation, Risk Management Consumer Advocacy and Legislative Compliance.
Overnight, Sarah lost her job and most of her friends as her diagnosis became known. For the past few years, Sarah has been working as an advocate for Dementia Australia. She also sits on the National Dementia Advisory Council.
Support Alzheimer’s Speaks work by Downloading the Song “Clarion Call” by the Mark Arneson Band featuring Mia Dorr on your favorite msuic APP.
You or a loved one may be eligible for the study if you:
Lori La Bey Can Help Your Organization Switch To Virtual Presentations For Staff Trainings, Family Support, Perspective Clients and Support Gatherings.
Accepting Dementia in Your Life
2 FREE SERVICE OFFERS BELOW
For a Complete List of Dementia Chats Videos – Click Here
We would love to here your thoughts and comments on this tip.
See What Others Have Say About Lori La Bey
I want to echo the thanks and appreciation of my colleagues… Your presentations were movingly authentic, fully engaging and wonderfully informative. Thank you for all that you are doing, and all that you’ve done for us!
Carla Koehl, Director of Community Relations – Artis Senior Living of Lexington
“Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.”
Pat Sylvia, Director of Education & Member Development LeadingAge WA
Alzheimer's Speaks believes working together and sharing knowledge is the best way to win the battle against this disease. Please explore the site and share your thoughts.
