Feeds:
Posts
Comments

Archive for the ‘Passionate Care’ Category

Fantastic Changes To Accommodate Dementia-Friendly Air Travel

Listen Live or Listen at Your Convenience Tuesday – March 28th, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 29th at 6am in Australia AEDT

Watch This Powerful Interview Below

Our Host, Lori La Bey will be talking about Dementia Friendly Airports & Travel.  My guests are Sara Barsel and Deborah Shouse, both longtime friends, and colleagues.

Sara Barsel is the founder and organizer of the Dementia-Friendly Airports Working Group (2018 – present) and the Roseville, Minnesota’s Alzheimer’s & Dementia Community Action Team (2013 – present).

Deborah Shouse is a writer and editor and co-founder of Dementia Friendly Kansas City. She is the author of Love in the Land of Dementia Finding Hope in the Caregiver’s Journey and Connecting in the Land of Dementia Creative Activities to Explore Together.

Make Sure To Watch The Training Videos Below!

Click The Graphic Below To Listen To This Powerful Interview

Sarsel

Website Dementia Friendly Airport Working Group (DFAWG)

https://www.dementiafriendlyairports.com/

Email 

https://www.dementiafriendlyairports.com/contact-us.html

What is a dementia-friendly airport?

https://www.dementiafriendlyairports.com/what-is-a-dementia-friendly-airport.html 

Tools for becoming a dementia-friendly airport

https://www.dementiafriendlyairports.com/tools-for-becoming-a-dementia-friendly-airport.html

Resources for Travel 

https://www.dementiafriendlyairports.com/resources-for-travel.html

Training Videos for Families & Airport Staff Brought to you by the collaboration of the Dementia-Friendly Airports Working Group, Teepa Snow’s Positive Approach to Care®, and Charlotte Douglas International Airport.

https://www.dementiafriendlyairports.com/training-resources.html

Contact Deborah Shouse

Co-Founders Dementia Friendly Kansas City, Dementia Advocates, Writers, and Speakers

Website  

deborahshousewrites.com

Blog  

www.DementiaJourney.org   

YouTube  

Dementia Journey Youtube Channel 

Email

Archives

www.thecreativityconnection.com 

Instagram   @DeborahShouse

Deborah’s books include:

Do You Travel? Learn About Dementia-Friendly Airports from 2020

Contact Lori La Bey

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Training, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Pippa Kelly: The Importance of Sharing Our Dementia Stories

Listen Live or Listen at Your Convenience Thursday – March 23rd, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 24th at 6am in Australia AEDT

Watch This Powerful Interview Below

Our Host, Lori La Bey talks with the renowned Pippa Kelly from the UK, who is an award-winning journalist, blogger, author, and podcaster titled “Well I know Now…So Much More About Dementia.” Pippa is one of the UK’s top ten dementia influencers and an experienced public speaker.

Like most of us, Pippa has been personally touched by dementia. Her late mother lived with vascular dementia for ten years. I’m so thankful to have Pippa on the show as she has been on my list of guests for several years. She shares intimate details of her struggles and joys with her mom and their dementia journey. I know you will totally enjoy our conversation today and walk away uplifted and better prepared to support those you care for.

Click The Graphic Below To Listen To This Powerful Interview

Contact Pippa Kelly

Website  www.pippakelly.co.uk

 Podcast   Well I Know Now with Pippa Kelly

Twitter  @piponthecommons

FB and LinkedIn  @Pippa Kelly

Instagram @kelly.pippa

Contact Lori La Bey

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Training, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Struggles & Joys Of A Family with 4 Young Children And A Father Diagnosed with Early On-Set Alzheimer’s Disease

Listen Live or Listen at Your Convenience Tuesday – March 21st, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 22nd at 6am in Australia AEDT

Click The Graphic Below To Listen To This Powerful Interview

Our Host, Lori La Bey talks with Heather Kirk Morrison a former High School teacher and now the mother of an 11-year-old boy (Jayce) and 8-year-old triplets (Jaylen, Myles, and Mya) and current care partner to her husband Kevin who was diagnosed with Early Onset Alzheimer’s at age 47. After stops in Berkeley, Seattle, and Atlanta for her husband’s former college coaching career.  they currently live in San Diego, California, where Heather was born and raised. Since Kevin’s diagnosis, they have all been trying to embrace the dementia journey as a family and enjoy the moments together.

Contact Heather Morrison

Email

Instagram @heather_kirk_morrison21

Instagram @team_morrison2

Twitter   @team_morrison2

Additional Resources

Website

Email

Website

Email

Website

Email

Website

Email

Website

Email

Contact Lori La Bey

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Training, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Jay Allen – Conquering Pain and Loss Through Music, Love, and Advocacy

Listen Live or Listen at Your Convenience Tuesday – March 14th, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 15th at 6am in Australia AEDT

Watch The Video Interview Below

Listen To The Radio Show By Clicking Below

Our Host, Lori La Bey talks with Jay Allen.  Jay is known for his appearance on The Voice and for his song about dementia that went viral, “Blank Stares.” The song was written to honor his mother who passed from Alzheimer’s. The song went viral, reaching over 500 million views on Facebook, and showcased Jay’s talent and dedication to raising awareness for the Alzheimer’s Association. As a result of his advocacy efforts, he has been involved with several international events, including the Rita Hayworth Gala, which has raised over $100 million for the Alzheimer’s Association and has received numerous accolades, including The Caregiver Award from the National Alzheimer’s Association.

Jay is set to hit country radio with new music in 2023. He is also friends with our good friend Kevin Dill, who was recently on Alzheimer’s Speaks Radio talking about his life, and the symptoms he deals with, living with Lewy Body Dementia.

Lyrics For The Song – “No Prayer Like Mama’s”

Writers: Jay Allen, Justin Morgan – Producer: Justin Morgan – Mixer: Micah Wilshire

Ain’t no prayer like mamas

When it’s your turn up to bat

And she knows it’s only little league

But she knows you want it bad

And when you get a little older

And you’re out a little late

She’ll bend God’s ear all night long

Til you get back home safe

XXXX

All those hallelujah amens

And cryin on her knees

Sayin grace at dinner time

And telling’ God her dreams

She’s an angel she’s a saint

I’m telling y’all there ain’t

No prayer like mama’s

XXXX

Ain’t no prayer like mamas

When it’s a prayer for the girl

That’ll make her baby happy

That’s gonna be his whole world

She’ll know the Lord was listening

Cause she can’t help but smile

When she sees that answered prayer

Walking down the aisle

XXXX

All those hallelujah amens

And cryin on her knees

Sayin grace at dinner time

And telling’ God her dreams

She’s an angel she’s a saint

I’m telling y’all there ain’t

No prayer like mama’s

XXXX

Ain’t no prayer like mamas

When she walks the streets of gold

Still praying for her babies

Kneeling at His throne

I know she’s lookin’ down

And I know she’s all healed now

Bet she’s singing out amazing grace

And oh how sweet the sound

XXXX

Of those hallelujah amens

And cryin on her knees

Sayin grace at dinner time

And telling’ God her dreams

She’s an angel she’s a saint

I’m telling y’all there ain’t

No prayer like mama’s

XXXX

Now she’s watching over us

I’m telling y’all there’s just

No prayer like mama’s

Contact Jay Allen

Website    

https://www.jayallenofficial.com

Tour Schedule   

https://www.jayallenofficial.com/#tour

TicTok  @jayallenmusic

Instagram  @jayallenmusic

Facebook    @jayallenmusic 

YouTube   @JAYALLENOFFICIAL

The Voice Blind Audition   

https://youtu.be/IGA0kCf9eUg

Contact Lori La Bey

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Training, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Where is Nancy?  What Would You do If Your Loved One Wandered Off?

Listen Live or Listen at Your Convenience Thursday – March 9th, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 10th at 6am in Australia AEDT

Watch the Video Interview Below

Our Host, Lori La Bey talks with Filmmakers Dru Miller and Thiago Dadalt and Care Partner Kirk Moody who discuss the film “Where is Nancy,” which depicts the story of when Kirk’s wife living with dementia went missing. They also talk about prevention modes you might be interested in checking out before a crisis occurs.

Dru Miller

She has spearheaded numerous film and television projects including the award-winning “Chocolate” (about early onset of Alzheimer’s and “Duke” about severe autism. “Life on a Leash” and “2nd Time Around” for which she serves as executive producer, creator, and writer. She is the head of D. Ellen Miller Productions.

Thiago Dadalt

Thiago is an award-winning writer, editor/director from Brazil. He has won numerous awards with “Chocolate”, Oscar’s qualified in 2018, a short film about the early onset of Alzheimer’s. “Duke” (about severe autism) was officially selected at the “Emerging Filmmaker Showcase” at CANNES 2019, Cleveland, Stage 32 contest (showing at HollyShorts, Raindance, and Austin Film fest 2019)

Kirk Moody is a retired engineer and was a full-time caregiver for his wife, Nancy Paulikas who suffered from early-onset Alzheimer’s disease.  Kirk spent 26 months looking for Nancy after she wandered from a family outing to an art museum.

Listen To The Radio Show By Clicking Below

Contact D. Ellen Miller Productions

Website

Facebook

Instagram   d.ellenmillerproductions / thiagodadalt / dru2110

Contact for Where’s Nancy

Facebook

Instagram

Amazon 

iTunes  

Google Play

Contact Lori La Bey

Find FREE resources along with a variety of services at www.AlzheimersSpeaks.com   

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort worldwide one episode at a time by raising all voices and delivering sound news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Training, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Kevin Dill Shares His Story Of Living With Lewy Body Dementia

Listen Live or Listen at Your Convenience Tuesday – March 7th, 2023 – 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London GMT, 9pm South Africa SAST, and on the March 8th at 6am in Australia AEDT

Watch the Video Interview Below

Lori La Bey talks with Kevin Dill who was diagnosed with Lewy Body Dementia in 2019, in his early fifties. Kevin shares the symptoms he experienced, who noticed them first, who they handled telling him, and what happened when he went to the doctor. He also shares a very personal story about the depression that took over him, how close he was to taking his own life, and what made him change his mind. Learn how Kevin knows Jay Allen the Country Western Singer. Kevin openly shares with us, how he got into artwork, advocacy, and the power of his events. Kevin is a proud Military Veteran, retired Police Officer, and Director of Veterans Affairs. I know you will enjoy this wonderful conversation with someone living with Lewy Body Dementia.

Listen To The Radio Show By Clicking Below

Contact Kevin Dill  

Email

Facebook  @Kevin Dill

Instagram   @kevinmichaeldill

Dementia Friendly Iowa    https://dementiafriendlyiowa.org/

Purchase a T-Shirt  for $20 – $5 goes to the Lewy Body Association

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

Check Out Lori La Bey’s Book Betty the Bald Chicken An Ideal Tool for Schools, Libraries, Support Groups, Children, and Adults

Order Now – A Great Gift For Anyone At Any Age

Paperback 978-1-952976-86-5 Hardcover 978-1-952976-87-2

Library of Congress Control Number: 2022948781

Reviews on Amazon and Barnes & Noble Are Appreciated!

FREE Resources Along With A Variety Of Services At www.AlzheimersSpeaks.com or Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Trainings, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

Grief, Gratitude, and Passion to Improve Care

Today was a hectic day. I had every intention of this post going live this morning, but I’m glad I’m getting this posted before midnight! Below will shine a light as to why and also why February 28th is such a precious day to me on so many levels. 

The First is Grief

Grief, because this is the anniversary of my mother’s death. Nine years ago, today she passed away after living her last 30 years with dementia.  In fact, upon her autopsy, we found out mom hit the trifecta. Not only did she have Alzheimer’s disease, but she had Lewy Body and Parkinson’s disease.  Through my caring journey for my mother, she taught me so many beautiful life lessons.  Mom, I truly miss you every single day.

The Second is Gratitude

Gratitude, for many reasons, but I will limit it to three today. 
1) The opportunity I was given to care, for not only my mother living with dementia but my father with brain cancer. Giving back to them was a gift to me, and the life lessons they taught me along the way made me a better person.  I will be forever grateful.

2) Recently, I became a grandma again. This time to Saylor Rose who melts my heart as I watch my daughter and her family expand and how each of them cares for and loves this beautiful little human being.  I will love them all forever to the moon and back.

3) Last, my keynote speech Betty the Bald Chicken – Lessons in How to Care, which I have done for years is now available in book form.  This story came to me in a dream and all I saw and heard was the word Alzheimer’s and a picture of a bald chicken.  One night at 2am I woke up from a dream. It was relentless. It played over and over again in my head. Below illustrates what my dream.

Being older when I had this dream, I knew I would not go back to sleep until I got up and wrote the story that was being given to me. Since then, I’ve been telling Betty the Bald Chicken’s story for years.  Audience members always asked for it to be in book form, but I never got around to it.  To me, the timing is perfect now, as Betty the Bald Chicken isn’t just about dementia, but anytime a person feels they don’t fit in.  It might be someone being bullied, a person going through a divorce, a death of a loved one, various chronic illnesses that we must adjust to, or downright discrimination in all its forms. 

Betty teaches us hope and resilience. She shines a light on the impact we have on others and what we can do to make our home, school, work, community, and the world a better place to live.

There are questions toward the back of the book to help all ages open up about their feelings. They can look at how they are treated by others and how they themselves treat other people and the impact that has on everyone.

I hope you will join me in creating a safe space for difficult conversations about our feelings and overall mental health.  This book is ideal for families, schools, libraries, therapists, and workplaces.

Here is a sneak peek at Betty the Bald Chicken

You can purchase your book through any of the following:

Order Here – For An Autographed Copy, or Purchase below at:

Thank You in Advance for Your Reviews Posted to Amazon and Barnes and Noble.

The Third is Passion

Passion for life.  Passion for the people in my life.  Passion to make the world a better place.  Looking back on my life, I have no question my life like others is part of a master plan.  One which puts obstacles on our path to challenge us. To see how we will react. Will we succumb to difficult times, or will we adapt, learn, and challenge circumstances finding new ways to cope with our situations?

In a very strange way, I find myself lucky to have had someone I love so deeply have dementia.  Although I would not wish the disease on my worst enemy, I have found that loving deeply also allows us to fight fearlessly. To look for and create new ways to support those we love.  To help others and give hope so often missing for those living with or alongside dementia. 

Fresh eyes, of those living in the trenches, often see things differently from organizations, bureaucratic, and government agencies.  As difficult as a journey can be, knowing you are helping others ease their burden and remove their isolation is satisfying.  It gives purpose to tough situations.

I am thankful for my experience which turned into a life role that allows me to be driven by passion.  This allows me to have a job that doesn’t feel like work and helps others worldwide. To me, that is a huge blessing.

This article was written by Lori La Bey the founder of Alzheimer’s Speaks.

Find FREE Resources Along with a Variety of Services at www.AlzheimersSpeaks.com  Contact Lori La Bey.

Lori La Bey and Alzheimer’s Speaks Can Help Your Organization With Staff Trainings, Family Support, Perspective Clients, and Support Gatherings.

Read Full Post »

%d bloggers like this: