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Archive for the ‘MCI and EOAD’ Category

Finding Joy Through Music

Click Below to Listen

Thursday, December 6th, Lori La Bey host of Alzheimer’s Speaks Radio, will talk with Kaylee Tilton, a Music Therapist and Joe Kaufman, an intern with Aegis Living while completing his BA in music therapy.  Both work at Aegis Living. Join us and learn how and why people react to music.  You will find out how music therapy is different from our everyday use and enjoyment of music, along with their personal experiences that pulled them to become music therapists.  Kaylee and Joe will explain how the use music therapy to  improve lives and will give us some real life examples of its effect on people of all ages and stages of life.

Contact Kaylee or Joe via:

Email:  kaylee.tilton@aegisliving.com

Phone:  206-285-1106

Website:  https://www.aegisliving.com/

Find a Music Therapist in your area: The America Music Therapy Association 

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development – LeadingAge WA

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Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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First Pictured-Based Dementia Screening Tool

Join Alzheimer’s Speaks Radio 

Today on Alzheimer’s Speaks Radio, host Lori La Bey, will talk with Dr. Jessica Zwerling, who is the Director, Montefiore Hudson Valley Center of Excellence for Alzheimer’s Disease (CEAD).  She is an Associate Professor of Neurology, and a Program Director for the UCNS Geriatric Neurology Fellowship.  Dr Zwerling is also the Director of the Memory Disorders Center at Blondell and the Associate Director for the Center for the Aging Brain and last the Clinical Director for the Einstein Aging Study.

Contact Information for Dr. Jessica Zwerling

Phone:     (914) 375-4880

Website:  http://www.montefiore.org/alzheimers-center 

Website:  https://www.montefiore.org/aging-brain

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 
Pat Sylvia, Director of Education & Member Development – LeadingAge WA

For More Testimonials

Click Below Download Tips

Alzheimer's Speaks Radio with Dr Jessica Zwerling.

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In Honor of Susan Suchan

One voice that has been significantly missed this past year is Susan Suchan.  She lived her life fully even when diagnosed with dementia. We continue to celebrate her birthday and the love, compassion and dear friendship she brought into our lives.

Through Death,

Our Connection Remains

It was an honor to work with Susan on Dementia Chats.  Her insights were brilliant and her laughter contagious.

A few of us gathered to honor what would have been Susan’s 62nd birthday.  Please watch and feel free to share Susan’s life and the impact she had on others.  Remember each one of us have the opportunity to lift and inspire others by sharing our authentic self with one another, just as Susan did.


For poems by Mary Radnofsky read on the above video Click Below: https://www.alzheimersspeaks.com/images/Poetry/2_poems_mary_R_about_susan_suchan.pd

To see Truthful’s blog on Susan Click Below: https://truthfulkindness.com/memoriam/susan-suchan/

You never knew what would happen next….

A Bit More About Susan

Susan Suchan was the mother of two grown daughters and five beautiful grandchildren. She was a nurse for 23 years and was diagnosed with Early Onset Alzheimer’s Disease (EOAD) at the age of 48; an additional diagnosis of Frontotemporal dementia(FTD)/Primary Progressive Aphasia (PPA). Susan advocated for and about the “lived experience”, working to change perceptions, stigma and help bring to life, and the realness of her disease process. She has had the opportunity to speak Nationally and locally. Susan was awaiting the release of a documentary featuring her life, showing the effects on friends and family relationships, finances and end of life discussions. The film is called, “Susan’s Story” and is still in need of funds to complete.

Here Are Some of Our Dementia Chats Sessions Featuring Susan

Help Make “Susan’s Story” a Documentary, a Reality 

In honor of what would have been Susan Suchan’s 62nd birthday, her family and the producers of the documentary, invite you to help complete the film.  The documentary is in post-production and the final $125,000 is still needed to complete the film. 

Please contact Russ Kirkpatrick, the Producer/Director of the film, if you have questions or would like to make a contribution. Tax deductible contributions can be made to one of two 501(c)(3) organizations associated with the film. 

Contact information: russ@kkp.film

Link to the trailer of Susan’s Story: https://vimeo.com/302739507

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Caring For The Caregiver with Linda Burhans

Alzheimer’s Speaks Talks With The Caregivers, Caregivers

Click Here to Listen

Tips and Insights For Care Partners

Lori La Bey, host of Alzheimer’s Speaks Radio talks with Linda Burhan’s, is known as the Caregivers Caregiver.  She is an author, speaker on caregiver advocacy. Her book, Good Night and God Bless, is a heartfelt story about the joy and challenges about caring for a parent.  Linda has facilitated over 1500 support groups and workshops for caregivers where she shares lessons learned and coping tools with caregivers She also has a blog and radio show.

Contact Linda Burhans:

Radio Show:  www.ConnectingCaregiversRadio.com

Website:  http://www.LindasCaregiverConnections.com

Email:  LindaBurhans@aol.com

Phone:  727-365-8383

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Alzheimer’s Speaks Radio with John & Susan McFadden

Join us Tuesday:

2pm EST, 1pm CST, 12pm MST, 11am PSSST and 7pm London

Call in and join the conversation (323) 870-4602

Learn About The Memory Camp

Lori La Bey, host of Alzheimer’s Speaks Radio is thrilled to talk with Susan and John McFadden.  Both are amazing individuals doing incredible work in the area of dementia.  Today we will discuss their new “Memory Camp” for those living with dementia and their family and friends.  Also joining us, were three adult children from the Farnum clan, that went on the experience with their parents.  Their stories touched my heart. 

John and Susan also are the back bone of the Fox Valley Memory Project where they provide leadership and volunteer.  Check out their book, Aging Together: Dementia, Friendship, and Flourishing Communities. Join our conversation and learn what they are doing now!

Contact Information for the McFadden’s:

Email:  susan.h.mcfadden@gmail.com   

Email:  john.t.mcfadden@gmail.com

Website: www.foxvalleymemoryproject.org 

Dementia Adventure:    http://www.dementiaadventure.com/

Wilderness Inquiry:           www.wildernessinquiry.org/

Additional Resources by Alzheimer’s Speaks:

Website

Keynotes/Training/Consultations

Dementia Chats

Memory Cafe

Become Dementia Friendly

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Poem About Dementia –

I want to again thank Cheryl Kempner for sharing her beautiful poetry with our community here at Alzheimer’s Speaks.

Her Birthday

Copyright Cheryl Kempner 2018

Like a new born that does not know,

Or a toddler that does not grow.

Her birthday came,

Her birthday went,

But she did not know what wishes were sent.

The mind is fierce and out of sight,

It does not know or care of the heart’s plight.

That we may need to keep moving on,

Or maybe it knows that we must stay calm. 

For we would go mad if we really did know,

That our mind was shrinking and we could not grow.

To new levels of our early existence, 

Or is it aware of our soul’s forever persistence.

Do the flowers, the wishes, the visits or chocolate cake,

Mean anything inside or is it all just fake.

The talking, the laughs, the pictures and more,

Does it tell a story or is it just knocking on a closed door.

To make up for lost time in these last few years,

Few years that to some mean many more tears.

But to other it’s a time to make memories to last,

Moments to take, moments to grasp

The veil has been lifted,

The wall is no more.

The relationship is freed, 

The tension is old lore.

Could there be a message, in disguise,

Or is it just the unraveling of all the lies.

The mind is a vicious thing,

It can take away a human being.

But can it really, as we can feel,

We know what’s what, but how do we deal.

With such thoughts that her birthday came and went,

But does she know what wishes were sent?

Looking for a Keynoter,

Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials

Click Below Download Tips

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Happy Thanksgiving From Alzheimer’s Speaks Radio and our Guest Linda Burhans

Alzheimer’s Speaks Talks With

The Caregivers, Caregivers

Click Here to Listen

Lori La Bey, host of Alzheimer’s Speaks Radio talks with Linda Burhan’s, is known as the Caregivers Caregiver.  She is an author, speaker on caregiver advocacy. Her book, Good Night and God Bless, is a heartfelt story about the joy and challenges about caring for a parent.  Linda has facilitated over 1500 support groups and workshops for caregivers where she shares lessons learned and coping tools with caregivers She also has a blog and radio show.

Contact Linda Burhans:

Radio Show:  www.ConnectingCaregiversRadio.com

Website:  http://www.LindasCaregiverConnections.com

Email:  LindaBurhans@aol.com

Phone:  727-365-8383

Looking for a Keynoter, Consultant or Trainer?

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge Washington

For More Testimonials


Click Below to Download the Tips



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