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Archive for the ‘Mara Botonis’ Category

My Mother Has Inspired Many

Today Mom Is The Symbol Of Alzheimer’s Speaks

great escape article mom and me on website

But Growing Up I Always Knew…

She Was More Than My Mom

My Mom Dorothy Moeschter was a very special woman.  She was loving, fun and strict.  Organized and messy.  She engage all and was one of the fist to reach out to help those in need.  Mom believed in our democratic process and I can only imagine what she is thinking looking down on the world of politics today. She took a true interest in people and volunteered in a variety of circles from school, church, government, girl scouts and boy scouts, hockey and various boaster clubs.  Mom was well liked and had a great laugh.  Entertaining and sales were a passion for her and she was so much more until dementia showed up. 

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Although the Alzheimer’s disease took much from mom and our family over 30 years, there was much that stayed untouched.  Our hearts and souls. Mom’s fun loving approach to life lived on strong throughout the dementia journey…even at the end.

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Mom and Dad’s Wedding Day

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Our family cruise Mom with dementia and Dad with brain cancer

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Learn about the Dementia Symposium and Cruise Setting sail this fall for families to create their own memories!

Sometimes Our Family Focused

On What Was Gone Instead What’s Left

It was the rest of us who sometimes focused on what was gone, and than we missed all that was left. We had to learn to look for different things: the slight smile, the glint in the eye, the giggle, the touch and the word(s) that make your heart melt and connect us on a deeper level.

Here is just one example of Mom’s infectious love and joy.

Even when my Mother was dying she was teaching my family about the circle of life and how to care for those at the end of their journey here on earth. Even for her obituary I couldn’t resist continue moms teaching by adding the Purple Angel to her announcement.

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May Your Legacy Live On Mom

Watch Maria Shriver’s Tribute to her Mother and Motherhood 

a must watch!

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Meet Me in Orange County June 4th

You Can Have An Impact, Even If You Can’t Make Maria Shriver’s Event. 

Become A Sponsor Help Raise Funds for Women’s Research on Dementia

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Learn How You Can Host A Screening of the Hollywood Film

“His Neighbor Phil”

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4 Pillars of Prevention

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LA Times Cover’s Cruise For Those Living With Dementia & Their Families

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LA Times Cover’s Cruise For Those Living With Dementia & Their Families

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Lori La Bey, founder of a Minnesota-based organization called Alzheimer’s Speaks, maintains an online community in which patients and their caregivers “meet” and discuss common challenges.

Now she plans to bring them and others together on a weeklong Eastern Caribbean cruise in November.

The Dementia Friendly Symposium & Cruise will feature chats in which Alzheimer’s patients discuss how they live with the disease and what strategies they use to focus on what they want to do rather than on what they can no longer do. READ FULL ARTICLE

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Meet Me in Orange County on June 4th

Can’t Make It?  You can Still Have An Impact. 

Sponsor me to help raise fund for Women’s Research on Dementia

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At Maria Shriver’s Move For Minds Event

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Learn How You Can Host A Screening of the Hollywood Film

“His Neighbor Phil”

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4 Pillars of Prevention

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Dementia Conference and Cruise Brings Hope, Fun and Education to Families

Dementia Conference and Cruise Brings

Hope, Fun and Education to Families

Caribbean vacation for those living with early memory loss accompanied by families and friends

St Paul/Minneapolis, MN – 04/27/2017PR_Graphic_wCruise__forsocial_media_042417_

 

Participants will find this week-long Caribbean cruise an empowering retreat rich in hope and filled with fun, all while learning tips to live graciously with their “new normal” in life.

Lori La Bey, Radio Host and founder of Alzheimer’s Speaks is the brain child behind the event.  Her own mother lived with dementia for 30 years.  La Bey said, “Our conference is designed to encourage open conversations, raise awareness, and build a sense of comradery while rejuvenating souls.  We want to help people expand the depths of their relationships while functioning as caregivers and care receivers.  Our goal is to show people how to live graciously with dementia, not become it.”

Kathy Shoaf, RN, Accessible Travel Advocate became La Bey’s perfect partner.  Shoaf owner of Elite Cruises and Vacations, LLC, is helping La Bey bring people together to share insights, reduce fears and eliminate feelings of isolation often caused by dementia. Shoaf has been overwhelmed by the gratitude expressed by those inquiring about the conference. “People are excited and simply surprised that this opportunity to get support actually exists,” she said.

Most people don’t realize how many families are affected by Alzheimer’s disease and other forms of dementia.  According to Alzheimer’s Disease International, a person develops dementia every 3 seconds in the world.  It’s rare to find someone who has not been touched by the dementia.

La Bey’s unique team includes both professionals in the field as well as what she calls the “True Experts.” Four international advocates living with a dementia diagnosis will play a large role in the conference sharing their profound insights and coping strategies.  They are: Michael Ellenbogen, Mary Read, Laurie Scherrer and Harry Urban.

As Harry Urban, a man living with dementia for 13 years said, “I’m finally going to meet my family.  The one I’ve never met.”  Harry refers to his “social media family” as a major source of support to him. Like so many living with dementia and those caring for them, these social media platforms can be lifelines.

Professionals Cyndy Luzinski and Becky Watson bring their passion and superior skill sets to the conference.  Luzinski is an advanced practice nurse and dementia practitioner, along with being the founder of Dementia-Friendly Communities of Northern Colorado. Watson is a Board-Certified Music Therapist and Founder of Music for Wellness, a company that provides engaging, energizing and empowering music wellness programs and services to enrich the mind, body, and spirit.

La Bey, reminisces with us about a family cruise with her mom with dementia and her dad with brain cancer.  “What a beautiful experience it was for my parents, all siblings and our children.” She goes on to say, “To be able to offer a supportive atmosphere where others understand the dementia experience and are in the trenches side by side with one another — well it’s just beyond words.”

This conference will provide a fun and hopeful environment to share life stories and lessons learned which in turn builds a strong sense of comradery.  Participants will be given resources, tips and tools to help them live better with and alongside dementia. Alzheimer’s Speaks is seeking sponsorships and donations to provide scholarships for those who can’t afford to attend.

Johns Hopkins University Press has donated a couple of their best-selling books on dementia for the conference, “The 36 Hour Day” and “A Loving Approach to Dementia Care.” La Bey encourages individuals and organizations to donate services, products or tools to enhance this experience.  La Bey is also seeking sponsors through cash or frequent flier miles… at any level to provide scholarships for those who can’t afford to attend on their own.

The group will set sail November 11th, for the Eastern Caribbean and return to Fort Lauderdale, on November 18th, 2017.  All interested in this amazing conference and cruise must book their cruise through Kathy Shoaf who can be reached at 219-608-2002 or via email kathy.shoaf@cruiseplanners.com

For More Information Contact:

Alzheimer’s Speaks is an advocacy group making an international impact providing education for those dealing with dementia.  Dr. Oz and Sharecare recognized Alzheimer’s Speaks as the “#1 Influencer online for Alzheimer’s.”  Maria Shriver recognized La Bey as an “Architect of Change for Humanity.”

Media Contact:
Lori La Bey                                                 Lori@AlzheimersSpeaks.com
651-216-5413                                              https://alzheimersspeaks.com/cruise-with-us

Join Our Cruise filled with Hope and Fun!

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Listen to Information about the

Conference & Cruise Below

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Join Lori La Bey at Move for Minds in Orange County, CA

Or Help Support This Event By Making a Donation

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Talk With Lori La Bey of Alzheimer’s Speaks on

How You Can Host This 90 Minute film and Talk Back

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A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

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Trish Vradenburg

May Trish’s  family and friends feel the love and support the world is sending them

Trish’s Deep-Rooted and Unflinching Passion to Fight Alzheimer’s Creates Admirable and Aspirational Legacy

UsAgainstAlzheimer’s Co-Founder and Vice-Chair Trish Vradenburg’s unflinching spirit – her creativity and imagination, quick-witted humor, empathy, generosity and her exceptional tenacity to stop the suffering of others – was captured in her every action. It is with immense sadness that UsAgainstAlzheimer’s announces her passing, and it is with the utmost gratitude that the organization cherishes her legacy and forges ahead in her memory.

Trish’s life was an inspiring portrait of creativity and versatility, employing her gifts of writing and storytelling throughout a successful professional career. She began her career as a speechwriter in the U.S. Senate. She wrote for various television shows, including Designing Women, Family Ties and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages.

As a journalist, she wrote extensively for The New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play about a sitcom writer and her mom battling Alzheimer’s disease together, was produced at The Kennedy Center in Washington, D.C., and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Brazil.

Founded with her husband George Vradenburg, UsAgainstAlzheimer’s was born out of their passion to fight back against Alzheimer’s disease, which Trish’s mother, Bea Lerner, the wife of her father Joseph H. Lerner, succumbed to in 1992. Trish’s unique whimsical style, the perfect complement to George’s more serious side, was instrumental in leading the organization on a path to make meaningful progress against a disease that caused their family so much pain.

Trish was a gifted and relentless advocate. She helped achieve increased funding for Alzheimer’s research and build a growing public-private consensus that a cure for the disease must be reached by the year 2025. Recently, she spearheaded the launch of the Alzheimer’s Party, imploring members of Congress to join a bipartisan movement to end Alzheimer’s disease.

Trish also served on the Council of Theater J and on the boards of DC Vote and the Vradenburg Foundation.

This Power House Couple Will Be Missed

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Trish and George Vradenburg

She is survived by her adoring husband George; daughter Alissa Vradenburg and son-in-law Michael Sheresky of Los Angeles, CA; son Tyler Vradenburg and daughter-in-law Jeannine Cacioppe Vradenburg of Chicago IL; grandchildren Harrison Sheresky, Skyler Sheresky, May Vradenburg and Gavin Vradenburg; and her brother Rabbi Michael Lerner and sister-in-law Cat Zavis of Berkeley, CA. She was preceded in death by her father, Judge Joseph H. Lerner, and mother, Bea Lerner.

Private family funeral services will take place later this week in Los Angeles, followed by a public memorial service in Washington, D.C., on May 9 at a venue to be determined. Family and friends will be honoring Trish’s legacy; details will be shared as they become available.

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UsAgainstAlzheimer’s is an innovative, patient-centered non-profit demanding – and delivering – a solution to Alzheimer’s. Driven by the suffering of millions of families, UsAgainstAlzheimer’s presses for greater urgency from government, industry and the scientific community in the quest for an Alzheimer’s cure – accomplishing this through its own patient-centered effective leadership, collaborative advocacy and strategic investments.

Founded in 2010, UsAgainstAlzheimer’s has worked across sectors to: (1) secure the national goal of preventing and effectively treating Alzheimer’s by 2025; (2) help secure nearly $1 billion in additional public funding for Alzheimer’s research over the past few years; (3) drive global efforts that resulted in the leaders of the world’s most powerful nations, the G7 group, to embrace a similar 2025 goal and to call for greater levels of research investment and collaboration; (4) transform the system of Alzheimer’s clinical trials for greater speed, efficiency and quality; and (5) forge a global process of industry, regulators and payers to bring greater clarity to the approval and payment of innovative medicines for Alzheimer’s.

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DF cruise conference 041017 2kathy notices

Join Lori La Bey at Move for Minds in Orange County, CA

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The 6th Edition of The 36 Hour Day

20% Off the New 6th Edition of The 36 Hour Day,  Available April 2017

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Through five editions, and more than 3 million copies sold, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs.

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If you are interested in a bulk purchase of this book we would be happy to offer you a higher discount. For more information on bulk sales and special sales pricing, please contact specialsales@press.jhu.edu

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How to Communicate with a Person with Dementia DC_031917_How_to_communicate_with_a_person_with_dementia_SNAP

Our Experts have Dementia

Dementia Chats: Where voices of those diagnosed with dementia are heard.  

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners – family, friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.

You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Paulan Gordon
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard
Susan Suchan
Harry Urban

Here are the links to “20 Sign Language Words”

Laurie Scherrer’s Website
https://dementiadaze.com/about/videos/
https://www.dementiamentors.org/videos.html

For Additional Educational Videos Click Below

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AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

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  Click To Get More Information For

The Conference of Hope

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Children with Dementia

Children with Dementia

Say It Can’t Be True!

03211 ASR Graphic Dementia Mom FINAL

Today we are lucky to have a Mother who is willing to share her story of love, frustration and a passion to expand education, awareness and funding for childhood dementia.  You will be amazed at the terrifying journey Lorena Demian is living and how she has learned to look at life differently through their dementia experience.

Contact Information For

Alzheimer’s Association 24 hour line: 1-800-272-3900

Lorena Demian butterflymusicalnotes.7@gmail.com

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DF_cofernece_cruise_top_032317

Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

st_therese_hnp_111616_1

DF communities     businesses logo

additional_resources

   Click To Get More Information For

The Conference of Hope

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   Click For More Information on Leading Age

 Power of Purpose

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How to Communicate with a Person with Dementia

How to Communicate with a Person with Dementia DC_031917_How_to_communicate_with_a_person_with_dementia_SNAP

Our Experts have Dementia

Dementia Chats: Where voices of those diagnosed with dementia are heard.  

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners – family, friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.

You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Paulan Gordon
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard
Susan Suchan
Harry Urban

Here are the links to “20 Sign Language Words”

Laurie Scherrer’s Website
https://dementiadaze.com/about/videos/
https://www.dementiamentors.org/videos.html

Brought to You by and Facilitated by

Lori La Bey, Founder of
www.AlzheimersSpeaks.com
www.alzheimersspeaks.com/dementia-chats-webinar

For Additional Educational Videos Click Below

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other_int_and_projct

DF_cofernece_cruise_top_032317

Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

st_therese_hnp_111616_1

alz_spks_radio_general_banner

DF communities     businesses logo

additional_resources

  Click To Get More Information For

The Conference of Hope

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  Click For More Information on Leading Age

 Power of Purpose

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Save

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