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Archive for the ‘Mara Botonis’ Category

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

A Sad Good Bye To An Amazing Woman Shifting Dementia Care and Cure

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Trish Vradenburg

May Trish’s  family and friends feel the love and support the world is sending them

Trish’s Deep-Rooted and Unflinching Passion to Fight Alzheimer’s Creates Admirable and Aspirational Legacy

UsAgainstAlzheimer’s Co-Founder and Vice-Chair Trish Vradenburg’s unflinching spirit – her creativity and imagination, quick-witted humor, empathy, generosity and her exceptional tenacity to stop the suffering of others – was captured in her every action. It is with immense sadness that UsAgainstAlzheimer’s announces her passing, and it is with the utmost gratitude that the organization cherishes her legacy and forges ahead in her memory.

Trish’s life was an inspiring portrait of creativity and versatility, employing her gifts of writing and storytelling throughout a successful professional career. She began her career as a speechwriter in the U.S. Senate. She wrote for various television shows, including Designing Women, Family Ties and Kate and Allie. Trish’s novel, Liberated Lady, was chosen as Literary Guild and Doubleday Book Club selections and has been translated into three foreign languages.

As a journalist, she wrote extensively for The New York Daily News, The Boston Globe, The Washington Post, Ladies’ Home Journal and Women’s Day. Surviving Grace, Trish’s quasi-autobiographical play about a sitcom writer and her mom battling Alzheimer’s disease together, was produced at The Kennedy Center in Washington, D.C., and Off Broadway at the Union Square Theater. It is now being performed at various community theaters throughout the country, as well as in Brazil.

Founded with her husband George Vradenburg, UsAgainstAlzheimer’s was born out of their passion to fight back against Alzheimer’s disease, which Trish’s mother, Bea Lerner, the wife of her father Joseph H. Lerner, succumbed to in 1992. Trish’s unique whimsical style, the perfect complement to George’s more serious side, was instrumental in leading the organization on a path to make meaningful progress against a disease that caused their family so much pain.

Trish was a gifted and relentless advocate. She helped achieve increased funding for Alzheimer’s research and build a growing public-private consensus that a cure for the disease must be reached by the year 2025. Recently, she spearheaded the launch of the Alzheimer’s Party, imploring members of Congress to join a bipartisan movement to end Alzheimer’s disease.

Trish also served on the Council of Theater J and on the boards of DC Vote and the Vradenburg Foundation.

This Power House Couple Will Be Missed

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Trish and George Vradenburg

She is survived by her adoring husband George; daughter Alissa Vradenburg and son-in-law Michael Sheresky of Los Angeles, CA; son Tyler Vradenburg and daughter-in-law Jeannine Cacioppe Vradenburg of Chicago IL; grandchildren Harrison Sheresky, Skyler Sheresky, May Vradenburg and Gavin Vradenburg; and her brother Rabbi Michael Lerner and sister-in-law Cat Zavis of Berkeley, CA. She was preceded in death by her father, Judge Joseph H. Lerner, and mother, Bea Lerner.

Private family funeral services will take place later this week in Los Angeles, followed by a public memorial service in Washington, D.C., on May 9 at a venue to be determined. Family and friends will be honoring Trish’s legacy; details will be shared as they become available.

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UsAgainstAlzheimer’s is an innovative, patient-centered non-profit demanding – and delivering – a solution to Alzheimer’s. Driven by the suffering of millions of families, UsAgainstAlzheimer’s presses for greater urgency from government, industry and the scientific community in the quest for an Alzheimer’s cure – accomplishing this through its own patient-centered effective leadership, collaborative advocacy and strategic investments.

Founded in 2010, UsAgainstAlzheimer’s has worked across sectors to: (1) secure the national goal of preventing and effectively treating Alzheimer’s by 2025; (2) help secure nearly $1 billion in additional public funding for Alzheimer’s research over the past few years; (3) drive global efforts that resulted in the leaders of the world’s most powerful nations, the G7 group, to embrace a similar 2025 goal and to call for greater levels of research investment and collaboration; (4) transform the system of Alzheimer’s clinical trials for greater speed, efficiency and quality; and (5) forge a global process of industry, regulators and payers to bring greater clarity to the approval and payment of innovative medicines for Alzheimer’s.

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DF cruise conference 041017 2kathy notices

Join Lori La Bey at Move for Minds in Orange County, CA

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The 6th Edition of The 36 Hour Day

20% Off the New 6th Edition of The 36 Hour Day,  Available April 2017

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Through five editions, and more than 3 million copies sold, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs.

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If you are interested in a bulk purchase of this book we would be happy to offer you a higher discount. For more information on bulk sales and special sales pricing, please contact specialsales@press.jhu.edu

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How to Communicate with a Person with Dementia DC_031917_How_to_communicate_with_a_person_with_dementia_SNAP

Our Experts have Dementia

Dementia Chats: Where voices of those diagnosed with dementia are heard.  

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners – family, friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.

You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Paulan Gordon
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard
Susan Suchan
Harry Urban

Here are the links to “20 Sign Language Words”

Laurie Scherrer’s Website
https://dementiadaze.com/about/videos/
https://www.dementiamentors.org/videos.html

For Additional Educational Videos Click Below

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Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

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  Click To Get More Information For

The Conference of Hope

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Children with Dementia

Children with Dementia

Say It Can’t Be True!

03211 ASR Graphic Dementia Mom FINAL

Today we are lucky to have a Mother who is willing to share her story of love, frustration and a passion to expand education, awareness and funding for childhood dementia.  You will be amazed at the terrifying journey Lorena Demian is living and how she has learned to look at life differently through their dementia experience.

Contact Information For

Alzheimer’s Association 24 hour line: 1-800-272-3900

Lorena Demian butterflymusicalnotes.7@gmail.com

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DF_cofernece_cruise_top_032317

Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

st_therese_hnp_111616_1

DF communities     businesses logo

additional_resources

   Click To Get More Information For

The Conference of Hope

cac_logo_comibined_113016

   Click For More Information on Leading Age

 Power of Purpose

ARPF_for_Blog

Save

Read Full Post »

How to Communicate with a Person with Dementia

How to Communicate with a Person with Dementia DC_031917_How_to_communicate_with_a_person_with_dementia_SNAP

Our Experts have Dementia

Dementia Chats: Where voices of those diagnosed with dementia are heard.  

Dementia Chats™ was created with the intention to educate people living with dementia; their care partners – family, friends as well as professionals and advocates.  Our Experts are those diagnosed with dementia. We have been doing this series since July of 2012.

Today we had an interesting conversation regarding communication.  You will here from those diagnosed and what they think about all the tips given by “Professionals” to communicate with them.

You will gain insights which will help you care better.  Learn how their senses change, how their emotions and behaviors are affect by their surroundings and how that impacts them in their daily living.

Thank You To Our Experts Living With Dementia:

Michael Ellenbogen
Paulan Gordon
Truthful Loving Kindness
Brian LeBlanc
Laurie Scherrer
Mary Howard
Susan Suchan
Harry Urban

Here are the links to “20 Sign Language Words”

Laurie Scherrer’s Website
https://dementiadaze.com/about/videos/
https://www.dementiamentors.org/videos.html

Brought to You by and Facilitated by

Lori La Bey, Founder of
www.AlzheimersSpeaks.com
www.alzheimersspeaks.com/dementia-chats-webinar

For Additional Educational Videos Click Below

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other_int_and_projct

DF_cofernece_cruise_top_032317

Move_for_Minds_2017

AN EXCITING EXPERIENCE
FOCUSED ON THE MIND-BODY CONNECTION

  • Exercise your brain and body with a specially designed and fun fitness experience
  • Engage in a brain healthy marketplace with friends, food, books, experts and more
  • Educate yourself with a panel of superstars in brain research, fitness, nutrition and more
  • Empower yourself to save your brain and help wipe out Alzheimer’s

You’re invited to join Maria Shriver and The Women’s Alzheimer’s Movement for a fun, one-of-a-kind event to wipe out Alzheimer’s. Sign up, fundraise and be a part of this exciting three hour experience featuring an exclusive mind-body workout just for Move for Minds participants!

One Day. Eight Cities. Millions Impacted.
June 4, 2017
Boston | DallasLos Angeles | Miami | New York
Orange County | San Francisco | Washington DC

Come Meet Lori La Bey In Orange County

Can’t Make it?  

Donate & help her raise funds for research.

Any and all donations are appreciated.

st_therese_hnp_111616_1

alz_spks_radio_general_banner

DF communities     businesses logo

additional_resources

  Click To Get More Information For

The Conference of Hope

cac_logo_comibined_113016

  Click For More Information on Leading Age

 Power of Purpose

ARPF_for_Blog

Save

Save

Read Full Post »

Caregiver Appreciation – Alzheimer’s Speaks Radio

Alzheimer’s Speaks Radio

Caregiver Appreciation

Tuesday – March 7th, 2017

2pm ET, 1pm CT, 12pm MT, 11am PT and 7pm London

030717 ASR jen Chan Viki Kind Senior Shower Poject Cregiver Appreciation

Today we are lucky to have Jenn Chan, the founder of the Senior Shower Project which is a project which shows appreciation for care partners.

Viki Kind has been on our a show few times and we are thrilled to have her back with us.  Viki is a Clinical Bioethicist and a highly sought after speaker and author will share her thoughts about the project with us.

Contact Information For

Jen Chan  jenn@seniorshowerproject.com             www.seniorshowerproject.com

Viki Kind    kindethics@gmail.com           www.KindEthics.com

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Aging Matters – Living with Alzheimer’s & Dementia

Aging Matters –

Living with Alzheimer’s

& Dementia

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Click Above to Watch

Tuesday, March 7th

8pm EST, 7pm CST, 6pm MST, 5pm PST

Join us for an online screening and discussion of NPT’s #AgingMatters documentary “Living with Alzheimer’s & Dementia” and take part in a real-time conversation with documentary producer Mary Makley; and film subjects Paulan Gordon and Mary Ann Oglesby of The Veranda.

For anyone who is unable to make the screening tomorrow night for the live screening, you can see the video at anytime at www.wnpt.org/agingmatters then click on documentaries and the click on Alzheimer’s and Dementia tab.

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Making Travel Dreams Come True When Disease Hits

Alzheimer’s Speaks Radio

Making Travel Dreams Come True When Dementia Hits

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Thursday, January 5th, 2017

2pm EST, 1pm CST, 12pm MST, 11am PST 7pm London

Today we are lucky to have Kathy Shoaf, a Travel Expert with 20+years of clinical and management experience in Geriatric, Rehabilitation and senior housing as an RN and ATP. She realized after years of counseling with families of our aging seniors that the QUEST to enjoy life “Should Never Have to Stop”. Her ability to overcome Fear and Anxiety about travel… Makes “Bucket-List Dreams come true!

Contact Information

Website:   EliteCruisesAndVacationsTravel.comEliteCruisesAndVacationsTravel.com

E-mail address:   Kathy.shoaf@cruiseplanners.com

Phone: 219-608-2002

Additional Resources

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