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A New Perspective After Tragedy Hits – Dementia and the Golden Thread to Live Life Fully

Alzheimer’s Speaks Radio

with Kristiane Cates

A New Perspective After Tragedy Hits –

Dementia and the Golden Thread to Live Life Fully

Dementia: The Golden Thread to Live Life Fully

Thursday we are lucky to have the passionate and powerful speaker Kristiane Cates who is the Author of “The Golden Thread, A Memoir.”In the book you will hear her tragic story of how and when thirty seconds changed everything in her life.  Kristiane will share with us her journey with dementia and how her path to healing after her son’s death has helped her prepare for the effects dementia has had on her life. Her mission is to demonstrate brave, audacious grace when dealing with life’s challenges.

Contact Information For Kristiane Cates:

Website: KristianeCates.com          Twitter: @KristianeCates

InstaGram: Kristiane Cates              FaceBook: Kristiane Cates

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Today we discussed the impact of humor and laughter as perceptions of both change as the disease progresses. I think you might be surprised at some points made by those living with dementia during this conversation.

Click Below to Download the Tips

 

Insights from Arthur’s

Here is One of Many Free Video Tips

Define What “Quality” Means to You

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

We want what you want when it comes to figuring out solutions to the challenges we all face on our personal Alzheimer’s journeys. Take the critical issue of recruitment for clinical trials. How do you figure out whether you or a loved one is eligible, or if there is even a trial or study close to home? These simple online tools from two trusted A-List partners will help you get started, so just click below to get started.


Roobrik: click here to take a free, 4-minute assessment to learn more about clinical research and decide whether participating in a research study is right for you. You will be asked a series of questions to help you understand how factors such as age and health can affect which studies you might be eligible for, and what exactly is involved in clinical studies.

Antidote: click here when you are ready to look for a clinical trial. You will be asked a series of questions to determine which trials may be right for you.

Please give us feedback on your experience and look out for the next round of decision tree tools on issues like “Is It Still Smart To Drive” and “Is Homecare Right For You.”

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

 

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One of My Favorite Residential Homes for Dementia

I Don’t Endorse Products and Services Often,

But I Love This Company!

Arthur’s Residential Care has sponsored and supported the Memory Cafe Concept from the beginning I brought it to the United States.  The minute I suggested they become involved in launching one they jumped with both feet in the water and have never looked back. ACR not only graciously gave us space for meetings, but provided treats and additional facilitators as our one group expanded to three.  They have been so progressive in staff dementia training and creating moments of joy for both their residents and their families; which I must admit brings a smile to my face and a warmth to my heat every time.  I am so blessed to witness their work.  Kudos Arthur’s Residential Care!

Lori La Bey, founder of Alzheimer’s Speaks

 

Insights from Arthur’s – Here is One of Many Free Tips

 

Dementia Cruise of Compassion & Camaraderie

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

 

Click Below to Download the Tips

Take The Survey Now and Help Define

What “Quality” Means to You and Your Family!

Open To All In The U.S.

University of Minnesota PhD candidate Heather Davila describes a survey to get input from people age 55+ family members, and professionals who work in the field of aging services about which aspects of “quality” in aging services matter most.

To take the survey go here: www.tinyurl.com/Qagesurvey

Contact: Heather Davila,

Email:  wood0132@umn.edu

Find a Memory Cafe & Get Resources

Read More to Get Resources

Push Research Forward. Join the A-List

An Important message from our friend Meryl Comer:

Only twice in my twenty plus years as an Alzheimer’s caregiver has a doctor ever asked whether I was doing okay. Yet my husband would have never made the clinic appointment on time if I had not gotten up extra early to bathe, dress, feed, manage his resistance and drive him there. Now here’s a chance to be heard!

Researchers from the Mayo Clinic want to learn what matters most to you when you go to the doctor with your loved one. They need volunteers for an online focus group who are current or former caregivers for a loved one with dementia.

Click here to learn more about this important Mayo Clinic caregiver study asking what matters to you when you go to the doctor with a loved one.

Study participants will be asked to join an online focus group and answer several questions over a week and a half posted by the moderator. Participants can choose to remain anonymous. Their goal is to help healthcare providers better support and communicate with caregivers by learning:

  • How health care providers can best help caregivers provide optimal care to loved ones while maintaining their own health.
  • How involved caregivers want to be their loved ones’ healthcare.
  • What the ideal “care team” looks like.

Please click here for more information about this important Mayo Clinic caregiver study.

Your opinions are critical to improving the experience for all caregivers when they accompany loved ones to doctor’s appointments. Let’s not miss this opportunity to make doctors tune into what matters to us.

Meryl Comer, A-List Team Member & 20-year Alzheimer’s care partner

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Independence Day – What does it make you think of?

Independence Day –

What does it make you think of?

For me, it triggers many things.  Fireworks and parties seems to be on the top of the list for most I talk to, yet this year I’m going a bit deeper for myself.  It’s a time of reflection on what it took to found the US and make it independent.  It’s about the price it cost us and how I want to look at being independent differently going forward.

I think of the bravery it took to break away and go away from a country many thought wasn’t working for them anymore and to create a new environment. To break away from a lifestyle which was the only one they ever knew.  To  reach for a vision they believed in with a passion.

Yet, as I look at what our country has become, I now want to break away from it, just as I have tried to do with dementia.  To stop accepting the status quo as normal, good and acceptable.  To try to improve the quality of care for those diagnosed and those caring for them.

Some may ask, but how does one start.  There in hand is your answer.

JUST START! 

Stop being afraid of failure and fear.  The only real thing worth being afraid of is…

You not being all you can be.  You not standing up to your own values and You not using your talents.

As I have submerged myself in the world of dementia, I have found that what is lacking is not so much dementia specific but, rather our Care Culture.  This is something not really identified, appreciated or talked about.  So I ask you who have taken the time to read this to think about your own life – family, work, friends, community… and really do some soul-searching on how you as an individual can make our country strong and proud again, by becoming independent.  By becoming a leader.  If you are like me you don’t even like to listen to the news as it is all about disrespect and harm to others.

If we individually concentrate on our Care Culture, we can each take small steps which will have a big impact.  If we believe in the ripple effect of one.  If we understand and embrace the power each person holds to create change; not only with ones self, but our personal sphere of influence and the world as a whole.

If we all choose to step up and step out to make a difference.  If we choose brilliance and love verse destruction and hate.  If we choose acceptance verse judgement.  If we choose trust over defiance. If we choose a better life for ourselves and others.

Become independent in thoughts, words and actions to make this world a better place.  One we can be proud of. One which lifts souls verse slamming them to the ground. Do so, in any area that aligns with you and your authentic being will be seen, heard and noticed.

When looking at the fireworks tonight, think of all that is possible. All you can change, if you choose to believe in the power of yourself.

May we all have a wonderful and safe 4th of the July.  I look forward to watching our care culture shift to one of compassion and collaboration in the coming years ahead.

Dementia Friendly Cruise –

Find Out What All the Excitement Is About!

Watch The Short Video Below

We are honored by your response to our offering of the Dementia Friendly Symposium and Cruise and we are encouraging people to book their cabins before we are sold out!

For more details on the symposium and cruise go to https://alzheimersspeaks.com/cruise-with-us

Click here for the Symposium Program

Kathy Shoaf the travel agent handling the symposium and cruise can be reached at: 219-608-2002 or email her at Kathy.Shoaf@CruisePlanners.com

Color Your Mind by Maria Shriver

“This is an amazing book which brings a holistic approach to engaging those with dementia and their care partners.  I love how Maria intertwines the simple yet creative works of coloring which has been embraced by so many people looking for a peacefulness within and now has created a product specifically designed for those living with dementia.”

~  Lori La Bey, founder of Alzheimer’s Speaks

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Alzheimer’s Speaks Offers Free Tips When Dealing with Dementia

Alzheimer’s Speaks Offers Free Tips

When Dealing with Dementia

Contact us and we will email you the brochure.

Learn how you can host a screening and talk back of “His Neighbor Phil.”

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Hug a Father – Let Them Know They Are Appreciated

Hug a Father – Let Them Know They Are Appreciated

Throughout my life my Dad was a very special man, not just to our family but so many.  The stories friends would tell me later in life about how my Dad made them feel part of our family when they felt lost and alone in their own family.

My Dad allowed us all to dream, supporting us to go after our goals, never doubting our capabilities.

Dad was quick with a smile and a joke.

He was always there to help a friend or stranger.

He cared for my Mother with dementia and lead by example.

Dad had strong family values to the end.

I so miss my Father, but yet the lessons he taught through kindness will forever be with me.

May ever child have a man like my Father in their life.

We must all respect and know deep in our hearts being a Father just like being a Mother; isn’t just a biological thing.

Being a Father is about being a good person in heart and soul.

We all need good Father role models at all ages and stages of life.

So with great love and deep appreciation I say,

“Happy Father’s Day” to all the wonderful men out there.

Learn how you can host a screening and talk back of “His Neighbor Phil.”

 

 

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Take a Trip to DementiaLand” with the Amazing Author Suzka

 Take a Trip to DementiaLandwith Suzka

On Alzheimer’s Speaks Radio

Today we are lucky to have author Suzka with us.  She is a painter, muralist, set designer for the Monterey Jazz Festival, cartoonist and now… writer.  We will have a wonderful conversation about her book “Wonders In DementiaLand,”  which is an Intimate and Whimsical Account of Dementia, Memory Loss, Caregiving and Dancing Gypsie.

Lori La Bey, Maria Shriver and Suzka at the Move for Minds Event June 4th, 2017

Contact Information For Suzka

To Purchase the book ‘Wonders In Dementialand’available on Amazon

Website: http://www.dementialand.com

Facebook: dementialand

Facebook: Suzka Susan Collins

eAddress: suzka@dementialand.com

Twitter: dementialand

Instagram: Dementialand

Pinterest: Dementialand

Dementialand™

 

 

 

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Move for Minds with Maria Shriver

Move for Minds with Maria Shriver

WHAT IS MOVE FOR MINDS?

  • On Saturday, June 4th, Equinox Sports Clubs in eight different cities across the United States will become ground zero for a one of a kind experience to support women’s brain research into Alzheimer’s and raise awareness of the fact that Alzheimer’s disproportionately impacts women. For the second year, this unique event brings together two powerhouse brands in Equinox and Maria Shriver.
  • Participants in Equinox Sports Clubs in New York, Los Angeles, Orange County, San Francisco, Boston, Dallas, Miami and Washington, D.C. will fundraise to participate in a one-hour work out specifically designed by Equinox’s top fitness experts to optimize both body and brain health. This workout marries the benefits of yoga and mindful meditation with the adrenaline rush of cross training.
  • Following the innovative brain/body workout, attendees will engage with one another socially in a groundbreaking marketplace where they will get to meet and hear from leading superstars of brain research, fitness, food, nutrition, stress, sleep and caregiving.
  • Move for Minds is an unprecedented gathering of empowered women, men and leading experts who believe funding women’s brain research will help us solve the Alzheimer’s epidemic and answer the question: Why are so many people getting Alzheimer’s and why are the majority of them women?

WHEN WILL IT TAKE PLACE? 

  • Saturday, June 4th from 10 a.m. to 1 p.m. in each of the cities except for Dallas (1-4 p.m.).

WHO WILL BE THERE? 

  • Some of the superstars joining participants from coast to coast include include Maria Shriver, Ann Romney, Dr. Lisa Genova, Dr. Daniel Amen, Dr. Roberta Brinton, Dr. Adam Gazzaley, Dr. David Perlmutter, Dr. Richard Isaacson, Dr. Dena Dubal, Dr. Reisa Sperling, Bob Roth, Mallika Chopra, Brooke Burke, Leeza Gibbons,  Liz Hernandez, Dr. Pamela Peeke, Mary Hart, Moll Anderson, Lori La Bey and others.
  • Participants include over a thousand women and men of all ages who come together for an empowering, educational and inspiring day of exercise and information. They are intent on learning about brain health and the lifestyle choices to make when we are young to better protect our brains as we age.
  • Participants in the day’s activities must be at least 16 years of age. Anyone under 18 years old, must be accompanied by an adult.

WHERE WILL THE MONEY GO?

  • 100% of the funds raised by the over 1,250 attendees and their network of supporters will benefit The Women’s Alzheimer’s Movement, a non-profit devoted to raising awareness of the fact that women are disproportionately affected by Alzheimer’s disease and raising funds to research why that is.
  • Proceeds will support women-based research efforts at leading Alzheimer’s research institutions and in the labs of individual scientists.

HOW TO SIGN UP: 

  • Every attendee must sign up at MoveForMinds.org where they select a city of their choice, and register as a fundraiser. They then reach out to their networks via email and/or social media to raise at least $250 to support WAM. Gifts will be awarded to the highest fundraisers in each club.
  • If people want to form a team, they can call Samara Metz at (310)873-5000, and she will help them establish one. A team must consist of a minimum of 5 people, each of whom must have their own fundraising page and pledge to raise a minimum of $250.
  • If you cannot attend the event, donate to someone who can. Go to MoveForMinds.org and look for a friend or person you want to support. Or you can join donate to Maria Shriver’s page. If you’d like to sponsor a caregiver to participate in Move for Minds you can underwrite her $250 fundraising minimum at MoveForMinds.org.

ABOUT WOMEN’S BRAIN RESEARCH & ALZHEIMER’S DISEASE  

  • There are 5.4 million people living with Alzheimer’s in America
  • Every 66 seconds someone in the United States develops Alzheimer’s and two thirds of them are women.
  • A woman in her early sixties is about two times as likely to develop Alzheimer’s than breast cancer over the remainder of her life.
  • By 2050, 16 million brains will have fallen victim to Alzheimer’s and a majority of them will belong to our mothers, sisters, daughters and friends.
  • Alzheimer’s is the only disease among the top ten causes of death in America that cannot be slowed, prevented or cured.
  • Of the top killer diseases, Alzheimer’s disease research is severely underfunded. In 2017, the NIH will spend $910 million in Alzheimer’s research while it spends over $6 billion on cancer research, $1.3 billion on heart disease research and $3 billion on HIV/AIDS research.
  • Per a recent WebMD and Shriver Report Snapshot: Insight into Alzheimer’s Attitudes and Behaviors, while 96% of survey respondents have heard of Alzheimer’s, nearly half aren’t concerned with getting the disease and only 11% have asked their doctors about preventing it.

ABOUT THE CONNECTION BETWEEN YOUR BODY AND YOUR BRAIN

  • In fact, in a recent study of Americans at a higher risk for developing Alzheimer’s disease due to the presence of the APOE 4 gene found that the brains of the high risk individuals who exercised regularly looked much more like the brains of volunteers who were not predisposed to Alzheimer’s disease. Meanwhile the brains of sedentary high-risk subjects appeared to be slipping, structurally toward dysfunction. http://well.blogs.nytimes.com/2014/07/02/can-exercise-reduce-alzheimers-risk/?_r=0
  • Regular exercise also helps those coping with the disease and their caregivers and research shows that fit patients and caregivers have far less anxiety, irritability and depression that those who did not work out. http://www.nbcnews.com/health/aging/better-treatment-alzheimers-exercise-n397461
  • Both yoga and meditation are ‘brain exercises’ that engage different parts of the brain through breathing, movement, changing, visualization and concentration. This forces the brain to develop new connections and stimulate neuroplasticity which prevents physical brain degradation. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • Chronic stress and related stress hormones could negatively affect brain structures important for memory and cognition, like the hippocampus. Chronic stress is also associated with inflammation in the body and in the central nervous system/brain that is linked to Alzheimer’s disease and other disorders of aging. Yoga can reduce stress hormones and inflammatory factors, and teach an individual over time how to cope more effectively and protect the body from going through the stress response. http://www.yogajournal.com/meditation/benefits-yoga-meditation-alzheimers-dementia/
  • A 2013 study showed that as little as 15 minutes of daily meditation can significantly slow the progression of memory loss. Eight weeks after beginning a regular practice, participants had improved functional connectivity in the default mode network (ie the part of your brain that never shuts down) and slowed shrinkage of the hippocampus (ie the part of your brain responsible for memory which is affected by Alzheimer’s). http://www.prevention.com/health/brain-health/mindfulness-meditation-slows-progression-alzheimers-and-dementia

 

 

 

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