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Archive for the ‘Inside Alzheimer’s’ Category

Exploring Lewy Body, Loved Ones and Poetry

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Listen in. I know you will be glad you did!

The Radio Show Goes Live – Thursday – Nov, 14th 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on Nov. 15th at 6am in Australia

Lori La Bey host of Alzheimer’s Speaks Radio talks with poet Su Croll who shares her experience of caring for her Father with Lewy body dementia.  Her prose express the range of emotions when caring for someone with a chronic illness and insights as to the caring journey itself from many angles.  Listen in anytime once the show goes live as all episodes are archived for your convenience.

Hands and Face by Su Croll

It is true. I will remember the hands and face.

The whole frustrating trickery of the thing.

My mother tells how she dogged him

to get all numbers limned at their true points.

Noon and midnight made for due north.

Six headed south. The clock becoming

a demented compass, a supposed proof

fumbled for in that doctor’s office

right before my dad was officially diagnosed.

I don’t know where his attempted drawings

of clocks are today. I don’t know how

that suddenly uncertain face triggered

his ragged response. Three and nine left off

or the hands wayward and drawn in the blank

outside the clock. I don’t know why that wrong

clock condemned him, tripped him up, making

that day the day they told us with all certainty

it was dementia.

Contact Su Croll at:

Website:  https://sucroll.wordpress.com

Book:  https://www.turnstonepress.com/books/poetry/cold-metal-stairs.html

FaceBook:  https://www.facebook.com/su.croll.9 

Thank you for joining Alzheimer’s Speaks Radio.  We hope you subscribe and share this episode with your family, friends, clients and colleagues.

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Check Out Research Outcomes
Click Above to Get a Discount

Read Full Post »

Dementia: Molds, Toxins, Fungi and Heavy Metals. What’s Going On?

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Watch the Video Interview Below

The Radio Show Goes Live – Thursday – Oct. 31st 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on Nov.1st at 6am in Australia

Click Above To Go To The Show

Host Lori La Bey talks with Dr. Mary Kay Ross, MD, FACEP the founder of the Brain Health & Research Institute (BH&RI) and Kerry Mills, MPA, MCHC who is a master certified health coach, award-winning Author.  Today their focus will be on the relationship between the various types of dementia and molds, toxins, fungi and heavy metals.  This promises to be a very interesting topic, one which is gaining a lot of attention. 

Come join us and listen and learn.

Listen in. I know you will be glad you did!

Contact the Brain Health & Research Institute 

Website:  www.BrainHealthandResearch.com

Email: info@brainhealthandresearch.com

Phone: (800) 936-1272

Address: 200 W. Mercer Street, Suite E506
Seattle, WA 98119

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

What if Your Care Partner is No Longer Able to Care For You?

Listen in. I know you will be glad you did!

Today Lori La Bey, founder of Alzheimer’s Speaks and Dementia Chats, along with Eilon Caspi a Gerontologist and Dementia Behavior Specialist facilitate a conversation with the true experts, those living with a diagnosis of dementia. Thank you to our experts: Truthful Loving Kindness, Bob Savage, Paulan Gordon, Micheal Ellenbogen, Craig Hanke and Harry Urban for their insights on this important topic.

“What if Your Care Partner is No Longer Able to Care For You?”

Todays topic is very important to families. Who are you going to ask to care for you and why? You will see each person with dementia’s has various living situations and relationships with people. Who and why will they pick to care for them? Discussing backup plans and roles is critical and can be uncomfortable, yet well worth the time to discuss in the long run.

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Upcoming Public Events with Lori La Bey

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

World Dementia Council Requests Your Help

Complete Survey By Oct. 30th, 2019

                                            Diana Pierce and Lori La Bey

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

Dementia Film – Now & Again

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

The Show Goes Live – Tuesday – Oct. 22nd 2019 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 23rd at 6am in Australia

Listen in. I know you will be glad you did!

Today our host Lori La Bey speaks with Alex Leff about why he feels it’s important for young people to get involved in dementia.  Alex and his brother explored their Grandfather’s past by retracing a bike trip he took.  Alex will share what they found and how it affected them.  Learn how you can support his film “Now and Again.”

Contact Information for Alex Leff:

Website:  https://www.ashbournefilms.com

Trailer:  https://vimeo.com/363409664

Crowd Funding Page:   https://www.seedandspark.com/fund/nowandagain#story

Coming to Reading & Lexington MA – Nov. 13th & 14th

Upcoming Public Events with Lori La Bey

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

World Dementia Council Requests Your Help

Complete Survey By Oct. 30th, 2019

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

Hearing Loss and Dementia

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Click the graphic above to listen to the radio show Tuesday October 15th, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 16th at 6am in Australia

Resource Information

Deaf and Hard of Hearing Services

800-657-3663 (voice)

651-964-1514 (videophone)

dhs.dhhsd@state.mn.us (email)

American Speech-Language-Hearing Association (ASHA)

Minnesota Academy of Audiology

612-470-8191 (voice)

administrator@minnesotaaudiology.org (email)

Johns Hopkins Bloomberg School of Public Health


(Untreated hearing loss and risk of cognitive decline and dementia in older adults)

National Institutes of Health

 (In the search box, type in hearing loss and dementia)

Hearing Loss Association of America (HLAA)

301-657-2248 (voice)

Products for hearing loss

Hearing aid loss prevention:

ADCO Hearing Products

Westone Hearing Healthcare

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Elmhurst, IL – Oct 16th & 17th

Coming to Minnetonka, MN – Oct. 19th

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

World Dementia Council Requests Your Help

Complete Survey By Sept. 30th, 2019

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

Alice’s Clubhouse

Alzheimer’s Speaks Radio – Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

Click the graphic below to listen to the radio show Thursday October 10th, at 2pm EST, 1pm CST, 12pm MST, 11am PST & 7pm London and on the 11th at 6am in Australia

Diane Sancho of Alice’s Clubhouse joins Lori La Bey on Alzheimer’s Speaks Radio.  Learn about this wonderful Medical Model Adult Day Program which enriches lives and supports not only the person attending the program but their family.  I think you will be very impressed with Alice’s Clubhouse.

Contact Information for Diane Sancho of Alice’s Clubhouse

Website:  www.alicesclubhouse.com

Email:  diane@alicesclubhouse.com

Phone: 843.284.8367

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Elmhurst, IL – Oct 16th & 17th

Coming to Minnetonka, MN – Oct. 19th

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

World Dementia Council Requests Your Help

Complete Survey By Sept. 30th, 2019

                                            Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

A Shift in Perspective: Different, Not Less

Below is an article by Author, Trish Laub who will be guest on Alzheimer’s Speaks Radio October 29th at 2pm ET, 1pm CT, 12pm MT, 11am PT, 7pm London and 6am in Australia on the Oct 30th.

Mark you calendars to listen to the show.

A Shift in Perspective: Different, Not Less

By Trish Laub

I think for a moment my heart stopped. Had I really been told that my dad was being treated for Alzheimer’s? I hadn’t really had time to absorb the news when I heard Maria Shriver, who has worked to spread awareness of Alzheimer’s, speaking about her father who had been diagnosed with the disease. She shared some valuable advice that she had been given: to accept her father as who he was at the time, just as she would have had he not been living with Alzheimer’s. That one piece of advice, intended for someone else, saved me! That was the start of my shift in perspective  —  that even with Alzheimer’s, the possibilities were limitless for my dad to have a meaningful life.

I imagine that I knew that there was a stigma about Alzheimer’s looming somewhere. But I had never known anyone with the disease, and I had no investment in the stigma. What I would come to learn through my experience with my dad was that the Alzheimer’s stigma is unfounded, for a variety of reasons, and is not only based on fear but also generates it.

Here’s what the stigma, and its negative ramifications, mean to me:

S-T-I-G-M-A

Shortsighted limitations => causes missed opportunities for quality of life

Taboo => thwarts supportive communication

Ignorance => results in fear

Genetic cause => exaggerates heredity factor

Memory erased => minimizes reinforcement of old or creation of new memories

Applicable to all => eliminates individuality and uniqueness

I had heard one piece of the stigma, that Alzheimer’s is a death sentence. In one pivotal moment, I had the thought “but perhaps Dad will die from something other than Alzheimer’s.” He had heart disease, and people died from accidents all the time. I didn’t want either alternative for my dad, but it opened up a new way of thinking for me. Alzheimer’s would be a factor in his life, but it might not have the final say.

Another pivotal moment for me was hearing that a doctor told Maria Shriver, “Once you’ve seen one case of Alzheimer’s, you’ve seen … one case of Alzheimer’s.” I was now ready to fight against any preconceived notion about life with Alzheimer’s, to find the uniqueness, and I refused to buy into the stigma.

Here’s how I saw my mission:

R-E-F-U-S-E-D

Rise to the challenges and recruit a care team to help

Educate myself

Fight for what’s best for my loved one

Unknown may not mean unbearable

Solutions abound to solve problems that arise

Engage my loved one wherever they are in that moment

Different does not mean less

I committed to doing everything in my power to see that Alzheimer’s was going to have the smallest-possible negative impact on my dad’s life. I had the great clarity that my dad was still my dad, that he might be different, but not less. He was not a disease, and Alzheimer’s was not his identity. I would work to keep his life as close to the way he would have lived without the disease.

My shift in perspective would go on to dictate that Alzheimer’s was not going to define the man who loved me unconditionally, as Alzheimer’s did not have that power. It is a disease, not a man, and certainly not my dad. I knew that I was in uncharted territory, but I was going to find my way. What I found was that even when living with Alzheimer’s, there are limitless possibilities to live a meaningful life, and that was a reality for my dad.

Sadly, the stigma associated with Alzheimer’s continues to exist. My own mom didn’t want anyone to know that Dad was living with Alzheimer’s, because she feared that others would see him as less. That is heartbreaking. The stigma is unfounded, based on outdated information, before the importance of diet, supplementation, exercise and brain stimulation were understood.  It doesn’t help that few want to talk about it. The stigma continues to propagate fear of being diagnosed with Alzheimer’s or of having a loved one diagnosed with it.

Understanding Alzheimer’s is important. Knowledge empowers you with a clear understanding of what you are facing and reduces fear so you can analyze your options with a clear head and make educated decisions. We need to come out of the shadows and talk about what Alzheimer’s is and what it is not.

I believe that my dad’s success in continuing to live a meaningful life with Alzheimer’s was largely due to my family’s rejection of the stigma and fear, and our willingness to shift our perspective from limitation and deficit to limitless possibilities. If it was possible for my dad to live a most meaningful life to the end with Alzheimer’s, then it is possible.

Trish Laub will be a guest on Alzheimer’s Speaks Radio Oct 29th.
Website: www.trishlaub.com Email: info@trishlaub.com

Trish Laub is an expert on living with dementia and navigating the maze of care options and decisions for dignified care through end of life. Trish will be a guest on Alzheimer’s Speaks Radio Oct 29th.

Alzheimer’s Speaks Radio – Shifting Dementia Care from Crisis around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites.

UPCOMING PUBLIC EVENTS WITH LORI LA BEY:

Coming to Elmhurst, IL – Oct 16th & 17th

Coming to Minnetonka, MN – Oct. 19th

Coming to Reading & Lexington MA – Nov. 13th & 14th

Coming to Anniston, AL – Nov. 21st

Learn More or Schedule Your Next Event with Lori La Bey https://www.alzheimersspeaks.com/contact-us

See what LeadingAge has to say about Lori La Bey

 “Feedback from the conference planning committee and our leadership team was extremely positive. Many attendees commented that she was one of the best speakers they had heard.” 

Pat Sylvia, Director of Education & Member Development LeadingAge WA

For More Testimonial

Diana Pierce and Lori La Bey

What Questions Do You Have For Those Living With Dementia?

Let Us Know and We Will Do a Chat on The Topic!

Juggling Dementia Care &

Finding Balance

Downloadable Tips Below

Fight Alzheimer’s Together

Find A Memory Café In Your Area

Push Dementia Forward – Participate!

Read Full Post »

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